howtobeapersonwithfibro
howtobeapersonwithfibro
How to Be a Person*
7K posts
*with a chronic illness // Jamie (she/they). 20s. Chronically ill with fibro, POTS, CFS and IBS + others. Cane, rollator, & manual wheelchair user. Reader, writer, quote-lover. picrew avatar credit @lunevani
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howtobeapersonwithfibro · 2 days ago
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Stretching isn’t enough I need to be able to disassemble my body like legos
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howtobeapersonwithfibro · 2 days ago
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Wish humans evolved from mustelids. Imagine how curled up we could sleep. Imagine the tubes we could explore.
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howtobeapersonwithfibro · 2 days ago
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If you’re reading this, this is a gentle reminder that you are enough – as is, right now. 
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howtobeapersonwithfibro · 4 days ago
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I do not respect the grind. Go to bed
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howtobeapersonwithfibro · 4 days ago
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my best tip for anyone trying to get back into reading is to remember that you can read books to avoid other responsibilities in ur life and it can become a vice if you play your cards right
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howtobeapersonwithfibro · 4 days ago
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really everyone you love has something miserably wrong with them or an obvious flaw that won't ever be fixed but like it's up to you what kind of person you can and cannot deal with. someone in my family has anger issues which I can handle and diffuse with no problem, but a person who can't tolerate yelling could not be close to him. another person I know is very anxious & needs constant reassurance and she gets along famously with gentler and more straightforward people than myself, but I can't handle being second guessed all the time. someone who is loosey goosey with their morals wouldn't bother me, but a person with a profound sense of justice makes me feel afraid of getting on their bad side. none of these traits actually make someone a bad person & just because there are personalities I can't handle doesnt mean I'M a bad person either. litany against callout posts for stupid shit and simple incompatibilities we all have to live on this earth together & need to learn how to deal with each other
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howtobeapersonwithfibro · 4 days ago
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daily affirmations:
i am kind
i am in control of my emotions
it does not bother me when someone is in the kitchen while i was planning to be in there alone
everyone in the house has the right to be in the kitchen
i am kind and in control of my emotions even when someone is in the kitchen while i was planning to be in there alone
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howtobeapersonwithfibro · 4 days ago
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Here, You Shall Live Forever
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howtobeapersonwithfibro · 4 days ago
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if you want to materially aid palestinians undergoing genocide, please consider donating to the zahrat alhanun mutual aid fund. i personally am in contact with some of the organizers and can attest to the work they do. they're currently low on resources for the palestinian students and families that rely on them. you can learn more about ZAMA here! please share widely!!!!!
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howtobeapersonwithfibro · 5 days ago
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having weather sensitive migraines with other local friends who also get migraines does sometimes make a group of people act like we can feel an evil miasma spreading over the land because antichrist has just been born. but like every week. we are texting each other like yeah i feel bad plus all of the homunculi i made have exploded and all my mirrors turned to opaque red glass like upright pools of blood and the other person will text back like wow that's bad! sounds like i should head on over to mcdonald's for fries and a coke
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howtobeapersonwithfibro · 5 days ago
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Planettes No.5: Jupiter
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howtobeapersonwithfibro · 5 days ago
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anyone want my nervous system? i am getting rid of it due to the fact that i no longer wish to be nervous
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howtobeapersonwithfibro · 5 days ago
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Things not to ask your gender ambiguous relative (or anyone, because it's none of your business):
Hey why are you wearing another shirt under that aren't you hot
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howtobeapersonwithfibro · 7 days ago
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My cat has always had the worst timing. He'll jump up on my desk to cuddle at the very moment I'm about to get up to urgently go to the bathroom. He'll try to curl up with me in bed the very instant I need to get up and refill my glass of water and put some vaseline on my dry, sore lips. He'll ask me to play just at the second I need to end my break and get back to work.
The poor guy, right? From his perspective, he approaches me for love and I immediately get up and leave. I feel awful about it. I try to reassure him first that I love him and he just has bad timing, but I know it can't feel nice, and also he's too big of a dumbass to understand that me getting up and walking away isn't triggered by him coming to say hi.
Except today I realized something: Yes. It is.
I was sitting at my desk watching a video and up jumps the boy with a mrrp, head positioned for pets, when I realized I urgently had to get up and go to the bathroom. As I opened my mouth to say "bad timing again, buddy," it finally occurred to me that... I definitely already had to go. I for sure did not "suddenly" have an urgent need for the toilet out of fucking nowhere.
I didn't realize I needed to go because my brain is piloted by angry gremlins and they were more interested in watching the video than letting me know about an important bodily function.
My cat coming to say hi is a regular trigger that pulls me back into my body from whatever bullshit I'm hyperfocusing on. And that's when I realize all the warning lights are flashing on the dash. Need water. Need food. Need toilet. In pain: need to change position. Holy shit look at the time, need to get back to work!
I now wonder how much worse I'd function if I didn't have a furry little guy in my apartment to regularly remind me that I exist in a physical form which requires maintenance and also that time passes.
I do still feel bad for walking away from him every time, but I have started just inviting him to come with me. Hey bud, sorry, I have to stand up right now, but come follow me while I get a glass of water. You coming? Come on! And rewarding him with pats for following. It's better than just walking away, I think.
Anyway cats (or other pet of your choice that requires frequent attention)? 10/10, strongly encourage having a little guy to bother you now and then, especially if you have ADHD and live alone.
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howtobeapersonwithfibro · 10 days ago
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Abled people don't get to decide whether my experiences of ableism are valid or not. Period.
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howtobeapersonwithfibro · 10 days ago
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Happy pride from the sassy chickens!
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howtobeapersonwithfibro · 10 days ago
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big fan of stories that, while undoubtedly being about the power of friendship, acknowledge that the power of incredible violence is just as important
the love was there. the love changed everything. the crowbar helped also
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