#tetralogyoffallot

[transorzekochi]

The WHO has classified Tetralogy of Fallot and assigned it the ICD-10 code Q21.3 for medical classification purposes under the range - Congenital malformations, deformations and chromosomal abnormalities .

For More Details :

🌐 www.transorze.com

☎ +919495833319

[transorzesolutionstvm]

The WHO has classified Tetralogy of Fallot and assigned it the ICD-10 code Q21.3 for medical classification purposes under the range - Congenital malformations, deformations and chromosomal abnormalities .

For More Details :

🌐 www.transorze.com

☎ +919495833319

[ihearticie]

Tuesday, April 6, 2021

Icie had a cardiologist appointment at 8:30 am.

We received special permission to bring Violet along since I have no other options the majority of the time. We checked in online and were called to come inside the building once a room was available. Icie and I wore masks, and were temp checked even before heading back to a room. Once back Icie was weighed (30 lbs 10.3 oz ) and had her height checked (3’2.43) then off to have an echo.

Icie has never had a full echo done since she would never sit still long enough but she did extremely well and was very still even though she was not happy about it.

After the echo someone came in to take her blood pressure (109/54) and also check her o2 sat(100%)

After a very long wait we saw the cardiologist. He said that her heart looks strong and that nothing has really changed since the last visit. He said the one thing he would like to do is a lung perfusion test. He said he just wants to be 100% sure her left lung is getting enough o2 bc if it isn’t it will not fully develop which will cause issues. He said he expects it to be ok but wants to be 100% sure. He gave me a “sometime in 6 months” timeline to do it. It’s an outpatient test. It does involve an iv which will suck. She will then breath something In from a mask while x rays are taken. Pretty straightforward but the whole iv thing really sucks. If her left lung isn’t getting enough oxygen then she would need a cath procedure to ballon the vein. Icie has no restrictions currently but that could always change. We are still on the same track of a stress test when she is 10-15 and then having a valve put in high school- college age. I’m praying the best I can that more valves come out that can be placed via cath with chd kids. I asked her cardiologist about the newest approved harmony valve that can be placed w a cath procedure instead of ohs. He said the issue w those is they work w only some kids since w chd valves are deformed. Those cath procedure valves are created w smooth round veins in mind so if the vain is deformed the valve won’t stay put. All in all it was a good visit. I surprised her with a tablet to play On While there since she did so well. It’s hard for me to write these updates up bc it really does give me anxiety. I have erased so many paragraphs just so I can keep it on point. My emotions the best of me. I wish I could just take her place. It kills me that she is going through this. My precious wormy.

[mutxdblue]

CT scan today for heart surgery this summer.

It hurts worse when it’s unintentional.

[glecerella]

Last year, I couldn't believe I was 33. Not because I'm older but because I was told I wouldn't make it as a baby. I fought hard & strong & proved them wrong. Little did I know I was in for a surprise. At 33, I found out I needed another open heart surgery... 4 years after my 2nd one. I was shocked. Confused. & in disbelief. But it had to be done. 3rd one & hopefully the last one. 6 months postop & here I am! Back to work, back to traveling, back to being better than ever. Thankful to all my friends, family, & coworkers who reached out to me. Recovering during the pandemic was tough but they all made me feel loved even from a distance. Also I am grateful for my husband who became my nurse after surgery... feeding me, giving me my medications, comforting me, updating my friends & family, & even taking my vital signs. This post is just a reminder to check up on your friends & family. A simple text like "How are you?" makes a big difference. Take care everyone! [Scroll through the slides & watch me get better]. #chdawareness #tetralogyoffallot #heartwarrior #heartdiseaseawareness #openhearts #chdsurvivor #heartfriend #thankfulandblessed https://www.instagram.com/p/ChtTQKtOJE8/?igshid=NGJjMDIxMWI=

[vonamson]

TOF, RAA-RDA #tetralogyoffallot #rightductalarch #rightaorticarch (tại Da Nang, Vietnam) https://www.instagram.com/p/B3bLFuGlMjH/?igshid=1hgygnguqat68

[hellorachelsmith-blog]

These defects, which influence the structure of the heart, cause oxygen-poor blood to stream out of the heart and into the rest of the body. Babies and children with tetralogy of Fallot, for the most part, have blue-tinged skin because their blood doesn't convey enough oxygen.

[redboxideashop-blog]

Kimmel Story Reminds us that Care and Advocacy are Powerful Bedfellows

Unless you’ve been living under a heavy rock without wifi, you’ve no doubt seen that late night talk show host Jimmy Kimmel used one of his recent monologues to share an emotional story about his new baby boy, Billy. His story was both touching and timely, which helped the video segment garner more than 10 million views on YouTube in just a few days. As a Mom with a similar story, I too found it touching, and also a critical reminder of two underlying messages to this story.

First, it’s important to point out that this story was particularly personal for me because during the same week Kimmel and his family welcomed little Billy into the world and were quickly thrust into the scariest time of their life, I was reflecting on my own. You see, that same week, I celebrated the birthday of my daughter, who was born with the same heart defect exactly eleven years earlier. I knew Kimmel’s story because I had lived much of it myself. It was a scary time, but after being diagnosed with Tetralogy of Fallot and receiving excellent care, my daughter also came through it and is a healthy girl today. But just like Kimmel, I recognized two things—no kid like ours makes it through something like that without an amazing care team; and anyone in a caregiving role—whether as a parent or a professional healthcare provider—should accept that part of that role includes advocacy. Early Recognition

The Kimmel family was fortunate to have a nurse who quickly recognized their son’s condition and activated a skilled care team that ultimately performed the needed heart repair and set little Billy on a path to recovery. It will come with other steps and surgeries and a lifetime of follow-up—as has my daughter’s—but they will have the benefit of a highly trained and coordinated care team who will ensure his care stays on track.

In addition to nurses, paramedics and EMTs serve this critical role every day all around the world. Early recognition of a critical condition saves countless lives, and few will end up being featured in a viral video, but all are immensely important. Care and Advocacy

Something more was born the day Billy came into the world—a family of advocates—and Kimmel, with the loudest and farthest reaching platform, will be chief among them. But that nurse delivered them too. She started it all by advocating for her patient in the moment of care. And now the Kimmels, countless others who were touched by their story, many who donated to hospitals as a result, and anyone else with a similar story will become advocates too.

We must advocate for the most vulnerable of our patients—not just children, but the elderly, disabled, and other special populations too. For caregivers, the care part is in the job description, but the advocate part is in the commitment we all make to the role and to the patients we serve.

In a time of uncertainty around our nation’s healthcare system—and the legislation that governs it—and what that might mean for insurance coverage and access to quality of care for many populations, we must hold steady to the highest professional standards of care—that should include both caring and advocating at every turn.

### What is Tetralogy of Fallot?

Congenital heart defects—like Tetralogy of Fallot, the condition affecting both Kimmel’s son and my daughter—are the most common birth defect, affecting nearly 1 in every 100 births. Approximately 40,000 congenital heart surgeries are performed each year in the U.S., and it is estimated that as many as 3 million people live with congenital heart disease in the United States.

Tetralogy of Fallot (TOF) is a serious congenital heart defect affecting about two in 10,000 babies. In TOF, abnormal connections between the ventricles prevent enough oxygen-poor blood from flowing to the lungs as it should. As a result, a person with TOF has a lower-than-normal amount of oxygen in the blood. Historically, children with TOF were called “blue babies” because they may experience “Tet spells” where their skin may appear blue. In a normal heart, oxygen-poor blood returns to the right atrium from the body and travels to the right ventricle. Then, it is pumped through the pulmonary artery into the lungs, where it receives oxygen. Oxygen-rich (red) blood returns to the left atrium from the lungs, passes into the left ventricle and then is pumped through the aorta out to the body.

According to Children’s Hospital Boston (where my daughter had her heart repair), children born with TOF have a combination of four cardiac anatomic characteristics:

Ventricular septal defect: There is a hole between the right and left pumping chambers (ventricles) of the heart.

Right ventricular outflow tract obstruction: The connection between the right ventricle and lung (pulmonary) artery is narrowed, and blood flow to the lungs is blocked. This is what causes babies to be blue.

Overriding aorta: The artery that connects the left ventricle to the body is positioned too far to the right.

Right ventricular hypertrophy: The right ventricle is thicker than normal, because it’s pumping against a blockage. It’s working too hard.

[nfwmichaelab]

This Jimmy Kimmel story has got me all emotional again, jfc. His son was just born and had the same congenital heart defect as Rosie. Sending mad love to him and his loved ones.

[4evahaka]

From @thelifeofchaceelijah - My (1 out of 110) Mr. #stealyourheart #teamchace 🤴🏾 is sucking in his stomach, trying to show off his abs like his daddy but all you see are his little ribs 😦😁💪🏾 I just cut and glued one of his G-tube on me to show support for him. He has a congenital heart defect (#chd) called Tetralogy of Fallot (#tof) and he uses a feeding-tube (#gtube) to help with him being under weight due to him not eating orally as much. But as long as I'm breathing, I'll always support my son and he'll never be in a fight alone 😊✊🏾👍🏾 05 || ²2 || ¹7. #tloce #thelifeofchaceelijah #congenitalheartdefect #chdwarrior #chdawareness #chdsurvivor #heartdefect #heartwarrior #heartsurgery #tetralogyoffallot #clothdiapers #openheartsurgery #smib #pha #feedingtubeawareness #openheartsurgery #exercise #workout #childernshospital #daddyduties #theblackmancan💕💚🐍#ThisIsAREPOST:🐍💕💚 #REPOSTEDBY: @4evahaka #FAMU_1908💚💕🐍

[roamwithahungryheart]

Just watched Jimmy Kimmel’s emotional opening monologue from the other night and I’m sitting here with a glass of wine, in my pjs, feeling emotional too. He’s absolutely right. No parent should have to stand in the NICU deciding if they can afford to save their child’s life. Like Jimmy’s son, I was born with ToF and treated by a top team of US cardiologists, surgeons and nurses. If in this day and age, the healthcare system draws a fine line between life and death, and makes a baby’s life a game show choice to play for a few dollars more, I can’t begin to imagine what it must have been like for my parents a few decades ago. We need to do more. I don’t know at this very moment what I can, or could, or will do, but I feel utterly compelled to do something. 

[ihearticie]

Pray to breath easy in under a week.

In less than a week Icie will have her 1st echo in almost a year. To say I am anxious is an understatement. She looks and acts like a normal 16 almost 17 month old. She runs, climbs stairs, eats well and never displays any indications that her heart isn’t working properly. Even so, there is always a possibility of an issue. I try to remain positive that her heart function is great, there is no decline in function, her residual vsd is now closed and there is no need for early intervention but the wounds are still new for me and I’m afraid. I read something that said “negative thoughts are like weeds in a beautiful garden. They can easily over run the beauty if they aren’t dealt with” I’m constantly weeding my way through the thoughts of scary things that could happen with Icie but actually getting a look at her sweet mended little heart and seeing with out doubt how well it is functioning is a different kind of fear. Could there be issues with the asd and vsd patches? If there to much regurgitation and the pulmonary valve needs to be replaced sooner? Is her heart pumping efficiently? How’s that BAV? Those are only some of the things going through my mind. I honestly don’t know what could arise during this echo. This is the first time for me since it’s been so long since her last echo, which at the time was only weeks after her ohs. I really don’t know what issues could be present. It’s not something that can be googled and even if it could every CHD case is different. A guideline would be nice though. It’s one of the reason I started a blog on Icie’s heart journey.

Will she need to be sedated, Maybe. Am I happy about that, No. Will her heart be functioning properly and everything looks great, I pray to God yes.

[digitalinkwell]

I love this little stinker with all my heart. Watching​ Jimmy Kimmel get so emotional while speaking of his newborn son scratched at still-open wounds. The fear, the uncertainty when first getting that diagnosis is something no one can comprehend unless they've been through it themselves. This journey is forever but I'm sure glad this little spitfire is ours. And I'm so grateful for modern medicine every day. And there are days when I legit want to give his pediatric cardiologist, Dr. Renella and his thoracic surgeon, Dr. Gates a hug. Today is one of those days. #toddler #tetralogyoffallot #tof #22q #chdawareness

[karlynwonderland]

Well tomorrow officially marks Heart disease awareness month! Here I am at 2 years old showing off my battles. My scar looks very faint now (but still bad ass). I use to hate it. Now I show it off with pride. Do you think my parents thought I was going to grow up to be a "normal" 22 year old? Whatever normal is any ways. I'm in college. I can drive myself to school. I can work out. I am volunteering with babies who have what I have. I'm a science geek now thanks to my congenital heart disease (CHD). I am going to be a pediatric cardiac nurse thanks to my CHD. I believe my battles have lead me to my victories.

[theblondebibliophage-blog]

Open Heart Surgery

I'm anxious AF about my OHS that's in about 12 days. But I'm also REALLY excited. I'm so looking forward to all the things I can do again without being exhausted, like: (the little things) •climbing a flight of stairs •having a conversation •walking and talking at the same time •going for a walk with my husband •doing my laundry •staying awake after a day of work to hang out with my husband •warming up before golf •hooking up with my hubby (the big things) •summers on the nantahala •mountain climbing •bouldering •a round of golf- walking •a day at the beach •traveling •exploring ...and everything else I've lost the will to do since it's been such a huge production these days. I'm excited to have excitement back. My husband said he fell in love with me because I had such a zest for life. I can't wait to have my zest back. Bring it on, open heart!