#Thyroid diagnosis

[amri-hospital]

[hormonesclinics]

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[mandana-the-service-pup]

My Rheumatology appointment was great. The dramatic improvement on Methotrexate was the final piece of the puzzle. My Rheumatologist was able to confirm a Spondyloarthritis diagnosis based on my improvement and the X-rays, blood tests, etc. She said my presentation is not typical (probably bc of the EDS & dysautonomia) so Lupus will always need to be on the table and I’m supposed to inform doctors of my increased risk for drug-induced Lupus.

Methotrexate has improved 4-5 years of symptom development but it’s not enough on its own. Hydroxychloroquine and Methotrexate are both dosed based on weight so they can’t be increased. I’m supposed to stay on both medications and use steroids for acute flares (2 pills in the morning every day for a week) If the steroids don’t help then we might move on from Methotrexate to the next DMARD.

I’m so incredibly grateful to finally have a diagnosis that can be treated effectively. I’ve had symptoms my whole life, disabled for the last ten years and have had red flag symptoms for the last several years. To finally have treatment options is such a relief. My Cardiologist follow-up is next week and I can’t wait to finally quell their doubts in me.

[shrikeseams]

.

[banannabethchase]

Due to turning 32 and the world repeatedly nuking my ass with ailments so I don't become so powerful I overthrow god, I was recently diagnosed with PMDD. It explains the mood swings, the very bad thinky thoughts that last me 7 to 10 days, but the biggest thing that it explains is why it feels like something is consistently clawing its way out of me in ways I haven't experienced since my first couple periods in middle school. And it's every time I have my period.

Today it's particularly bad

My husband, the comedian, says it's because I got implanted by something after the Ospreay/Danielson match. We've decided it is Good Wrestling Spectation Disease.

So like. If any other wrestling fan gets bad cramps, no you don't. You have GWSD.

Thank you for coming to my Ted Talk.

[nokingsonlyfooles]

Hope is Dangerous...

A machine elf woke me up this morning.

(Link has description penned by the ethno-botanist who named the phenomenon.)

Now, I have already heard of them, and I know what they're supposed to sound like, so if my half-sleeping brain wanted to produce one for me, it has instructions. Also, I'm operating on 1.5 hours of sleep right now, tops. Consciousness gets gooey under these levels of stress. Scientifically, this is a useless experience.

Nevertheless, a loud, excited, unintelligible gabble - distinct in that way from Disney-esque squirrel-speak - woke me from fitful dreams. And then the spouse came in and told me it was about time to get ready for my fateful doctor appointment.

I've had thyroid issues for at least three decades, probably born with them. My number was low (standard panels only check one, of three), they threw enough Synthroid at me to get the number into "normal range" and never gave me a diagnosis. I still had symptoms, nobody cared. They tried to treat my anxiety with antidepressants - which never worked. Because my thyroid number was "normal," you see. Of course, I was gaining weight because I didn't eat properly and exercise, even though none of the diets and exercises worked either. My thyroid number was "normal." I was just a lazy liar!

My "family doctor" (I'm lucky to have one!) "prescribed" megadoses of iodine, and sea kelp, and a ketogenic diet. I begged him to send me to an endocrinologist, almost from the first appointment. I told him the same story I've told you, plus more. Finally, my spouse accompanied me to an appointment and told him to give me the referral. He did, but I couldn't get an appointment with the thyroid specialist for months. Today was that appointment.

I have had so many doctors stop listening, glaze over, and do the minimum amount needed to get me out of the office. I've also had a bunch be very enthused about listening and helping me! Only to disengage and glaze over when it turns out the minimum amount doesn't cure me and I keep coming back asking for help. Pssht! Women! Am I right, fellas?

Today, this guy had run a full blood panel with all three numbers. For months in advance, I stopped taking all the useless supplements the "family doctor" pushed on me, to make sure the guy had an accurate result. The first thing that happened when I came to the office - a tech weighed me and checked how tall I am. THAT IS NOT A GOOD SIGN. I waited, expecting to hear, You have an unhealthy BMI, here's a diet, you need to exercise.

What I got, after some very sincere (seeming!) discussion was: "You have Hashimoto's, your immune system is attacking your thyroid, and you're probably one of the 5% of people who can't convert Synthroid to every type of thyroid hormone you need."

THIS IS HOW I SELF-DIAGNOSED YEARS AGO, BUT I NEVER GOT ANYONE TO LISTEN.

I told the doctor I'd tried Armour Thyroid, and it was wonderful, but I couldn't tolerate an effective dose. (I tried so hard to tolerate it! I split my dose, I built up to it, I worked for months, but the side effects didn't go away. It killed the anxiety I've lived with all my life. Boom! Gone! And then I had to stop taking it and, like a nightmare, over about a week, all that mental anguish came back.)

He said: "It might be the binding agent." THIS ALSO JIBED WITH MY RESEARCH! "Let's try it from a compounding pharmacy. If that doesn't work, get back in touch with me, there are more things we can try." Ha-ha, and also, bonus round: "No, don't take sea kelp, don't megadose with iodine, that can make your thyroid stop working altogether." And! "I'm going to talk to your doctor."

I AM VALID! But, I've heard that before. And when the first thing doesn't work, I lose all my traction. I am hoping so hard. Armour Thyroid did help, but if I can't tolerate it, I'm setting myself up for another Flowers for Algernon where my crippling anxiety goes away and comes right back.

Machine elves seem like they like us. The seem to have the ability to create beautiful things with words, and they're so jazzed to teach us how to do it, that they try to create this information into our heads all at once instead of slowing down to explain. I'm a writer. Broadly-speaking, that is also my jam, so I'm in favour of the little guys, real or imagined.

My dude - or genderless construct, or however you identify - if you're watching me right now, thanks for giving my reality a nudge towards something better. Now, for god's sake, keep it up!

[oneheadtoanother]

My mom just had a fucking cancer scare because of how stupid our healthcare system is. Short version: she had a large benign growth removed from her thyroid last fall and they made what they call an "incidental finding" at the time of a microcarcinoma, which is a tiny (<10mm) pre-cancerous growth. The surgery team set her up with an oncology follow-up just to be thorough. Then yesterday she saw on her patient portal for this upcoming appointment that she was listed as having a diagnosis of thyroid cancer! AND she had just gotten something in the mail (I think from the same hospital?) inviting her to participate in a thyroid cancer study! Thankfully it's a happy ending—sounds like it was really just for billing purposes that they had that diagnosis listed since that's what they're monitoring for (they said no problems now, come back in a year), but can you imagine that being how you're informed that you have cancer? Getting checked in for your appointment on their website? What the fuck. I was too worried to be pissed before but I'm feeling it now

[feytouched]

the potential rheumatoid arthritis / whatever mystery diagnosis i am yet to receive shan't get in the way of me wearing cute nails. even if it makes my hands knobbly and swollen and painful at least there are cute gingerbread bears there too

[this-doesnt-endd]

I feel like my crown just shifted up oh my god

[opens-up-4-nobody]

...

[ghostzussy]

lil sad cuz my zyrtec isn't working as well so I have hives most of the time now :( but!!! I found a doctor who's researching my condition!!!!

*grabs u by the shoulders*

AFTER 3 YEARS, $2500 WORTH OF LABS, AT LEAST 8 SPECIALISTS, AND CONSTANTLY BEING PASSED AROUND LIKE A SHITTY GAME OF HOT POTATO, I HAVE A DOCTOR THAT'S WILLING TO LOOK INTO MY CONDITION.

that is all :)

[britneyshakespeare]

oh you know what i found out? most people diagnosed with hashimoto’s thyroiditis are between the ages of 40 and 60. as with most things i am precocious 💫

[sanchoyo]

🧍🏻 girl help the blood tests came back and I do possibly have pre-hypothyroidism. They want me to come back in 3 months to do another panel just in case bc smth was apparently way way too high 😭 wtf !!

[lazer-cannon-deth-sentence]

for this disability pride month I am going to get more disabled

[spencermyangel]

Here’s the cat I was talking about in this reblog

Tigger is his name