#vocalcorddysfunction

[thegreatsweety]

Intrusive thoughts are thoughts that seem to become stuck in your mind. They can cause distress, since the nature of the thought might be upsetting. They may also reoccur frequently, which can make the concern worse. Intrusive thoughts may be violent or disturbing. Follow us @healthy_calm_perfect for more healthy tips and fitness advice #lifesucks #anxietydepression #anxiety #livingwithdepression #mentalhealth #anxietytreatment #anxietyreducer #mentalhealthawareness #ehlersdanlossyndrome #reflexsympatheticdystrophy #posturalorthostatictachycardiasyndrome #vogmask #vocalcorddysfunction #ambulatorywheelchairuser #chronicfatiguesyndrome #gastroparesis #hashimotosthyroiditis #reflexneurovasculardystrophy #anxietystruggles #autonomicdysreflexia #dysautonomia #mastcellactivationsyndrome #anxietyanddepression #anxietysufferer #anxietyhelper #anxietyaid #walkingwiththeblackdog #lwd #anxietyprobs #anxiety https://www.instagram.com/p/CMO5UL_DfCa/?igshid=1cxjf1y0noylm

[nerdymedzebra]

7+ Years after my #VCD diagnosis, I was finally referred to my first #SLP! It was mostly assessment and data intake, but I got some more info on #VocalCordDysfunction and some breathing exercises, and more info on how to massage myself. Even the slp was like "Your muscles are really, really tight." Yup. :\ I STG it seems like this is way more of a problem for me than most other #EDS / #HSD people, but all the doctors just shrug it off saying it's just from the EDS. And maybe it is... but my hypermobility is slight compared to most EDSers, but my muscle tightness is way more extreme compared to most (tho certainly not all!).. and yeah, maybe that's why I'm not more hypermobile.. but Idk. It feels like there is something else going on.

But i got a myopathy panel that came back negative this summer so everyone is all the more "It's just EDS!" Yet I don't near EDSers complain about being choked by their own neck muscles every day like I feel (and the SLP confirmed that that's different than the VCD & the #MCAS swelling choking/throat closing sensations I get, too!! @_@) -- Well I actually have no problems swolling (that helps, in fact) but the muscles that touch the front of my throat.. are literally so tight they make my trachea feel constantly like someone is choking me with their hands. :(

https://www.instagram.com/p/B4KvHpMA_q6/?igshid=dn37u9mxvvov

[chroniccarenurse]

Vocal cord and airway dysfunction and #ehlersdanlossyndrome - see slides and **my cute one year old for attention 😊** I put a IG story highlight up with some information about these issues. A lot of EDS patients get misdiagnosed with asthma when really the airway and breathing issues are much more complicated than that. If you google search vocal cord dysfunction, airway dysfunction + Ehlers Danlos syndrome you can pull up some good resources and lectures from @ehlers.danlos and @ehlersdanlosuk websites with more in depth information. I mainly want people to know that you can regain your voice, swallowing, and start to breathe and sleep better but it does take time, specialists and an multidisciplinary team approach to rehab the airway and muscles and cords and get things working again. Often ENT, pulmonologist, sleep medicine, speech therapy, allergist/immunologist and neurology are involved. It is very difficult to find EDS/hypermobility syndrome aware health care professionals so bringing some articles and slide decks from other providers can be helpful. For me personally as a patient, speech therapy was very helpful at regaining my voice, as was treating my mast cell activation disorder (allergist) and my eosinophilic esophagitis (GI). I was losing my voice multiple times a year for a decade. It hasn’t recovered fully but it’s definitely better than it was. Also seeing a #registereddietitian was helpful. ENT and pulmonologist was helpful for diagnosis but they straight up told me they went to google and library search just like I did for what treatment to do. Just life with a #raredisease - awareness and research is needed. If you have any recommendations or specialists you have found helpful for these upper airway issues with #ehlersdanlossyndrome please let me know!! #connectivetissuedisorder #edstype3 #hypermobilitysyndrome #mcas #mcad #vocalcorddysfunction #upperairwaydisorder #rarediseaseawareness #eoe #dysphagia #laryngitis #earnosethroat #hypermobility — view on Instagram https://ift.tt/Ku6hoAE

[thesaltykleins]

Cystic Fibrosis, Asthma, and Vocal Cord Dysfunction

Differences and Similarities of Cystic Fibrosis, Asthma, and Vocal Cord Dysfunction. #asthma #cf #cysticfibrosis #vcd #vocalcorddysfunction

Many people don’t understand the difference between cystic fibrosis and asthma. Cystic fibrosis is a genetic disease, and while it does affect the airways significantly it also affects the entire body. The overproduction of mucus leads to clogged and sticky airways in a cystic fibrosis patient that becomes a breeding ground for bacteria and infection. Cystic fibrosis is a rare genetic disease,…

[vinternoll-2]

top 5 boys hehe

alex turner

george craig

josh franceschi

miles kane tom felton john o'callaghan charlie westerberg edward t cooke iwan rheon garrett nickelsen tate harry styles rupert grint this list could go on forever it feels like i forgot someone omg

[schizofreni]

vocalcorddysfunction replied to your post: vocalcorddysfunction replied to your post: omg you...

oh lycka till!!

 omg tack så mycket!!!!!!!!!!! jag kan inte kontrollera mina känslor just nu

[lanakilamiller]

So most don't know since last week Wednesday I was going about my day (delicately as my L5/L4 has been 4.7mm bulged since April & fighting Kaiser) but I was leaning towards b my walk in closet to grab a change of clothes & heard a loud pop then dropped to the floor. I couldn't move or feel my right leg. After 13 hours in the ER & we left because they lied saying I was going to be transferred to Morse for surgery all because the radiologist doctor didn't finish the report saying I needed surgery immediately. Basically my L4/L3 disc popped out to the right entirely pushing on my nerves and tendons everything so I have no strength, feeling or use of my right leg. At the same time it almost triple my lower disc that was 4.7 to 14.5mm. We've been waiting to get surgery going to er getting discharged & finally called neuro directly to find out wtf why is the er doing nothing & knowing nothing & it's all because the radiologist at Kaiser Eureka has an incomplete on his report ive been suffering because an idiot didn't finish his report a week ago BS. Just further proves how #kaiserisstupid it wouldn't be such a big deal if I couldn't walk, have to have help anytime I'm out of the bed, can't carry a thing and use two canes to prop my up standing otherwise I'm in a rolling walker quickly because my electric wheelchair still after 5 weeks isn't here no have they measured for a ramp either, idiots & liars. So if you want to please send wish, thoughts & prayers I need them to be better, to get my micro surgery to be out of bed & live some type of life better than not being able to move without crying pain and suffering because of no treatment. #thoracicoutletsyndrome #degenerativediscdisease #sciatica #anxiety #stress #ptsd #gastroparisis #chronicpain #delayedsleepphasesyndrome #rheumatoidarthritis #ibs #gerd #allergicrhinitis #vocalcorddysfunction #seborrhoeicdermatitis #intertrigo #rosacea #JRA #juvenilerheumatoidarthritis #addisonsdisease #myopia #chronicfatiguesyndrome #bulgingdisc2 #autoimmunediseases #invisibleillness #invisibleillnessawareness #butyoudontlooksick #breakthestigma #warrior #invisibleillnesswarriors (at The Chateau)

[lanakilamiller]

Laying in bed, barely able to move, just wishing the days to pass by u too Monday when I get to go back thru the ER system to get surgery Monday. I thought I would get it 3 months ago but Kaiser wanted it to get a lot worse to where I can't feel, walk or use my right leg that was my good leg, bravo that's a new one. Regardless of it all I'm still here fighting every day stronger and stronger I must be other I wouldn't be here I would have been gone a long time ago (has anyone else thought about that because I had to make a will, testament, what I wanted my funeral to be and video statement) talk about reality check not so much reality but praying I'm not in the hands of an idiot. #thoracicoutletsyndrome #degenerativediscdisease #sciatica #anxiety #stress #ptsd #gastroparisis #chronicpain #delayedsleepphasesyndrome #rheumatoidarthritis #ibs #gerd #allergicrhinitis #vocalcorddysfunction #seborrhoeicdermatitis #intertrigo #rosacea #JRA #juvenilerheumatoidarthritis #addisonsdisease #myopia #chronicfatiguesyndrome #bulgingdisc2 #autoimmunediseases #invisibleillness #invisibleillnessawareness #butyoudontlooksick #breakthestigma #warrior #invisibleillnesswarriors (at Citrus Heights, California)

[lanakilamiller]

As much as you see me smile with my hair, nails, lashes so I can look at a familiar refl croon in the mirror and be happy so I see my normal self this was me Tuesday. In Kaisers oncology department getting my Simponi battling my JRA that's making it hard to walk, and I definitely can't dance right now but I still am fighting thru it 15 months later with a smile on my face as you can see despite two tubes in my arm. A smile gives your brain endorphins & I stay as positive as possible. I kick negativity to the curb. This is why I am busting my butt to make my charity @invisibleillnesswarriors happen because I am a member and it's for everyone who is worse than me. I care & there's a need as well as purpose. Please like it & share it. I love each one of the people in my life who support my dreams & goals & advice to keep pushing through to achieve what I have set out to, you are all right & I want to prove you right, as long as you are still there to support me fighting through barriers to those goals and dreams. Thank you for believing in me, despite this picture & how bad it could be taken in context it's not slowing me down because others out there need help and are worse off. #thoracicoutletsyndrome #degenerativediscdisease #sciatica #anxiety #stress #ptsd #gastroparisis #chronicpain #delayedsleepphasesyndrome #rheumatoidarthritis #ibs #gerd #allergicrhinitis #vocalcorddysfunction #seborrhoeicdermatitis #intertrigo #rosacea #JRA #juvenilerheumatoidarthritis #addisonsdisease #myopia #chronicfatiguesyndrome #bulgingdisc2 #autoimmunediseases #invisibleillness #invisibleillnessawareness #butyoudontlooksick #breakthestigma #warrior #invisibleillnesswarriors (at Kaiser Permanente Medical Office)

[lanakilamiller]

#thoracicoutletsyndrome #degenerativediscdisease #sciatica #anxiety #stress #ptsd #gastroparisis #chronicpain #delayedsleepphasesyndrome #rheumatoidarthritis #ibs #gerd #allergicrhinitis #vocalcorddysfunction #seborrhoeicdermatitis #intertrigo #rosacea #JRA #invisibleillness #chronicillness #invisibleillnessawareness #butyoudontlooksick #breakthestigma #autoimmunediseases #juvenilerheumatoidarthritis #addisonsdisease #myopia #chronicfatiguesyndrome #survivor #invisibleillnesswarriors (at The Chateau)

[lanakilamiller]

#Repost @lanakilamiller ・・・ Missed my entire birthday because I forgot to wear this on Easter around 30 family members and kids. Don't get me wrong I had one of the best holidays in years with everyone. Also not wearing the mask was my own fault forgetting to take it out of my pocket despite just sitting and chatting the whole time with everyone. Now 3 days later I stayed up from 6pm on the 18th till 10am my birthday the 19th to then sleep until 4:09am the 20th, missing my entire birthday sleeping. For those that don't understand the shots and infusions of powerful medication treatment to one keep me alive and two out me in remission make me have Chronic Fatigue Syndrome where my body does it's fighting and repairing when I sleep & that's all it wants me to do Birthday or not. Pretty sad I missed my plans to get my hair done, a pedicure 4 months overdue, movie afternoon & family dinner, not to mention cake & gifts were all missed. This is how chronic invisible illnesses control your life & give no warning. #thoracicoutletsyndrome #degenerativediscdisease #sciatica #anxiety #stress #ptsd #gastroparisis #chronicpain #delayedsleepphasesyndrome #rheumatoidarthritis #ibs #gerd #allergicrhinitis #vocalcorddysfunction #seborrhoeicdermatitis #intertrigo #rosacea #JRA #invisibleillness #chronicillness #invisibleillnessawareness #butyoudontlooksick #breakthestigma #autoimmunediseases #juvenilerheumatoidarthritis #addisonsdisease #myopia #chronicfatiguesyndrome #survivor #invisibleillnesswarriors (at Citrus Heights, California)

[lanakilamiller]

Missed my entire birthday because I forgot to wear this on Easter around 30 family members and kids. Don't get me wrong I had one of the best holidays in years with everyone. Also not wearing the mask was my own fault forgetting to take it out of my pocket despite just sitting and chatting the whole time with everyone. Now 3 days later I stayed up from 6pm on the 18th till 10am my birthday the 19th to then sleep until 4:09am the 20th, missing my entire birthday sleeping. For those that don't understand the shots and infusions of powerful medication treatment to one keep me alive and two out me in remission make me have Chronic Fatigue Syndrome where my body does it's fighting and repairing when I sleep & that's all it wants me to do Birthday or not. Pretty sad I missed my plans to get my hair done, a pedicure 4 months overdue, movie afternoon & family dinner, not to mention cake & gifts were all missed. This is how chronic invisible illnesses control your life & give no warning. #thoracicoutletsyndrome #degenerativediscdisease #sciatica #anxiety #stress #ptsd #gastroparisis #chronicpain #delayedsleepphasesyndrome #rheumatoidarthritis #ibs #gerd #allergicrhinitis #vocalcorddysfunction #seborrhoeicdermatitis #intertrigo #rosacea #JRA #invisibleillness #chronicillness #invisibleillnessawareness #butyoudontlooksick #breakthestigma #autoimmunediseases #juvenilerheumatoidarthritis #addisonsdisease #myopia #chronicfatiguesyndrome #survivor #invisibleillnesswarriors (at Kaiser Medical Offices Riverside)