#cripple problems
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Insurance canceled 4 MRIs to check my spinal cord and brain for tumors and/or damage because I scheduled the MRIs one day out of the authorized dates. I got the authorization in the mail the day they expired at 6 PM. The MRI clinic was closed. I had zero time to schedule within those dates. It took 3 hours of yelling at insurance for them to give authorization again, and now I'm scheduled for August 1st instead of this coming Monday, July 21st. I've been waiting over a month for these MRIs, and now I have to wait even longer because I didn't receive notice of the authorization until it expired. Fuck health insurance.
#american healthcare#health insurance#chronically ill#chronic disability#chronic illness#disabled#chronic disease#disability#chronicpain#other chronic illness bs#disablity#chronic pain#disabilities#disability rights#disability advocacy#actually disabled#invisible disability#physically disabled#disabilties#chronic disorder#chronic fatigue#nerve pain#nerve damage#cpunk#cripple problems#cripple punk#cripplepunk#crip punk#angry cripple#cripple posting
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POV: you are physically disabled
#cripple punk#cripplepunk#cripple#cpunk#c punk#cpunk blog#c punk blog#angry cripple#queer cripple#disability#disabled#cripple posting#cripple problems#physically disabled#physical disability#chronic pain
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i was recently denied life-saving gallbladder removal surgery by my GI specialist due to being "too fat" (i'm 300 lbs and very muscular) and "needing to lose 10 -15 pounds and waiting 2 - 3 months in order to get the surgery". i was then signed up for bariatric weight loss surgery before i could get the gallbladder removal despite the gallstone stuck in the neck of the organ as well as the other stones inside of it causing me to be incapable of keeping down food
i ended up getting the surgery done by a local hospital with far better doctors, but the initial denial had me so defeated. if you are fat and have ever been denied important surgeries, life saving or otherwise, because of your weight, i am so sorry and you should never have to face that. most surgeries are not impacted by weight in the slightest. this is usually an issue with the surgeon's skill as a surgeon.
i was told by every other surgeon i met that weight has no bearing on a laparoscopic gallbladder removal surgery. at the other hospital i was also told that anesthesia wouldn't work on me or that i wouldn't survive it. yet again i was told by other surgeons that was also not the case. most surgeons worth their paygrade can do these surgeries after just... trying and learning how to work with fat bodies.
i was told by the surgeons and nurses in the ER that it's ridiculous for the other hospital to behave as though fat people will never need surgery of any kind ever throughout their lives, for one reason or another. it's unrealistic. most people will encounter a potential surgery in their life times, no matter their weight and it's unprofessional to just give up when someone above a certain weight threshold needs help.
my heart goes out to you especially if you're trans, intersex, gnc, and queer and have been denied top surgery or other gender affirming care surgeries because of your weight. this is also medically unethical and done for no reason other than fatphobic transphobic bias. you do not need to lose weight to get top or bottom surgery.
take care of yourself. my heart goes out to you and you don't deserve this treatment at all
#cripple punk#crip punk#cripplepunk#cpunk#disabled#disability culture#chronic pain#actually disabled#chronically chill#disabled culture#cripple posting#cripple problems#punk#punx#trans punx#queer punx#disabled punx
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Do you know how many times a day I want to scream at people "THIS ISN'T FOR YOU!" ?
Just yesterday, I was ten minutes late to my tutorial class because for whatever reason, almost every single person in my lecture decided to use the elevator instead of going down one flight of stairs while me and my classmates -- the ones who didn't have that choice -- were stuck waiting for the next elevator.
I constantly have to navigate around people walking up the ramps -- or, worse, standing in the middle of them -- because they couldn't get off their phones for two seconds to use the stairs instead.
At least twice a week I end up in far more pain than usual because people who don't need them take up the accessible seats on the bus and I either have to stand there and wait for somebody to get up (Which is already hard on my body) or just wrap my arm around the pole and try to suffer through a few stops until somebody gets off (Which has already caused several dislocations). As much as people like to brag about how they'd "always give up their seat for a poor handicapped person", they're far more likely to stay right where they are and ignore you in favour of watching Instagram reels on their phone.
And I've tried asking people to move. Directly. Making eye contact and everything. They'll just look down at their phone and ignore me until the bus driver or somebody else says something. And only then can they magically notice me and get up.
Before I get a bunch of people leaping to yell about people with invisible disabilities: I know. I know there are people with invisible disabilities, I spent most of my life with only invisible disabilities. I can guarentee that not every single person in my lecture of 60 people has an invisible disability. This is not the problem.
The problem is that able bodied people see these resources and supports made specifically for physically disabled people and assume they're entitled to them. Most of them see it as something that's put in place just to comply with certain rules or laws or regulations as a 'just in case' thing. Nobody thinks that disabled people are actually out and about. We're an afterthought to them.
And I get it. I do. We all have our blind spots.
But seriously, this is getting ridiculous.
#disability#disabled#ableism#accessibility#accessibility awareness#inaccessibility#cripple shit#cripple problems#cripple punk#crippled#cripple#c punk#physically disabled
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something that isn’t talked about enough with chronic illness is knowing that going to your appointments and doing your exercises and all that will help but being in too much pain or too fatigued to go, so your just stuck in this constant cycle of knowing what you need to do to get better but not being able to do it because your sick
#chronic illness#chronically ill#chronic pain#cripple posting#cripple punk#cripplepunk#crip punk#cripple shit#functional neurological disorder#queer cripple#fibro problems#fibromyalgia#crippunk#cripple life#cripple problems
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Hey so can they make doors wider. Please. My wheelchair can’t fit through basically any of the fucking doors like, ever. “What, is there a giant that needs to fit through here? 🤣” (real thing I’ve been told) no. I use a wheelchair you ableist fuck. And you’ll never guess what… wheelchairs need extra space! Crazy!
Don’t even get me fucking STARTED on elevator entrances that are so small that I can barely get in or out of them in a safe manner. Recently I was having so much trouble reversing out of an elevator because it was so small that the doors started closing in before I had gotten out. Luckily I had my best friend with me to stop the doors, but what the fuck??
MAKE. DOORS. WIDER.
#elevators ESPECIALLY. entrances and exits to medical buildings ESPECIALLY.#I can excuse it if I’m going to an able-bodied persons house#but it is unacceptable if it’s a public building. how did this shit get approved#I have a relatively small wheelchair too. but even I can barely fit through doors. it’s so sickening#disabled#disability#ableism#angry cripple#cripple posting#physically disabled#actually disabled#cripple problems#cripple punk#wheelchair user
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Wheelchair users:
Hey, the main entrance to your business is up some stairs, is there a wheelchair accessible entrance with a ramp or something available?
non-disabled business owners:
No, we don't get any customers in wheelchairs so there's no point
Wheelchair users:
...do...do you think there might be a reason for that?
Non-disabled business owners:
Because disabled people don't need [whatever product or service we provide], obviously.
#id in alt text#disability#disabled#disabled problems#I've had this conversation too many times#abledsareweird#able bodied people are weird#disability rights#ableism#accessibility#wheelchair user#wheelchair problems#cripple punk#cripple problems#physical disability#physically disabled#crip punk#cpunk
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i love how sometimes, despite all the medical advancements of the 21st century, the only thing that relieves pain is sitting/laying/standing in a weird position because it places/doesn't place pressure on certain spots
#i spent the last 30 to 60 min with my face planted on to my bed to help the migraine go away#it worked and my back got a nice stretch as well#sometimes the solution is becoming a frog and i love that#chronic illness#chronic pain is a bitch#chronic life#chronic pain#chronic fatigue#chronically ill#invisible disability#disabled#disability#disbaled#physical disability#disabilties#cpunk#physically disabled#cripplepunk#queer cripple#cripple punk#crip punk#cripple shit#cripple life#cripple posting#cripple problems#c punk#pots syndrome#pots awareness#potsie#chronic disability
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if you block the curb cut with your car, have the day you deserve
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I am in pain
This pain doesn’t fucking stop or go away, and it gets better before I flare up even worse than before
The only way to fix it would be another surgery, but I’m trying to avoid it for a while
I fucking hate this
#personal#disabled#cripplepunk#chronically ill#chronic pain#chronic fatigue#flare up#back pain#spine problems#scoliosis#spondylolisthesis#cripple problems#cripple posting#hypermobile ehlers danlos syndrome#hypermobile ehlers danlos#ehlers danlos syndrome#pots syndrome#postural orthostatic tachycardia syndrome#trans cripple#queer cripple#joint pain#joint problems#tired-cripple
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SAY IT WITH ME: MEDICAL GASLIGHTING IS MALPRACTICE
#chronic illness#disabled#chronic disability#chronically ill#chronic disease#other chronic illness bs#disablity#undiagnosed chronic illness#chronic pain#chronic fatigue#nerve pain#joint pain#disabilities#disability#actually disabled#disability rights#disability advocacy#invisible disability#physically disabled#doctors suck#medical stuff#medical gaslighting#medical malpractice#cripple life#cripple problems#cripple punk#angry cripple#cripplepunk
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DO YOU WANNA HELP YOUR DISABLED NEIGHBORS?
Rake up the wet leaves before we eat shit on the sidewalk! Your city or town should be doing it, but why would they??
#i get that ableds wouldnt think about it#but it would be nice to be thought about#walking or traveling safely should be a right#not a privilege for people with working legs#my cane has no grip#and im terrified#tw caps#cripple punk#cripplepunk#cripple#cripple shit#cripple problems#angry cripple#cripple life#cripple posting#cpunk#c punk#cpunk blog#c punk blog#mobility aid#mobility aid user#cane user#crutch user#wheelchair user#disability#disabled#physically disabled
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i hate that the first question my dad asks anytime i say that my entire body hurts is “do you exercise enough?”
i’ve tried, and it hurts so bad. it makes my pain worse, and when i do it where the exercise doesn’t hurt me, i’m still in pain.
i hate this question cause when i answer, it’s just like to move to the next conversation or ignore me till i dont talk about the excruciating pain i’m in.
i hate that people masquerade my pain under the idea of not exercising enough because it’s fucking easier on others to say it’s my fault and that it could be an easy fix rather then paying attention to the fact that i’ve said i’ve been in pain for almost 8 straight years!
#actually disabled#cpunk#disability#disabled#chronic illness#crip punk#chronic pain#hypermobile#cripple posting#actually crippled#queer cripple#cripplepunk#cripple punk#angry cripple#cripple shit#cripple problems
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Being disabled is beautiful, but it’s also difficult. Both things can be true.
#chronically couchbound#disability#disabled#cripple punk#cripplepunk#disabled pride#disability pride#cripple posting#cripple life#cripple shit#cripple problems#cripple#cripple pride#queer cripple#crip punk#crip rights#sick crip#spoonie community#spoonies#spoonie#spork theory#no spoons#no spoons only knives#disability culture#disability rights#chronically chill#chronic pain#chronically ill#chronic fatigue#chronic illness
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it’s weird how if the stuff my chronic illnesses causes happened to an abled person, they’d call an ambulance but i’m just expected to get up and carry on with my day
#chronic illness#chronically ill#chronic pain#cripple posting#crip punk#cripple punk#cripple shit#cripplepunk#functional neurological disorder#queer cripple#angry cripple#crippunk#cripple life#cripple problems
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Chronic pain so bad I go “ow yeeowch ow owie ouchie ow ow” like a cartoon character walking on lava
#chronic pain#disability#disabled#actually disabled#cripple posting#cripple problems#physically disabled#i am so tired#this post is jokey but it wholeheartedly feels like this sometimes
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