lupus-esque - Tumblr blog

lupus-esque · 2 years

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Hi there hunniez 🥰

Today I wanted to share part one of my prednisone journey since my diagnosis.

Tumblr did a weird thing when I added text box’s to my photos, so I hope you guys can read it well 😬 sorry….

Anyways, I’m a petite girl. I am 4’9” and at the time of my diagnosis I was probably 118 lbs. that was my normal. The heaviest prednisone made me was 127 lbs in 2019. Overall, mostly my face was what looked round. “Moon face” they call it 🙄, but I say “chipmunk cheeks” 🐿

Obviously the more steroids I’m on, the more water weight my face retains. That’s why I HATED when I would flare up again; and the flares were always dramatic 😐

The less steroids or none at all had me back to seeing a jawline, which always made me happy. I really don’t think I’m vein, but have always been small and fit, and seeing my face plump up was definitely an insecurity of MINE. We all have insecurities and loving myself through the prednisone process is something I always struggled with. Even as I type this on 24 mg of prednisone, I have to keep reminding myself that I am beautiful despite what this steroid’s side effects may cause. It’s super hard though at times, don’t get me wrong.

I’m looking forward to being tapered off of prednisone fully. Aside from the weight gain, it’s long term effects can be very damaging ☹️ (osteoporosis). So, hopefully the Lupus calms TF down so ya girl can have a jawline and strong bones 🤣🤣🥲

Love u hydroxychloroqueenz & enjoy those photos of my weight fluctuating faces from 2017-present 💜

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lupus-esque · 2 years

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🤣🤣🥲

“listen to what your body wants” that mf literally wants me dead what do you mean

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lupus-esque · 2 years

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I will keep saying it: KNOWLEDGE IS POWER!

we all learn more and more about anything. Lupus was something I had no clue about except that Selena Gomez has it. But I chose to learn and now I know more; I am still learning everyday. Be patient with yourself; be kind.

“Forgive yourself for not knowing what you didn’t know before you learned it.”

— Maya Angelou

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lupus-esque · 2 years

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PREACH 🙌🏼

A huge pet peeve of mine is when someone thinks they know the answers 😤

don’t give disabled people unsolicited advice about their health when you know nothing about it

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lupus-esque · 2 years

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💜💜💜

sensually places an ibuprofen on your tongue

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lupus-esque · 2 years

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Fun fact!

Lupus means Wolf in Latin 🐺

Back in the 13th Century when Lupus was discovered at its earliest, a doctor named Lupus it’s name due to the butterfly rash seen on patients faces. Apparently to him it resembled a bite from a wolf. Hence naming Lupus, Lupus.

Listen to the eyes

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lupus-esque · 2 years

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Hi warriors & hydroxychloroqueenz 💜

I figured that I would post about when I first got diagnosed w/ SLE.

I know I had symptoms way before being diagnosed, but it all made sense after the official diagnosis.

I was diagnosed with SLE in December of 2017; I was 18 years old. In my first semester of college all the way in FL when home was in NYC. I was losing my hair A LOT & I was super sleepy all the time. Eventually the hair loss got so bad and depressing that I flew out to NYC to find out what the hell was wrong with me. After countless blood work, urine tests, and doctor visits, I was finally diagnosed with Systemic Lupus Erythematosus (SLE).

I was so confused bc I only heard about Selena Gomez having lupus, so I did my research instead of crumbling into sadness; KNOWLEDGE IS POWER. I cut all my hair due to the crazy thinning I had and embraced the new me as well as took back my control.

This was the beginning of my Lupus journey, thanks for reading 💗