this is once again relevant because i am keeping my room at a crisp temperature so i can sleep better but unfortunately the cold makes my joints cry. so.
āsurely this will not cause my chronic illness to flare up,ā i say, actively doing something that has never failed to flare my chronic illness
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standingā¦..for two hoursā¦ā¦.with a condition that means my blood Does Not Do Its Jobā¦ā¦..i am not a fan
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āsurely this will not cause my chronic illness to flare up,ā i say, actively doing something that has never failed to flare my chronic illness
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me when the chronic pain pains me: body... evil? body... unfaithful?? body... hates me? body evil!! body betrays!!! jail!! jail to body for a thousand years!!!
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i really need that dysautonomia specialist to call me back. like. sir please i feel terrible all the time
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how does one cope with severe fatigue when going to school full time and working part time. just. conceptually how can that be done
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Tumblr: "congratulations for 5 notes!"
The post: "my body hurts and i am suffering"
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using mobility aids is an act of self love, it's something to be proud of. how could you be ashamed when you take care of your health and listen to your body? no shame! we're all here doing good because we don't neglect ourselves
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pots moment: using your freezing cold feet/hands to cool down the rest of your body and also ease your migraine
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iām chronically ill and i havenāt been to a concert since my symptoms started getting worse, but i have tickets to see one of my favorite bands this summer and i really want to enjoy it without having to spend like a week in bed afterward. does anyone have tips for concerts with pots, especially when itāll probably be hot outside? the venue doesnāt allow bags but i have pockets š
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hi god this body is fucked and i would like to exchange it for a new one. no i donāt have the receipt canāt you just look me up in your system. i want to speak to your manager
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When other people say theyāre dizzy, they mean āphew! My equilibrium is a bit off! In a just a few moments Iāll be fine!ā
When I say Iām dizzy, I mean something very different.
I mean that I can see black spots in my vision, and I canāt tell if this is going to be the time I pass out.
It means that the world is swimming underneath my feet, stretching and distorting like an obstacle course even when itās just a straight, flat path.
It means thereās so much pressure in my head and not nearly enough.
It means that I can feel my heart speed up and beat harder, trying to adjust to the new gravity, just because Iāve shifted slightly.
It means I can feel the nausea rising in my stomach and the bile come up my throat.
It means that walking is a challenge. Getting a snack is a challenge, going to the bathroom is a challenge. Sitting up is a challenge.
So, when I say Iām dizzy, Iām trying to dumb it down so that you can understand a fraction of what Iām feeling. Not that Iām not feeling it. On good days, itās a hindrance. On bad days it stops me doing anything. Stop telling me that ājust being dizzyā doesnāt make me āthat disabledā. You barely know the half of it.
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the only fun part about living alone with chronic pain is that no one can stop you from cursing loudly the entire time you are getting out of bed
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