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#I know other disabled folks in person and several who use mobility aids like me
froggiethelesbian · 1 year
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There’s something so intimate with seeing another disabled person in public. I was walking down the street with a friend to a cafe, my red cane in hand. Coming down from the opposite street was a young women with her friend. I saw her bedazzled cane, covered in stickers and art then looked up to her eyes. She had been looking at my cane, covered head to toe in stickers, before looking up to me. We both smiled and kept walking.But with no words spoken there was a message.
“You’re just like me. We are both here, living our lives, walking with a friend like everyone else. We exist, not just online but here in person, we are not alone.”
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alpaca-clouds · 6 months
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How to make a "world" more accessible
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Let's talk a bit about accessible worldbuilding. I am thinking here first about Solarpunk worlds, but also about other scifi and fantasy worlds, that often do not think about this at all. Again, there is this nasty tendency to just assume that there are no disabilities in those worlds - and it leaves disabled people often feeling left out.
One of the most basic accessibility features one would expect to see in a world would be some sorts of ramps. And don't get me started with "oh, in my world wheelchairs fly!", which is something that actually not all folks reliant on wheelchairs want - as the actual hand-moved wheelchair often gives them a certain control.
It should also be noted that ramps help not only wheelchair users, but also people with baby strollers, and folks who might use other mobility aids like rollators. Heck, in my life ramps have also helped me, when I was travelling with a large trunk. Really, ramps make life easier for a lot of folks! Heck, if we think about a solarpunk world, where hopefully a lot of folks would get around by bike, ramps would help as well.
Of course, in some cases (if feasible in the technology level) there might also be a need for some sort of elevator. Again, not only wheelchair users will make use of that.
Another thing that should help, would be a wider usage of stuff like orientation systems for blind people. Currently those things are fairly spotty. Like some places have them, other places don't. And even where they are implemented, a lot of folks do not know what they are and will walk over it and park their cars on it. Stuff like that, which will once again make stuff more dangerous and inaccessible for blind people.
Then there should more accessibility accomondations for people who are deaf or hard of hearing. Those could mean to install visual signals for warning systems, which often currently are mainly auditory. It could also mean a wider usage of stuff like subtitles if possible in the world. And it also could mean that in the world people are more encouraged to learn sign language.
But those are the obvious disabilities. The stuff folks think off first when they hear "disability".
But there are other disabilities. Personally, for example, I do have some issues with my bowels. So what would be important to me is easy access to toilets whereever I move around. Which also is to say: Yes, dear public transport. Not having a single accessible toilet in your fucking train is an accessibility issue and ableistic.
Or the one accessibility aspect that has slowly been taken away recently due to hostile architecture: Benches and other places in public to sit down on. Because a lot of folks just cannot stand/walk for a long while. This is true for old people, and recently increasingly too for folks disabled through COVID.
There is also the need for shaded areas. As there are several disabilities that do not deal well with direct sunlight. Be it people who react allergic against sunlight, be it people whose eyes cannot deal with too much light, or be it people who might just struggle with their circulation when in the direct sun for too long.
And then there is allergic people. Which is also a big chunk - and in some cases can be quite debilitating. And I might remind people: In a fantasy or scifi world there might be people allergic to some of the worldbuilding stuff. Like in the Witcher Triss is allergic against magic, and in the nice sapphic webcomic Always Human one of the two main characters is allergic against bio-implants. Hence, ideally in an accessible fantasy/scifi world it would be easy to access what kinda stuff is in a potion and what not, to allow folks to be safe.
Lastly, of course, there are neurodivergent folks and... about that I am going to talk tomorrow.
Oh, and by the way: If you are disabled and have ideas of how the world could be more accessible for you... Please feel free to add!
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aelianated-star · 1 year
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Buckle up folks because this is a long post -
Tips for newly diagnosed dysautonomia patients:
- Drink a lot of water (so much water guys. Especially if you have hypovolemic types of dysautonomia, like hypovolemic POTS, it’s crucial)
- Keep up with electrolytes/ salt intake. Vitassium makes salt pills, chews, and tablets. I personally prefer the tablets because I can just suck on them for a while, but I know a few people who prefer the pills.
- Compression socks help, A LOT! One major component of dysautonomia, in general, is blood pooling (which can greatly increase your risk of fainting). The compression/construction helps blood flow and return back to your heart and brain
- Your disability(s) are valid, even if you don’t pass out/pass out a lot!! Only about 1/3 of people with POTS (one of the most common types of dysautonomia) pass out! And of those, few pass out regularly/daily (such as myself). No matter what, you are valid! Even if you’re undiagnosed, even if your case is “mild”, even if you manage it well without much help; you’re valid!
- Especially for those of you who are just being introduced to disability (likely because of long COVID), it’s okay to grieve the life you used to have/planned to have. You can live a wonderful, full life with these conditions (and other conditions), it just may require more accommodations than you anticipated!
- DONT BE AFRAID TO ACCOMODATE YOURSELF! Seriously, use mobility aids, get a 504/IEP, and make your space(s) accessible to yourself! I use forearm crutches for short distances, but because of how severe my dysautonomia is, I’m reliant on a wheelchair (with someone pushing me/motorized aid) to go more than a couple hundred feet/longer (or anything that requires standing for more than 5-10 minutes).
- Get a pulse oximeter or watch! Certain types of dysautonomia may cause lowered oxygen (hypoxia) because of a lack of available blood. It’s extremely important to monitor this and make sure you’re aware of your oxygen levels!
- Find community! I personally love using “stuff that works”. It not only lets you crowdsource for information about medications or treatments, but lets you message other people with the same condition(s) as you.
- If you feel like something is wrong, please talk to your doctor. I know it’s scary, especially if you have medical trauma/PTSD on top of these conditions, but it can literally be lifesaving. I noticed a sudden uptick in chest pain and casually mentioned it to my doctor. Sure enough, we found I have two types of arrhythmias (p-wave inversion and flutters) Now I’m pushing for genetic testing to see if my diagnosed EDS is vEDS/cvEDS
- Don’t be afraid to start and try medications! I’ve tried numerous medications and haven’t found anything that works quite right yet, but that doesn’t mean I won’t :). And some of you may not need medication! You may be able to manage with lifestyle changes, or IV therapy, which is great! Do what works FOR YOU. Everyone is different!
- Rest days are productive! Your body is working really hard to keep you alive, it’s okay to take a break! Take care of yourself, really, it’s okay to conserve spoons.
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Jesus Christ I'm just. Pissed. Angry cripple coming through
All of this cripplepunk discourse is making me so upset. Like, holy shit -- no, mental health problems are not the same as physical health problems. And I don't mean that in a way that waters down how much mental health problems fucking suck! I'm dealing with both! I get it! But they don't suck in the same ways and I'm not being evil by saying that they should each be able to have their own spaces!
Listen, I *get* that sometimes mental health stuff can take a physical toll! I know that anxiety can cause cardiac problems and PTSD can sometimes give you chronic pain and so on and so forth. And as far as I'm concerned, if your disabilities are primarily mental but overlap in a way that makes them physical too (like what I mentioned earlier, or gastrointestinal issues, or tremors that make it so you can't hold things) then sure, fuck, whatever! Cripplepunk is for people with invisible physical disabilities too and as long as you're experiencing an *invisible physical disability* then even if it's based in your mental disabilities they count. But this isn't a mental health focused space and was never meant to be. Cripplepunk was created by physically disabled people, for physically disabled people, for us to be able to find community with other people who experience shitty body stuff like us. And if you experience shitty body stuff that's fine, come and join us, but don't be shocked if everyone is so busy talking about dislocations and incontinence and chronic pain and how to use mobility aids properly to properly connect with you on your depression or dissociative disorder. There are other spaces for that, where you can talk to people with other mental health problems and get support and community and tips on coping with shit, and I know this because I'm in them! Neuropunk and madpunk fuck severely and they're wonderful places to get what you're looking for!
But if you're dealing with shitty mental health and disabilities of the mental sort, and don't have much in the way of debilitating physical symptoms because of them -- why the hell do you want to call yourself a slur so bad? There's nothing wrong with being able bodied. We're not trying to make a cool kids only club that your functional organs or usable limbs are somehow not good enough for. We just want a space where we can be loudly, unashamedly physically disabled and not have to worry about able bodied folks butting in. I'm autistic and enjoy many autism-only spaces free from allistics talking over us, am I being ableist for requesting that, say, a allistic depressed person not join that autistic-only space? No, because it's for autistic folks! The allistic person wouldn't get any of the support they need there, and might talk over the autistic people in the process without meaning to. Or if I created a discord for psychotic folks (which I am, before anyone yells at me) then would I be unreasonable to turn someone away who didn't experience any psychotic symptoms at all? Absolutely not! Why is it so unreasonable to create a community for ourselves where we can talk about our own bodies and experiences?
This isn't the oppression olympics. This isn't us meanie cripples barring poor mentally ill abled folks from the single scrap of community they otherwise could have had. This isn't us evil gimps saying that we have it sooo much worse than you, all the time forever, and mental health problems are nothing in comparison to what we go through. This isn't even us saying that you can't have solidarity and community with us even under the wider umbrella of disability as a whole! This is just us, saying that our experiences can be vastly different, and it's not unreasonable to want to have our own space to talk about things that you might not experience.
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purni-lyfmaze-blog · 5 years
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List of Weird Phobias You Never Knew Actually Existed | Lyfmaze |
We all have heard about the word phobia & everyone at least suffers from one. But, what actually phobia is? A phobia is a kind of anxiety disorder which is an ongoing intense fear usually connected to a specific place, genetic, object, abuse or depression. Some common symptoms to recognize phobia, but, it may vary for each individual – one may encounter an extremely unpleasant sense of fear or panic attack or may get out of control when one encounters, think or talk about the source of their phobia. Phobia can trigger in one’s childhood because of some traumatic event and could root to a lifelong fear. People with phobias are unable to do anything about it but realize they are powerless over it.
Apparently, everyone fears something. Many people suffer from weird & bizarre phobias which are extremely hard to pronounce just the way one would have ever thought they actually exist.
List of some weird phobias you never know actually existed:
Nomophobia
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Ever heard of Nomophobia before? It is an abbreviation for “no-mobile-phone phobia”, now you can get an idea of what Nomophobia could be. Nowadays, a cell phone is a great source of pleasure and also a major distracting tool that is leading us sadly towards the one of biggest phobia in the world also stated as the non-drug addiction of the 21st century. Nomophobes may encounter panic or anxiety disorders when they run out of battery or have no internet/network coverage, losing sight from a phone, checking phone frequently. Two in three nomophobes never switch off their mobile.
Agoraphobia
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Agoraphobia may involve a fear of crowds, bridges, using public transportation, being outside alone without a history of panic disorder. such as using public transportation, being in open or enclosed spaces, standing in line, or being in a crowd. You may feel that you need a companion, such as a relative or friend, to go with you to public places. The fear can be so overwhelming that you may feel unable to leave your home.
Numerophobia
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Do you hate numbers? Then you might be suffering from Numerophobia. You must be thinking, oh! this is the reason I don’t like Maths. But, on a serious note, this phobia could be very serious & may limit a person’s educational and professional opportunities. Numerophobia is the fear of numbers or mathematics & is also called Arithmophobia. This phobia refers to the fear of specific numbers like 13, 666 & 4.
Alektorophobia
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Whenever someone hears or thinks about chicken normally they feel crave for it but, there are some people just by encountering or thinking about a chicken it is called Alektorophobia. It’s acknowledged as a specific phobia. People with specific phobias may not evoke how the phobia was developed it could be through negative experience or genetics and environment.
Bibliophobia
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Bibliophobia refers to the state of having an unusual or hatred fear of books which often make it very difficult or painful exercise to read books aloud or silently. This phobia can be restrained to specific books or reading about evil or frightening stuff. Bibliophobia would trigger people suffering from learning disabilities or past negative experiences.
Technophobia
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Technophobia is the constant dislike or fear of learning new advanced technology or devices. It is also linked to Cyberphobia, which is a fear of working with computers. It is an extremely studied phobia, as many teachers encounter a form of this when they are asked to teach their students using new technological aids. Other reasons for this phobia could be feeling of incompetence for the new age of technology, wrong influence on their life or is not required, negative experiences like account hacked, screwing up while using a computer.
Botanophobia
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A walk in a park or area covered with trees could be an easy and pleasant experience, but for some people, it could be a nightmare as they might be suffering from Botanophobia – a phobia of plants or Dendrophobia – a phobia of trees. These phobias may trigger at a young age but one can continue to suffer in their adulthood & the reasons could be linked to genetics, a memory associated with a deceased loved one, serious injury, illness, allergy or superstitious beliefs associated with witches and other evil.
Heliophobia
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We all have heard that vampires fear the sun & are more active at night, but in the real world, you can find some people who have an intense, & sometimes irrational fear of the sun. They might be suffering from Heliophobia – Fear of Sunlight. The phobia of the sun may originate from painful experiences, anxiety about getting skin cancer, wrinkling, premature aging, severe sunburn, etc. They may try to hide under lots of clothes, smear tones of lotions and shield their faces with scarf & dark glasses before stepping out.
Selenophobia
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Like any other Phobia, it is surreal to believe but, it is true that some people have Selenophobia which is a fear of Full Moon. The phobia of the moon may originate from the following – a traumatic event or a fact that moon affects human behavior – studies show that crime rates are more likely to increase during the full moon or superstitions linked to folk tales & evil creatures.
Pogonophobia
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Beards have been popular & classic look for men for the past few years. In fact, we are surrounded by beards, which could be very hard for some people to sustain as they might be suffering from Pogonophobia – an extreme fear or dislike of beards. It may seem absurd but, it is classified as a genuine phobia. This phobia could be stem from negative or traumatic past experiences with a bearded person, the belief of being unhygienic or suffering from illness. All genders and ages could get affected by this phobia.
One can easily find phobia with each letter. Do you know which phobia you are suffering from? Do let me know. 
To read more visit Lyfmaze.
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optimizedfamily · 5 years
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2019’s Best 3 Wheel Walkers Reviewed
No one wants to be dependent on a walker - or at least no one that I know.  But if that time has come, how does the saying go, “If you can’t beat ‘em, join ‘em?”  The loss of adequate mobility can lead to loss of independence.  But for some, there's another adage that rings true.  "It ain’t over till it’s over.”
The trick is finding a walker that works best for you - one that will help you retain as much mobility and independence as possible. 
How I Discovered 3 Wheel Walkers
I've got to admit; I knew absolutely nothing about walkers until my dad could no longer get around without one.  The day had come that the larger than life "He-Man" who boxed in the Navy and featured in the newspaper for heroically lifting a car off a fellow employee on the General Motors assembly line was unable to walk without help.  He had fallen several times, and even he knew that one fall too many could be the one to take his independence entirely.  It was time to shop around.
I read up on traditional style walkers but couldn't picture my dad using one.  He does not make a good patient.  He makes a terrible one.  I knew I had to come up with something a little edgier, one that would let him get around more quickly than most.  Thankfully, I stumbled across the miraculous three wheel walker!
What Exactly are 3 Wheel Walkers?
Walkers are devices that aid a person's mobility by offering support.  Some have wheels and referred to as rollators.  There are walkers with seats, Euro walkers, 4 wheel walkers and...3 wheel walkers.
Three wheel walkers are triangular.  They have three wheels, one in the front and two in the rear.  Generally, the walkers come with hand brakes and sometimes even have extra features, like a basket to carry your belongings in. 
Positive Points
I discovered a ton of benefits the three wheel walker has to offer folks, like my dad, who want to retain as much independence as possible but at the same time, need a little help in doing so.  To me, they are the sports car of the walker world.  Here are some of the perks they bring to the showroom floor:
Three wheel walkers fit through narrow openings.
They are usually lighter weight than traditional walkers are.
Because of their triangular shape, they are easier to maneuver. 
Most three wheel walkers are more manageable to guide than regular walkers.
They go faster.
They zip around corners.
The majority of 3 wheel walkers are compact - a cinch to transport and store.
Let’s face it...3 wheel walkers are just cooler than traditional ones!
Best 3 Wheel Walkers
Three-wheel walkers come in all shapes, sizes, and styles.  They can be constructed out of all different materials and even come in different colors.  In addition, many accommodate other needs you may have due to your circumstance or disability.  With quality, craftsmanship, and special features in mind, the following three wheel walkers are ones that I found to be a step above the rest:
Drive Medical Winnie Lite Supreme Three Wheel Rollator 
- If you are looking for an ultra-lightweight three wheel walker that can get you from point A to point B with ease, this model does the trick.  It's a no-frills device that is very affordable.  It's constructed of aluminum, so it weighs practically nothing but is super durable.  The handles adjust the height from 32-38”.  The tires are soft-grip which makes them perfect and practical for use both indoor and outdoors.  The casters are 7.5", and there's a special loop lock that makes the device glide.  The brakes are adjustable.  This walker is only 26" wide so that it can fit through most openings.  When you are done for the day, push the hinge, and it folds right up for compact storing.
Drive Medical 3 Wheel Rollator in Flame Red​
If you were the one who had to have the red sports car, you’ll love this model by one of the best makers in the bunch, Drive Medical.  And yes, you guessed right this is the one my dad just had to have (probably because it was red).  There are some great features this three-wheeler has like its one-handed folding ability, lightweight aluminum construction, and lock knob for times you want it not to budge.  The casters are 7.5" which are ideal for indoor and outdoor use.  This device is just 24" in length and 25" wide, so it easily goes through most openings.  The handle height is adjustable, 31"-38".  This walker supports 300 pounds which was great for a big man like my dad.  You even get a basket, pouch, and tray with this model.
Carex 3 Wheel Walker for Seniors
This model has 7” wheels for getting around inside and outside too.  It is lightweight and easily folds so you can take it with you wherever you go and store it when you are through.  What I like about the Carex is that it gets in and out of tight spaces and can cut around people in the grocery store aisle too.  The wheels have locking brakes for safety, the height is fully adjustable, and it comes with a large storage bag with a spot for ID cards and your cell phone too.  This is one of the most popular three-wheel rollators on the market and with good reason.  
Nova Traveler 3 Wheel All Terrain Walker​
​The Traveler is built to do precisely that, to travel!  It is a superb device for getting around in rough terrain like you might run across outside such as loose gravel, dirt, grass, rocky ground, and practically any other type of territory you might need or want to walk across.  The rubber wheels are a whopping 8" which allows to go over rough terrain more easily.  The paint and overall construction seems like it’s very high quality.  Nova is known for being top notch.  You'll get a zippered storage pouch, a basket, and even a handy tray with this model.  There is a locking parking brake and adjustable handles too.  This walker is 24" wide so that it can squeeze through super small openings.  Nova backs this product up with a lifetime limited warranty.
Healthline 3 Wheel Lightweight Walker​
​If you need a super lightweight three-wheel walker, this one certainly fits the bill.  It weighs in at only 13 pounds.  Amazingly, it supports up to 300 pounds though.  Being only 24" wide means, it can squeeze through tiny spaces.  The handle height is adjustable, and it has brakes that are easy to grip.  It also comes complete with a wire basket for storage, a safety tray that conveniently goes on the basket that can be lifted or placed back down, and a tote bag too.  This model folds and unfolds easily so you can take it anywhere, even if you are traveling on the bus or in a small car.  It is available in a stylish blue.
3 Wheel Foldable Walker with Shopping Cart
​This walker is lightweight, and it quickly collapses to transport and to store.  It seems like the easy-glide wheels help make it move smoothly. If you are a shopper, this model is ideal and even comes with a large storage basket to put your goodies in.  There's a convenient slot for your ID cards too.  The wheels are 7" which is a nice size.  When you want to stop to grab something off the shelf or for whatever reason, you can lock the wheels into place, or you can use the hand brakes.  Corners are simple to turn with this 3 wheeler.  And one of the best things about this jewel of a walker is that you won’t need any tools to assemble it. 
If you still haven’t found a 3 wheel walker that fits your needs, keep looking.  You are sure to fall in love with one somewhere down the line.
Some Add-Ons
Why not “trick your walker out" as the kids say?  Once Dad got over his stubborn pride and got into his "3 wheeler", as well called it, I can honestly say he made the best of it.  The family got into the spirit too.  We gifted him add-ons for his birthday, Christmas, and sometimes "just because."  Here are some great items you can add on to your three wheel walker:
Drive Medical Universal Cup Holder
You’ll need a refreshing drink to take along on your walk, so you’ll need a spot to slip it in to keep your hands free.  This cup holder fits many sizes of cups, glasses, and bottles and should fit onto most walkers too.  It even swivels for convenience. 
Tote for 3 Wheel Walkers
You definitely can take it with you when you go!  This convenient carry tote pouch has a good bit of room so you can take your belongings with you.  It folds into a 14” wide pouch and folds back up to be under an inch wide.
Walker Basket
You will need your hands to guide your walker and to help stabilize yourself, so you'll want a place to put shopping bags, your picnic lunch, or whatever else you want to take along with you.  There are a multitude of walker baskets to choose from, but this one happens to be my favorite. This particular basket is for the Winnie Deluxe model, but it will fit many other three wheel walkers too.  It is lightweight, yet sturdy, and holds quite a bit.
How Do You Roll?
Not ready to give up your independence yet?  Neither was my dad.  But when he finally came to grips with the fact that giving up a portion of his independence beat falling and possibly losing it all, he conceded to use a walker.  Not just any walker would do, however.  He had to level up.  Maybe you are in the same situation. 
I am not even sixty yet and am having to face the fact that I have a medical condition that causes me to limp and easily lose my footing. It’s called Myelopathy, a complication of Spinal Stenosis.  Since I inherited my dad’s willful, independent spirit, I can tell you that when the day comes and I too am forced to depend on a walker, it won’t be any walker.  “No sirree bobtails!" as Dad would say.  I'll be behind the helm of a three-wheeler because that's how I roll.  How about you?
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anyathebox-blog · 7 years
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