#ms symptoms

[jackalope78]

I would like more words for tired. Cause I'm not tired, sleep wouldn't make me feel better and I'm not sure I COULD sleep. Weary has a spiritual connotation that doesn't quite work. Exhausted is too much (and implies the solution is sleep, which as we've discussed isn't it). I'm just... tired. Low energy. Can't do anything but sit on the couch and pet my cat, because everything else takes up energy I just don't have. But it's not tired in the way most people think. So I need a new word.

[omsdoortodoor]

Blog Extra - MS Awareness Week 22nd April to 28th April 2024

This week is UK MS Awareness Week and this year Overcoming MS is running a campaign called #MSUnfiltered.

As part of the campaign, OMS is working with MS Society UK, MS Together, Multiple Sclerosis Trust, MS-UK, Neuro Therapy Network and Shift.ms to survey over 1,400 people in the UK living with MS. The survey results showed us that:

When I was diagnosed the first thing I did was to check out the MS charity websites, as recommended by my neurologist.  When I read the long list of symptoms

I was appalled because I had virtually all of these symptoms to some degree or another. 

Here is the list of symptoms combined from the MS Trust and the MS Society websites:

Fatigue

Strange Skin sensations (numbness tingling, pins and needles, a crawling)

Balance and Co-ordination

Vision Problems

Walking difficulties

Thinking & memory difficulties (brain fog)

Bladder & bowel issues

Temperature sensitivity

Low mood, emotional problems, depression, and anxiety

Pain

Sexual issues

Sleep problems

Speech and swallowing problems

Hearing difficulties

Tremors

So when I read the list not only was I dismayed, I was also rather confused.  Because, some of those symptoms I had been putting down to my age.  So how do I know is it my MS or an age thing?

But I’m really hear to talk about the #MSUnfiltered campaign and what we don’t usually talk about.

While I have been very open about my MS diagnosis, there are some people who chose not to tell their employer for fear of being judged and side-lined at work. And when I chose to give up work, I didn’t tell my clients the full reasons behind my decision.  Which were, that I no longer trusted myself to build an accurate spreadsheet of financial projections or that it took me three times longer that it should to write a simple report due to my brain fog and reduction in manual dexterity at the keyboard.  The reduction in my ability to hold complex ideas in my mind undermined my confidence in my own abilities.  I wanted them to remember me as someone capable of doing everything that I used.

Sometimes I get so overwhelmed by outside stimulus that I struggle to think straight or to express myself properly.  All I can manage is a grunt because I can’t get the words that I want to say out.  I come over as inarticulate and I worry people will think I am rude because I only use a few words and need to go and lie down.

Up to 50% of people with MS have poor mental health – this is something I am comfortable talking about and I am happy to fly the flag here.  However, when I went on an MS retreat in November and started to talk about how MS affects my mental health, not one person had the courage to talk about their own issues. Even though there were 40 people in the room, and we were in a ‘safe space’.  If the stats are right at least 20 people in that room must have experience of poor mental health. For a moment, I felt a bit embarrassed for raising the topic, but only for a moment.  What I really felt was sympathy that no one else had the courage to share.

And finally, my closest friends will know that I use the loo A LOT. I now have a RADAR key but I haven't had to use it YET.

#MSAwarenessWeek #MSAwareness #MS #MSDiagnosis #OvercomingMS #OMS #MSSymptoms

[u2hearts]

I’m writing a blog

I keep meaning to write. I have every intention. Then at the end of the day, I realize I didn’t write again. Normally I actually write my blog the day before but since WordPress had an update, I schedule the blog but it never posts. I finally got annoyed and stopped writing the day before and then stopped writing on the day. So here I am. I would love to say so much has happened since I last…

[willeke-maya]

MS: nineteen reasons to not let go

A few days ago, I was reminded that 19 years ago, I was diagnosed with MS and trigeminal neuralgia. In the back of my mind, it feels like forever, but like everyone who goes through life-changing or traumatic events, you can remember every little detail of that day, whether you like it or not. In the grand scheme of things, so, nineteen years seems like 19 hours ago. Continue reading MS: nineteen…

[getyoungersblog]

The Multiple Sclerosis Solution: A Comprehensive Review

This program will tell you how to successfully managed and improved multiple sclerosis (MS) symptoms through a three-step natural approach. Here are the key points:

See More about "The Multiple Sclerosis Solution" Here!

What is The Multiple Sclerosis Solution?

The Multiple Sclerosis Solution provides a brief but impactful explanation of MS, highlighting the grim prognosis given by conventional medicine. It introduces the concept of a three-step natural solution as an alternative approach to managing and treating the disease.

Click Here to Download PDF "The Multiple Sclerosis Solution" eBook by Jodi Knapp!

How Does The Multiple Sclerosis Solution Work?

The program discovered a three-step approach to treat MS by chance. The three steps involve tackling chronic inflammation, supplying repair energy to cells, and providing essential nutrients for myelin repair.

Step 1: Addressing Chronic Inflammation: MS is linked to a hyperactive immune system causing inflammation that damages the myelin sheath around nerves. The first step involves settling chronic inflammation through dietary changes and restoring gut health.

Step 2: Providing Repair Energy: The body can repair the damaged myelin sheath, but in MS, the damage outpaces the body's repair ability. Patricia emphasizes the need for additional repair energy and nutrients, which can be obtained through dietary adjustments and supplements.

Step 3: Nutrition for Myelin Repair: Repairing damaged myelin requires specific nutrients, which might be lacking in the standard Western diet. Addressing nutritional deficiencies becomes crucial to support the rebuilding of the myelin sheath.

Misconceptions about MS

The program challenges common misconceptions about MS, particularly the belief in a specific MS gene or hereditary nature. It argues that lifestyle habits and choices, rather than genetic factors, contribute to the risk of developing MS.

Underlying Causes of MS

MS is portrayed as a disease resulting from lifestyle choices that provoke the immune system, leading to chronic inflammation. These choices include specific foods, damage to the gut environment, movement habits, exposure to toxins, and stress-related factors.

Program Overview

The Multiple Sclerosis Solution Solution, developed by Jodi Knapp. The program is divided into three phases, each addressing different aspects of MS causation and progression.

Phase 1: Focuses on settling the immune system, reducing inflammation, and getting the body into a healing state. It involves restoring gut health, dietary changes, and introducing repair energy and nutrients.

Phase 2: Expands on immune system management, identifying and removing domestic toxins, incorporating slow exercises with deep breathing, and further dietary adjustments.

Phase 3: Concentrates on rebuilding the myelin sheath by reducing inflammation significantly. It introduces additional supplementation to support nerve repair.

Guarantee and Cost

The program with a one-time charge of $49, emphasizing a 100% money-back guarantee within 60 days if the user is unsatisfied. The program is portrayed as a cost-effective alternative to ongoing medical expenses.

Conclusion

The Multiple Sclerosis Solution encourages readers to take control of their MS by addressing its root causes through the program. It ends with an assurance that the mystery of treating MS is over, and individuals can choose to be free of the disease.

Click Here to Download eBook "The Multiple Sclerosis Solution" PDF by Jodi Knapp!

[adamslilith-msart]

ARTIST with and despite Multiple Sclerosis.

Watch my latest YT video to find out how I stay motivated to pursue my dream of becoming a full time artist even tho I've wanted to quit many times. 🧡

[adamslilith]

Happy MS Awareness Month! 🧡

[wehavekookies]

New body (and skeleton) references for Victoro.

There is stuff happening in our She Is The Ancient campaign with his hexblood transformation that i am exploring some visual ideas for - currently roots growing under his skin and over his skeleton (more on that some time later :))

edit: added the roots spread over the skeleton.

[radiotrophicfungi]

by the way, are there any disability-specific blinkies anyone would particularly like to see? my inbox is probably going to remain closed for the sake of my own sanity, but you can always drop a reply down below. :-)

[aroaceleovaldez]

in your most recent tyson post, you said something about leo being distinctly autistic-coded and I was wondering if you could elaborate on that? it sounds really interesting (sorry if you've already posted something on this, I couldn't find anything though)

Of course! I do have a specific tag for talking about Leo's autistic-coding/traits - [here], and [one for Nico as well].

The main aspects with Leo being autistic-coded actually have a lot to do with Nico being autistic-coded, because it's the comparisons between the two that most clearly indicate Leo is autistic-coded rather than it just being his ADHD or etc.

So with Nico being autistic-coded, it's very clear in the Titan's Curse that he's intended to be autistic. First, the first series has a repeating pattern of secondary characters being very distinctly neurodivergent-coded in different ways (Annabeth's adhd/dyslexia, Tyson's down syndrome-coding, Nico's autism-coding). With Nico's introduction, he's pretty stereotypically autistic and we're given a lot of descriptors about him that are notably not attributed to him being ADHD, like it would be for other demigod characters. He doesn't register social cues such as people getting annoyed at him, he's asking/making inappropriate or impolite questions/comments, he gets particularly upset about change (such as Bianca joining the Hunt) and generally gets emotional, and one of his most notable traits he's introduced with is the fact that he has a special interest (MythoMagic) - and we're shown that this special interest particularly colors how Nico navigates the world. While ADHD has hyperfixations, we don't really get much acknowledgement of hyperfixations with demigods usually - Annabeth gets a little, but most others don't and it's not nearly as focused-in on as Nico's is.

Then as the series continues we see these traits stick with him and him start to show or voice more traits that similarly indicate he's autistic: He regularly mentions how he doesn't understand living people and prefers the company of the dead (social issues). He has more notable stims than other demigods (twisting his ring, fiddling with bones, etc). He's indicated to have strong sensory preferences (usually wearing mostly black/aversion to bright colors, usually wearing layers/his coat, multiple times he's described as wearing loose/baggy clothing or clothes too big for him). He has specific comfort items (his ring, likely his jacket(s) as well). We later get even more information about his special interests (Mythomagic/mythology/history and an older interest in pirates - the latter he specifically notes likely heavily influenced his feelings towards Percy). He struggles with emotions and facial expressions and tone. He struggles particularly with ostracism and feeling like he doesn't fit in and has something distinctly different about him from the people around him (who notably, all have ADHD, which indicates it isn't the ADHD that's making him feel that way), and other characters regularly describe him as being off-putting because of his strange behaviors - again, different from specific ADHD traits they recognize. And that last point is kind of notable because we have Hazel and Bianca for comparison - we know people are off-put by both Nico and Hazel because of being children of Hades/Pluto and their powers/aura, but other characters get past that general feeling of discomfort way faster with Hazel. And even after characters get past the death stuff with Nico, there's a second thing that they aren't moving past that isn't a factor with Hazel (Nico's autism).

So that brings us to Leo - Leo is paralleled to Nico a lot. And there's some very specific traits about him that we know are autistic-coding because of how they're used with Nico: He similarly struggles with social cues/etc, and in a very similar parallel to Nico describes how he prefers the company of machines to people because machines make more sense to him. He has similar types of clothing/sensory preferences (again some stuff with layers but also - pockets! He likes having pockets and things to put stuff in! He's even introduced as having a jacket with lots of pockets), and he has a distinct special interest (machinery) that we specifically know heavily influences how he views and navigates the world (constantly comparing things to machinery, describing things with machinery metaphors/terminology, etc etc). He even describes his entire general worldview to Hazel and it's a machine metaphor. He also similarly struggles with ostracization like Nico does, the only difference being that Leo specifically puts on a persona to compensate for areas he knows he's lacking in and very explicitly describes it as a means to make people like him, because without it he normally struggles to fit in (He's masking!). We also see notes of characters describing that similar discomfort with Leo's behaviors that they do with Nico, except without the aura of death this time. And when we're in Leo's POVs we see a very stark difference between his masking and his actual personality/behaviors such as his internal dialogues or how he behaves when he's alone. Also, like Nico, he stims more than other demigods, though for Leo it's more attributed to his ADHD. Leo also, more often than most, similarly struggles with tone and reading the room, such as making misplaced jokes/comments or etc.

But yeah! It's really interesting. Also it's just a fun thing that ADHD/dyslexia and autism have comorbidity, so it makes sense that we see demigods who are also autistic. It's also really fun to look at how other characters are coded in the series, what coding looks like in the riordanverse specifically (usually it's tied into the mythological stuff - like Chiron being in a wheelchair but he's actually a centaur, Grover being introduced as having a muscular disease but he's actually a satyr, demigods having adhd/dyslexia, Tyson being coded as having down syndrome but he's a cyclops, etc etc - it's a lot of specific metaphor stuff that I've talked about a bit before), and to look at how characters are compared to one another.

[jackalope78]

Here we go. About to get my first round. I'm so nervous. I have no idea what to expect really. And I'm staring the day kind of tired, because it's just a bad day, symptom wise.

[gayvampyr]

forgot for a second that oscillopsia is in my brain and not external and i almost tried to record what it looks like to me to show people what i mean

[pondsphuwin]

kinnporsche the series (2022) + ao3 tags (part 7/?)

[u2hearts]

Wheelchair Isn’t Only For Transportation

So I have to say I’ve never been so happy to have my chair. Who knew that I would have missed my chair so much. I am not one who usually spreads love to Kit, my main wheelchair. I probably spend more time cursing at some misfunction or slow maneuver. However, I never realized how much this chair did for me until I didn’t have it for 2+ months. I don’t think I’ll be cursing my chair anytime soon.…

[paradoxgavel]

i think, before my dad takes my mom to her doctor's appointment today, i'm going to maybe talk to him about asking the doctor about multiple sclerosis. it's really the best explanation i've got for what's going on with her, and if nothing else, it'd at least be nice to rule that out.

[indigosabyss]

the urge to give kamala whatever mental problems i have