tiggerific13 - Tumblr blog

[tiggerific13]

Me want say most time me like me but sometimes it extra extra extra hard. Me think when you nonverbal people think you not understand nothing or you understand everything and 1 day with AAC learn say stuff. But it not always true when you have lots. And me, me have lots and lots and lots. Yes me nonverbal autism, and IDD. If it all me learn with extra time and help. But with it me have epilepsy and need extra time and help because easy 4get stuff when seizure day. But with it me Blind and need extra help understand stuff me not see. And with it me have Hearing disorder and need extra extra help because me not understand what you say to me. And with it me quadriplegic and not have full control body and maybe not have way show what me understand. And with all it me have alexithymia and not understand stuff me feel for try show it. And with all it me have aphasia and not have all little bit words me learn. At end of day me me have less words most nonverbal adults, most deaf blind adults, most adults with IDD, most adults with aphasia, most adults with cp and other physical disabilities. And it’s not all my diagnosis. But maybe most sad at end of day me work all my life for learn words and have less me start with and me not much old maybe 20 or 30 something me always 4 get but ik me less 40 and have less words me start with at 20 when learn aac. And it hard. Me not at no words but not much more. And it hard brain shutdown or meltdown or anxiety or panic attack and people want my words what hurt what need help with what sad and me not know. Me not think in words me think in feelings or something and not have words. And me know with my caregiver have for maybe 10 years it hard when all the same stuff type 10 more years. And it not everything but it all words me have or they give me all years my life my body my brain they here they not give words for because they not know. All word me know say for anxiety - abuse, scare, go away. It not helps. And me not talk of them. But it sounds it because all words me know. And me cry because it all have and maybe they say behaviors when brain meltdown. Me try good. Me try more hard people know. Me understand much for know me not understand most of stuff and it hurts. Most day me happy but some day me understand how much disabled because me not understand and when understand body not show or not have words and it sad.

[tiggerific13]

i also feel like people don't really understand the meaning of the word "developmental" in "developmental disability"

it means you did not develop as abled people typically do, physically or mentally

there are adults who do not have the skills you expect adults to have, who do not react or feel the way you expect adults to react or feel, who cannot live alone or be alone, who need supervision to not walk into the road, who cannot do things you can

and they are still adults

but they are also developmentally disabled

dd adults may have screaming, crying, self harming meltdowns over things you think are "little" or "immature". dd adults may have interests like stuffed animals and coloring books and toys. we may read children's books and watch children's shows, and i mean for like, young children, not like the owl house (because idk modern young kids shows besides paw patrol and is bubble guppies still on), and this is not like, caregivers infantilizing us or encouraging us to be kids forever, it's because that's what we like or are able to understand. and this does not have anything to do with "mental age". there are dd people who are like this and i will defend them claw and tooth.

we may have caregivers and may need constant supervision. we may be short, we may have baby faces, our voice may not have changed since we were a child, or we may use a more childish tone of voice and it is not because of osddid

we may have issues with motor skills and proprioception and incontinence, we may not be able to understand process comprehend absorb, we may not be able to learn certain things or may struggle to learn in general, we may have issues understanding boundaries consequences good and bad and theory of mind. we may do things impulsively (which crosses over with not understanding boundaries consequences good and bad and theory of mind i think). our brains may decide things around us- people, walls, pets, roads, curbs, cliffs, puddles, a spilled drink- don't exist, or may not be able to define what those things are and apply that knowledge, by which i mean, not understanding that a road is dangerous, or that if you spill a drink on your phone it's bad for it and you need to clean it up

our brains may start two processes at once and then cancel them both at the same time only after they have both been run, which is the only way i can explain the way my brain just u turns and it makes me look weird and i don't remember exactly what that means because i'm significantly fucking disoriented when it happens so i have no examples. we may "manipulate" people without understanding that's what we're doing and idk how to explain that either. we may lie, also, without knowing what we're doing. we may respond just to respond because our brains understand "when someone says something to you you need to respond to them" and then it doesn't prioritize making sense or having our response be actually related

we may not have empathy, or limited empathy, and may not be able to understand how to interact with people who are currently expressing a specific emotion. we may not be able to figure out what emotions other people are expressing, or intuit what people may want or expect from us. we also may not be able to or may not know how to express emotion ourselves, or not be able to figure out what we're feeling, or may feel one emotion and express another. we also just flat out may not fucking feel, or may feel things, like affection for a friend, shallowly- it's there, but we don't feel it strongly. we may also get bored of or annoyed with loved ones. and we may be easily angered and annoyed and frustrated and have no patience

we may be nonverbal or semiverbal. we may have trouble communicating and may repeat ourselves and may get impatient about it and may point or act frustrated when the other person doesn't understand. we may need things to be a certain way and then not be able to communicate this and have a meltdown about it. we may not be able to articulate the way we need to and therefore may be easier to misinterpret when you don't have the patience to not immediately assume malicious intent and try to work with us to figure out how to help us or what we're saying. we may only speak a few sentences at a time or only a few words or may only speak in quotes from a special interest. we may make noises like grunting or long drawn out moaning or groaning or droning noises. we may suddenly scream or yell or shout when talking and it's not because we're trying to. we may stim violently. we may suddenly be unable to talk. most people know that one, but. we also may issues with like... forgiving people

we're still adults, but we are also disabled and it does influence our behavior and body language and tone of voice and communication and how we socialize and interact with other people and think and feel and express those feelings and if we can and how we do it and if we feel or care at all and how we handle that too, what we're able to do and how we do it and how much help we need and what we need help with, what we like and don't like and how we handle liking and not liking, what we say and do, and how we move and how well we're able to move and how aware of our bodies and surroundings and other people we are, because all of these are things you pick up in development

and if you comment on this that any of these are symptoms of something else i'm going to really blow my top. yes i know i've listed symptoms of other things in here. lack of empathy is not solely a symptom of aspd and suddenly getting annoyed at people you love isn't solely a symptom of bpd. a lot of these are also symptoms of brain damage and schizophrenia and dissociation and neurological disabilities. and i want to argue that's because most of those things are also things that affect development, but not inherently. i'm tired i would like to do something else now

[tiggerific13]

[tiggerific13]

Want give positive acknowledgement for people in autistic community feel don’t get acknowledge often. So, to:

Autistics who had drop out of school

Autistics who never went to school in person

Hypo-empathetic Level 2 and 3 Autistics

Hyper-empathetic Level 2 and 3 Autistics

Intersex Autistics

Religious Autistics

Autistics from racial or cultural minorities

Sensory Disabled Autistics

Autistics with other conditions/disabilities that make them feel isolated from rest of the community

Intellectually Disabled Autistics

Autistics who struggle understanding a lot of or all of the subjects surrounding autistic community

Autistics with any form of catatonia, whether it related to their autism or not

Autistics whose first language not English

You matter. You important part of this community, and it wouldn’t be same without you. You not worth any less than anyone else here. There others like you out there. You not alone.

[tiggerific13]

Reminder that languages have tens of thousands of words if you only count common words, and hundreds of thousands if you count more specific / niche words from fields like jobs, sciences, hobbies, etc. There is no AAC board with tons of folders complex enough to hold all of them. If someone cant manually type in /spell their own additional words they can be severely limited in what they can talk about, even with creative work arounds. Be mindful that many AAC users are limited in their words by their communication method, even if they cognitively understand more words and areas than they can talk about.

[tiggerific13]

Me too much Super Dee Duper excited because they make new Barney shoes and me get ❣️❣️❣️

[tiggerific13]

We get me tens machine for my pain and when read me instructions thing it have weird rules. It feel not nice say not use because communication disability. People nonverbal and or different communication stuff get in pain and need stuff for help.

[tiggerific13]

Something me see from TikTok lady say she autistic but not trauma and what make different and ok get good job she always ask help. Me not it video because not ask help something they see in babies with autism at all levels it something in brain we not think of it YouTube doctor say what part brain but me forget but they see it before born. And not all trauma mean mask or stuff she say everybody autistic get some trauma from sensory stuff and things when baby and not have way show it hurt or way stim for help body. She not talk nothing autistic not social stuff or nothing and it not nice pretend autistic when not.

[tiggerific13]

Sorry not post much time it hard move and change everything and scary and lots meltdowns and lots work but me most like new house and love my new more big sensory room and make lots slime and get some from peachybbies for my bday. It make hard try work on stuff because routines all mess up but me try make new but slow because hard.

[tiggerific13]

Excited scared new house in week. It hard because everything get pack and move and my room not look same but my swing but new house me have more big room. We need get new POA papers because move and for him put name on new house and it hard because we there hours because lawyer need read everything and keep change what say for help me understand but me get Starbucks after and no more new papers after move because we buy house and not need move. My friend say take me build a bear when move everything

[tiggerific13]

Today me get IXL because most accessible. Me work hard on test and most get pre k and kindergarten. Maybe not much but me remember not too much years ago on ABC mouse me get toddler. It maybe slow but me learn. But me think important know my school stuff not mean me not adult. IQ and school not everything of person.

[tiggerific13]

just a little reminder that you can be autistic & still be ableist toward other autistic people.

i've had low support needs autistic people tell me that my traits make me "childish", "embarrassing", or even "gross". you are not an ally to autistic people unless you support them in every aspect of their disability.

that includes the lovely autistic people who stim wildly in public, who need assistance with using a toilet, who neglect their hygiene due to executive dysfunction, who compulsively pick at their skin or hair, who can't control the sounds they make, who don't understand things first-try or at all.

you have to support autistic people whose disability looks different to yours.

we're not childish, or embarrassing, or gross. we're autistic - just like you - so don't treat us as if you're somehow superior for having more "palatable" traits.

[tiggerific13]

Yes simple please

tip for communicating with someone who has auditory processing issues !! (with example)

often times, i will struggle to understand a phrase. i will ask politely for the person to repeat it, but still won't understand. here is a tip for that situation. ^^

avoid repeating yourself verbatim (word-for-word).

the listener may be having trouble with the specific sounds / words you are using, so try changing the sentence to be simpler, or use synonyms !!

example:

person 1: could you please unpack the dishwasher?

person 2: excuse me?

person 1: unpack. dishwasher.

simple sentences lessen the amount of words that can be misheard.

OR

person 1: could you please unpack the dishwasher?

person 2: excuse me?

person 1: the dishwasher has finished its cycle, could you remove the dishes & put them away?

with a fuller explanation, the listener might follow more easily.

remember to not get frustrated with the listener, as they are likely also frustrated & trying their best !!

- someone with SPD & autism. :-)

[tiggerific13]

all forms of AAC are valid AAC .

ALL forms of AAC .

you can have a high tech aac device , but you do not need a high tech device dedicated to your aac in order to use aac .

your use of aac is still valid , even if it is very spontaneously put together in the moment .

writing in a notebook, on loose pieces of paper , on sticky notes , on index cards , or whatever scrap paper you can find is still aac .

writing on yourself is still aac .

typing in your phone's notes app , in a draft on social media , in a private message , or in a search bar is still aac .

having an aac app and using it on your phone , instead of a dedicated aac device , is still aac .

quickly drawing a picture is still aac .

pointing at words or pictures on items around you is still aac .

only using gestures , nodding , shaking your head , shrugging , " miming / charades " , is still aac .

only makes noises or sounds is still aac .

your AAC does not have to be high tech to be valid or to " count as AAC " .

any way , other than oral speech , that is easier or a more comfortable way for you to communicate is AAC .

[tiggerific13]

not every sound i make is an attempt at speech .

most sound is just involuntary noise .

some time , is stimming ( voluntary or involuntary ) .

or some time , is vocal tics ( always involuntary ) .

yes , some time make noise is try talking , but not all time . not every time .

and for me , if try talking when can not , usually get upset . it is noticeably different noise than when make noise stimming or when is tic .

when make noise is stimming , not have words in mind try get out . just is noise . at most , tone different from how feel . still just noise .

when is tic , not plan make noise . not want make noise . is just happen . come out however . tone not from me .

some time , noise sound like words , but sound like not mean is .