r0dr1g0camp0ss

[r0dr1g0camp0ss]

I know 200 views might not sound like a big deal to most people. But for me, it's a head start. Just hit 200 views on my YouTube Short. I'm telling my ALD story, my way, raw, real and honest. Subscribe to follow the journey and help me keep it going.

www.youtube.com/@r0dr1g0camp0ss

[r0dr1g0camp0ss]

From ALD to Everyday Life: I’m Starting a Blog

I’m starting a blog!Living with ALD has taught me a lot and now I want to share that journey. Not just the hard stuff, but the good, the weird, and the everyday moments too.If you're down to tag along, tag along.

https://youtube.com/shorts/1pio1SQRcjY?si=cfqaX6RcengS68Z3

[r0dr1g0camp0ss]

Me, a disabled person sharing my actual story:

Reddit: "Looks like an ad from an abled person or a sponsored spam bot."

Me: I met someone with ALD, thanks Reddit?

[r0dr1g0camp0ss]

Posting my first video about having ALD (Adrenoleukodystrophy) was one of the hardest and most powerful things I’ve ever done. I almost backed out. I was scared of judgment, scared of what might change. But after six years of living with this rare disease, I knew it was time.

The love and support since then has been overwhelming. So I made a follow up video, something more personal, raw, and honest. It’s a behind the scenes look at what I was really feeling in that moment: the nerves, the doubts, the deep breaths... all of it.

If you’ve seen the original, this gives you a deeper look. And if you haven’t watched it yet, here’s where it all began:

Behind the Scenes: https://youtube.com/shorts/SeiUKXww54o?si=siPk-mFFRsW-QHVA Coming out Video: https://youtube.com/shorts/gx0R1eJ7REk?si=7HSJuolUlYteeHLr

[r0dr1g0camp0ss]

Well folks, I have over 💯 views on my first video. How did I do it? I shared my video on every single possibly facebook group that let me. Of course I made sure to be part of every Facebook group that had to do with having a disability, not necessarily ALD. Because there is only a few on Facebook. And not every page let me post my video. Can you believe it? 🤔 I’m trying to change the world 🌎 Nothing is going to stop me from telling the world 🗺️.

[r0dr1g0camp0ss]

Well world, almost a week since I told the world about my disability. On the road to become an influencer of a sort. Who knows? I am so excited for my journey. Looks like I am doing good so far?

[r0dr1g0camp0ss]

Folks, six years ago today, my life changed. I am finally ready to share something personal. I do not have a disability I have a superability. In 2019, I was diagnosed with X-Linked Adrenoleukodystrophy (ALD)—a rare genetic disorder that affects the brain, spinal cord, and adrenal glands. While it comes with challenges, it has never stopped me from pushing forward. I am sharing my story not for sympathy, but to raise awareness, stay motivated, and remind others that disabilities do not define us—we write our own stories. 

https://youtube.com/shorts/gx0R1eJ7REk?si=_iE5X_qEadmal5wL