msnickandsamm - Tumblr blog

[msnickandsamm]

How We Change #change is the theme of my latest post. This month has had a lot of changes in store which can leave anyone feeling emotionally drained. I decided to embrace my #changes and My body so please go check out this post it applies to everyone. #change #bodypositive #rockthatwheelchair #tubie #disabilityawareness #sickkidsclub #beyourownadvocate #crps #spooniestrong

[msnickandsamm]

So excited about my packages that came today 📦. A zebra stone and a text book on CRPS . . . . . . . #crps #crpsstrong #nicolefightscrps #rarediseaseday #mymonster #mywholeheart #rsd #painsmile #bookstagram #biology #notinmyhead #patientadvocate #beyourownadvocate

[msnickandsamm]

Go read my new blog entry. CRPS Is the monster under your bed. How to find yourself through it all. This blog is important because I'm not the only one with vices or monsters under my bed. Everyone has stuff to deal with. Do it with grace and find your true self because the pain does not define you but how you deal with it all might. Express yourself. I am more. . . . . . . . . #flightorfight #wheelchair #crpsstrong #nicolefightscrps #rarediseaseday #mybeing #mywholeheart #mymonster #rsd #iam #iammore

[msnickandsamm]

So thankful to @sufferingthesilence for helping those of us who were unable to make it to the walk participate in the Women's Walk. Thank you to those of of you who walked with my picture. Today marks a day in history one neither sweet nor sour but one that we shall all remember because we banded together and hopefully we will keep banding together until a change has been made. #nastywoman #marchingwithme #womensmarch #letschangehistory #nicolefightscrps

[msnickandsamm]

So so so many feels today when my new wheels arrived. It's been a hectic few weeks but life just rolls on! I'm so so thankful to have freedom again. I will be writing about what that feels like for days. Barbie Jeep or wheelchair? Lol #mywheels #vibetribe #goodvibe #peoplehope #goodvibetribe #blogger #wheelie #pink #girlythings #justkeeprolling #prettyinpink #motorizedwheelchair #crps #crpsstrong

[msnickandsamm]

Today I took a trip to the doctor in my awesome new spoonie chucks. Ever since having CRPS it's impossible to keep shoes on. My awesome sister knows that converse are my favorite shoes so had some crocheted for me for Christmas so I could actually keep these feet warm. Just like the kind for babies. Lol #spoonieshoes #spoonieslippers #hospitalglam #crps #chronicpain #goodvibes #wheelchair #red #converse #chucks #chucktaylor #crochet #spoonie

[msnickandsamm]

May not be fancy. But everyone who says writing is cathartic may just be on to something. Read my blog at The Real Princess and The Pea – From Fairytale to Fighter https://therealprincessandthepea.wordpress.com/ I'm not some hot shot writer just trying to take every stereotype of disability away. I want to attempt "to find myself" and share thoughts frustrations and of course talk about the frustrations and pains of having a "rare" disease or unrecognized disease in medical community that leaves me no cure and little coverage. Also I'm going to try and keep it positive. Eventually I'll narrow my focus #goodvibetribe #crps #crpsawareness #crpswarrior #crpsstrong #spoonie #spoonielife #blogger #sickday #liferollson #worldsmostpainfulldisease #nicolefightscrps #vibetribe #goodvibes #newhabbits #pots #rsd #chronicpain

[msnickandsamm]

Before my nerve block on Tuesday. Recovery has been rough. I will never stop looking for ways to help alleviate my pain and I will never stop searching for a cure. But more importantly I will enjoy my life to the fullest because sometimes you have to feel the deepest darkest days to enjoy the best that's yet to come. CRPS doesn't own me. #crpsdoesntownme #crps #crpswarrior #nicolefightscrps #hospitalglam #positive #goodvibetribe #lifegoesonwheels #justkeepswimming #painday #newyear2017 #worldsmostpainfulldisease #chronicpain #sickday

[msnickandsamm]

Look how cute she is when she's playing nurse. Having home health care, a power port, fluids, iv meds and other nutrients are the latest. Like always Samm has stepped up and learned how to take care of my port and flush and hang a line. #spoonie #spooniestrong #spoonielife #dropitlikeitspots #pots #crps #eds #ehlersdanlossyndrome #raredisease #undiagnosed #girlswhokissgirls #powerport #warrior #fightsong #lifesong #christmasmiracle #nicolefightscrps #writingmystory #therealprincessandthepea #everydayisapainday @sammpiccolo

[msnickandsamm]

It's been a Merry Little Christmas..... I couldn't have had a better Christmas. It was incredible and I shared so many special moments with so many special people. The pain I endured to be there was worth all the moments that I will have forever. #fighter #therealprincessandthepea #nicolefightscrps #crpswarrior #spooniestrong #spoonie #cripplepunk #christmastree #pain #powerport #loveyourmelon #christmasmiracle #crps

[msnickandsamm]

So happy to be home from the hospital. My entire family is actually here all at once and that never happens. So thankful! ✌️️🙌💪🙏🤘#love #crpswarrior #fighter #fightorflight #therealprincessandthepea #eds #ehlersdanlossyndrome #pots #dropitlikeitspots #syncope #homehealth #hatehospitals #homeiswheretheheartis #crps #crpsisreal #helpmeeat #powerport #vogmask

[msnickandsamm]

Handicapped and in need of a bed? Don't worry because apparently they have got it covered.

[msnickandsamm]

I didn't choose the thug life it choose me #spoonielife #powerport #crpsawareness #crps #vogmask #ivfluids #failuretothrive #peoplehopetribe #dehydrated on my worst days are some of my best moments. Sorry I've been absent it's been a really tough few weeks but I have my family standing by. Also blog will still be released as promised in the next few days. @therealprincessandthepea #therealprincessandthepea

[msnickandsamm]

Happy Birthday to the most amazing human. You are the most selfless person I know and have endured more than most will at 25. At 25 you have the maturity and should of someone beyond your years. Your my calm my rock and all that I need. Your laugh is my heart and your smile puts me at ease. Love doesnt even begin to describe how I feel. Your my person my mucho and grande my someday and one day. Forever and always. I hope your 25th is filled with as much love laughter and fun as you want so ready set #happybirthday #loveofmylife #myoneandonly #couplegoals #loveislove

[msnickandsamm]

Today for CRPS awareness I posted a picture of my rock @sammpiccolo. Today I had a rough day at a dr apt and like a champ Samm swooped in and saved the day. But this is her everyday too. She's right along side me at every doctor visit, every needle prick, every "can I touch you here" and every sleepless tireless night. She may not feel my pain but she'd do just about anything she can. #crpswarrior #crpsawareness #crpswarriors #fire #fightthefire #feeltheburn #orange #ice #couplegoals #lesbian #couples #doctors #chronicillness #love

[msnickandsamm]

Happy CRPS November awareness!! I hope my feet bring awareness to this condition #CRPS #nicolefightsCRPS #beproudifyoucan #bodypositivity #therealprincessandthepea #femininity #feet #spoonie #crpsawarenessmonth #spoonielife #healthawareness #spooniestrong #rsd #fight #orangeisthenewblack #orange #feeltheburn #fightthefire #fire #ice

[msnickandsamm]

"A little something to brighten your day" -grandma+grandpa. I have had so much support and just had to share this card made by @lovepopcards #vibewithme #brightenyourday #vibeaway #livelifetothefullest #pinktrees #growtrees #pinktreesgrow #crpswarrior #chronicillness #crpsawareness #spooniestrong #invisibleillness #disabilityawareness