myspotlessmindx

[myspotlessmindx]

my least favorite part of being disabled is the inability to have any sort of privacy. i feel like my body and my things are not even mine sometimes

[myspotlessmindx]

i’m going to start sharing tools i use for accessibility under Els Accessibility Tools!!

first up is an app called Remote Mouse. it allows you to connect your phone to your computer and use your phone screen as the mouse and keyboard for the computer! as someone who doesn’t have use of their hands, this has been an absolute game changer for my technology use. i hope that it can be helpful for you guys as well(:

EDIT: there is a free version as well

[myspotlessmindx]

i’m working on a letterboxd list of movies about/featuring disabled people and disabilities in general. anyone have suggestions?

[myspotlessmindx]

sometimes it’s me and my heating pad against the world

[myspotlessmindx]

why does the government require that the exact times i pee/eat/even get out of bed be tracked by caregivers if they want to be compensated??? maybe i’m being dramatic but i find it dehumanizing

[myspotlessmindx]

why does the government require that the exact times i pee/eat/even get out of bed be tracked by caregivers if they want to be compensated??? maybe i’m being dramatic but i find it dehumanizing

[myspotlessmindx]

the sighs of frustration when you ask for assistance and you just have to sit there like :D

like yeah trust i also wish i didn’t need to ask

[myspotlessmindx]

having to enter your business through the back door where you take your trash out does not mean that your building is accessible!!!!!!

[myspotlessmindx]

one of the biggest things i hate about being disabled is that i can’t care for myself the way i would want to. for instance, my shower routine typically just consists of the basic necessities of cleaning (shampoo, conditioner, washing the body) because i need assistance from someone. however i know that if i were able to do it myself i would be able to do all of those things on top of maybe shaving, exfoliating, or even just soaking in the tub to relax. i guess in theory i could have those things but it already feels like a burden needing the basics

[myspotlessmindx]

about this page!!⭐️🩵

hi!! my name is El and i’m 24!

i was born with a few things but the main ones are Arthrogryposis Multiplex Congenita (linked is info) which effects all four of my limbs, as well as Amyoplasia! due to my condition, i do not have the ability to use my arms or my legs. i do 99% of things with the assistance of a caregiver or by using my mouth.

with this page i want to tell my story and be truly authentic about my feelings regarding my disability (if you don’t like negative talk about disability this is not the page for you <3)

i’ve got lots to say and lots of time to do it so feel free to stick around for it 🩵

[myspotlessmindx]

people dont understand the boredom of being disabled.

i see a lot of people suggest to people to embrace boredom and creativity will come from it. that to improve your attention span and get your life back from the trap that is quick form media you need to be bored more.

but i dont think that is the case for many disabled people.

its not the case for me.

i am SO bored. EVERY day. i cannot do all the things i want to engage in. i cannot play games i cannot read i cannot do art i cannot bake. these things arent being stopped by a social media addiction, they are being stopped by my health.

and my attention span isnt struggling for the same reasons as many abled people. mine struggles because of my symptoms. my fatigue, my pain, they are distracting and fog my brain.

so disabled people, when youre looking for tips about how to improve your attention span, and engage in your hobbies more, keep in mind that the reason for your struggles may be completely different to the people who are sharing suggestions and tips on the topic.

[myspotlessmindx]

i find it increasingly frustrating that i will never know a life where i don’t rely on others for my care. my entire existence is built on someone else’s schedule and it’s been like that since i was born and it’ll be that way until i die. i’m tired.

[myspotlessmindx]

finally a place that i can talk about my truest feelings about my disability where nobody knows me