back at it again but uh. recently i’ve been made aware that i have hypermobile shoulders and possibly some other joints. i dont pass the beighton test but i have so many other symptoms of eds (including hyperspecific ones like the heel bump things) and my mom both passes the test and mostly qualifies herself, so i have absolutely no idea what to make of that. im just in a lot of pain and have been for a while and i really have no idea where to even start trying to figure this out. going to try to get a referral to a rheumatologist but medical neglect is real and getting a referral from my doctor is like trying to get nuclear launch codes sometimes. if anyone has any advice in this area at all i would really appreciate it im just kind of desperate right now because my pain has suddenly and steadily been getting worse and i have no idea how to manage it. i already use a cane and have like 6 different types of pain relief within arms reach at all times but it only goes so far now. help me out tumblr
sometimes you’ll see wheelchair users get up and walk a bit or a cane user pick up their cane and carry it instead of using it to walk and it doesn’t mean that they’re faking or they don’t actually need it, and it doesn’t give you the right to question them or ask them to prove they’re disabled. if you see a disabled person temporarily stop using their aids, mind your business and stop assuming you know anything about their situation. people who wear glasses don’t suddenly gain sight when they take them off, and i don’t magically become able-bodied when i carry my cane instead of use it. don’t assume otherwise.
got my pots dx today. im not surprised but its very weird to me to actually have a doctor listen to me about my symptoms. glad to at least have it confirmed so i can work on a management plan!
sometimes you just have to clean up your tumblr even though you know full well ur not gonna be any more active than you have been for the past 2 years. all i do is scroll through tags and like things i dont post shit