He/Him | Born in 2002 | Lives in GermanyPro LGBTQIA+ I have Autism ADHD and BPD
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thought they needed a little reminder that they still have far more to lose if they double down on this stupidity. spread the word, it seems they're... very forgetful about this.
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Turns out the person started the time loop to be able to engineer the perfect tumblr post
imagine you're in a timeloop and everything goes exactly the same every time, except for a random user that just posts completely differently each loop. sometimes they don't post at all. they never post about the timeloop, though
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Very Brief Guide to [tumblr], for Reddit refugees
Shit You Must Do Right Fucking Now:
Change your profile picture, blog header, and title to something other than the defaults. Do it right now. You will be mistaken for a bot otherwise, and blocked.
Go into Settings -> Dashboard, scroll down to Preferences, and turn off the options in the picture. This will get rid of most of the algorithmic stuff.
Turn off Tumblr Live. You have to snooze it once every 7 days for some stupid reason. It's hosted through another company and will steal your data if you use it.
Go to your blog settings (under the little person menu) and turn off these two settings:
Turn off infinite scroll (lags the site) and turn on timestamps on posts, in the same menu as Preferences.
Basic Features of the Site:
Reblogs drive the entire site. If you'd upvote something on Reddit, you'd reblog it on Tumblr. You can add text, images, or tags to a reblog, but you're not required to.
The dashboard is the equivalent to your Reddit feed, and contains the posts of all the people you follow, with the newest at the top
You can send an ask to someone, and it'll appear in their askbox for them to answer. You can receive them too, or turn off the settings if you don't want.
Tags aren't actually used for finding stuff (search function is dogshit), but are more for categorizing. People also talk in tags. Because Tumblr is weird, you can't use quotation marks (") or commas in them without fucking it up
You can filter both tags and phrases under Account Settings; doing this will put a filter over a post that contains them, which you'll have to click through to see the post itself. Useful for avoiding hate speech or blocking out annoying stuff
You can make polls in posts. Here's one now.
Likes are useless. They literally do fuck-all except send a notification to the OP.
Stuff Tumblr Does That Other Sites Don't:
Very old posts (I'm talking from like 2012) often circulate on this site. There's no such thing as a post being "too old" to reblog
Blocking is highly encouraged; you can block someone for any reason. Even for just being annoying.
If you and someone else are following each other, you are mutuals. Mutuals are fucking awesome and are treasured like friends. Mutuals are a thing on other sites but Tumblr treats em differently.
You can screenshot someone's tags if you like them and add them to a reblog. This is called "peer review"
Sometimes someone will find a blog and go through it and like/reblog a bunch of posts. This is totally fine and not "creepy" like it is seen as on other sites.
Tumblr jokes often rely on Continuing The Bit and a "yes, and?" attitude. Goncharov is probably the best example of this.
We are fucking infested with bots. They will either have totally blank profiles or be filled with porn. Block and report on sight.
Censorship is pretty lax here. I can say "I want to brutally stab Elon Musk to death and watch him bleed out in front of a crowd" and nobody gives a shit.
General Etiquette:
Don't try to do epic clapbacks here, you'll probably just get laughed at or blocked. If someone is bugging you or spouting bigoted bullshit, block them.
Reblog art!!! Artists often struggle to gain traction on here; reblogging will give them a boost.
Not every reblog needs a comment or tag in it
You can go all out with tagging your stuff to organize it, or you can just leave it all blank. Someone might ask "hey, can you tag these posts as [x]?" and you can decide if you want to do that or not. It's generally polite to oblige, but "no" is still reasonable.
Avoid discourse like the plague. Filter it, block people who start it, scroll past it when you see it. Just don't get involved in it. Ever.
Don't put fandom tags or jokes on someone's posts about serious matters or personal shit
You're responsible for curating your own dashboard; if you complain about constantly seeing stuff you don't like, that's probably on you. Don't be afraid to unfollow.
Follower count doesn't matter much here and you don't have to make yours known if you don't want to.
Reblog, don't repost. Reblogging keeps the credit and doesn't "steal" engagement like Twitter retweets.
If someone likes something a LOT, they might reblog it like 30 times in a row. This is normal
Having a post blow up is actually kinda a bad thing, since it floods your notifications. There's a sort of in-joke about how having a big post is awful and people jokingly try to stop their own posts from blowing up, often in vain.
Tips:
Get XKit Rewritten if you're on desktop, it's a really helpful extension
In the little drop-down menu next to the 'Post now' button you can either save a draft, schedule a post, or add it to your queue. The queue lets you post things in order at a certain interval, which you can change. It's good for spreading stuff out over time.
You can use Shift+R to quickly reblog stuff and Shift+Q to queue!
Filter your notifications under Activity - you can also see some neat graphs
Find each other! If you want your old Reddit communities to stick together, seek out other refugees and follow them.
Have fun on [tumblr], everyone!
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Me about once a week before going back to caring about everything a lot
alrighty yall im entering my cold hearted unbothered emotionally distant self isolated cynical idgaf baddie stage once again and i will NEVER cry again
queue the phonk (for powerwalking purposes)
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Super special Heisenberg rainbow-meth
gay meth
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Yeah, and they apparently have to compulsively follow arbitrary rules that groups of allistically abled people agree on without having their own sense of justice or something? Really sorry for the parents of allisticly abled people, must be unbelievably tough 😔
i know all about allistic people. they really love loud sudden noises and bad textures
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LET'S GOOOOOOOO
ok so apparently TERFs believe that when we say something along the lines of "reblog this post to turn everybody trans by 2050" that we're actually serious.
anyway reblog this post to turn everybody trans by 2050
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Sharing for visibility. Definitely something I see happening a lot and something I hope to be able to spot and work on within myself!
i mentioned it in some tags fucking forever ago and I posted about it on twitter but might as well post it here too
"I can't be ableist, I'm [x]" has done so much damage to mentally ill and disabled spaces and or threatens to do so. and unchecked internalized ableism and unchecked ableism as a whole.
i am someone with unsavoury symptoms and conditions. There's no beating the bush about this one. My symptoms are considered ugly and there have been times where I've met people who have been all like, "Support people with unsavory symptoms" but when I actually started hanging out with them they ended up being more ableist than anyone I've ever met.
I have memory issues. On some days I forget things quite literally as they happen to me. There's no guarantee I'd remember what you've said to me. It doesn't mean I don't care, I literally sometimes forget what I was doing three minutes ago. no, I'm not making an excuse, I literally forgot that you were bothered by, say, bugs and it was not intentional. Now I will most likely remember but please don't be bothered if moving forward I ask you to clarify what you're bothered by.
I have issues with my emotions. I struggle to articulate what I'm thinking and feeling. PLEASE ask me to elaborate on things before jumping at me and accusing me of twisting things around or whatever, or inviting conflict, or a thousand other "UM ACTUALLY--"s. And please, PLEASE don't assume things, ASK ME THINGS. Let me speak.
I have issues with anxiety. I often distance myself from 90% of discord servers and even my own friends (even if they don't notice it) because I am deeply terrified that they secretly don't like me or they're seconds from snapping, or they find me annoying, or about a thousand fucking other things that there are times where I feel deeply, deeply ill. It's not that I don't like you; it's that I'm actively struggling with myself and putting forth a lot of effort to make things work on my end.
I have PTSD. That PTSD on top of the anxiety manifests in my fear of old terrible cycles repeating even if they're out of my control. This makes pretty much everything else mentioned way worse. Everything is a CONSTANT WAR within myself. I'm a perfectionist and I feel like even if it's not my fault I convince myself that I did something wrong and I rationalize things that way. There's also the bipolar and the BPD.
I am medicated and learning how to manage these things. But we need to accept that these symptoms are ugly, that while I'm doing my part, I and others like me still deserve grace and tenderness and we do NOT need our own community and/or communities who claim to have the exact same issues treating us like shit, spitting on us, or being in general hypocritical towards us in claiming that they support us but then do everything that seems to state the obvious.
it really is your own people sometimes. and it shouldn't have to be.
and whenever i try and say things like this I have people telling me I'm "DODGING RESPONSIBILITY," no I'm not, you cannot assume such things of me when you're only seeing me talking about a very real issue that I and many others face.
Stop reblogging and posting about how much you love and support "unsavoury" symptoms and conditions but then turn around and treat those very same people like absolute shit.
And don't get me started on how autistics like to treat other autistics just because their autism happens to be different.
I'm sorta fuzzy so it's super hard to really articulate or parse together what I'm trying to say properly but I hope what I'm trying to say comes across. Ableism within disabled and mentally ill communities fucking suck. Learn to actually care about and support people with symptoms and conditions you can't romanticize.
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Suck me first, I might get back at ya!
(I see the light)
Who Here Believe In Vanpires
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I swear if I see one more post about people asking LANGUAGE MODELS MATH QUESTIONS I’ll ask chat gpt for the easiest way to eat a broom…
I feel like googles demonstration of "Bard" clearly shows that so many people talking about and especially marketing AI tools have next to no idea what they’re talking about
"chatGPT will confidently spit out information cobbled together from various sources in its dataset that sounds correct even when it blatantly isn't"
correct! that's why it's important to remember that chatbots don't have any sort of inherent fact-checking
"this means it's LYING to you! why, i work at a library, and just the other day, i had three college students submit lists of entirely nonexistent articles that chatGPT had cited as sources!"
well i think "lying" is anthropomorphizing it a little bit too m- oh my god what the fuck graduate students are using chatGPT as a resource? for writing PAPERS???? and not even googling the articles they asked you for first??? and you think the issue here is fucking CHATGPT???????
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Hope maybe the person who asked sees this. I also thought like that about myself. Only after having the diagnosis and getting sound cancelling headphones did I realise how much more stressful things are without them. I also used to think "sure, some stuff can be loud, but everyone feels that way". Of course you might still just not have those sensitivities, but consider that living with them your whole life while never having that acknowledged might have taught you to suppress how much it might actually affect you!
Please help me, I'm a 15 year old girl, and I've suspected I had autism for like 1 and 1/2 years now. I have plenty of autistc sympoms, however, I don't have sensory issues. Loud noises suck, for sure, but they aren't painful, the same things go for bright colors(I don't really like bright colors, but it's not like I am repelled by them) and textures. Sometimes smells overwhelm me, but that's quite rare
I've never had a shutdown or a meltdown in my life nor autistic sensory issues.
What I'm trying to get at is, is there still a possibility for me to have autism even though I don't have sensory issues, or atleast they aren't as prevelent in other people with ASD?
Hi there,
Everyone is different on the spectrum. Some are very sensitive to outside stimulation, while others aren’t as afflicted. If you’re curious, I can list some online tests you can take:
I hope these help. Thank you for the inbox. I hope you have a wonderful day/night. ❤️
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*showing picture of standard NYC appartment*
No human could live in such a small space, this clearly has been build to serve as an advanced alien telephone booth
we should start doing ancient aliens conspiracies but for buildings that arent even that old or impressive
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Ok, but six isn't odd and has no „e“ in it?
Is it true that all odd numbers have the letter e?
No. Bad tumblr user. Very bad. I'm getting the spray bottle out.
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Oh godd, thanks! I experience that. I only got recently diagnosed with autism but had that to different degrees of severity since my mid teens I think. I’ll look more into it and now I may be able to properly treat that with the help of a medical professional should this be the reason for those symptoms.
Would you know how this interacts with adhd? I thought a lot of these were "just" my executive dysfunction from adhd. Now I’m wondering how to differentiate.
Thanks either way. Really cool that you spread awareness!
what is (chronic) autistic catatonia?
// why specify “autistic” catatonia? //
catatonia most common associate with schizophrenia, but increase realize also happen in things like bipolar & depression.
if look at some of typical catatonia diagnostic criteria in DSM 5 (but in easier words): catalepsy & waxy flexibility, grimacing (hold same stiff facial movement), mutism, echolalia, echopraxia (copy movement), exaggerated mannerisms, stereotypies/repetitive movements, etc… wait! some of these things happen in autism!!! (like 7 out of total 12 can be seen in autism)
this is why important to know how recognize catatonia in autism. because overlap.
catatonia in schizophrenia most common start fast and get worse fast. but chronic autistic catatonia typically slow onset and slow but visible deterioration. (always have exceptions though)
not know a lot about schizophrenia catatonia, so this post largely focus on autism. everything below, when say “catatonia” or “autistic catatonia,” mean chronic autistic catatonia with deterioration.
// before move on— //
sometimes professionals do connect autistic shutdown with/as catatonia or catatonia episode or catatonia-like episode to draw connection. this not talk about that. this about chronic ones with deterioration. personally for community identity purpose i don’t enjoy (already have term for shutdown). but personal opinion aside, again this about the temporary vs long term all the time. if experience temporary shutdown, remember to leave space for and not same as those of us deal with chronic autistic catatonia.
important to distinguish from autism because autism and catatonia share many symptoms. (for example, physical stimming or “stereotypies” is autism diagnostic criteria AND catatonia criteria). autistic catatonia should only be suspected IF have new symptoms OR change in type & pattern of old symptoms. cannot. stress. this. enough. again. it not about IF you have these symptoms it’s about WHEN and HOW and CHANGE. it's about NEW.
and. please do not diagnose self based on one tumblr post. yes even if i do extensive research and cite sources and have lived experience. many many many disorders look similar. am all here for educated self diagnosis because medical system inequitable BUT am also sick of every time write this a bunch people comment “oh never heard this this is so me.” one tumblr post not educated self dx. it not a cool new thing to add to carrd to hoard as much medical label as can, it miserable it makes my life hell it not a joke it not cool. not every autistic have chronic catatonia, not every shutdown means chronic catatonia, even if you autistic and see these signs, may be separate unrelated disorder altogether, like Infectious, metabolic, endocrinological, neurological, autoimmune diseases, all can see catatonia (Dhossche et al, 2006). some of you all will read this and truly think this is answer been looking for so long—great! still, please do more research.
// chronic autistic catatonia with deterioration and breakdown //
the key defining symptoms of chronic autistic catatonia is gradual lose functioning and difficulty with voluntary movements (shah, 2019, p21). “gradual lose functioning” will come with regression in independence & ADLs & quality of life. it usually gradual, chronic, and complex. but can vary in severity. some need prompts on some day & some situations, while others need prompt and even physical assistance for almost everything.
how common? have seen statistic estimate from 10% - 20% of autistic people adolescents & above experience chronic autistic catatonia.
typical onset for autistic catatonia is adolescence. some study samples is 15-19, some as early as 13. some professionals think this autistic catatonia may be a reason for many autism late regression (Ghaziuddin, 2021).
can happen regardless of gender, IQ (yes shitty), “autism severity/functioning labels” (is what most studies use, so i keep, but yes have issues, probably also mean happens regardless of autism level 1/2/3 and support needs before catatonia, but need more research to confirm since these thing don’t equal eachother).
// primary symptoms //
from book "Catatonia, Shutdown and Breakdown in Autism: A Psycho-Ecological Approach" by dr amitta shah, recommend read at least first two chapter and appendix.
1. Increased slowness
often first sign but not always
periods of inactivity or immobility between actions which appears as slowness, e.g walking, responses (verbal & body), self care, mealtime, etc
2. Movement difficulties (freezing and getting stuck)
difficult initiate/start movement
freeze or become "stuck" in middle of activity for few seconds to minutes
hesitate & "to and fro" movements
difficulty cross threshold/transitions like door way
difficulty stop action/movement once started
affect speech content, fluency, & volume
eat & drink difficult (like movement for fork & knife, chewing and swallowing, etc)
spend long time in one place
(new) ritualistic behaviors
3. Movement abnormalities
repetitive movements like in tourette's & parkinsons
e.g. sudden jerky movement, tremors, involuntary movements, blinking, grimacing, unusual & uncomfortable postures, locked in postures, increase in repetitive movements, etc.
4. Prompt dependence
may not be able to do some or any movement/activity, unable to move from one place to another, unable to change posture, etc without external/outside prompt
5. Passivity and apparent lack of motivation
look unmotivated & unwilling to do stuff, include activities used to like, probably because can't do voluntary action or have trouble with request and make decison.
6. Posturing
classic catatonia symptom of being stuck in one posture, sometimes for hours
7. Periods of shutdown
8. Catatonic excitement
episodic & short lasting
e.g. uncontrollable & frenzied movement and vocalizations, sensory/perceptual distortions, aggressive & destructive outbursts that not like self
9. Fluctuations of difficulty
e.g. some days better can do more need less prompt! other days worse. sometimes emergency can act as almost like a prompt! but fluctuate doesn't mean difficulty voluntary
// secondary difficulties //
Social withdrawal and communication problems
Decline in self-help skills
Incontinence
‘Challenging’ behavior
Mobility and muscle wastage
Physical problems
Breakdown
// autism breakdown //
can be in addition to autistic catatonia. can look like autism is getting worse, even though autism by itself not progressive disorder!
i also call this autism late regression. separate between autistic catatonia & this not very clear, not enough research.
1. exacerbation of autism
1a. increased social withdrawl, isolation, avoidance of social situations
1b. increased communication difficulties
1c. increased repetitive and ritualistic behavior
2. decrease in tolerance & resilience
easily disturbed, irratable, angry
3. increase in "challenging" behaviors
e.g. self injurious behaviors
4. decrease in concentration & focus
5. decrease in engagement & enjoyment
// treatment //
for catatonia (autistic or not), typical treatment is lorazepam and/or ECT.
specific to catatonia in autism, Dhossche et al. (2006) separate it to mild/moderate/severe and give recommend treatment according to that (do not come here and argue about severity labels, because fuck! mild depression and severe depression of course have different suggested treatments and severity important to know. Remember we talk about autistic catatonia).
note: this is one paper! not the only way! yes have problems like most psych/autism papers, just here to give example (of range of symptoms and treatment route!). NOT MEDICAL ADVICE. (not even endorsement)
mild: slight impairment in social & job things without limit efficiency as a whole (essentially still able to function for most part but difficult).
moderate: more obvious struggles in all areas, but ambulatory and don't need acute medical services for feeding or vitals
severe: typically medical emergency, acute stupor, immobility for most of day, bedridden, need other people help feed. also malignant catatonia which can be life-threatening (fever, altered consciousness, stupor, and autonomic instability as evidenced by lability of blood pressure, tachycardia, vasoconstriction, and diaphoresis, whatever any of that means)
the "shaw-wing approach": very brief summary, keep person active and do thing they enjoy, use verbal & gentle physical prompts, have structure & routine.
lorazopem challenge: take 2-4 mg of lorazopem to see changes in next 2-5 minutes. if no change, another 1 mg and reassess
lorazopem trial up to 24 mg. (note difference between challenge & trial)
bilateral ECT, last resort.
mild: "shaw-wing approach" -> 2 week lorazopem trial if no imporvement in 1 month -> if effective, do both, if not, just shaw-wing approach
moderate: depends on prefernece, either shaw-wing alone or shaw-wing and 2 week lorazopem trial -> if not effective, do 2 week lorazopem trial if havent already -> if not, bilateral ECT
severe: lorazepam challenge test -> if not effective, bilateral ECT; -> if lorazopem challange positive, 1 week lorazopem trial -> continue if successful, bilateral ECT if not.
can sound extreme, but rememeber for many severe catatonia (autistic or not), it is medical emergency. can be life-threatening. there's no/not a lot of time.
it possible to make partial recovery, as in get better but not to before catatonia. but overall, many permanently lose previous level of functioning.
references
Dhossche, D. M., Shah, A., & Wing, L. (2006). Blueprints for the assessment, treatment, and future study of Catatonia in autism spectrum disorders. International Review of Neurobiology, 267–284. https://doi.org/10.1016/s0074-7742(05)72016-x
Ghaziuddin, M. (2021). Catatonia: A common cause of late regression in autism. Frontiers in Psychiatry, 12. https://doi.org/10.3389/fpsyt.2021.674009
Ghaziuddin, M., Quinlan, P., & Ghaziuddin, N. (2005). Catatonia in autism: A distinct subtype? Journal of Intellectual Disability Research, 49(1), 102–105. https://doi.org/10.1111/j.1365-2788.2005.00666.x
Shah, A. (2019). Catatonia, shutdown and breakdown in autism: A psycho-ecological approach. Jessica Kingsley Publishers.
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youtube
This video kinda talks about a lot of problems with the way tone indicators work right now
hi, am think should be more talk about how not every autistic (or neurodivergent) person benefit from tone tags. specificity autistic because see most in those spaces.
not every autistic person understand tone tags. whether it is not understand read them, not understand use them, not understand tone itself, not able remember them, any reason. no one should have use them if they can't.
am understand they help lots and that is great. but please not be upset if someone not able use them. thank you
#autistic experiences#actually autistic#tone indicators#social skills#informative video#jan misali#seriously this video is really good#check out that channel if you’re into linguistic stuff#Youtube
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Yeah, I feel like a lot of people kind of use them like emoji’s (for example using them sarcastically or with other subtext) which contributes to not being helpful for people who struggle with subtext.
hi, am think should be more talk about how not every autistic (or neurodivergent) person benefit from tone tags. specificity autistic because see most in those spaces.
not every autistic person understand tone tags. whether it is not understand read them, not understand use them, not understand tone itself, not able remember them, any reason. no one should have use them if they can't.
am understand they help lots and that is great. but please not be upset if someone not able use them. thank you
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