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It is kinda fucked how being ace or aro pretty much automatically means you’re isolated, even from your queer peers.

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A new mode of production arises out of the newly networked masses.

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This is so wholesome

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The most terrifying part of having memory issues is when you can feel something from 5 seconds ago be thrown out the window and there's an empty hole where it once was. You remember that you forgot something.

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I would love to see a fantasy novel where the lore that the reader / protagonist learns at first is not true

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Day 10 and 11: Nothing

Nothing happened all weekend. I was too sore and tired to think. Too tired to rest well too.

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Do you realize how much I need you too

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Day 8 and 9: 0 words

Day 6 was chaos. Day 7 left me no chance to rest, instead life got more intense. Day 8 Fox was disappointed I didn't have my normal energy levels. Day 9 Fox and I finally had a day of recovery.

I'm still in recovery mode. If I'm lucky, I get to write today(day 10) stress-free.

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Day 6 and 7: 0 words, one page planning

Life is hard sometimes...

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Day 5: 380 words, 2 pages planning

Oh goodness I'm writing again!!! It's not much but it's something which is an enormeous improvement over nothing. The characters are being quirky in ways I haven't planned and I'm so so excited to see them come alive. It's cheesy and silly but who cares... it's a start!

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MYALGIC ENCEPHALOMYELITIS:

Myalgic Encephalomyelitis (ME) is a neurological disease characterized by complex, multi-system dysfunction. It is also known as Chronic Fatigue Syndrome (CFS) or ME/CFS. Prominent features include pathological dysregulation of the nervous, immune, and endocrine systems, impaired cellular energy metabolism and ion transport, as well as cardiovascular abnormalities.

Mild ME: Even mild ME patients are gravely ill. Only 25% of ME patients can work with great difficulty. Mild patients have lost at least 50% of their functionality.

Moderate ME: Moderate ME patients are mostly housebound and often require a wheelchair outside of their homes. Daily tasks like bathing and cooking are a struggle.

Severe ME: 25% of ME patients are severe or very severe. Severe patients are completely housebound and often bedridden. Most are extremely sensitive to sound and light.

Very severe ME: Very severe patients are completely bedridden, experience extreme pain, and are often tube-fed, and many suffer from periodic paralysis. Some even pass away or choose euthanasia.

30 million patients globally

less than 6% recover

We've documented, as have others, that the level of functional impairment in people who suffer CFS (ME) is comparable to MS, AIDS, end-stage renal failure and chronic obstructive pulmonary disease. - Dr. William Reeves, former CDC chief of viral disease branch.

90% are undiagnosed

Four times as common as MS

Post-exertional malaise (PEM): ME has more than 60 symptoms. PEM is the hallmark symptom of ME. It refers to the worsening of symptoms following even minor physical, mental or emotional exertion, with symptoms typically worsening 12-72 hours after activity and lasting for days, weeks, months or even years.

Myalgic Encephalomyelitis (ME) is a neurological disease characterized by complex, multi-system dsyfunction. It is also known as Chronic Fatigue Syndrom (CFS) or ME/CFS. Prominent features include pathological dysregulation of the nervous, ummune, and endocrine systems, impairsed cellular energy metabolism and ion transport, as well as cardiovascular abnormalities.

Created by ME patient Chantelle Spies from Chronically Rising

source

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every six months someone posts a study on here and is like LONG COVID CURED and that's not what the study says and it's probably not even what the shitty health journo coverage says and 'long covid' is a lot of different etiologies grouped together by sharing a symptom cluster and pretty much any acute infection can and does cause chronic illness in a subset of patients and we still don't know why and we can't cure them and many cases of long covid present as clinically indistinguishable from me/cfs which is also a symptoms diagnosis and is also a post-infection syndrome in a great many cases and we don't understand it and can't cure it and anybody claiming to have solved or cured anything off a single study is misinformed or lying in the first place. the study just posted had a sample size of 3 btw

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Day 3 and 4: 0 words, 9 pages planning

Busy days. I rewrote my main character concept again. I'm probably going in circles. At least now I can type on my PC.

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Day 2 and 3: 0 words, 5 pages planning

No computer, no phone keyboard, but I still made progress! I wrote on physical paper to do my planning. I can't wait to have my stuff moved in here with Fox's stuff, so paper it is!

Hopefully Fox has energy and time to move my stuff. I've lived like a guest in our shared sacred grove for almost 4 days now. It's awfully sad, not feeling at home.

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Day 1: 0 words

Fox decided everything today. I needed to recover and didn't have energy to think or choose anything. Fox guided me through a full day's worth of effort, so I didn't make any recovery progress.

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Day 0: Blackout

I hit blackout levels of pain today.

I thought taking a break from my safety meds would let me push through my chronic pain, move into my apartment with Fox like there's nothing wrong with me, then recover during the days after.

As it turns out, safety meds are for my own safety. I call them safety meds because without them, I have basically no warning when I'm pushing myself too hard. They add dizziness, fatigue and even fainting on top of the pain I already have. With them it's impossible to push my body long enough and hard enough to hit pain level orange, even temporarily.

I've woken up on day 1 in pain level orange. I have scrapes and bruises all over my body. I'm unbearably stiff and sore. I can't feel my legs or arms except where it hurts. I can't remember much of yesterday. I vaguely remember lifting things I don't have the strength to lift but that's all. This is taking hours to write because I can't focus.

Standing up puts me in pain level red, "no brain; only pain." Oh goodness I'll count myself lucky if I do anything except sleep today.