#msawarness

[omsdoortodoor]

Blog Extra - MS Awareness Week 22nd April to 28th April 2024

This week is UK MS Awareness Week and this year Overcoming MS is running a campaign called #MSUnfiltered.

As part of the campaign, OMS is working with MS Society UK, MS Together, Multiple Sclerosis Trust, MS-UK, Neuro Therapy Network and Shift.ms to survey over 1,400 people in the UK living with MS. The survey results showed us that:

When I was diagnosed the first thing I did was to check out the MS charity websites, as recommended by my neurologist.  When I read the long list of symptoms

I was appalled because I had virtually all of these symptoms to some degree or another. 

Here is the list of symptoms combined from the MS Trust and the MS Society websites:

Fatigue

Strange Skin sensations (numbness tingling, pins and needles, a crawling)

Balance and Co-ordination

Vision Problems

Walking difficulties

Thinking & memory difficulties (brain fog)

Bladder & bowel issues

Temperature sensitivity

Low mood, emotional problems, depression, and anxiety

Pain

Sexual issues

Sleep problems

Speech and swallowing problems

Hearing difficulties

Tremors

So when I read the list not only was I dismayed, I was also rather confused.  Because, some of those symptoms I had been putting down to my age.  So how do I know is it my MS or an age thing?

But I’m really hear to talk about the #MSUnfiltered campaign and what we don’t usually talk about.

While I have been very open about my MS diagnosis, there are some people who chose not to tell their employer for fear of being judged and side-lined at work. And when I chose to give up work, I didn’t tell my clients the full reasons behind my decision.  Which were, that I no longer trusted myself to build an accurate spreadsheet of financial projections or that it took me three times longer that it should to write a simple report due to my brain fog and reduction in manual dexterity at the keyboard.  The reduction in my ability to hold complex ideas in my mind undermined my confidence in my own abilities.  I wanted them to remember me as someone capable of doing everything that I used.

Sometimes I get so overwhelmed by outside stimulus that I struggle to think straight or to express myself properly.  All I can manage is a grunt because I can’t get the words that I want to say out.  I come over as inarticulate and I worry people will think I am rude because I only use a few words and need to go and lie down.

Up to 50% of people with MS have poor mental health – this is something I am comfortable talking about and I am happy to fly the flag here.  However, when I went on an MS retreat in November and started to talk about how MS affects my mental health, not one person had the courage to talk about their own issues. Even though there were 40 people in the room, and we were in a ‘safe space’.  If the stats are right at least 20 people in that room must have experience of poor mental health. For a moment, I felt a bit embarrassed for raising the topic, but only for a moment.  What I really felt was sympathy that no one else had the courage to share.

And finally, my closest friends will know that I use the loo A LOT. I now have a RADAR key but I haven't had to use it YET.

#MSAwarenessWeek #MSAwareness #MS #MSDiagnosis #OvercomingMS #OMS #MSSymptoms

[marinelp]

Nail art warriors for Maria 🧡 • 🇫🇷 Ce post spécial est dédié à notre Nail Art Warrior aka Maria de @so_nailicious 🧡💙 Comme certaines d'entre vous le savent peut-être, Maria est atteinte de la SEP (sclérose en plaques) et la maladie lui a, entre autres, fait perdre sa capacité à réaliser de magnifiques manucures. Maria, avec cette collab, nous tenons à te dire de continuer à te battre telle la véritable guerrière que tu es ! • 🇬🇧 This special post is dedicated to our Nail Art Warrior aka Maria from @so_nailicious 🧡💙 As some of you may know, Maria has been diagnosed with MS (multiple sclerosis) and the disease took away her ability to paint beautiful nail art designs, among others. Maria, with this collab, we want to tell you to keep fighting like the warrior you are! • Thank you Magda @redheadnails for organizing this collaboration. All of our creations can be found under #nailartwarriorsforMaria 💪 • Girls involved in this collage: @aleksandras_bunte_welt @geolena_koski @gotnail @jemima.nails @lochnailsmonster @kathagraphie @nailistayco @marinelp91 @lacktraviata @mission_polishable @paulinaspassions @hefersanja @zephyronica @nailart.by.nici @bentesorberg @nailartfan95 @coffeeandnailpolish @mettedamgaardpedersen @rums2016 @dc_nailsart @katieabheda @barbouilleuse @crenailit @megans_manicures @ledanails82 • #ms #msawareness #mswarrior #mswarriors #spreadingorange #invisibledisease #endms #multiplesclerosis #thisisms #spreadingorange #msawareness #nailsforthecause #nailscommunity #nailart #stampingnailart https://www.instagram.com/p/CoK0k9Mtf6i/?igshid=NGJjMDIxMWI=

[viezec]

Causes Of Multiple Sclerosis.

Genetics also appears to play a role in MS susceptibility. While not directly inherited in a Mendelian fashion, having a family history of MS increases one's risk of developing the condition. Specific genetic variations have been associated with heightened susceptibility to MS, suggesting a genetic predisposition that interacts with environmental factors.

Environmental influences further contribute to the intricate tapestry of MS causation. Viral infections, particularly Epstein-Barr virus (EBV), have been implicated as potential triggers for the autoimmune cascade leading to MS. Moreover, geographical disparities in MS prevalence, with higher rates observed at northern latitudes, suggest a role for environmental factors such as sunlight exposure and its impact on vitamin D levels.

https://shorturl.at/acntw

[usascripthelpersofficial]

🧡 This #NationalMSWeek, let's unite to spread awareness about Multiple Sclerosis, a condition affecting millions worldwide. MS impacts the central nervous system and can lead to many symptoms, making daily life challenging. Join us in supporting those affected by learning more and sharing your knowledge. Together, we can make a difference! 🌍💪

[medazhospital]

𝐑𝐚𝐦𝐚𝐝𝐚𝐧 𝐌𝐮𝐛𝐚𝐫𝐚𝐤 𝐭𝐨 𝐲𝐨𝐮 𝐚𝐥𝐥. 𝐌𝐚𝐲 𝐀𝐥𝐥𝐚𝐡 𝐞𝐚𝐬𝐞 𝐲𝐨𝐮𝐫 𝐡𝐚𝐫𝐝𝐬𝐡𝐢𝐩𝐬 𝐚𝐧𝐝 𝐬𝐡𝐨𝐰𝐞𝐫 𝐲𝐨𝐮 𝐰𝐢𝐭𝐡 𝐥𝐨𝐚𝐝𝐬 𝐨𝐟 𝐩𝐞𝐚𝐜𝐞 𝐚𝐧𝐝 𝐩𝐫𝐨𝐬𝐩𝐞𝐫𝐢𝐭𝐲 𝐝𝐮𝐫𝐢𝐧𝐠 𝐭𝐡𝐢𝐬 𝐡𝐨𝐥𝐲 𝐦𝐨𝐧𝐭𝐡 𝐨𝐟 𝐑𝐚𝐦𝐚𝐝𝐚𝐧 . आप सभी को रमजान मुबारक! . Website - https://www.medazhospital.com/neurology .

ramadan #ramdankareem #ramdanmubarak #Medazhospital #Medazhospitalpatnabihar #patna #bihar #india

[snap-blogz]

Christina Applegate Steals the Show at 75th Emmys

In a surprise appearance at the 75th Primetime Emmys, actress Christina Applegate, battling multiple sclerosis, received a touching standing ovation. Nominated for lead actress in a comedy series, she took the stage with grace and humor, with host Anthony Anderson offering his arm for support.

Fashion and Recognition

Dressed in a stunning silk velvet Siriano skirt ensemble, designed by Christian Siriano, Applegate shone on the stage. The designer himself expressed admiration, saying,  "Oh Christina, you are divine and I will dress you any day of the week! What a woman." The audience's recognition mirrored the sentiment. https://twitter.com/Variety/status/1747064290022916241

Acknowledging MS Battle

Teary-eyed yet humorous, Applegate addressed the crowd's standing ovation, saying,  "Oh my God, you're totally shaming me with disability by standing up. It's fine... Body not by Ozempic!"  She added, "We don't have to applaud every time I do something." A candid moment that revealed her resilient spirit amid the challenges of MS. https://twitter.com/FilmUpdates/status/1747067684188209459

Award Presentation and Return to Red Carpet

 Despite the hurdles, Applegate presented the award for best supporting actress in a comedy series, marking her first red carpet event since February 2023. A significant return for the 52-year-old icon.

Photo by Monica Schipper/WireImage

MS Realities and Candid Quotes

 In a May 2023 Variety interview, Applegate candidly shared the impact of MS on her daily life, stating,  "With the disease of MS, it's never a good day. You just have little shitty days." She highlighted the challenges, from the once-simple act of taking a shower now being "frightening" to the exhaustion crowds bring due to heightened sensitivity.

Support and Encouragement

 Social media flooded with support for Applegate's return, acknowledging her resilient spirit and the industry's respect for her work. Fans expressed gratitude for her authenticity in showing what MS looks like, with one saying,  "Thank you for keeping it real!"

Conclusion

 Christina Applegate's standing ovation at the 75th Emmys became a powerful symbol of strength and resilience in the face of multiple sclerosis. A moment that transcends awards, highlighting the human spirit's ability to shine even in challenging times. Read the full article

[enterprisewired]

National MS Society: Off My Wave CSR Initiative to Bring Back the Surfer to Life

Multiple Sclerosis comes as a nightmare for people. With the exact reason still unknown, it’s said to be an auto-immune disease. Any cure as such hasn’t been discovered for it. It is the potential disabling of the brain and the central nervous system. Some organizations like The National Multiple Sclerosis Society (NMSS) come as saviors. The organization’s vision is a world free of Multiple Sclerosis (MS). To spread awareness about MS Awareness Week, the organization on-boarded the advertising agency Wieden+Kennedy, Portland.  

The initiative of the National MS Society to spread awareness about Multiple Sclerosis has won hearts. The local surfing maestro Steve Bettis was diagnosed with progressive MS in 2006. Steve, a resident of Ocean Beach, CA was a stud in surfing but has been suffering from MS for the past 50 years. Quite naturally he was told to stop surfing as it was not recommended for his health anymore. The collaboration of Wieden+Kennedy and the National MS Society via the “Off My-Wave” campaign made the experience more than real for Steve. 

The Campaign:

The collective effort made it possible to transport Steve to his golden period. The transcendent feeling that Steve enjoys, the movement and motion of limbs was perfectly immersive for him. A person who suffers from MS cannot have much sensation in the limbs. Exactly that was experienced by the surfer which was the highlight for him. The Virtual Reality experience was truly a trip down memory lane for Steve. All thanks to the conscious efforts of the National MS Society and Wieden+Kennedy. 

Key Elements of the Campaign:

Instant Nostalgia:

MS had taken some experiences from Steve Bettis. The same experience was recreated for him via the use of Virtual Reality. As the video was published of Steve enjoying the experience of virtual reality, the joy on his face can be seen. The video was in the form of storytelling which made the viewing experience more immersive and engaging. Steve will be forever thankful to the National MS Society and Wieden+Kennedy for their heart-warming gesture, especially for him.  

Increased Donations:

On the part of the National MS Society, they got a lot of recognition for their collaborative effort. People praised them for bringing out the story of Steve. Until then, people were not aware of such a great man who strives every day with the condition of MS. The organization got recognized enough for its efforts and started to receive a lot of donations in cash and kindness. 

Steve became an Inspiration:

For newbies, Steve became an inspiration. The surfer community was evoked with emotions and respect for Steve. He received a huge amount of emotional support via the outpouring of messages and well-wishes from his supporters. This campaign allowed Steve to connect with others living with MS and their families. Thus, offering them a ray of hope and resilience. Steve was back to life via the actions of Wieden+Kennedy and the National MS Society. 

Use of the Technology:

As mentioned above, the visual experience was imparted via a Virtual Reality (VR) device. In the pre-production stage, a lot of issues were needed to be considered. The topic of discussion was what best way can the surfing experience be caught on camera. Every camera was housed in its waterproof case. Each camera was a bit further apart than it would’ve been without the cases.  

Leveraging Virtual Reality for Social Good:

Raising awareness through immersive storytelling:

Virtual Reality imparts a profound storytelling platform that allows brands to engage audiences in enticing narratives. The use of VR was the masterstroke of the National MS Society. By formulating virtual experiences that convey real-world issues brands can effectively raise awareness about various social causes. Organizations are making use of VR for transporting viewers to remote locations affected by environmental disasters or social injustice. Through this method of storytelling, brands can educate and engage their audience, fostering empathy and understanding. 

Advocating for social change:

Brands are accepting virtual reality with social movements to advocate for change through virtual experiences. Brands, by highlighting issues like gender inequality and poverty, try to immerse viewers in the day-to-day lives of diminished communities. This VR experience provides a chance to engage with social change, especially on a personal level. It encourages others to become more active and make the world a better place to live. 

Assisting persons with disabilities:

Virtual Reality technology is helping people with disabilities to overcome challenges and enjoy the experiences that otherwise they may not have. Brands are developing virtual reality experiences that especially cater to specific disabilities such as formulating virtual worlds for people with mobility issues. These initiatives promote inclusivity and equal access to experiences that the majority of people take for granted. 

Virtual Reality, CSR & a Noble Deed:

Journey of Empathy:

Imagine stepping in the shoes of a surfer who suffers from Multiple Sclerosis. Via leveraging Virtual Reality Steve Bettis could now get near real-time experience. The joint effort of Wieden+Kennedy, the National MS Society, and Robert Weaver understood the story of Steve. It is a journey of empathy that transcends traditional forms of storytelling, and it plays a vital role in driving corporate social responsibility. 

Raising Awareness and Compassion:

The National MS Society was determined to give Steve a nostalgic feeling. The primary reason for the campaign was to raise awareness. By donning the headset, viewers are immediately transported to Steve’s world, where the exhilaration of being on the waves is met with the discomfort of a body that doesn’t respond as it should. By viewing through the headset, viewers get to understand the daily challenges faced by people with Multiple Sclerosis. 

Expanding the Reach of CSR:

Virtual Reality surpasses the geographical boundaries that allow charity organizations to expand the reach of their charity initiatives. This campaign for Steve, for example, can be experienced by people all over the world. This reach allows charity organizations to create a more significant impact on a broader side. Like the National MS Society did, other charity organizations also get inspired and moved, and attempt something like this. It adds value to people’s lives and makes an impact too. 

Conclusion

The National MS Society went on to become an angel for Steve. Empathy is the main aspect that was covered in this campaign. Getting into someone’s shoes, understanding the person’s state of mind and physical disability, too, understanding the passion he had for the sport is phenomenal. Imparting that experience to Steve was an instant emotional ride for him. Sheer happiness while viewing the whole experience via the headset was thoroughly enjoyable for Steve. This campaign has earned praise from famous magazines like Creativity, Mashable, AdWeek, etc. This campaign is a true example of humanity at its best.

[serene-sun]

[msandcannabis]

Multiple Sclerosis Awareness Month #ms #multiplesclerosis #msawareness #march (at Sedona, Arizona) https://www.instagram.com/p/CpRLXw2OcoG/?igshid=NGJjMDIxMWI=

[delbacristina]

Nail art warriors for Maria! ⠀ This design is for @so_nailicious who has been battling with MS (multiple sclerosis) taking away her ability to paint her nails. We want to raise awareness and send her all our support through nail art. ⠀ Thanks to @redheadnails for hosting this amazing collab. Find all design with #nailartwarriorsforMaria ⠀ Girls involved in this collage: ⠀ @aleksandras_bunte_welt @geolena_koski @gotnail @jemima.nails @lochnailsmonster @kathagraphie @nailistayco @marinelp91 @lacktraviata @mission_polishable @paulinaspassions @hefersanja @zephyronica @nailart.by.nici @bentesorberg @nailartfan95 @coffeeandnailpolish @mettedamgaardpedersen @rums2016 @dc_nailsart @katieabheda @barbouilleuse @crenailit @megans_manicures @ledanails82 ⠀ #nailscollaboration #nails #MSawareness #DCnailsArt #OPIrichGirlsAndPoBoys https://www.instagram.com/p/CoKOHl2s9h8/?igshid=NGJjMDIxMWI=

[frauenpowertrotzms]

So habe mein Leben von 2016 hier mal ausgelöscht... Wer braucht schon Fotos von Pizza, Kerzenhalter und alte Collagen 😀😎 . Leider lässt mich Insta nicht weiter löschen 😔 aber morgen ist auch noch ein Tag 😀 Insta hält mir nämlich mein Alter vor Augen, pah, wer ist schon alt, nur Haare jetzt länger und wer hat ein paar Falten mehr? Ich nicht 😀 . Löschen oder archivieren? Was jetzt weg ist, ist weg, oder? Deine Caro 💙 . #mehrrealitätaufinstagram #msblogger #buchautorin #frauenpowertrotzms #trotzmsglücklich #instaaufräumen #mamamitms #ichbinich #msawareness #msundtrotzdemglücklich #msalltag #rollifahrerin #trotzhandicap https://www.instagram.com/p/CjIEfmWM3V_/?igshid=NGJjMDIxMWI=

[hallucinogeniusvmjp]

I wanted to talk about this piece. I was diagnosed with multiple sclerosis and if you don’t know what that is, it’s when your immune system attacks your brain.

I did a lot of changing and inner work, my life style, coping skills, diet etc. and the last time I went to a neurologist and had an MRI it showed that my lesions were healing.

So that’s what this piece is about me claiming that inner strength and healing ❤️‍🩹

Also it just looks really badass and I’m very proud of this piece and of my capabilities. ✨☺️

[road-to-nowhere]

One of the best parts of using your #oldmap to discover #nevada is the awesome places you see and the #amazingpeople you meet. Like this awesome guy right here. ➡️. This is @antonyacrossamerica and he is selflessly riding his #bicycle #acrossamerica to raise awareness for #multiplesclerosis When his Aunt was diagnosed with MS he felt scared and helpless on what he could do. So in an effort to raise awareness and money for charity he decided to grab his bike and #rideformultiplesclerosis We met up with #antonyacrossamerica in #middlegatestation nevada he had already ridden over 3,000 miles and would be ariving in @sanfrancisco in 10 days. Oh and did I mention it was his #birthday you go Antony! Everyone head on over to his page and give him a #bicylelife #bicyclingforcharity #msawareness #multiplesclerosisawareness @multiplesclerosis.awareness @multiplesclerosisawareness @multiplesclerosis_support #nevadapicoftheday #middlegatestation #middlegatenv #hwy50 @hwy50food #hwy50adventures #thelonliestroadinamerica #creativecartography #mapadventures #harmonyheywood #historicnevada #nevadaadventures #dontfencemein #acrossnevada #nevadamag #nevadamagazine #nvmag #travelnevada https://www.instagram.com/p/Cfxq8krLX2V/?igshid=NGJjMDIxMWI=

[ladybelletoguro]

3D printed yarn bowl requested by a fellow knitter. Did you know that orange is the color of the MS ribbon? PM me if you're interested in having your own yarn bowl in your favorite color. #3dsolutech #3dprinting #msawareness #knitting #crochet (at Caldwell, Idaho) https://www.instagram.com/p/Cew_U9sJkhB/?igshid=NGJjMDIxMWI=

[thisiswhatafighterlookslike]

Today is World Multiple Sclerosis Day!! I’m thankful that I am a #mswarrior!! I was diagnosed 4 years ago. I am standing with all the incredible warriors who courageously fight this auto-immune disease and it’s often debilitating challenges. Never forgetting the family and caregivers who give their unconditional love, support and assistance. Sending life, light and love from my heart to yours! You are not fighting alone! We got this!!