pcos-and-endo-awareness - Tumblr blog

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What is your best bloating cure?

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I’m in hell

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I'm not sure if I have endometriosis and/or PCOS I have trouble discerning what pain should actually be bedridden and what shouldn't because I have fibromyalgia and my pain scale is all funky and I have a kind of bad memory I don't pay attention to the regularness of my periods but it just

feels off

should I get checked?

I would still get checked out, even if it is just your fibromyalgia acting up, at least you’ll know for sure. There isn’t much treatment for endo/PCOS but it still might help relieve some of your pain!

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When a new doctor asks for a brief description of my medical history

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This will forever hands down be one of my favorite Memes!!! This encompasses me in a nutshell!

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You must excuse me,

My Flesh Vessel

has mutinied and is now committing unspeakable acts of violence against me

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I think I might have endometriosis and I dont know what to do. Is it worth trying to get a diagnosis? Because I feel like they cant do anything about it either way. On one hand i feel like it would be a relief to hear that it isn't normal and that i am not weak just because I cant deal with some regular period cramps. I dont think its normal to throw up because of the pain and lay on the bathroom floor half passed out because of nausea and pain for hours in the middle of the night, but at the same time muy cramps only lasts for like a day or two so I feel like im just exaggerating. I want to be validated in a way but im nervous about it not actually being anything wrong if that makes sense.

Also i feel like the only thing doctors can do is prescribe birth control and I have been on one kind (one with only one of the ususal substances) and while it have lowered the pain to only very occasional tame cramps I dont really like it because of the spotting because it is so irregular that I have had to wear pads for like a year and i dont really trust that it works, i would like it to get rid of the whole problem and stop all pain. And the doctors wont put me on regular birth control because im fat so my bmi is too high which means a higher risk for blood clots. Is there anything else they can do? I know some people get hysterectomies but I dont want that now at least cause i think I might want to have kids in the future. Is there anything else they can do that makes it worth it to fight for a possible diagnosis since that may take years and be difficult or should i just cope with it since my symptoms isn't really that bad?

(Also i just ran out of birth control and haven't decided what to do so im really scared that my period will come back now and it will hurt)

First of all, I think you should find a new doctor. I am also “fat” and I NEVER had any doctor refuse to put me on regular birth control. BC has risks and it has pros and cons, as long as your doc is explaining all of that to you they should let YOU make that decision about your own body.

If you are in horrific pain it is not normal. If you are puking and passing out because of cramps that isn’t normal. You are not exaggerating or overreacting. You deserve to get treatment. You deserve to be in less pain. You deserve to have more convenience.

I urge you to try to get a new birth control (for example I’m on the depo shot, least amount of pain I have been in for years on this BC) and if your doc won’t do it find a different one who will. Remember doctors are there to listen to you and help you.

There are various home remedies to try for endo but there is no cure. Birth control will help. The only sure fire way to get rid of it is laparoscopic surgery, and this will only help for some time because the endometriosis will just grow back. (And how much it will help depends on the competence/experience of the surgeon doing it.) I believe I’ve read that even a full hysterectomy doesn’t cure endo.

I’m sorry you’re going through this and I hope you can get the care and treatment you need.

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I've been diagnosed with pcos since i was fourteen. pcos symptoms ruined me in a way, as I had the luck to catch most of its symptoms. I had always envied my friends. they gets to live their teenage life pretty. they gets to have beautiful long hair. they gets to not be overweight and not get stretch marks as they lose weight. but I guess not everyone has everything.

your blog makes me feel less alone. it assures me that there are others living with the same pain as me. I want to thank you for creating this blog. thank you so much ❤️

You’re absolutely not alone! Many people have the same experience. I remember putting on stretch mark cream as a middle schooler. It’s a hard experience for sure. Treatment can make it better, but remember, you are more than your looks! Who you choose to be is way more important than how you look. (Or how you think you look. I’m sure you’re beautiful inside and out!)

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I hate how doctors are just like get over it! I hate how doctors just tell us we’re over dramatic girls! I hate it when I’m told to pull my head in! I hate it when I’m treated like I’m doing this for attention! And I love that you made this blog so I don’t feel alone !

I love your passion! You are so right! I hate that girls just have to live with this pain! It’s not all in my head! I am actually chronically ill! I’m so glad my blog makes you feel not alone!!! 💛💛💛

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ah yes. symptoms. 

hate that!

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I’ve lost seven pounds since I started metformin a month ago. The medication is “working” in that no food stays in my body for very long most days. 😭 It’s getting better but definitely the worst medication I’ve been on!