#1in100

[chopcult]

Shawn Long does not disappoint. Kindly follow @imperialhouse71 and contact him for your painting needs. Tell him #chopcult sent ya 🙌 Reposted from @imperialhouse71 Close to wrapping up this flavorful tank, and then it will be up for grabs. Stay tuned; almost ready to build a bike around! #imperialhousepaint #flavorfactory #OGimperial #IFFI #laughoftenloveoftener #fundamentalelements #moodswing #bottomlessblack #originalitytakestime #sodoesquality #1in100 #dopeoplereadhashtags #neverletmeslipcauseifislipthenimslippin https://www.instagram.com/p/CT0ZxFvP1p7/?utm_medium=tumblr

[ihearticie]

Tuesday, April 6, 2021

Icie had a cardiologist appointment at 8:30 am.

We received special permission to bring Violet along since I have no other options the majority of the time. We checked in online and were called to come inside the building once a room was available. Icie and I wore masks, and were temp checked even before heading back to a room. Once back Icie was weighed (30 lbs 10.3 oz ) and had her height checked (3’2.43) then off to have an echo.

Icie has never had a full echo done since she would never sit still long enough but she did extremely well and was very still even though she was not happy about it.

After the echo someone came in to take her blood pressure (109/54) and also check her o2 sat(100%)

After a very long wait we saw the cardiologist. He said that her heart looks strong and that nothing has really changed since the last visit. He said the one thing he would like to do is a lung perfusion test. He said he just wants to be 100% sure her left lung is getting enough o2 bc if it isn’t it will not fully develop which will cause issues. He said he expects it to be ok but wants to be 100% sure. He gave me a “sometime in 6 months” timeline to do it. It’s an outpatient test. It does involve an iv which will suck. She will then breath something In from a mask while x rays are taken. Pretty straightforward but the whole iv thing really sucks. If her left lung isn’t getting enough oxygen then she would need a cath procedure to ballon the vein. Icie has no restrictions currently but that could always change. We are still on the same track of a stress test when she is 10-15 and then having a valve put in high school- college age. I’m praying the best I can that more valves come out that can be placed via cath with chd kids. I asked her cardiologist about the newest approved harmony valve that can be placed w a cath procedure instead of ohs. He said the issue w those is they work w only some kids since w chd valves are deformed. Those cath procedure valves are created w smooth round veins in mind so if the vain is deformed the valve won’t stay put. All in all it was a good visit. I surprised her with a tablet to play On While there since she did so well. It’s hard for me to write these updates up bc it really does give me anxiety. I have erased so many paragraphs just so I can keep it on point. My emotions the best of me. I wish I could just take her place. It kills me that she is going through this. My precious wormy.

[kissesforhearts]

Make your best #KissyFace for the #PuckerUpChallenge Send #HeartKisses to someone you #Love #chd #transplant #1in100 @enduringhearts @american_heart @childrensatl donate https://PayPal.me/KissesForHearts (at Cobb County, Georgia) https://www.instagram.com/p/BsHNOAfnyky/?utm_source=ig_tumblr_share&igshid=1nohn3bjgqoej

[qu33nofredlions]

Mameshiba x NJPW

[tiavapes]

Holding our baby boy for the first time since his open heart surgery last Monday! 💙🦁❤️ He got his ventilator taken out today & is doing well! #LUCASTHELIONHEART #CHDAWARENESS #1IN100 #CRITICALCHD #1IN1000 #HEARTWARRIOR #HEARTBABY #HEARTMOM #HEARTDAD #HEARTPARENTS #HEARTFAMILY https://www.instagram.com/p/BmHavNdHMkV/?utm_source=ig_tumblr_share&igshid=1v8rpctt34zlq

[cmm-illustration]

#wip of #tanahashi soon to be added to my #redbubbleshop #makingprogress #workinprogress #njpw #新日本プロレス #棚橋弘至 #njpwgreetingcards #hiroshitanahashi #illustration #njpwfanart #goace #1in100 https://www.instagram.com/p/CD70MRSnVYW/?igshid=1x7fkp9yq38ci

[childheartfoundation]

Rakhi is the most awaited festival which every brother and sister wait for, this festival is about love, gifting, sharing and bonding. MAKE IT MORE SPECIAL BY GIFTING A LIFE TO A BROTHER OR SISTER SUFFERING FROM CONGENITAL HEART DISEASE. #chdchild #rakhispecial #donatelife #rakhifestival #bonding #siblinglove #lifewithheartdefect #nomoreblue #1in100 #giftoflife (at New Delhi) https://www.instagram.com/p/CDJYKN6HTe_/?igshid=1jjztg4etjfrc

[chopcult]

Shawn Long does not disappoint. Kindly follow @imperialhouse71 and contact him for your painting needs. Tell him #chopcult sent ya 🙌 Reposted from @imperialhouse71 Close to wrapping up this flavorful tank, and then it will be up for grabs. Stay tuned; almost ready to build a bike around! #imperialhousepaint #flavorfactory #OGimperial #IFFI #laughoftenloveoftener #fundamentalelements #moodswing #bottomlessblack #originalitytakestime #sodoesquality #1in100 #dopeoplereadhashtags #neverletmeslipcauseifislipthenimslippin https://www.instagram.com/p/CT0ZxFvP1p7/?utm_medium=tumblr

[ihearticie]

Pray to breath easy in under a week.

In less than a week Icie will have her 1st echo in almost a year. To say I am anxious is an understatement. She looks and acts like a normal 16 almost 17 month old. She runs, climbs stairs, eats well and never displays any indications that her heart isn’t working properly. Even so, there is always a possibility of an issue. I try to remain positive that her heart function is great, there is no decline in function, her residual vsd is now closed and there is no need for early intervention but the wounds are still new for me and I’m afraid. I read something that said “negative thoughts are like weeds in a beautiful garden. They can easily over run the beauty if they aren’t dealt with” I’m constantly weeding my way through the thoughts of scary things that could happen with Icie but actually getting a look at her sweet mended little heart and seeing with out doubt how well it is functioning is a different kind of fear. Could there be issues with the asd and vsd patches? If there to much regurgitation and the pulmonary valve needs to be replaced sooner? Is her heart pumping efficiently? How’s that BAV? Those are only some of the things going through my mind. I honestly don’t know what could arise during this echo. This is the first time for me since it’s been so long since her last echo, which at the time was only weeks after her ohs. I really don’t know what issues could be present. It’s not something that can be googled and even if it could every CHD case is different. A guideline would be nice though. It’s one of the reason I started a blog on Icie’s heart journey.

Will she need to be sedated, Maybe. Am I happy about that, No. Will her heart be functioning properly and everything looks great, I pray to God yes.

[kissesforhearts]

@beanieboos are coming in for Emery’s #birthday next week. I made my best #KissyFace for the #PuckerUpChallenge Send #HeartKisses to someone you #Love #chd #transplant #1in100 @childrensatl @enduringhearts @american_heart Donate https://PayPal.me/KissesForHearts (at East Cobb, Georgia)

[kcnlifeasweknowit]

Your heart is what allows you to love, laugh and live to the fullest. Regardless of how many battle scars Noah had over her heart, she always tried to give her best self and do what made her heart happiest. Let #worldheartday remind you to take care of that beautiful heart of yours. . . From the beach this summer. Noah reminding me that she's near. 💖 #chdawareness #1in100

[findingyourtrue]

A GoFundMe account has been set up to help the family through this time. The link in my bio had been updated to lead to this account. Please consider giving and blessing this wonderful family. Even if you don't know them as many people giving a few dollars can go a long way, here is a portion copied from the GoFundMe page: #1in100 Andrew was a miracle from the beginning.  For six beautiful years Andrew brought God's joy and light in the world. For six beautiful years he beat the odds and showed the world what strength was.  For six beautiful years he was a son, brother, grandson, godson, and friend. And now for all the days and years to come, the warmth and joy and love he brought will be carried in our spirits and hearts.  There are not words for such a time as this, and yet for many of us we are left wanting. Wanting to pour out our love and God's peace onto friends who endlessly have poured into us.  The death of their son Andrew is tragic and sudden leaving everyone at a loss of words and how to respond. How to be there for two people who have always been there for us. How to show up and be a home to Beth. How to show up with the answers to fix everything for Jer. To the friends and family and those touched by the ministry and Godly example of the Dorsings, we have an opportunity to pour our love, our comfort, our grief, our hope and our divine light and peace on this family.  There are unexpected costs surrounding the next days and weeks and months that they face. This platform is a tool to extend that love and support to this family.  https://www.instagram.com/p/Bzvqu1mlwj5/?igshid=1xaxkt12a3p4w

[delhifetalheartcenter]

Congenital heart disease is the most common birth defect. Every 1 in 100 child is affected by this birth defect. Rule out any possibility of congenital heart disease in your unborn by having fetal echo done today. Book your appointment calling at 011-26960091 or mail at fetalechoindia@gmail.com. Know more about us visiting http://fetalechoindia.com/

[the-harley-henchman]

His name is Quinn Takeda Dash. He came into this world at 10:28 March 17, 2019. 7lbs 20in. He's perfect, too perfect for this world. He's our son and always will be. I am still a father, my wife is still a mother....... #1in100 #oneinonehundred #iamstilladaddy #iamstillamommy #tooperfect #tooperfectforthisworld https://www.instagram.com/p/BvPgGeLnZ7p/?utm_source=ig_tumblr_share&igshid=1l5vm1b359hw5

[childheartfoundation]

CHF Education: Our initiative to increase the number of skilled hands for early screen ing and diagnosis of congenital anomalies. #chdindia #heartproblems #hearttoheart #chd #training #echocardiography #skills #earlydetection #diagnosis #childwithaheartdisease #1in100 (at New Delhi) https://www.instagram.com/p/CCdlMDKHOkf/?igshid=1qp4wkhl0zx2x

[breatheducky]

#makeup #CHD #CongenitalHeartDefects #CHDawarenessweek2017 #OHS #OpenHeartSurgery #Pacemaker #CyborgDuck #1in100 #TeamBatteriesNotIncluded