powerfulpheonix

[powerfulpheonix]

NOTE I DID NOT CREATE THIS I SAW IT ON FACEBOOK AND GOT PERMISSION TO POST ON HERE!

[powerfulpheonix]

I feel like my disability makes me feel like I have to do everything on my own. It’s like I’m trying to prove that I can do things but I don’t really have anyone I need to prove myself to

[powerfulpheonix]

I got a job as a custodian at a school for 3rd-5th grade. I thought I’d be fine but I’m in pain constantly I also went 3 days without my nerve pain medication. I’ve worked for a week and already had to go home early.

[powerfulpheonix]

Applying for disability is so annoying… just had the guy say you’re only 19? Are you sure you need disability?

[powerfulpheonix]

Reminder:

You deserve a life free from all this pain, one where you can do anything you want without worrying about what struggles your body might put you through.

[powerfulpheonix]

[powerfulpheonix]

So I don’t post on here about this often but I am so proud of myself! I have finally taken the step to reach out to someone in my 12-step about being my sponsor! I get so nervous opening up to other people so this is a big big step!

[powerfulpheonix]

Don’t be disabled this shit sucks /s

[powerfulpheonix]

*More Than An Illness*

Multiple sclerosis is more than an illness,

It's a life-changing diagnosis.

It robs you of your strength

And slowly chips away at your mobility.

But it's not just a diagnosis,

It's a whole new way of living.

It's adapting to a new normal,

And finding ways to thrive despite your limitations.

MS is more than an illness,

It's a battle you fight every day.

But you've got this, and you're not alone.

[powerfulpheonix]

I officially have a diagnosis: relapsing-remitting multiple sclerosis

[powerfulpheonix]

*Fighting MS*

MS is a beast,

A relentless, relentless disease.

Like a demon that lingers,

Like a shadow that's always there.

Some days it wears me down,

Some days I feel like I've lost.

But my resolve won't break,

Like a sword through the darkness.

I'm fighting to win this battle,

To defeat the beast, to take back my life.

Because I have nothing to fear,

And I refuse to let MS define me.

[powerfulpheonix]

Low key considering getting a cane for flare up days

[powerfulpheonix]

The bear wouldn’t threaten to kill my family if I told anyone. I choose the bear

[powerfulpheonix]

Something I want able bodied people to understand is that I don't want a diagnosis cause I wanna be sick so bad; I want a diagnosis because there is already something wrong with my body but I don't know what the fuck it is.

[powerfulpheonix]

Sometimes I feel invalid as a chronically Ill person because I appear to function like an able bodied person. I just kinda fake being fine constantly. Like mainly with flare ups with my autoimmune disorder. My POTS I can’t necessarily fake being fine. But everything else I do and it makes me feel like I’m not actually sick despite multiple doctors telling me I am

[powerfulpheonix]

I have no idea how I’m going to manage my POTS this summer…. I moved from Midwest USA to southern USA and mannn it’s only may and already is up to 87 degrees that’s like high summer weather for Midwest USA. It apparently gets up to 120 degrees here. I’m gonna be a faint mess

[powerfulpheonix]

How the F- are they going to tell me that they have narrowed it down to lupus or multiple sclerosis? Those are 2 very different disorders