#lupus disease

[lupus-esque]

Hi warriors & hydroxychloroqueenz 💜

I figured that I would post about when I first got diagnosed w/ SLE.

I know I had symptoms way before being diagnosed, but it all made sense after the official diagnosis.

I was diagnosed with SLE in December of 2017; I was 18 years old. In my first semester of college all the way in FL when home was in NYC. I was losing my hair A LOT & I was super sleepy all the time. Eventually the hair loss got so bad and depressing that I flew out to NYC to find out what the hell was wrong with me. After countless blood work, urine tests, and doctor visits, I was finally diagnosed with Systemic Lupus Erythematosus (SLE).

I was so confused bc I only heard about Selena Gomez having lupus, so I did my research instead of crumbling into sadness; KNOWLEDGE IS POWER. I cut all my hair due to the crazy thinning I had and embraced the new me as well as took back my control.

This was the beginning of my Lupus journey, thanks for reading 💗

[drizzeltheraincat]

Lupus is fun because you can age overnight.

Will I wake up 27? 85? 102? Who knows? Not me!

[qilin27]

I agree that JKR was wrong to make being a werewolf an allegory for AIDs; but I also have to admit that I would find it absolutely hilarious if she made it an allegory for Lupus.

[izyjean]

I have lost so much weight. I’m 102.

Please take care of yourself, it comes back to bite you. 💛

[suguruslut]

Title: i’ve got a fever (can you check?)

Fandom: Haikyuu!!

Ship: Daishou Suguru x Tetsurou Kuroo

Rating: Explicit

Chapters: 4/8

Current Word Count: 10,137

Series: Part 8 of Suguru ships, part 13 of Haikyuu song fics galore

Summary:

While working as a nurse, Kuroo crosses paths with his high school enemy, Daishou Suguru, who has recently quit his professional volleyball career and cut off all contact with his friends and team members. Trying to be a mature adult, Tetsurou offers his friendship to the struggling accountant suffering from a serious autoimmune disease, but ends up with a hell of a lot more than just 'friendship.'

LINK HERE

[stayfitlad]

Does lupus cause weight gain?

Click Here To Read

[surinderbhalla]

What is Lupus- Can it Be Prevented?

Our immune system is a remarkable defense mechanism, shielding us from harmful bacteria, viruses, and other intruders that can make us ill. However, in the case of lupus disease, our immune system mistakenly turns against our own body’s tissues, causing damage. These conditions are referred to as autoimmune diseases. Doctors have yet to uncover the exact cause of lupus, but they believe that…

[lupuswalk]

Couch wanted

We are working on organising the hike in the Netherlands leg. Are you or do you know someone that lives around our route? Does this person also have a comfy couch? We would love to hear from you and would love to stay for a (few) night(s)!

[hussyknee]

The young woman was catatonic, stuck at the nurses’ station — unmoving, unblinking and unknowing of where or who she was. Her name was April Burrell. Before she became a patient, April had been an outgoing, straight-A student majoring in accounting at the University of Maryland Eastern Shore. But after a traumatic event when she was 21, April suddenly developed psychosis and became lost in a constant state of visual and auditory hallucinations. The former high school valedictorian could no longer communicate, bathe or take care of herself. April was diagnosed with a severe form of schizophrenia, an often devastating mental illness that affects approximately 1 percent of the global population and can drastically impair how patients behave and perceive reality. “She was the first person I ever saw as a patient,” said Sander Markx, director of precision psychiatry at Columbia University, who was still a medical student in 2000 when he first encountered April. “She is, to this day, the sickest patient I’ve ever seen.” It would be nearly two decades before their paths crossed again. But in 2018, another chance encounter led to several medical discoveries reminiscent of a scene from “Awakenings,” the famous book and movie inspired by the awakening of catatonic patients treated by the late neurologist and writer Oliver Sacks. Markx and his colleagues discovered that although April’s illness was clinically indistinguishable from schizophrenia, she also had lupus, an underlying and treatable autoimmune condition that was attacking her brain. After months of targeted treatments — and more than two decades trapped in her mind — April woke up. The awakening of April — and the successful treatment of other peoplewith similar conditions — now stand to transform care for some of psychiatry’s sickest patients, many of whom are languishing in mental institutions. Researchers working with the New York state mental health-care system have identified about 200 patients with autoimmune diseases, some institutionalized for years, who may be helped by the discovery. And scientists around the world, including Germany and Britain, are conducting similar research, finding that underlying autoimmune and inflammatory processes may be more common in patients with a variety of psychiatric syndromes than previously believed. Although the current research probably will help only a small subset of patients,the impact of the work is already beginning to reshape the practice of psychiatry and the way many cases of mental illness are diagnosed and treated. “These are the forgotten souls,” said Markx. “We’re not just improving the lives of these people, but we’re bringing them back from a place that I didn’t think they could come back from.”

– A catatonic woman awakened after 20 years. Her story may change psychiatry.

[charming-onion]

Does anyone else have a disability that affects your everyday life but your afraid to tell people about it?

I have had Lupus for 6 years. It's progressing and I'm loosing dexterity and having dizzy episodes. My stamina has greatly decreased. I'm only 25.

I have no idea why but I'm embarrassed and afraid of being pitied and I don't want to let anyone know about my condition . Aside from my husband of course .

[lupus-esque]

Hi there hunniez 🥰

Today I wanted to share part one of my prednisone journey since my diagnosis.

Tumblr did a weird thing when I added text box’s to my photos, so I hope you guys can read it well 😬 sorry….

Anyways, I’m a petite girl. I am 4’9” and at the time of my diagnosis I was probably 118 lbs. that was my normal. The heaviest prednisone made me was 127 lbs in 2019. Overall, mostly my face was what looked round. “Moon face” they call it 🙄, but I say “chipmunk cheeks” 🐿

Obviously the more steroids I’m on, the more water weight my face retains. That’s why I HATED when I would flare up again; and the flares were always dramatic 😐

The less steroids or none at all had me back to seeing a jawline, which always made me happy. I really don’t think I’m vein, but have always been small and fit, and seeing my face plump up was definitely an insecurity of MINE. We all have insecurities and loving myself through the prednisone process is something I always struggled with. Even as I type this on 24 mg of prednisone, I have to keep reminding myself that I am beautiful despite what this steroid’s side effects may cause. It’s super hard though at times, don’t get me wrong.

I’m looking forward to being tapered off of prednisone fully. Aside from the weight gain, it’s long term effects can be very damaging ☹️ (osteoporosis). So, hopefully the Lupus calms TF down so ya girl can have a jawline and strong bones 🤣🤣🥲

Love u hydroxychloroqueenz & enjoy those photos of my weight fluctuating faces from 2017-present 💜

[mothfinite]

a message for my fellow chronically ill/physically disabled selfshippers:

your f/os love you even if you have to go through a lot of procedures/doctors appointments/labs

your f/os love you even if your symptoms are considered 'gross' or 'weird'

your f/os love you even if you have a 'gross' condition or one thats made fun of

your f/os love you even if you use mobility/disability aids

your f/os love you even if your spoons are low and makes things like personal hygeine hard to manage

your f/os love you even if youre struggling with pain and dont have energy for anything more than existing

your f/os love you and will always be there to support you and take care of you if needed, they love you for all of you ♡

pr0ship/c0mship dni

[patronsaintoffinalgirls]

god i hate to do this when so many other people are in need too, but we need help SO badly right now.

i had to quit my last job because im immunocompromised and i became severely ill after my coworkers got me sick twice in one month. im looking for a new job but work from home jobs are extremely competitive and it's hard to find an in-person job that i can perform despite my disabilities.

my fiancee and i saved enough to barely cover this month's bills, but there was recently a massive power outage due to a storm in our state and all our groceries went bad before they got the power turned back on. we tried to save what we could because it's all we had, but it gave me food poisoning which im still recovering from and so now we're officially out of food. i also have had to go to the ER for an unrelated issue (my severe asthma) and can't afford the short-term medication they prescribed me there, or the asthma meds that will prevent me from having to go to the ER again.

so we really, really need money to cover food & medications for this month. $400 is our starting goal for now. please spread even if u can't donate 😭💕 and please don't feel like u have to donate if you're struggling with poverty as well

(please ignore the deadname on my p*ypal...)

p*ypal: paypal.me/cryptidfriend105

c*shapp: $RaphaelSchmidt

v*nmo: crypticangels

[spoonful116]

Autoimmune disease: because I'm the only one who can kick my ass

[50stressballs]

Really wish all the “low impact” exercise routines I find weren’t hyper focused on like squats and lunges and shit. Like bro, my knees DO NOT WORK. They simply do not function properly. If I do 15 squats today I’m not going to be able to walk properly for literal days.

…….but like I’m so tired and I NEED to work out to help with my fatigue, and I don’t have the attention span for yoga right now. So I do the five bajillion squats anyway.

And I’m stupid so I forget that that’s a bad idea, so when I’m in an incredible amount of pain just walking up and down the stairs for the rest of the week, I’ll be like

[diversityinkidsbooks]

Why Does Mummy Hurt?

Helping Children Cope With The Challenges Of Having A Caregiver With Chronic Pain, Fibromyalgia, or Autoimmune Disease

The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.