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I hate having to go to my primary doctor with a huge list of new or worsening symptoms because Iām so scared of another dr telling me Iām making up symptoms for attention
#chronic illness#pots syndrome#chronically ill#I feel like I have 10 new symptoms show up a week#it gets so exhausting trying to navigate it all
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i know i shouldn't feel bad for laying in bed all day but i still do ļ½”ļ¾(ļ¾Ā“Ļ`ļ¾)ļ¾ļ½”
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I hate being scared of my own body because I donāt know if itās going to just decide to stop functioning today and make me feel awful
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is there anyone else out there with interstitial cystitis(/bladder pain syndrome)? feeling thoroughly fed up with it this week & it would be nice to connect with others out there even if itās just finding some new people to follow
#interstitial cystitis#bladder pain syndrome#Iām absolutely sick of it#I wish drs took it more seriously
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Oh dang! I hope you got that sorted or at least got some relief! Best of luck health stuff can be scary!
Shout out to my eye doctor who after hearing my symptoms Iāve been experiencing with my vision got wide eyes then said āyou need to see a neurologist immediatelyā anyways Iām totally not freaked out at all
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Ugly crying in the parking lot of your doctors appointment because they blamed anxiety and not trying hard enough instead of actually trying to help is almost therapeutic at this point
#chronically ill#pots syndrome#vent post#seriously why are they so set on not listening to us#itās not like I can get upset with them either because they will call me hysterical probably
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feeling hungover and drunk at the same time eventhough i didn't drink and am actually just chronically ill
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Shout out to my eye doctor who after hearing my symptoms Iāve been experiencing with my vision got wide eyes then said āyou need to see a neurologist immediatelyā anyways Iām totally not freaked out at all
#chronic illness#this happen to anyone else?#while I agree with her statement it was delivered in a very concerning manner
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Donāt we love the cycle of having a good day so obviously all my pain and symptoms and hospital visits were me over exaggerating my problems so I overdo it to make up for it then cause a flare up? Just me?
#chronically ill#pots syndrome#itās a vicious cycle#I keep doing it even though I know Iām ill despite a good day#good days do not mean you were making it up
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Posted photos of me with my forearm crutches on Facebook, which means everyone will see now that I use them. I did it on purpose because I wonāt hide myself for anyone despite how anxious it makes me feel to be seen with my mobility aids. I just imagine someone out there like me who was so afraid to start using them, and how it would have helped to see another person my age using them unapologetically.
#I love this#seeing people using aids helped me learn to be okay using my own#chronically ill#pots syndrome#people shouldnāt be made to feel ashamed for using an aid to help them enjoy life
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I want to be angry about being chronically ill more. so often people expect us to just be as happy with our situation as possible and be a brave face thatās doing our best but I really just want to be mad and upset about it sometimes
#chronic illness#pots syndrome#ranting#I think itās completely fair to be pissed as hell about becoming disabled
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sometimes I forget standing up isnāt painful and difficult for most people so Iāll be watching something like game changer and see the people standing behind their podiums the whole episode and think āwow donāt they need to sit down. how can they still think coherent thoughtsā and then Iām like oh. yeah. I have a disease
#chronic illness#whenever I see people clean their kitchen and get groceries in one day Iām like geez youāll be feeling that for weeks#then I remember ah yes itās just me that will be feeling tired after that
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having chronic pain means going āsorry, i have to cancel/cant help you with something, my chronic pain is flaring upā and getting treated like a huge inconvenience and itās your fault you have it
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It's me. I'm Chronically ill bitches
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Can we talk about how lonely chronic illness can be? I canāt even be mad at people for wanting to leave or getting tired of hearing about all my health problems because I am tired of it too. But itās so isolating being sick
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