#epilepsymom

[tayswiftielover13]

#epilepsyawareness #epilepsyawarenessmonth #epilepsyfighter #epilepsysucks #epilepsymom https://www.instagram.com/p/B47bfpggcbI/?igshid=1h073py1qisp4

[rivercove04]

Many of you have been on my journey of tragedy where in 2015 my son became ill resulting in extensive brain damage..then a rare form of epilepsy attacked him which we battled for years. It was awful. To have to give steriod injections daily into your child, fill his body with seizure medications, watching him slowly disappear due to Medical induced sleep. I knew ultimately we had to do whatever we could to stop the seizures to protect his brain from any further damage, but this mommas heart shattered. Then a year later I lost his father, my late husband, to a long battled of mental illness. Then after a divorce. None of this I asked for and those years were so incredibly hard. Emotionally,physically,financially. I had to share to say dont give up no matter what. Keep getting up. Keep moving. These hardships made me stronger. Made me who I am today. If it wasnt for those journeys, I wouldnt be where I am today. Josiah lead me to becomes a foster parent, then a special needs medical foster parent, to becoming Amirs mother. To giving even more children a home who would have not had a hard time due to their medical needs. It also brought me the most incredible husband who trained while we were dating to become trach vent so he could help care for our son. Who we now also care for our foster daughter. He devotes endless hours of the day sitting in hospitals if one of the kids get sick or takes time to play with them. He is such a blessing to our family. He is my best friend. We still have our hardships and struggles, after all we live in a broken world. Just have faith in everything that whatever you have been through or are going through, it WILL get better. It WILL make you stronger. Just have faith ♥️ Thankful for all of you who have continued to support maddiesmadhatters.com to help us to continue to be home and care for these children in their time of need. #medicalparents #medicalfosterparents #therapeuticfostercare #fostercare #specialneeds #specialneedsparents #specialneedsfamily #strength #nevergiveup #faith #youwillbegladyoudid #youvegothis #trachbaby #trachlife #digeorge #cerebralpalsywarrior #cerebralpalsy #cerebralpalsystrong #infantilespasms #epilepsymom https://www.instagram.com/p/CIdLpAYFQK4/?igshid=wajjp4ti95gw

[mrscatbell-blog]

#Repost @epilepsyfact with @get_repost ・・・ Just a simple message for you. Stay strong ❤️———————————————————#epilepsyaction #epilepsyeducation #epilepsylivesmatter #epilepsystinks #walktoendepilepsy #athletesvsepilepsy #epilepsycommunity #epilepsymemes #epilepsyawarenessday #epilepsystrength #epilepsysurvivors #epilepsysociety #cureepilepsy #epilepsywarriors #epilepsymom #epilepsyproblems #epilepsystrong #epilepsyadvocate #epilepsyfoundation #epilepsyday #epilepsylife #epilepsyawarenessmonth #epilepsypositivity #epilepsysupport #epilepsyfighter #epilepsysucks #epilepsywarrior #epilepsyawareness #epilepsy https://www.instagram.com/p/CAWW5zTAvw6ZCGh_5PQ5pS0OtEOyUqtOzK4jGY0/?igshid=130aquglmlwx4

[chloeandisableby-lexiemondragon]

Styling my favorite green jewels from c+i in honor of #StPatricksDay! #candistyle #fashion #mompreneur #momlife #style #epilepsymom #autismmom #blogger #jewelry #lifestyle #vintageinspired #instalove #instalike (at Phoenix, Arizona)

[seizurequeen-blog1]

36+6 and I’m spending the night in hospital again 🙈 Joy. Induction date has been moved forward (still after Christmas) but Dr thinks Bean will one on her own some point this week anyway. Safe to say this has been one miserable, unenjoyable, difficult and seizure filled pregnancy. . . . . . . . #36weekspregnant #36weeks6days #hospital #seizures #seizuressuck #epilepsymom #epilepsy #epilepsysucks #pregnantwithepilepsy #epilepsyandpregnancy #fedup #babygirl #mischeviousgirl (at Royal Glamorgan Hospital)

[chronicallydivine]

So pleased you like them! Thanks for sharing 💖 #Repost @ourpurpleelephant ・・・ So very happy with our pins! @chronicallydivine 💜💜💜#epilepsymom #seizures #epilepsyawareness #thisisepilepsy #ourpurpleelephant #purpleribbon

[tomatonottomato]

#wahmlife #babysnuggles #epilepsymom #epilepsywarrior #shesmyhero

[cats-freakz]

Reposted from @keto4seizures - Chicken Alfredo Zoodles with side salad and garlic green beans. Sam really liked this. It was delicious!!!! #ketoforseizures #ketoforepilepsy #keto #ketodiet #ketorecipes #ketomom #ketocooking #lazyketo #ketofriendly #easyketo #ketogenic #ketolicious #ketonewbie #ketogeniclife #ketolifestyle #ketogenicfood #ketobeginner #lowcarb #lowcarbrecipes #lowcarbstyle #lchf #lchflifestyle #ketomeals #ketoapproved #fitmom #fitmomsofig #healthymom #autismmom #epilepsymom #glutenfree https://www.instagram.com/p/B242VnZhArY/?igshid=u14ax35brwoj

[stardustfalloutmedia]

I am so excited and proud to be part of this year's #walktoendepilepsy with my friends at @epilepsynevada May 4th 2019 at #sunsetpark MORE INFO www.walktoendepilepsy.org #epilepsyawareness #epilepsy #epilepsywarrior #purpleday #epilepsysucks #epilepsyfighter #epilepsyadvocate #seizures #epilepsylife #epilepsysupport #epilepsystrong #epilepsyfoundation #seizuressuck #purple #epilepsyday #epilepsywarriors #epileptic #epilepsypositivity #epilepsywalk #awareness #seizure #epilepsyproblems #epilepsymom #seizurefree (at Sunset Park) https://www.instagram.com/p/Bww3oxRg_o_/?igshid=1abwle0suar4z

[chloeandisableby-lexiemondragon]

Behind every Successful Woman is Herself 💗 I hope that everyone had a beautiful #internationalwomensday no matter how you chose to celebrate it. Today my biggest success was being a mom! #chloeandisabel #momlife #momblogger #mompreneur #success #womeninbusiness #phoenixblogger #epilepsymom #autismmom #instalove #quote #flowers #desk (at Phoenix, Arizona)

[hashtagteamaria]

Relatable: Special Sounds

I saw this piece this morning, and just had to do an excerpt on it. I think a lot of special needs Moms, Dads, and Caregivers can relate.

Quite a profound passage by Danielle Boyce, read it in full on her blog, My Special Needs Lifestyle

Those special sounds that we can relate to for Aria:

“He’ll (she’ll) grow out of it.” Really? Because not even the experts can guarantee that, and you’re obviously qualified...

View on Worpress

[seizurequeen-blog1]

It’s been a very long day and we are all exhausted. - went from Taking us an hour to re settle this one when he woke at 5am. We originally assumed it was a night terror but suspect it could have been a seizure instead. Never fully awake but half conscious, screaming and eyes rolling and unresponsive and rigid. Frightened the life out of us. 😔 - by 7am he woke up but was still lethargic, cold despite being boiling to the touch (temp of 38.8), disorientated asking to go home when he was in bed and still very much not with it. We phoned the GP and had an appointment at 10:30. - caught the bus to doctors and got sent to Paediatric ward in hospital where we have been all day. - high temp of 38 still when we left 2 hours ago but feeling more playfully after paracetamol and ibruprofen. - Dosed up with medicine and antibiotics for his throat and ear infection, high temp, cold and to prevent more seizures. - O has been a star having o have ears and throat checked numerous times, blood pressure taken, temp taken, had to wee directly into a pot which I caught it first time!! I’d love to take credit for that but the little monkey told me he needed a wee and thought he could go home after. - eventually perked up enough to tell daddy to go ‘night night’ so he could take photos of him though. 😂 Just to top it off mamas Myoclonic seizures weren’t behaving either so made retelling the story quite difficult and repetitive, BUT O came first, as always and I fought through it. Safe to say we are all exhausted and need an early night. . . . . . . #epilepsysucks #seizuressuck #epilepsymom #pregnantwithseizures #febralseizure #hightemperature #feelinghot #poorlybaby #myworld #toddler #toddlerlife #dayinhospital #paedriatic #poorlyboy #poorlytoddler #scaredmama #scareddaddy #family (at Royal Glamorgan Hospital)

[tiggerific72-blog]

Child with Epilepsy

For one minute I have to give up all control of keeping you out of harms way. Your body lies stiff like a board but you are still moving. Your lips turn blue for a few seconds and I know the life is slipping out of you. I try to move you so you can breath again. As your body comes back to life again you are so confused and I try to explain what just happened. All I feel is love and the want to take this thing that has invaded your body from you. As your mother I feel like I failed to keep you safe and I want you to live your life to the fullest. 

[relativelynormalmom]

What do you Say?

As the parents of a 20-year-old with neurological issues, we are going through some pretty typical teenage stuff as well. Of course we’re happy when we see the all too rare developmental growth spurts that come between getting her seizures and her EEG activity under control, but each growth spurt also brings with it more questions about the world around us. Even though Rachel still cannot read or write, or tell time or count money, live independently or get a job or go to college, a developmental spurt brings with it a better understanding of abstract concepts, and more questions about why she is not like other teenagers and can’t do the things they do. What do you say? 

Rachel is becoming increasingly aware that she doesn’t have friends her own age. We were in the car yesterday, and she saw a group of teenagers walking on the sidewalk, laughing and talking, and she let out a big, heartbreaking sigh. I asked her what was wrong. She asked, “Those teenagers are walking by themselves and happy. Why can’t I walk by myself and be happy and have friends?” How do you answer a question like this? Of course you just want to cry yourself, self-awareness in someone like Rachel is so bittersweet to you as a mom. You are excited to see her develop, but her “wall” of protection against the meanness of the world is breaking down, and she is feeling her first pangs of loneliness. But you can’t cry, because you have to act like it’s just a fact of life and nothing to be sad about. You never know if your answer to any deep question is the right one, but  you have to let her know that she is perfect exactly who she is. (I don’t like to say “the way she is” because she is who she is, and it’s perfect.)

So I told her that walking by herself is just not safe, and we love her so much that we can’t stand the thought of her getting hurt or someone hurting her, and she agreed – for now. Then I told her that she is a special person, who is not mean and would never hurt anyone else’s feelings, but that other people are not nice like her all the time. Other teenagers would not be as nice to her as she is to them, and it’s okay not to have friends like that. That concept she does not understand so well. I don’t think she can imagine why other people wouldn’t be nice to everyone or why they wouldn’t like her.

And I’m not going to tell her yet. I’m going to explain as much as she can accept for the moment and answer her questions as they come along. Hopefully we and her real friends can fill her life with enough love that those people won’t matter.

[seizurequeen-blog1]

When you have a pretty good morning so go out for the best Breakfast EVER with your bestie. Just to come home and have Myoclonics followed by a Gran Mal so end up in bed for the rest of the day. After yesterday mornings Grand Mal and drop attack down the stairs I now ache like I’ve had a 3 month flu, my head is killing and I keep re waking (after a Myoclonic) all confused as to where I am and what I’m doing. 😫😒 . . . . . #seizuressuck #seizuremama #epilepsymom #epilepsysucks #epilepsy #myoclonicepilepsy #generalisedtonicclonic #35weekspregnant #pregnantwithseizures

[seizurequeen-blog1]

Daily CTG for this little madam now as she isn’t as active since my seizure and fall. 🙄 Bring on 38 weeks or sooner for my induction. . . . . . #34weekspregnant #34+3 #34weeks3days #dramaqueen #epilepsymom #seizuressuck #epilepsysucks #pregnantwithseizures (at Royal Glamorgan Hospital)