As someone who is somewhat of a “veteran” of the online ND community, I’m disappointed in the lack of positivity and love for lesser known diverse cognitive conditions, and the opposing abundance of posts about “cures” or outdated criteria or treatments for those conditions. So, without further ado, I want to say hello to anyone with any of the disorders I’m listing, and give them the love and support that hardly anyone else in our community has… Shoutout to:
People with Down syndrome
People with Fragile X
People with William’s syndrome
People with dyslexia
People with dyspraxia
People with dyscalculia
People with dysgraphia
People with Prader-Willi syndrome
People with PANS or PANDAS
People with aphasia
People with a TBI (traumatic brain injury)
People with chronic/early onset mental illnesses
People with cerebral palsy
People with FASD or were otherwise disabled via other substances in utero
And many, many more I may have forgotten to list (but still support and love, I will add more to my list)
You are all beautiful and wonderful, and you all deserve so more love, appreciation, acceptance and support. You are just as neurodiverse as the rest of us, and your voices deserve to be heard and amplified.
I love you all ❤️
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TLoZ fandom and ableism - Link's mutism
I recently had a discussion with a user here on Tumblr about the subject of the title, and I felt like doing a dedicated post about it.
To clarify: I will NOT provide the user's profile link, because I don't want to create unnecessary drama or discussions for no reason. If this post were to reach the person concerned, know that it is absolutely not against you, but it is a generalized speech.
I've often seen a lot of headcanons regarding Link's mutism, for example, that he may have autism, selective mutism, complete mutism, and many others. I find it really amazing that everyone can make their own headcanons, and I love sharing mine or reading and commenting on other people's.
What I don't tolerate is saying that certain headcanons are wrong from the start. Unless they completely destroy the character's morality, personality, and defining characteristics, no headcanon should be considered wrong because it isn't. What also bothers me is to take one's headcanon for canonical facts and accuse others of "canceling disability" just because they think differently.
For example, I headcanon Link to have aphasia, but that doesn't mean I am canceling a disability and replacing it with another because Link was NEVER confirmed to be either autistic, selectively mute, or completely mute. I am not erasing anything just because I don't headcanon him as autistic or selectively mute. I just have a different opinion from yours, I am not being ableist.
Saying "headcanoning Link as completely mute is wrong, stop trying so hard" IS ableist, exactly how saying "headcanoning him as completely mute is just an easier and less deep way to justify his mutism, it means not taking autism seriously" is too.
There's not even any need to justify your headcanons and support them with misinformation. But if you really want to do that, at least PLEASE do your research right.
Let's take a closer look at what mutism is:
"Muteness or mutism (from Latin mutus 'silent') is defined as an absence of speech while conserving or maintaining the ability to hear the speech of others. Mutism is typically understood as a person's inability to speak, and is commonly observed by family members, caregivers, teachers, doctors, or speech and language pathologists. It may not be a permanent condition, as muteness can be caused or manifest due to several different phenomena, such as physiological injury, illness, medical side effects, psychological trauma, developmental disorders, or neurological disorders." [Wikipedia]
There are 4 main causes for mutism:
Physiological causes of mutism may stem from several different sources, for example, problems with the physiology involved in speech like the mouth or tongue, or apraxia, involving problems with the coordination of muscles and body parts involved in the action of talking. Other causes may be the complete loss of the voice because of illnesses, deformations of the larynx, injuries, or paralysis. The latter does NOT seem to be Link's case, as he can still emit other sounds that aren't words, meaning that his larynx and verbal organs are just fine.
Neurological causes such as strokes, brain damage, degenerative illnesses, brain tumors, or severe injury could cause aphasia, which I headcanon Link to have:
- In aphasia, a person is unable to comprehend or unable to formulate language because of damage to specific brain regions. The difficulties of people with aphasia can range from occasional trouble finding words to losing the ability to speak, read, or write; intelligence, however, is unaffected. In my case, it's related to a severe injury Link got during a fight, so it was something sudden. resulting in Broca's aphasia, where individuals understand language and know what they want to say, but are unable to produce isolated words and sentences or write correctly. This form of aphasia most frequently associates with damage in the frontal area of the left hemisphere. In this case, the patient is able to say small phrases and can STILL use his voice like in every other case. It doesn't contradict Link's canon behavior, as it is shown through dialogue boxes that he can say small phrases, and doesn't erase anything else.
When children do not speak, psychological problems or emotional stress, such as anxiety, may be involved. Children may not speak due to selective mutism. Selective mutism is a condition in which the child speaks only in certain situations or with certain people. Selective mutism should not be confused with a child who does not speak and cannot speak due to physical disabilities. Selective mutism may occur in conjunction with an autism spectrum disorder or other diagnoses. Differential diagnosis between selective mutism and language delay associated with autism or other disorders is needed to determine the appropriate treatment. All of these could be extremely valid headcanons.
Absence of speech in children may involve communication disorders or language delays. Communication disorders or developmental language delays may occur for several different reasons. Language delays may be associated with other developmental delays. For example, children with Down syndrome often have impaired language and speech. Children with autism, categorized as a neurodevelopmental disorder in the DSM-V, often demonstrate language delays.
So no, not all mute people can't emit other sounds, and not all mute people are completely unable to speak even small phrases or words.
The point is: NOTHING entitles you to invalidate people's headcanons and spread misinformation just because they're different from yours, and NOTHING gives you the right to call other ableists for the same reason.
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Aphasia
The barista I knew when I was young
says Come, sit with me,
and tells me how he doesn't believe
in reality anymore.
This chair, these teeth
could be anything
that isn't a chair,
or teeth.
I'm not interested in his latest endeavor,
a drawing he shows me, naming it "Shame."
A sketch of a man: such large hands over
what kind of face.
I have to go, or I say so, and sit on the street
that erupts twice a year:
once with white pear blossoms, once
in bare wired branches---vibrations in the sky.
At home my father watches the television
muted, saying Who is this, and What
are these fellows doing, and every few minutes
he hears a sound
that might be the ice box
spawning, and on double canes
he walks to the front door,
like a paper puppet shaking in the light.
I am going to stay on this bench a very long time,
watching autumn's fingers paint salted lines
around the spaces where the leaves have pressed
their damp brown bodies to the ground,
and I will try to find a way to carve the space around my body
into quiet, or lift a spindle
from my tongue to tighten these sounds
into simply something else.
When I finally go home, I am going
to ask my father how his day was, and he'll say The egg
is on top of the egg but he won't mean an egg
and he won't mean an egg.
Sarah Matthes, Town Crier (Persea Books, 2021)
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Please share!
Kiku is crowdfunding again.
Someone found Kiku's instagram post from when Kiku was trying to crowdfund for an ipad pro and donated, and Kiku doesn't feel right not posting to crowdfund again. (Kiku would likely not be doing this if the person who donated had not donated).
Kiku is trying to get an ipad pro 12.9" to use for AAC because Kiku has been having a lot of problems with Kiku's vision recently. Kiku also needs to get a screen protector for the ipad. Kiku has a case and shoulder strap already. Please help if you can! Kiku really needs this ipad because Kiku's vision issues have been making using aac very difficult. If you can't help please share.
The goal is $450 to cover ipad and screen protectors.
Below are Kiku's partner's paypal link and the amazon wishlist with the ipad on it.
Current total:
$28/$450
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Dead bird, LawSan, chapter 3.2
Get yourself a friend like Chopper.
Aphasia awareness month is in June, but there's no reason not to remind about the fact that those funny talking people are not: stupid, uneducated, ostentatious or just trolling you. Aphasia treatment is long and exhausting, and those people deserve all support they can get.☝️
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As someone with both general Aphasia and Palilalia,
if people are saying you keep repeating yourself, or whispering, and you don't think you are, it might be that. For years kids would tell me to stop whispering. I was doing that, but I didn't know. I couldn't feel my own lips moving and repeating my old words.
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