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got ipad mini for aac so happy!!!!!
#my post#positivity#aac#big main ipad too clunky aac wise for my dyspraxix#better for seeing but worse for tapping right buttons#now also have something to take with me public and not worry about losing art and photos :)
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Could you make one that says “AAC user” in front of the disability flag? thank you ^~^
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I hate having many words inside of my brain and not having the ability to write it out in a way i like/makes sense/is what i mean.
If i could make all my lots of jumbled of words in my head make sense then, i would say alot of good things that are very *insert articulate word for what i feel in my head that i can't express*
#reblog#autism#yep yep yep#it feels like there’s a giant brick wall in my brain where the words are xD
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getting a dedicated aac ipad!!!! it should come monday im so exited!!!!!!!!!!
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id: a 5x5 bingo game labelled “higher support needs autism”, there are some orange details by the caption, as well as an orange arrow with text “@ autisticvelo” pointing towards the ‘t’ tumblr icon at the bottom. the squares are described from left to right, starting on the top row: ‘constant infantilisation’, ‘used to / does elope’, is / was in special education’, need(ed) 1:1 help in school’, restrictive & intense interests’. 2nd row: ‘on disability benefits’, ‘needs help with some or most / all iADLs’, ‘nonverbal / semiverbal (or long-term struggle with speech’, ‘developmental delays / abnormalities’, ‘has / needs a caregiver’. 3rd row: ‘violent meltdowns’, ‘needs help with some or most / all bADLs’, ‘free space (golden infinity sign)’, ‘comorbid physical disability’, ‘gets verbal shutdowns’. 4th row: ‘struggles with hygiene’, ‘assumed to be LSN’, ‘can’t live alone / requires great support’, ‘poor motor skills, ‘comorbid mental illness’. bottom row: ‘sensory seeking / avoidant’, ‘has ID / mild ID / BID’, uses AAC of some kind’, ‘poor saliva control / drools’, ‘won’t ever be independent’. end id
🧡 INFO:
• first point: if anything here is hard to read, let me know and i will simplify it for you, i do not mind.
• if you are able to, please copy the image description i’ve provided above into your post if you repost the bingo game to make it more accessible to visually impaired folks / screen reader users etc. !!
• this is made to include people who are somewhere between L-MSN and HSN, i’m hoping i’ve gotten some things right that many experience, but also remember that these might not be exclusive to HrSN autistic people but in combination with each other they are very common for HrSN autistics.
• if you have feedback on if i got something wrong, i’d like to know so i can learn more and do better next time!
• if a box kind of fits you, it’s okay to count it i think, example: if you are not nonverbal or semiverbal but struggle long term with speech, it’s okay to cross that one. i did add some notes in some boxes.
• i wasn’t completely sure on what terms to use for ID + mild ID and borderline ID, if anything is wrong, please tell me! i’m still trying to learn more so i can be inclusive.
• last point, if you struggle with image descriptions it is okay to tag me and i will write one for you! i am often able to write them even if words are hard and i don’t mind.
🧡 MINE:
id: the same bingo card as described above, with the following boxes coloured in orange (left to right, starting on the top row): ‘used to elope’, ‘need(ed) 1:1 help in school’, ‘restrictive and intense interests’. 2nd row: ‘on disability benefits’, ‘needs help with most/all iADLs’, ‘(or long-term struggle with speech)’, ‘developmental abnormalities’, ‘needs a caregiver’. 3rd row: ‘violent meltdowns’, ‘needs help with some bADLs’, ‘free space (golden infinity symbol)’, ‘comorbid physical disability’, ‘gets verbal shutdowns’. 4th row: ‘struggles with hygiene’, ‘assumed to be LSN’, ‘requires great support (context: living situation)’, ‘comorbid mental illness’. bottom row: ‘sensory avoidant’, ‘uses AAC of some kind’, ‘won’t ever be independent’. end id
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fight for your disabled friends. fight for your disabled family members. fight for your disabled neighbor on your block. fight for your friends disabled parent. fight for disabled people who struggle to have a voice for themselves. fight for all disabled people.
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im sick of people saying things like "only someone with no empathy could do this bad thing" or "this bad thing is only happening because people don't have basic human empathy." i have asd and don't feel empathy in the same way most people do, meaning sometimes i don't feel it at all or it's very low. obviously not all autistic people experience this but many do and autistic people are discriminated against everyday by medical professionals, the government, employers and people we interact with everyday. the same goes for other people with low empathy such as people with npd, aspd, bpd and other such personality disorders that cause it. that doesn't mean we're evil or inherently bad, it doesn't mean we're like trump or jd vance or ice and see no issue with the horrible things going on in the world. autistic people are one of the minorities being targeted. people with low empathy can also help people and be kind like allistic people, even if we show it in a different way. lacking empathy doesn't make us fucking robots with no morals. that idea is ableist and part of the problem
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people who attempt to distance autism from the less socially acceptable traits think they’re destigmatising autism when what they’re actually doing is pinning all inconveniences back on individual autistic people. which funnily enough is what I would call Bad and Unhelpful
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Friendly psa that if your disability is visible thanks to aids/devices, that does make you visibly disabled, but you'll probably have different experiences to people who look physically different, and that's okay. Different experiences are cool and it's not cool to talk over each other/diminish others' experiences, thanks for coming to my ted talk.
#reblog#visible disability#visible disability encompasses a lot!#i’m a part time mobility aid user so i’m not always visibly physically disabled and that is drastically different from#say somebody with dwarfism or limb or facial differences
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aac culture is adding the “YIPPEEE!!!!“ sound effect to my stim page
awesome!!
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happy EDS awareness month guys! i have something i want to say
when talking about a specific subtype of EDS or its symptoms, please specify which. all types of EDS have vastly different symptoms, they are not just “bendy diseases” (not all have generalized hypermobility as a major criteria and the ones that do, it’s not the only major symptom.) EDS has 13 known subtypes, all with wildly different manifestations, so let’s be specific
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Like so many times when people are like "I've never met an autistic person who has [insert "stereotypical" trait] it's like. That's because they're not there! They're not in the spaces you can access because they can't access them! And denying their existence will make that worse!
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something thought about is how some autistics in the community have to put their lives in danger due to lack of needed support. ive had to walk to food places by myself because i didn't have anyone to bring me and it still happens. i dont want to starve. its so very hard and when everyone finds out i walked alone they freak out a bit bc i shouldn't go by myself and that i should wait for someone to give me ride but hungry. complicated.
#reblog#yep yep yep#medium support needs#autism#disability#just because you Technically Can does not mean you should without help#there’s lots of things i can do technically but it’s just not viable#can does not mean can do right or alone
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btw “you’re so lucky your family is supportive” is a really weird thing to say to a person who would be unhoused, severely unwell, or dead without them.
like… i know that? i constantly think about what’s going to happen to me when my family dies? i won’t be able to just… get a place and be on my own all of the sudden? not to mention the countless people stuck in abusive homes because they need extensive support…
i don’t think people realize the implications when they say that but it really, really irks me.
#my post#disability#autism#higher support needs#moderate support needs#like yes i’m absolutely lucky. i know that#just… don’t indirectly remind me i’d be dead if they weren’t yeah?
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i finally find a space. whether local, or general, there’s one commonality: people with needs like me are an afterthought. things for people like me happen rarely and never online. all events irl are in loud, busy places, that require a lot of walking. none in my area. online, outside help is not allowed. and i feel as though i can't complain, because of the pure lack of autistic spaces for adults. so i just deal with not being able to fully or at all participate. i deal with constantly feeling left out, ignored, and frustrated. i end up wondering why im in these spaces at all, when i can’t bridge the gap, and nobody else bothers to. i end up delegating myself to being annoying and explaining why something is actually ableist or not true, because they’re completely separated from and never interact with higher support need autistics.
i deal with feeling immature and childish because i can't work or drive, and still live with family, and probably will until they die, and need them to help with most things, because despite autism being a disability, it's STILL assumed you can do these things many times. because they're not used to people like me, and people more severe than me, being there. because they’ve curated spaces so inaccessible for us, it’s a rarity when we stay.
autistic adults who need more support in these places are still ADULTS and deserve a place if we want one.
autistic people, and especially autistic run support spaces. I'm begging you to include us. that includes allowing caregiver help talking, coming with us in person, and you having to do "annoying" accessibility things, like making sure people can be and stay there safely. it includes keeping accessibility needs in mind and not just segregating us out by default because you’re too lazy to put in the work.
i want to connect with other autistics, even if they’re more mild than me, or severe than me, because we’re all united in a shared struggle. but i CAN’T do that when people don’t bother. i can’t when people think it’s “just a difference.” . i can’t, when so many people think their autism will cancel out mine.
if you can't or won't include us, just say the quiet part out loud. say it’s a LSN autistic space. it will save everyone the frustration and pain.
sucks that autism support groups are either geared toward low support needs or parents only. hard to find a place in these spaces when they don’t include you by default :/
#my post#vent#moderate support needs#moderate autism#autism#sigh. just upset is all#i’ve found a group that’s mostly ok but again i can’t really participate much#not at any one specific thing#just all the things i’ve seen#i hate having to settle for Good Enough I Guess
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sucks that autism support groups are either geared toward low support needs or parents only. hard to find a place in these spaces when they don’t include you by default :/
#my post#im actually really annoyed about this#be me#go into local autism support spaces online. everyone is lsn. you cannot participate in events because they are geared toward lsn.#ones not geared at lsn are hard to come by and not online#get increasingly frustrated#look for stuff for msn hsn#“support groups for high functioning autism#“support grouos for parents#why the fuck are there no spaces with us in mind front and center#why are we an afterthought#it’s so fucking lonely#vent#msn people exist and we deserve a space
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so many leftists have never thought about disability beyond "the ADA is good i guess!". seeing people use language like "brain damaged." "governor hot wheels." protests not being accessible. community gatherings above stairs, in spaces that can't accommodate power chairs, with no language access. i've missed so many #realleftistsonly events because they weren't accessible. and when i see leftists regurgitating the ideas they've seen and heard online and in real life without critically questioning *why* this is believed or *why* they're using this language, they lose so much of their credibility. you aren't a #realleftist if you spread ableist language and ideas without thinking about it.
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