#lupusfighter

[berberriescorner]

Sooo…I had a follow up with my hematologist.

Guess who starts yet another cycle of iron infusions next week?!

This lady 🤦🏾‍♀️. I’d go into detail, but at this point who knows what the real answer is 🤷🏾‍♀️. I’m just venting lovelies. Tired of being tired. Tired of being out of breath. Tired of lupus flare ups. Sick and tired of being sick and tired.

Yes, you get used to it, but man! I want to get back to a place where I have enough energy to do the things I love. Welp I guess it’s good I ordered all those damn books lmao! Now I’ll have new reading material for my infusion appointments😆😩🥹.

Okay enough of being an emotional lil bish. Back to being a sensitive thug😆😂🤣.

How my babies doing though?!

[primecashpro]

World Lupus Day!

On this special day, let's come together to fight lupus and improve the quality of life for those affected by it. Your strength and courage inspire us all. …

https://www.facebook.com/primecashofficial/

[lupus-esque]

Hi warriors & hydroxychloroqueenz 💜

I figured that I would post about when I first got diagnosed w/ SLE.

I know I had symptoms way before being diagnosed, but it all made sense after the official diagnosis.

I was diagnosed with SLE in December of 2017; I was 18 years old. In my first semester of college all the way in FL when home was in NYC. I was losing my hair A LOT & I was super sleepy all the time. Eventually the hair loss got so bad and depressing that I flew out to NYC to find out what the hell was wrong with me. After countless blood work, urine tests, and doctor visits, I was finally diagnosed with Systemic Lupus Erythematosus (SLE).

I was so confused bc I only heard about Selena Gomez having lupus, so I did my research instead of crumbling into sadness; KNOWLEDGE IS POWER. I cut all my hair due to the crazy thinning I had and embraced the new me as well as took back my control.

This was the beginning of my Lupus journey, thanks for reading 💗

[sanjaysamanta500]

🤗🤗🤗🤗 Late post. 30th December 2022 . . . . .. . . . . . . . . . . . . . . . . . . . . . .. . . . . . .. . . . . . . . . . . .#selfphoto #selfie #selfphotography #photography #selfphotoshoot #selfportrait #me #love #photo #spoonie #life #butyoudontlooksick #lupus #sle #myself #raizoemika #lupuslife #lupusfighter #portrait #hangingwall #spoonielife #livingwithlupus #lupuspatient #photooftheday #selflove #sanjaysamanta #picoftheday #photographer #blackandwhite #thehangingwall (at Diamond Harbor, West Bengal, India) https://www.instagram.com/p/Cnbvt5TP7rl/?igshid=NGJjMDIxMWI=

[lupushope]

For Swollen Limbs, which is super common for people diagnosed with lupus, lymphatic drainage is essential, as it is responsible for removing all body waste. Many days, I can see my face all puffed up without reason – that’s a call out for Abhyanga time! Do you want to know how to Perform an Abhyanga self-massage at home? With my kids at school and leaving home early, it’s hard to start my day with Abhyanga. I like to do my daily self-massage at night before going to bed because that’s when my day is calmer. That’s when I can pay more attention to myself and what works best for my schedule; I suggest you do the same. In my latest blog I am a sharing all the tips and basic oils for this amazing therapeutic habit that you can do yourself and at home. No excuses. We know that not loving ourselves is a recipe to pain and failure. Our bodies and mind are fully connected and we need to pay attention to both. Check my blog at www.LupusHope.org to learn more. #abhyanga #banyanbotanicals #banyanoil @banyanbotanicals #ayurveda #ayurvedalifestyle #ayurvedic #ayurvedicmedicine #autoimmunedisease #lupus #lupusawareness #lupuswarrior #lupusflare #lupusfighter #pain #inflammation #inflammationrelief (at Portland, Oregon) https://www.instagram.com/p/CjByTMLv78G/?igshid=NGJjMDIxMWI=

[heatherjpp13]

Do I complain? NO! Do I ever tell you when I feel my worse? NO! I love my life & I live it to the best I can. My son is the reason I fight daily. My other prognosis' are just that. So I bleed...& I know because sometimes it won't stop...Anemia...I have COPD & Asthma, I have Kidney issues, yet I push through with my brain having issues from Lupus. I don't give up & I fucking live my life. I try to record daily because it's all I have for Tristan to remember. Life is short...love, live, & enjoy💜💜💜💜💜💜my cousin died from this disease & I miss her every fucking day!!! #lupuswarrior #lupusawareness #loinpainhematuriasyndromeawarenessday #sickpost #lupus #sle #lupusfighter #lupussucks #lupusflare #lupusawarenessmonth #lupuslife #lupusadvocate #lupusstrong #edsawareness #lupusproblems #lupussurvivor #ankylosingspondylitis #lupussupport #chronicillnessmemes #lupuswarriors #knowlupus #rheumatoidarthritis #lupusfoundation #crps #lupusfacts #chronsdisease #lupie #lupusnephritis #gastroparesis #fibrowarrior https://www.instagram.com/p/CfmuoJuFwVR/?igshid=NGJjMDIxMWI=

[essanceofafemale]

#fucklupus #lupusawareness #lupussucks #lhandsign #lifecycleofabutterfly #lupusawarenessmonth #lupusfighter #lupuslife #essanceofafemale #brandsfashionandfuturelegends #elbarrio #marketingandpromotions #promotionalservices #advertising #production #eventcoordinator #blogger . . 💜💜 https://www.instagram.com/p/CdlfXSVus7qto0SR7gefd84I29UrGOlKg3nCro0/?igshid=NGJjMDIxMWI=

[kamberleeandspirit]

Just keep going just keep fighting. 💜 #lupus #lupusawareness #lupuswarrior #lupusawarenessmonth #lupussucks #lupuslife #lupusfighter https://www.instagram.com/p/CdD9AQDlXqI/?igshid=NGJjMDIxMWI=

[lashawndawrice]

#Repost @lupusdetroit ・・・ #Repost @stubs_disability_life ・・・ SCARS REMIND US THAT WE CAN HEAL.. This evenings 💡is Seal Henry Olusegun Olumide Adeola Samuel, better known as the platinum singing artist SEAL. Many of you, might have made the same assumption I have been making for years about Seal's scars. I had assumed that his facial scars were a symbol of his West Africa culture. As scars or facial marks can be used for identification of ethnic groups, families, individuals. Also to express beauty; his rank in society, family, clan, and tribe, and symbolize a degree of strength. (Now all this still might be true) But ..in my research this weekend I found out how Seal really got his scars. SEAL'S scars are as a result of a type of lupus called DISCOID LUPUS ERYTHEMATOSUS (DLE) – a condition that specifically affects the skin above the neck. DLE is a form of lupus that usually affects young people. Intense inflammation develops in the skin, particularly in sun-exposed areas. If not treated aggressively with sun protection and anti-inflammatory medicines, “Seal-style” scarring can result. Seal has revealed in interviews that he was afflicted with this syndrome as a teen. Not only did DLE cause Seal’s cheek scars, but he had significant scalp involvement, causing hair loss (#loclivin). Thankfully, the singer’s condition has been in remission for years, though his scars remain. However there is something that can be said, about the way Seal carries himself. The scars don't always appear as noticeable, but an inner beauty or 'soul' does. It reminds me that we are more than our illness, condition, DISABILITY or diagnosis. Also how our perspective on the world/people is affected by numerous assumptions. https://youtu.be/os3cKlkcBnA @seal . #seal #lupus #dle #discoidlupus #scars #marks #beauty #pride #assumptions #singer #perspective #scarsheal #revealbeauty #research #westafrica #autoimmune #disabilityawarensss #nigeria #disabilitylifecoaching #blackmen #lupusfighters #blackdisabledandproud #sunday #nocure #ggracces #strivingtowardunderstandingbarriers #lupusmen https://www.instagram.com/p/CewJRsYOWfZ/?igshid=NGJjMDIxMWI=

[berberriescorner]

Yet another disappointing doctors visit yesterday. Just give me the damn iron infusions already🙄🤦🏾‍♀️. If one more doctor asks me why I’m anemic and iron deficient, I’ll scream. You’re the specialist shouldn’t YOU be trying to figure that out?! A waste of time and gas. Bruises left behind from all the damn labs. Ridiculous.

Guess I’ll go lie down and sleep for hours on end as I’ve been doing for months now. I’m so over this ish. Sorry, I’m just venting y’all.

I need cuddles, lawd knows I could use the body heat 😣🥺.

Also a large cup of sonic ice would be wonderful right now, but I’m too tired to get up and get some from the freezer 🤦🏾‍♀️.

Okay. Rant over.

[lupus-esque]

Hi there hunniez 🥰

Today I wanted to share part one of my prednisone journey since my diagnosis.

Tumblr did a weird thing when I added text box’s to my photos, so I hope you guys can read it well 😬 sorry….

Anyways, I’m a petite girl. I am 4’9” and at the time of my diagnosis I was probably 118 lbs. that was my normal. The heaviest prednisone made me was 127 lbs in 2019. Overall, mostly my face was what looked round. “Moon face” they call it 🙄, but I say “chipmunk cheeks” 🐿

Obviously the more steroids I’m on, the more water weight my face retains. That’s why I HATED when I would flare up again; and the flares were always dramatic 😐

The less steroids or none at all had me back to seeing a jawline, which always made me happy. I really don’t think I’m vein, but have always been small and fit, and seeing my face plump up was definitely an insecurity of MINE. We all have insecurities and loving myself through the prednisone process is something I always struggled with. Even as I type this on 24 mg of prednisone, I have to keep reminding myself that I am beautiful despite what this steroid’s side effects may cause. It’s super hard though at times, don’t get me wrong.

I’m looking forward to being tapered off of prednisone fully. Aside from the weight gain, it’s long term effects can be very damaging ☹️ (osteoporosis). So, hopefully the Lupus calms TF down so ya girl can have a jawline and strong bones 🤣🤣🥲

Love u hydroxychloroqueenz & enjoy those photos of my weight fluctuating faces from 2017-present 💜

[sanjaysamanta500]

🤗🤗🤗🤗 Late post. 30th December 2022 . . . . .. . . . . . . . . . . . . . . . . . . . . . .. . . . . . .. . . . . . . . . . . .#selfphoto #selfie #selfphotography #photography #selfphotoshoot #selfportrait #me #love #photo #spoonie #life #butyoudontlooksick #lupus #sle #myself #raizoemika #lupuslife #lupusfighter #portrait #hangingwall #spoonielife #livingwithlupus #lupuspatient #photooftheday #selflove #sanjaysamanta #picoftheday #photographer #blackandwhite #thehangingwall (at Diamond Harbor, West Bengal, India) https://www.instagram.com/p/Cnbvt5TP7rl/?igshid=NGJjMDIxMWI=

[learntolive-again]

I am NOT obligated to tell you why I'm using a cane.

And you do NOT have the right to get mad at me when I choose not to answer you.

Thanks. Carry on.

[my-life-now-with-lupus]

I’m sorry I can’t do things as quick as I used to or as well as know I have the ability to do…

Its not that I’m not trying, but as willing as I want the mind and body to be it doesn’t always do what I want it too and it seems to burn vast amounts of energy very quickly with sometimes very little to show for it.

I seem to be floating in the mist… longing for the clearness of the mirror more than I like.

[hellofromouterspace]

For those who have a chronic illness:

How do you cope?

[essanceofafemale]

#throwback #essanceofafemale #fucklupus #lupusawareness #lupussucks #lupus #lupuswarrior #purple #lhandsign #lifecycleofabutterfly #lupusawarenessmonth #lupusfighter #lupuslife #lupuswillnotwin (at East Harlem) https://www.instagram.com/p/CdizHA6upLj/?igshid=NGJjMDIxMWI=