#chronically fatigued
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insidestory1 · 3 days ago
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I hate it when one part of my body hurts, so the rest decides to scream along in solidarity. Only one bit of my body actually has something wrong with it. But ALL my nerve endings are burning.
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beenovel · 1 year ago
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Body awareness is absolute shit for chronic illness. “Become aware of your body. Pay attention to how your body feels” great now I’m noticing the bone aching soreness that is permeating my entire body, thanks for that. My mind was automatically filtering that out for my but I sure am aware of it now!
I need like the opposite. I need “leave your body entirely and forget it exists” meditation.
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atlas-jack · 7 months ago
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hey when a disabled person says theyre tired, theyre most likely lying. what they mean is that they are so utterly EXHAUSTED that theyre struggling to function.
i suffer with terrible fatigue as part of my condition and i find it hard to partake in hobbies i enjoy, nevermind hardwork, when it hits. which is a lot of the time. i sometimes sleep 10+ hours a night and still have to take a nap.
before i started seeing doctors abt my condition, people would always ask how i am when i was at work and when id answer id always get 'youre always tired!'
the worst one was the guy who turned round to me and went 'you dont have kids, you dont know what tired is.'
girl, if most able-bodied people were operating at the levels i operate at most days, they wouldnt have the energy to get out of bed or feed themselves. some days i cant do that and i live like this every day. some days i become so exhausted i cannot form words.
idk man chronic fatigue is not just 'being tired all the time'. its debilitating. imagine not eating because you dont have the energy to lift cutlery or chew. imagine being so drained that you physically cannot talk. imagine having to wait until someone else is home to go to the bathroom because you dont have the energy to get there alone.
some of us live like this and when you measure our worth based on what we contribute, it becomes a depressing existence.
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marshmarlowee · 2 months ago
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What’s the difference between fatigue and being tired?
My heart is racing and I’m breathing heavy after walking up or down a single flight of stairs.
Eating a meal is tiring.
I can sleep 10-12 hours and wake up and feel okay for about 30 minutes, maybe an hour, and then I’m exhausted again.
Mentally stimulating tasks are difficult, I can’t focus on reading.
Showering is so hard. I stand in the water and space out because it’s hard to lift my body parts to clean them properly. I need to lie down or sleep after showering because it is the most physical strain I will have in a day.
Other chronically ill and disabled people are invited to add their own examples. I’m so drained and I have to vent these feelings, it might as well be in a way that could potentially be useful for other people.
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fanon-and-canon · 9 months ago
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"you always have something wrong with you"
well yea, no shit. its like im chronically ill or something
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jomasays · 1 year ago
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“I want to live, not just survive”.
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sephrxn · 27 days ago
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its always "prove ur pain or ur guilty of faking til a doctor says otherwise". like why the "guilty until proven otherwise " rhetoric? my existence IS NOT A CRIME, my pain aint up for debate, and this is not a damn court hearing.
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twentysevendreamer · 3 months ago
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The thing is, no one cares how hard you’re trying. They just want you to pass their expectations. Anything less means you’re lazy. What a brutal world we’re living in right now.
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whumpersome · 2 months ago
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don't mind me looking all exhausted, starved, sleep deprived. the curse has been acting up, you know how it is
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endometriosismemes · 1 year ago
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houstonxbreed · 3 months ago
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I honestly feel like my whole 20s have been robbed from me. I’m 29 and I’m losing hope. I’ve been “strong” and “positive “since I’ve been diagnosed with muscular dystrophy at 10 years old. It’s hard to be positive when something affects your quality of life and there’s no breaks. I honestly don’t know what to do at this point. And unfortunately, most people don’t understand which I don’t expect them to. I’m just hoping for peace.😭😭🙇🏾‍♂️
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calicobeesblog · 5 months ago
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I hate talking to non disabled people about my financial issues because they always go “well you’re disabled can’t you just apply for pip” babes I wish it was that easy.
Trying to explain that I can’t just call them up and go “hey I’m too disabled to work give me money” isn’t how it works and they just go well isn’t that what it’s for. Yeah but unfortunately I have to go through an extremely long and difficult process before I’m even considered for pip.
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im-out-of-it · 3 months ago
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how dare I use my body smh
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fanon-and-canon · 8 months ago
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when a disabled or chronically ill person tells you they cant do something, fucking listen. our limits arent negotiables, we cant hold on for "just a little longer", its more than "just one second". stop trying to get us to push ourselves. it's basic respect.
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matchakuracat · 1 year ago
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"You're so lucky! I wish I could just stay at home all day instead of going to school or working"
I have to go to school/work just as much as anyone else does, the difference is that I physically can't. Not having the same choice as abled people does not make me lucky. Staying at home because I can't go to school or work does not mean I get to do whatever I want. Staying at home every day without being able to do anything is not fun. Not being able to do anything but lay down in bed or on the couch gets boring really fast. That's not even taking the chronic pain I endure into account.
Being chronically ill is not being lazy. It's not a choice, or something anyone would choose. It's a disability.
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