#no spoons

[chetom]

froggos got you covered for those low spoon days.

[4spooniesupport]

A real, unbutchered pain scale.

Based on this, my base level of pain is a 7. Sounds pretty accurate

[v-wind]

[chronicallyuniconic]

Painscrolling

When you're in too much pain to sleep and can't do anything else except lie there, so you scroll aimlessly, hoping it all goes away

[the-comfort-of-a-creature]

some days it’s just you and your three spoons vs the world

[mx-jester]

thanks mom (read left to right)

An interaction I had with my mom

I may have an official diagnosis, but she will still give me her advice as an able body person.

Thanks mom...

[chronicallycouchbound]

I always joked for YEARS that Tums is “nausea chalk” as a silly little joke.

I knew that Tums are made up of calcium carbonate, plus some sweeteners and flavorings and color.

Regular chalk is just straight up calcium carbonate. So…

Tums ARE nausea chalk!!!!

[accidentalslayer]

When you wanna be productive but your body says NO.

[melodymorningdew]

I am so tired. I feel like I can't express how crippling the exhaustion part of being disabled is. Even if I'm in less pain, sometimes the exhaustion alone keeps me from being able to move and be a normal person. I'm all sweaty and gross and I want to shower bc I hate that but I can't bc I'm exhausted. All my spoons are gone.

[accessimojis]

Low spoons / No spoons emoji? /NF

Low spoon n no spoon

[smellsliketeenspirit18]

Love playing the am I sick, am I flaring, is it anxiety or is there a new problem game. 🙃

[dailydivergent]

“I’ve got no spoons” is a great starting place, but “I’m choosing to save my spoons” sounds so much better to me.

[4spooniesupport]

[feverdreamsandlucidnightmares]

Why are showers so many steps I want to be unconscious

[chronicallyuniconic]

Exercise & Chronic Illness

I was given some basic exercises to "fix" a problem that exercise won't fix.

They are basic, simple stretching exercises. And I mean b a s i c. The type of things you can do from your bed.

I was doing yoga years before I was diagnosed, I am hypermobile & flexible. But, I agreed, to appease the medical gatekeepers.

By doing them, my physical symptoms are simply worse.

"it's just the exercises, it's normal to feel pain"

My pain is more in line with sporting injuries, it's definitely not 'normal.'

The old, active, healthy version of me, can remember.

My skeleton aches like tooth pain, gnawing, grinding, heavy weights attached to my bones. Lifting my bottled water feels like lifting 20kg.

Leaning forward to grab my medication feels like an elephant on my back, weighing me down, like the gravity in the room just went up.

Every joint is clicking at random, as well as "pops" in other places that feel like a hot knife being shoved in.

My skin is sensitive, brushing my hand over any part of it, feels like the roughest grain of sandpaper, scratching off the top layer. It feels raw, it burns. To look at though, it's just my arm.

The clothes on my back are too much & I resort to the softest blanket I have, to protect me.

It's taken me days to write because the pain has distracted my process. Writing lines at a time is all I can manage for the moment.

Once again, I am reminded that now I am worse than my baseline, I might not come out of this.

Once again I am reminded, that no, exercise is not the answer to my healing.

Once again, I am stuck here, agonising, just waiting for this to fizzle down, so I can return to the baseline I'm used to.

A shell of the person I was before.

[hoshi-kawaii]

🍴fork off🍴 I'm out of 🥄spoons🥄 and full of 🔪knives🔪