#ajovy
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So. warm itchy teeth.
My brain also feels like that tonight.
But also I'm having that jarring, twitchy sensation in my head. Glitches my vision. Kinda nauseous. Other blah-making symptoms.
Makes me wonder if I'm constantly having Migraines but they're weird and without the headache.
Maybe my Ajovy is preventing the headache but I'm still having all the other fun shit that gets lit up during a migraine
Google has nothing for me, Ajovy is too new to tell me it's weird quirks..
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ooof I have just messed up my ajovy injection for the first time because for some reason this time the loud click made me flinch and pull the injector away from my leg so $500 worth of medication went on the floor. not my $500 but still OOOF. Gonna have such a conversation with the pharmacist tomorrow.
#i am having an extremely bad time rn#and alfie keeps violently attacking me bc that's his love language#i like want him to sleep in here tonight in theory#but im actually thinking of kicking him out and getting Velma instead bc i need the emotional support kitten#update: i just have both of them here now#uninterrupted sleep? I don't know her#ajovy
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ajovy call out post
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Here's to kicking migraines in the ass!
#multiple sclerosis#chronic illness#spoonie#type 1 diabetes#migraines#headaches#injectables#ajovy#chronic pain
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One year on Ajovy update!:
I can’t believe it’s been a year already, it’s gone so fast. I stopped doing monthly updates because the situation hasn’t really changed since the effect of the medication stabilised. I currently get ~10/30 migraine days a month —down from 30/30 before the medication— and my quality of life has improved dramatically as a result.
(Finding medication to help my POTS has also had a huge positive impact)
I’m still not really able to work a job, but I have been able to do a lot more of the work of being a person.
I had a review with the headache clinic that’s prescribing the Ajovy for me and they decided I can continue on it for another year (with another review at the end of the year), which is really good news.
#chronic illness#chronic migraine#ajovy#fremanezumab#anti cgrp monoclonal antibodies#anti cgrp#my post
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So I just learned a shitty little fact. Even if Tylenol is somewhat helping my migraine, it won't always help the trigeminal nerve pain once that start to kick in. According to my neurologist this is normal/common with how frequent and bad my migraines are, which really sucks. So currently sitting with my migraine pain at about 5(was 8 earlier) and my ears/face at 7-8. I'm supposed to do my next ajovy shot in the next day or two, hate the slam of migraines I get before the shot day.
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Jumped through some hoops and got the Gov't to pay for a migraine med I thought I would likely never afford to even try.
...when I was younger and a bunch of my friends were sticking needles in their arms, I passed. Didn't seem like a good idea. Now decades later here I am sticking needles in me. Well my partner has so far, I was worried I might do an involuntary pull back at the pinch and screwing up a $600 per injection shot (once a month) also seems like a bad idea. Too soon to know if it will help but I am hoping!
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My sister finally agreed to get her migraine shot today. I'm not thrilled because she wanted to get it the same day as me and I'm 2 weeks overdue. Which also means i have to pick a new shot day. 🙄
I liked it for the 15th because "new month" reminded me i needed a shot that month but also gave me 2 weeks to order it and mentally prepare..
Now its the end of the month. Dunno if I'm gonna remember...
We both got our shots. Sissy went first.
She said she was scared. I told her i may just be a big baby, that maybe the shot isn't as bad as i think it is?
Lol..
She yelled some curses. 😂 Described the pain and I'm like "oof. yep" ( >.o) "I'm so sorry" 😭
I did scream longer than she did but I do feel very validated 😂
Ajovy is so painful. Makes a huge difference for me though, so... I will endure it. 😤
I hope it helps sissy's migraines, hers are so much worse. And since she had that TIA she can't take much else
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Think I have learned a valuable lesson about anti-cgrp meds: having a less painful migraine does not, in fact, mean that putting off rescue meds for a couple hours is totally fine. Why do I keep thinking that's a good idea?? Have not been forced to bed by a migraine for like months but got absolutely wiped the fuck out after work today.
#health or lack thereof#ajovy#only for like... four hours#thats probably abt average for me idk#it could easily have been another hour or two
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Oh I forgot to tell you guys the best part. I'm following up with neurology in 6 months and if we don't see significant improvement in migraine frequency/severity they're going to refer me for Botox lmfao
#I can't do CGRP inhibitors because as real heads remember#I tried Ajovy and had an extreme allergic reaction to one of the binding adjuvants#Same one as it turns out that made me have an anaphylactic reaction to the flu vaccine in the UK
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migraines >:(
#liz losing her mind#this shit ruining my life#if my ajovy refill isn’t ready tomorrow i fear i may die
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dont let how tired i look fool you this drug is magical i did two nights in a row of gig and dont even have a headache. that wasnt even true when i was a teenager. chronic migraines WHO!!!!!

alternative caption: this and a blunt tbh
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on day 8 of this migraine. btw
#k talks#i need to see if the insurance will cover ajovy bc i cannot pay $900 out of pocket MONTHLY for it but it’s getting increasingly harder#to live without it smh my head
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#I have a neurology appointment tomorrow and it's the only thing I can think about#bc either they allow me to start Botox or ajovy or whatever or I get kicked back to another anticonvulsant#I'm not opposed to trying topomax or something in the future just bc another anticonvulsant gave me headaches#but I don't want it to be the next step#I've waited long enough for actual care#so basically tomorrow I learn whether I get actual medical care and hope for the future. or I have to get a new neuro#and have to try another med that might make me Worse#I have been such a good patient I have tolerated things that are truly intolerable#I want my healthcare. I want my life back lmao
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my PA for ajovy got denied (booo) but the reason it did was bc a neurologist needed to prescribe it which i already had an apt set up for and gad yesterday (yay!) and the appointment went really well and i like the provider a LOT of migraine management (YAY!!!) so now i am once again waiting for an ajovy PA to be approved lmao
#nervous abt needles but jax offered to help plus ajovy has auto injectors so we are going for it#but i really liked the provider she was good and very easy to talk to and stuff!! and am excited to work w her and try things#also got a referral to their sleep clinic bc my sleep is still Bad and also sleep is a big trigger for me#so im hopeful to see what i can figure out/learn from that#this is the year of blue getting health shit figured out lmak gonna get my tonsils removed etc etc lets Go#she also said i could be a candidate for botox if that seemed interesting but i like how like. open ended she was w things#like she gave me a lot of good info but also everything was my call#she also was good when looking at my mri and explained why she isnt concerned abt ms based on mri and symptoms#and in a way where i actually agree lol like. esp bc i get so anxious i can just latch on to something#but she took the time to answer my questions and explain and show what theyd see if it was ms vs my brain lesions from migraines#and Yeah! i was super stressed and like gad cleared my whole afternoon in case it was a bad time#but it wasnt! im v happy w my new neurologist!#wild to have TWO whole doctors on my care team who i like and trust???? as a fat person??? wow#(trust is w a grain of salt lol i dint entirely trust any doctor But)
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