chronicallymagenta

[chronicallymagenta]

Tag which chores are hardest for you 😩 mines laundry and dishes

[chronicallymagenta]

It’s incredibly refreshing when you finally find good doctors. Especially when you’re chronically disabled. GI surgeons RN just called for verbal confirmation of how I’m doing after being in the Er and almost admitted the other day - Now she’s reaching out to the surgeons again to try and escalate and make my case a higher priority. ✨

[chronicallymagenta]

since using mobility aids, i’ve been stared and laughed at in public. i’ve had my picture taken without my consent. i’ve had people walk right in front of me and stare me down while they do it.

ableds can only see us in two ways: a puzzle they can solve for their inspiration porn fantasies or with the same pitied & disgusted looks they give to a dying stray.

if they treat me without dignity, then i will have none. i’ll embrace the animalistic rage and start fucking hitting ableists & see how they like it.

[chronicallymagenta]

people when I tell them I'm disabled: omg take your time, lmk if there's anything I can do to help 🥺

people when I actually take it at my own pace and communicate my needs: 😡

[chronicallymagenta]

being disabled means everyone around you will ask you when you’ll be cured, when you’ll get better, when you’ll be okay. and you have to tell them you are okay, you are the way you’ll always be.

then being disabled means dealing with ableds being angry with you for the things you can’t change.

i’m proud to be disabled, proud to be “uncureable” and being cripplepunk means i’ll never settle for some bullshit keto diet or whatever else ableds think will magically cure me.

[chronicallymagenta]

chronically ill people will tell you that they’re fine while they’re visibly shaking and sweating and fighting for their life in front of you

[chronicallymagenta]

for the record, disabled people don't have to automatically know their limits. we are allowed to push ourselves and learn our limitations. what is not allowed is able bodied or even other disabled people who think they know us tell us that we have to keep going. my disability and body are not science projects for anyone to play with.

[chronicallymagenta]

[chronicallymagenta]

On top of that, it turns into hives for me… thank you MCAS 🫠

Got a painful itch on my shoulder and I scratch and then my shoulder hurts because I scratched too hard. Fucking fibromyalgia.

[chronicallymagenta]

Seriously. I used to work at Goodwill, a company who advertises how they’re so into hiring disabled people but when it came down to it - My accommodations were a hindrance and I wouldn’t be able to move up the chain either because of them. 🙄

Employers: "Nobody wants to work anymore these days!"

Disabled people: "We are qualified and we are willing to work. We just require some workplace accommodations."

Employers: "Where are all the 'normal' people who want to work?"

[chronicallymagenta]

★ 【reinforced】 「 fairy 」 ☆ ✔ republished w/permission ⊳ ⊳ follow me on twitter

[chronicallymagenta]

i think as adults it's our responsibility to be nice to kids and treat them with the respect we wish we got at that age and im not kidding or exaggerating in the least

[chronicallymagenta]

And sometimes, in my personal experience, my rosy cheeks are my butterfly rash appearing

Don’t say stuff about my looks as a comment on my health.

Please don’t. If you like my hair/jewelry/makeup  then fine, you can say so (I don’t really style my hair or wear these things often, but that’s beside the point). But don’t tell me I “look like I feel better.” Maybe I do, maybe I don’t, but either way, how I look is not something you should use to judge my health.

Example:

sometimes rosy cheeks = healthy, well-oxygenated blood

sometimes = hot, painful flushing.

Also, I don’t want to have to be put in a position where I want to lie and say I feel better/I’m having a good day when I’m not…I’m just hiding it well.

[chronicallymagenta]

I’m sharing some of my products on here in hopes of helping more people out there. I am a mom of 3, and recently my conditions became truly disabling. I went from working a full time, heart thriving job to not being able to work at all. Last October, I became wheelchair dependent, with all my conditions attacking me at once, and they haven’t stopped since. This isn’t just a flare up, this is my new reality due to condition progression. My sister also runs this shop with me, and she’s a stay at home mom of soon to be 3. Supporting our shop would mean the absolute world to us. 🫶🏻

You can find this wonderful product, among others, at my website! Www.wonderlandbotanicals.store

[chronicallymagenta]

Bev Staunton & Rachel Stewart

Mount Congreve Gardens, Waterford, Ireland