#things i should mention to the doctor

[gregmarriage]

straight up don’t think caffeine works on me. i have drank a entire monster energy before and it did nothing. i’m drinking starbucks right now and it’s not particularly effecting me in any way, but alright, i guess.

[honeysuckle-venom]

Worrying is useless. I'll see a hepatologist as soon as we can get me an appointment; there's nothing I can do in the meantime and nothing urgent anyway. But. I'm still worried. My case is pretty extreme; it's unusual to have so many tumors, to have them in both lobes, and for them to be so large. I just watched a short video about hepatic adenomas (link here if you're curious lol) and it didn't tell me anything I didn't already know but. What I know is. Not great. Almost certainly the next step for me for trying to treat this is going to be weight loss. I'm significantly "overweight" and my last hepatologist wanted me on weight loss drugs, but I refused and wanted to see if going off the birth control would be enough. I'm still not willing to go on weight loss drugs, those scare the crap out of me, there's not nearly enough research about their long term effects. But I might have to look seriously at working with an anti-deit dietician and my therapist and my doctor to try to lose weight through diet and exercise without also losing my mind. And that terrifies me. I've had seriously disordered eating my whole life and currently deal with very fun eating issues that are like 50% eating disorder 50% food and health based OCD, and attempting intentional weight loss is likely to be very destabilizing if not outright deeply dangerous for me. But it might be the only thing standing between me and a liver transplant and uh...I do NOT want a liver transplant. Idk. This whole thing might be me catastrophizing; maybe it'll be fine, maybe there will be some other treatment like ablation or something similar I can do, maybe I'll try to lose weight and my therapist will help me through it and it won't be that destabilizing after all, maybe I'll be told there's absolutely no need for any kind of surgery let alone a transplant. I'm not a doctor, I don't know, maybe there are a million things I haven't considered or found in my own research. But from what I do know things seem...not great and very stressful right now.

[thebusylilbee]

because ive illegally watched things online all my life and rarely bothered to download them and I never have the reflex to check my "video" file on my computer. well today I did and turns out past!me had the presence of mind to download the first 4 seasons of Doctor Who in good quality with their respective specials and with subtitles available so... im gonna be enjoying some old NewWho bingewatching ! thank you past!me for that gift !

[dragongirlbunny]

i wish my body just had a diagnostics panel that lists out all of my issues

[aewrie]

'once a week or more' well rip

my default state of being when i'm not having a bad day is a little tired & nursing a budding headache. i have a headache right now that i'm ignoring

is this going to be another of those 'there is no such thing as a 'mild' concussion, if you hit your head bad enough to black out it is a concussion' lmao???

i get headaches from fucking everything. weather/air pressure (low and high). low/high blood sugar or too rapid changes there. too bright/dim light (at home i am specific about my lights/curtains at different points of the day/depending on how bright it's outside to avoid these). rapid repetitive/jarring physical motions (just jumping a little can be enough/make it worse). muscle tension. doing stretching/exercise that gets blood really flowing. lack of and/or bad sleep, or too much sleep. getting (strongly) emotional. caffeine (a new exiting one! only started regularly drinking coffee fairly recently. how much caffeine is too much is a fucking mystery though). i should wear glasses (myopia, not too severe) but i avoid it unless i need to see that far that well in part bc the glasses pressing on my temples give me headaches more easily than my eyes being slightly tired does.

i'm probably forgetting a bunch more

but every time i've seen people describe migraines i've thought well mine aren't anywhere near that severe/those specific kinds of headaches so No Way it's that

but. i do have other symptoms on that list? i just never thought it might be related to my headaches bc i'd not seen those mentioned, at least not in a way that i could identify as something i should consider in connection to this, and there's always the huge stress that migraines are always extra super bad to the point that a Real migraine completely disables you for a while. while to me it's. it's annoying, it hurts, if it's particularly bad it can make things more difficult but not impossible/near impossible; just, a general It's Not That Bad, therefore normal and i should just deal with it

[winglssdemon]

PSA:

Stop taking medical advice from places like tumblr, tik tok, facebook, Twitter, etc without actually looking into real medical research.

As a physically disabled person, I have a lot of reasons to dislike doctors but that doesn't change science and it REALLY doesn't change the fact that you should really not automatically believe everything you read on the internet.

[energeticadrianz]

194 is to far ahead of her to get past her if they simply keep running, but she’s close enough to the woman that she can do something about it.

that thought sticks, and she focuses on it.

this is blatantly cruel, when losing can so easily mean death in this place. but that in turn means she can’t afford to lose.

ocean scowls, pushing forward and praying that the energy she has left doesn’t escape her, and shoves 194 to the ground, rushing past her.

[merkerlerspeaks]

Think I had a breakthrough with something tonight. No I will not elaborate.

[kayzero]

i slept through my pain treatment appointment and lied to my mother about the pain being gone so she didn’t worry so now i’m just trying to distract myself on YouTube and whenever the video gets too boring i just spam “I AM FOUR EELS” in my brain as loud as possible

fuck me running i wish i didn’t miss my appointmennnnnnt

[wowbright]

I was looking at a BMI chart today and realized that doctors have been bringing up my weight as an "overweight" concern since my calculation came out to 22 or 23, which is considered "normal" according to those charts.

Now my calculation comes out around 28 or 29, and they still bring it up, and now it's "justified." I personally don't think it's a concern because (1) BMI is a bullshit predictor on the individual level, it's only useful on a population level, and even then there are better indicators if you can track them; (2) it seems only the skinny people in my family develop diabetes or die early deaths, and (3) I don't think my doctors should view it as a problem either because I always gain more weight the more exercise I get--so guess I'm getting a decent amount of exercise.

And now I wonder if some of those doctors had eating disorders or related issues that they were projecting on to their patients.

But it also got me thinking about why the fuck they have been bringing it up for so many goddamn years when even according to their charts it should not have been a "problem" most of this time and I HAVE A FUCKING EATING DISORDER IN MY MEDICAL RECORD.

And why I should trust any of their judgments when for ~15+ years of my life they were nagging me about something that wasn't even a problem according to their own charts.

And/or if the healthcare system could start focusing on indicators that actually matter and not obsess on this one thing with loose correlations that most people have very little control over?

You know. Just wondering.

[autism69]

turns out there's a good possibility I huave hypermobile joints. mayhaps that explains why I always have a fucking sprained ankle

[radley-writes]

continuing my endless journey of EDS discovery: I was last-year years old when I discovered that not everyone chokes on damn near everything they try to swallow or feels like solids and liquids get painfully wedged halfway down their oesophagus, and yesterday years old when I discovered that not everyone gets regular regurgitation & bouts of burning chest pain every day and night, and most people are capable of swallowing while lying flat and don’t have to lie in One Specific Position at night so they don’t constantly choke on their own pooling saliva

so, um. turns out none of that’s ‘normal’ and if this rings a bell you should take a prescription antacid and see a doc about dysphagia before you accidentally lose a bunch of weight and make people panic lol

[lakecoded]

8 shows to get to know me. tagged by @thehitchikerdude :)

supernatural 😔 (self explanatory) (gave me brainworms at 13 AND at 20)

please like me. i legitimately watch this like once a year and sob through the last 2 episodes every time.

black sails. show of all time. a story is true a story is untrue. wough 😵‍💫 have never been able to fully rewatch this show

the oa. watched this in april 2020 and SOBBED for 2 straight hours after finishing the second season because it was cancelled. its SO good and SO sexy (the house in s2 that eats people. my god....) and SO beautiful. forever mad it got cancelled because the cliffhanger makes me so crazy (i simply love when actors play themselves in things). jason isaacs

murdoch mysteries. well this show is not good (and is somehow still running) but i was Obsessed with it in middle/high school which has to count for something

dispatches from elsewhere. this show made me so crazy i genuinely believed the characters were going to walk out of my television screen and into real life. v funny and v heartfelt and also richard e grant is there to monologue at the camera

taskmaster. its fun! i love watching comedians fail to do tasks. shoutout to the guy on youtube who's uploading the new seasons :) also the new zealand and australian versions are v good

halt and catch fire. i watched this while i was quarantining in a hotel for 2 weeks and joe macmillan is the character of all time. keot yelling HE'S A PERSON at my laptop screen because he's real to me

tagging @taros @liapher @bettysweep @blacksails2014 + @werewolfcafe ❣️

[clarabow-mp3]

seriously what is it with parents hiding medical information from their kids that's so fucked up

[liebelesbe]

.

[mephiles-the-jester]

remembering when i got my glasses and after getting the prescription they let me choose in store what type to wear, except they had someone there who came out to help me find ones that id want despite the fact that i already decided on a pair before even going in to get my eyes checked,and yet they still tried,possibly to get me to spend more money on the expensive ones, unfortunately for them they just kinda didnt do good at that