favisdisabled

[favisdisabled]

I think a lot of the misuse of support needs labels comes from people labeling their support needs based on what they need to thrive, not survive.

When I say "I can't live independently," what a lot of people hear is "It would be hard for me to live independently and my quality of life is improved by having a caregiver." But what I actually mean is "I would literally die if I was left on my own."

I don't get the support I need to thrive either. I'm barely holding on. But I need certain things to be able to just survive.

[favisdisabled]

Not to be like, "If I can do it, so can you!!" Inspiration Porn-y Bullshit about my 5k, but like... it would be awesome if you used this as a Sign and started going out and getting a little bit of "safe for you specifically" exercise that makes you feel good and may even help a little with pain. At any rate, the "I had a good workout" pain feels different and better than "I hurt because my disability hurts" pain and its nice sometimes lol.

I started out in a manual wheelchair going around my house once a day, then started going to a walking path and slowly worked my way up to a mile distance, then two, then three. You can race in a wheelchair alongside runners on foot in local races, thats what I do. Think like, "The Great Bumfucksville Peach Run" or whatever. Those kinds of races. Some of them even have a 1 mile run thats way more doable for beginners and people with less stamina.

The important part is that the exercise is safe FOR YOU, and you aren't harming yourself in the long term with it. My doctor recommends for me to go to the point of fatigue but to avoid exhaustion. I take this as stopping when I go "should I do another lap or should I stop here?" instead of going till I can't go any further. It took me like... 6+ months to do my first 5k and about a month to get back into it after a 2 year break, your times may vary depending on condition, fitness, disability, and equipment.

For reference, if this post breaks containment, I have mitochondrial myopathy (think CFS + Muscular Dystrophy) and use a CRT powerchair and face mask ventilator in daily life. I'm in the severe disability category so I'm not just talking out my ass. This was actually very hard for me and I'm proud as hell. 5ks are difficult even for able bodied people.

IMPORTANT EDIT!!!!

Make sure you know what your baseline fatigue feels like and what it feels like when you're about to work yourself into a flare-up!!! That's the only way you can exercise SAFELY with a fatigue heavy disability! Stop BEFORE you reach "flare up" fatigue and dont restart until you reach your baseline again! This is not medical advice, just advice from someone who has worked themself into a flare before doing this.

[favisdisabled]

hi it's the kakyoin intermittent claudication anon... i just wanted to really thank you. i know it sounds silly but you posting the request like any other made me feel really nice.

i've experienced intermittent claudication to a disabling extent for as long as i can remember, though it got worse during the pandemic. only recently i managed to find a name to my experiences, to realize that it's a disability and not an issue of fitness or laziness. but i always have that nagging doubt in my head, that this isn't bad enough, that i'm just making excuses for my laziness, or that i'm not disabled enough to warrant a place in the disabled community. i always feared that calling myself physically disabled was a mockery

but your response to my request, and how nicely you took it, just like any other request for worse conditions... it made me feel a bit more "right" in the community. validated is the right word. i felt very validated. it may have been a small thing to you but it... means a lot. to me. thank you, really. the phys disabled community scared me, i felt as if i would be intruding. but this gave me a little bit of hope, almost. maybe i have "earned" a place in these spaces.

augh this makes no sense i bet. i just wanted to thank you. as long as you understand that i am so so grateful and it meant a lot then i'm happy. thank you

I'm so incredibly glad I was able to help in some small way! You aren't intruding in physically disabled spaces whatsoever, I promise you that you are valid and that I welcome you here. 💖

[favisdisabled]

Miyata Soma from Project Sekai has paralysis!

Requested by anonymous

[favisdisabled]

Heart from Chonny's Charming Chaos Compendium by Chonny Jash is blind!

Disability only flag edits below

Requested by Anonymous

[favisdisabled]

White Lily Cookie from Cookie Run is disabled! She has muscle weakness in her arms and hands, and has issues with gaining and maintaining weight!

Requested by @abyssal-author-and-artist

[favisdisabled]

Pure Vanilla Cookie from Cookie Run is blind and has an eating disorder!

Disability only flag edits below

Requested by @abyssal-author-and-artist

[favisdisabled]

Victor Frankenstein from The Modern Prometheus has psychosis and POTS!

Disability only flag edits below

Requested by @several-geese-in-a-trenchcoat

[favisdisabled]

Wait, let us submit Siffrin once again, these people are forgetting some details:

Canon: One eye. Post-Traumatic Stress Disorder. Psychosis. Severe memory issues. Dissociative disorder (Derealization/Depersonalization, to be more specific.)

Headcanon: Chronic pains. Epilepsy. Autism Spectrum Disorder. Major Depressive Disorder. Borderline Personality Disorder. Obsessive Compulsive Disorder.

He can’t catch a break, poor dude.

To be honest, this is way too much for us to put in a post 😅 But, thank you for sharing all of this!

[favisdisabled]

Noriaki Kakyoin from Jojo's Bizarre Adventure: Stardust Crusaders experiences intermittent claudication and is disabled by this!

Requested by Anonymous

[favisdisabled]

I've limited the queue to five per day so that I have more consistent posts while not feeling pressured to make new ones every day. Hope you all understand!

[favisdisabled]

Starting to slowly add back to the queue!

[favisdisabled]

Saki Tenma from Project SEKAI is an intersex lesbian! She is also canonically disabled; while her chronic illness isn't defined (moreso Anime Disease logic honestly), she gets sick easily, can faint from overworking, and had to spend all of middle school in the hospital as a result of her illness.

Intersex flag-only edits and bonus disabled-only flag edits under the cut!

[favisdisabled]

Sorry for the lack of posts! Don't worry, this blog is still running, I just need a break to get my GED 💖

[favisdisabled]

Friendly psa that if your disability is visible thanks to aids/devices, that does make you visibly disabled, but you'll probably have different experiences to people who look physically different, and that's okay. Different experiences are cool and it's not cool to talk over each other/diminish others' experiences, thanks for coming to my ted talk.

[favisdisabled]

ehlers danlos syndrome is not a limb difference

hypermobility is not a limb difference

having high-arched or flat feet is not a limb difference

abnormal gait is not a limb difference

a loss of function in a limb is not a limb difference

if you've gone your entire life thinking of something as simply a minor "quirk" or "weird", it's not a limb difference

someone calling you/your condition deformed/a deformity doesn't necessarily mean it's a limb difference

if someone can look at your body and reasonably assume "you're not disabled", you don't have a limb difference

the term "limb difference" includes both limb loss and a range of conditions that cause changes to the size, shape or formation of a limb/part of a limb. these changes are almost always visible to others, and generally involve the length or shape of the long bones in a limb. limb differences can be congenital or acquired, and vary in severity, but are almost always diagnosed shortly after birth/acquisition. misusing this term or even self-diagnosing as having a "limb difference" causes real harm to the public image and awareness of a small and vulnerable community. thanks xoxo

[favisdisabled]

limb difference and amputation/limb loss are not synonyms