#mswarrior

[ween-o-hall]

Hello,

My name is Alexis and on August 5th 2023, I was diagnosed with Multiple Sclerosis. I received a spinal tap on August 7th which left me unable to work for two months due to complications from said procedure. Once healed, I finally was able to go back to work, and shortly after succeeded in landing a new job. I made both my boss and my hiring manager aware of my new diagnosis during my interview, and informed them that I had multiple appointments that I would need to go to in order to properly treat both my MS and multiple other symptoms I’d acquired due to the flareup that hospitalized me, and they both agreed that it wouldn’t be an issue, that they’d be more than happy to accommodate for me to go to them. Unfortunately, that was a lie.

On November 10th, my boss pulled me into her office, and informed me that my appointments needed to stop as everyone else works full time open to close (which I also did, I just had appointments I needed to attend) and because of that, they could no longer continue. That is 100% disability discrimination, and after pondering over where to go next, I decided it was in my mental/physical health’s best interest to resign from my position. Doing what she asked of me would eventually lead to permanent loss of my motor functions and even the potential loss of my ability to speak and swallow. Now, I am back to square one, and am reluctantly asking for your help in keeping my bills afloat as I continue my search for another job that’ll be more understanding towards my disease.

It is incredibly hard for me to ask this, as I have always been the go-getter type who put their responsibilities first above everything. As of late, I unfortunately haven’t been able to do so, and with me having 4 cats along with my monthly bills, I am at a loss as to how I’m going to continue to afford this while I wait to hear back from the companies I have been applying for.

I am beyond grateful for any contributions you may send my way, and there aren’t enough words in the English language that could properly express my thanks for your help through this rough time in my life.

Thank you, from the deepest depths of my heart. ❤️

[thisiswhatafighterlookslike]

The Pressure To Be Brave

"You Are So Brave!" How often have we heard this said to us? Most times, people truly mean well when they say this. They are doing their best to be encouraging from their perspective of things. However, for many of us who are surviving cancer daily, those four words are filled with so much pressure and expectation.

When people see us maintaining our lives, managing families, enduring all the craziness that comes with living with this disease, they see bravery! Well, there is truth to that. But the real truth is we are just giving our all to live every day and live our best! It takes a lot of work just to maintain our "normal" lives.

Am I a superhero?

Indeed, we are strong and courageous. We fight uncommon battles for our lives absolutely every day. However, knowing that people can see you as this 'cancer superhero' and being given this subconscious permission to be brave, #BeatCancer, #KickCancersButt, #FightLikeAGirl, and all the other awesome hashtags can be overwhelming!

We didn't choose this fight

We definitely appreciate the love and encouragement! But the reality is that some days we are just SICK! There is nothing we can do about it and to be honest, we don't even have the energy to do anything. We get weak. Not tired but fatigued; downright exhausted! We have mood swings. We battle depression and sometimes it actually fights back...and wins! LOL!!!!

We deal with feeling isolated and alone. We are oftentimes in pain. We are in agony, and it doesn't always go away. Some of us live in pain. We lose weight and we gain weight! We lose our hair, our precious hair! Until you have experienced this, you just have no idea what this does to someone. We think about our mortality more times than the average person does.

Tell me it's going to be okay!

So, it's not that we don't want to be told we are brave. Here is the thing, we know living with cancer requires a special measure of bravery. We know we are brave. But it would mean so much more if we heard, "It's going to be okay", "it's ok to feel how you are feeling", or "no matter how you feel today, I will be here to help and support you!"

Our loved ones believe they keep us strong by coaching us through this and pushing us. If they just speak positively and keep us thinking about how we "should" think then we will feel and live how we are supposed to. Please remember we are human beings with real feelings, who happen to be surviving cancer daily. Just let us be that that's how we are Brave!

Leya R. Elijah

This Is What a Fighter Looks Like

CEO/Founder

[pixelatedforest]

Hi everyone,

As you all probably know by now (because i never shut up or stop complaining about it), I have Multiple Sclerosis and it cause my body to feel so awful and painful.

I have trouble walking, feeling my body parts and many other struggles that comes with being chronically ill and having a disability/disease.

I have been going on these walks on and off for as long as i can remember and it’s a very important cause for me as a person who experiences it all first hand.

If you have the ability or desire, even a small donation is worth so much to me and everyone who has MS. Thank you ❤️

[liefsjojo]

Overprikkeling

Overprikkeling is als een storm die in je hoofd woedt. Geluiden komen te hard binnen, als een tsunami van decibellen die je overspoelt en je doet verdrinken in een zee van ruis. Licht is teveel, als een zon die te fel schijnt en je verblindt, waardoor je je ogen moet sluiten en je jezelf moet terugtrekken in de schaduw.

Gesprekken volg je niet meer, als een radiosignaal dat verstoord wordt door interferentie, waardoor de woorden in je hoofd verdwijnen en je verloren loopt in een doolhof van gedachten. Hersenmist, als een dikke nevel die je hersenen bedekt en je verward maakt, waardoor je niet meer weet waar je bent en wat er om je heen gebeurt.

Overprikkeling kan je heel ziek maken, als een virus dat zich in je lichaam nestelt en je helemaal overneemt. Het kan je alleen laten voelen, als een verlaten eiland waar niemand je kan bereiken en je vastzit in je eigen gedachten. Maar vooral kan overprikkeling je onbegrepen laten voelen, als een vreemdeling in een wereld die te snel, te luid en te fel voor je is. Het is als een schreeuw om hulp die niet gehoord wordt, als een stil verdriet dat verborgen blijft.

© Liefs Jojo

[marinelp]

Nail art warriors for Maria 🧡 • 🇫🇷 Ce post spécial est dédié à notre Nail Art Warrior aka Maria de @so_nailicious 🧡💙 Comme certaines d'entre vous le savent peut-être, Maria est atteinte de la SEP (sclérose en plaques) et la maladie lui a, entre autres, fait perdre sa capacité à réaliser de magnifiques manucures. Maria, avec cette collab, nous tenons à te dire de continuer à te battre telle la véritable guerrière que tu es ! • 🇬🇧 This special post is dedicated to our Nail Art Warrior aka Maria from @so_nailicious 🧡💙 As some of you may know, Maria has been diagnosed with MS (multiple sclerosis) and the disease took away her ability to paint beautiful nail art designs, among others. Maria, with this collab, we want to tell you to keep fighting like the warrior you are! • Thank you Magda @redheadnails for organizing this collaboration. All of our creations can be found under #nailartwarriorsforMaria 💪 • Girls involved in this collage: @aleksandras_bunte_welt @geolena_koski @gotnail @jemima.nails @lochnailsmonster @kathagraphie @nailistayco @marinelp91 @lacktraviata @mission_polishable @paulinaspassions @hefersanja @zephyronica @nailart.by.nici @bentesorberg @nailartfan95 @coffeeandnailpolish @mettedamgaardpedersen @rums2016 @dc_nailsart @katieabheda @barbouilleuse @crenailit @megans_manicures @ledanails82 • #ms #msawareness #mswarrior #mswarriors #spreadingorange #invisibledisease #endms #multiplesclerosis #thisisms #spreadingorange #msawareness #nailsforthecause #nailscommunity #nailart #stampingnailart https://www.instagram.com/p/CoK0k9Mtf6i/?igshid=NGJjMDIxMWI=

[cowshorsesandgardenias]

First of all, I am not an arts & crafts person. However, this year I made a citrus garland. And, I would like to humble brag about it. I DYI’ed it, dehydrated oranges, lemons and limes, strungand hung it myself. By the way, I am the midst of a terrible MS fatigue moment. So allow me to pat myself on the back. #christmasdecor #citrus #citrusgarland #mswarrior #msfatigue #msfatiguesucks #dyichristmas #dyi https://www.instagram.com/p/Cl4G0HoOrbQ/?igshid=NGJjMDIxMWI=

[health-is-wealth-le]

Zeolite Pure acts as a sponge, collecting toxins from the body and eliminating them. This helps boost the immune system, balance pH levels, and neutralize free radicals.

Here’s how Zeolite Pure made an amazing difference in Susanne’s life:

“I have had multiple sclerosis for years, slowly losing my ability. With Zeolite I am getting my function back. I am enjoying my life - it has made such an amazing difference to my energy, endurance, and mental outlook.” - Susanne J.

You can order and try Zeolite Pure for yourself here: https://www.life-enthusiast.com/shop/zeo-health-zeolite-pure/

[crescentg0ddess]

Hi everyone 👋🏻 I’m here to share my story in hopes it will reach and help others.

[leahschier]

Understood. Ultreïa. 👣 - #camino 💛 #peregrina 💙 #mswarrior 🧡 #peaker 💜 (at Port Aransas, Mustang Island) https://www.instagram.com/p/CoaWfBoPB8q/?igshid=NGJjMDIxMWI=

[msocresearch]

Wishing you a merry Christmas from the entire Multiple Sclerosis Online Course research team! Thank you for your interest and involvement in the MSOC research study. We wish you and your family a wonderful holiday season! https://www.msonlinecourse.com.au #multiple_sclerosis_foundation #multiplesclerosis #multiplesclerosiscare #mstreatment #mser #mswarrior #mssurvivor #multiplesclerosislifestyle #mslifestyle #msresearch #multiple_sclerosis_support (at University of Melbourne) https://www.instagram.com/p/CmjNF7qvWoj/?igshid=NGJjMDIxMWI=

[wemhall]

Cathy and MS

My wife, Cathy, has had Multiple Sclerosis (MS) since 1976 when she was 20 years old. It’s been almost 47 years since that first diagnosis. The MS is always there, lurking in the background, but Cath refuses to give in to it. It’s a special strength she has, and I love her for it. Cathy Around the Time of her Diagnosis, and Just a Few Weeks Ago MS is called the snowflake disease; no two people…

[truckerella]

Why I love riding.... absolutely nothing between you and a gorgeous view like this! #bluesky #skyporn #happygirl #livefornow #hereandnow #mindfulness #positivevibes #positivity #happylife #mswarrior #harleygirl #truckerswife #truckerella https://www.instagram.com/p/CgFXfzouUti/?igshid=NGJjMDIxMWI=

[morethanjustliving]

I like to portray myself as strong in this face of this stupid disease. I like to show others that I’m more than just living with MS, but some days i don’t deal with it all as well as I’d like. As much as I love to share myself over coming hurdles, I believe it’s important to share the bleak moments to. We all have them, and it’s nothing to be ashamed of

[instepphysiotherapy]

🌟 Rediscover Strength and Hope with Neurological Rehabilitation 🌟

Navigating life after a neurological condition can be challenging, but you're not alone on this journey. 💖 At In Step Physical Therapy, we specialize in giving hope and strength back to those affected by:

1️⃣ Stroke 2️⃣ Falls 3️⃣ Traumatic Brain Injury 4️⃣ Multiple Sclerosis 5️⃣ Muscular Dystrophy 6️⃣ Guillain-Barre Syndrome

Each of these conditions presents unique challenges, and we're here to provide personalized, compassionate care to help you overcome them. 🙌

🧠 Our team understands the complexities of neurological conditions. We're committed to helping you regain your independence, improve mobility, and enhance the quality of your life. Through specialized exercises, therapy, and unwavering support, we strive to bring back the joy of movement into your life. 🚶‍♀️🚶‍♂️

Imagine a day where every step is stronger, where balance is regained, and where hope blossoms with every movement. That's the day we work towards at In Step Physical Therapy. 🌈

Your journey to recovery is our mission. Let's take this step together towards a brighter, more empowered future. 💪

Book your consultation today: 📞 587-409-1754

Back control of your life: 🌐 http://tinyurl.com/4b62242h

[liefsjojo]

Het herontdekken van verbinding

In een wereld waar tijd lijkt te versnellen, waar menselijke verbindingen vervagen en waar technologie onze ware essentie verdoezelt, bevinden we ons op een kruispunt van verloren liefde. Het is een wereld waarin ogen afdwalen, niet langer de magie van zielsverwantschap weerspiegelen, en waar monden zelden de woorden van het hart uitspreken. In deze wereld raakt aanraking steeds meer verwijderd, als een vage herinnering aan de warmte van menselijk contact.

Ouderen die niet langer kunnen meedraaien worden over het hoofd gezien, vergeten door een samenleving die de wijsheid van hun ervaringen verwaarloost. Mensen met beperkingen worden voortdurend geconfronteerd met obstakels, terwijl de wereld om hen heen hen niet de compassie biedt die ze verdienen. Jongeren worden gekweld door een groeiend gevoel van depressie, omdat ze zich steeds minder bewust zijn van de echte betekenis van oprecht contact maken.

De mens raakt steeds verder verwijderd van zijn medemens. We geven alles op voor de verlokkingen van de digitale tijd, maar worden we daar werkelijk gelukkig van? Misschien heel even, in die momenten van virtuele vervulling, maar er komt onvermijdelijk een moment waarop de dwalende massa beseft dat ze de kunst van liefhebben verloren heeft.

In een wereld die steeds meer verdwaalt in de ban van technologie, is het aan ons om een nieuwe weg te banen.

Laten we beginnen met de ouderen, de schatkisten van wijsheid en ervaring. Laten we de tijd nemen om naar hen te luisteren, om hun verhalen te koesteren en te leren van hun lessen. Laten we hun een gevoel van erkenning en respect geven, en de waarde van hun aanwezigheid in ons leven herontdekken.

Laten we de obstakels wegnemen voor mensen met beperkingen, hen omarmen met open armen en een wereld creëren waarin inclusie en acceptatie de norm zijn. Laten we begrip kweken en empathie tonen, zodat zij volledig kunnen deelnemen aan het leven en de liefde die het te bieden heeft.

En laten we onze jongeren begeleiden, hen de waarde van echt contact tonen. Laten we hen leren dat schermen geen vervanging zijn voor oogcontact, dat virtuele likes en reacties niet kunnen tippen aan een oprechte omhelzing. Laten we ruimte maken voor kwetsbaarheid, voor het delen van emoties en het ontwikkelen van diepgaande relaties.

We kunnen een keerpunt bereiken, een verschuiving in het collectieve bewustzijn. Laten we de technologie niet afwijzen, maar inzetten als een middel om verbinding te vergemakkelijken in plaats van te vervangen. Laten we leren balanceren tussen de virtuele wereld en de tastbare realiteit. Laten we opnieuw leren hoe we elkaars ogen kunnen aankijken, elkaars stemmen kunnen horen en elkaars aanrakingen kunnen voelen.

We zijn sociale wezens, geboren uit liefde en bestemd om lief te hebben. In de afwezigheid van echte verbinding verliezen we stukje bij beetje onze menselijkheid.

© Liefs Jojo

[mymagicmustache]

I fought gravity today! Tried to get up after doing my daily stretches, but the floor was too addictive. Got pulled into a meeting with my mind while on the floor, I imagining a to-do list as long as the Nile. Life? Bring it on! Even Karma (my dog) was head-tilting like, "Bro, you okay?" Giggles + Gravity = Best MS Equation ever! Tag, you're it! Back on my feet. More mischief for the day loading... wish me luck!