sickzombi

[sickzombi]

chronically ill girls getting ready in the morning

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trying to work but i literally feel so bad and so nauseous

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i literally had no idea this post got so many notes btw. i love you all heres some spoons 🥄🥄🥄

"i need my medication please!" says the sicks guy.

"fuck you" says the fuck you pharmacy

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having to take ondansetron before i eat so i can MAYBE keep from having severe nausea 😍

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"i need my medication please!" says the sicks guy.

"fuck you" says the fuck you pharmacy

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i think i popped my shoulder back into place yippee

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Got xrays done I hope my Dr lets me keep a copy I LOVE SEEING MY BONES !!!!!!!!

But also hope they're not too fucked up....i guess we'll see. End of this month 🤞🏻

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Got put back on MTX i hope it works as good as it did 6 years ago

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being so tired that caffeine wont do anything.

being so tired my eyes feel like they're gonna fall out.

being so tired i can feel my body falling asleep while im standing.

being so tired i grit my teeth to the point i feel they might crack.

being so tired im stuck in a daze and cant snap out of it.

being so tired and nothing can help.

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hi!

update i am on tremfya! had to look on reddit to see why its taking so long to work and apparently it takes the longest out of the biologics 💔

this sucks! finger swelling has gone down a bit but psoriasis is still angry :(

[sickzombi]

havent posted in so long but i promise im okay!

well... as ok as i can be with active arthritis and a new allergy ;-;

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instagram keeps trying to push ads for liquid iv "alternatives" except all of these stupid fucking companies cant comprehend that:

1. liquid iv is 500mg of sodium which is REALLY good when u have pots/dysautonomia

2. the sugar in liquid iv is high so that the sodium and other nutrients are able to absorb better. it has been scientifically proven that electrolytes are much better absorbed with sugar, which is why regular gatorade is high in sugar. also 11g sugar isnt even that much to be honest with u........ its not that bad.

and yet the diet culture notion of "sodium and sugar bad:(" KEEPS showing up in my targeted ads -_-

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that moment when u find out you actually ARE severely anemic (on top of severe POTS):

*** they tested my RBC counts. those were normal. however my ferritin counts were LOOWWWWWWWW af. they said its typical for POTS/EDS patients to come up with weird blood work (ie the blood counts look okay but are actually very much not okay). im on infusions now :,-)

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life update i guess:

-shitty NP didnt listen to me in nov when i told her i was breaking out in psoriasis patches and having more pain than usual

-finger started swelling in dec and ive been in excruciating pain

-said fuck it and found a better doctor in the same network

-saw the new doctor yesterday

-she listened to me and is switching my from humira (Adalimumab) to taltz (Ixekizumab)

-she was so nice! 10/10 love her she actually listened to me and explained everything well!!!

-its getting pre authorization (stupid insurance) but hopefully soon i am able to start it and also hopefully it gets rid of the inflammation ;-;

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Got diagnosed w/ POTS... just as I suspected....

did not expect to have severe POTS, though. I thought that because I hadn't fainted it was mild to moderate... but my hr went up almost 60 bpm during the tilt table ;-;

Apparently i also have leaky veins in my legs & leaky heart valves (among other things).

I will probably ask my rheumatologist about hEDS even though they don't specialize. My nurse practitioner is a godsend though (she also was the only person that noticed hypermobility in my 5 years of seeing a rheumatologist 😅) so i'm sure she'd at least try her best.

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i got into a car accident and somehow came out totally fine (mostly.... and it was bc of the car i drive it is one of the safest cars ever made imo)

bruised up, sore, & i think my knee subluxed.... but nothing major.

ironically it was after i left work bc i felt like shit bc i almost passed out (and i mean the closest ive ever come to passing out.... like i was cm away from passing out & was lucky that i was able to drop into a squat and recover :/)

tw: pics ahead

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[sickzombi]

normal ppl: DONT DRINK THIS BOTTLED WATER!!! they add salt to it and it will raise your bp!!!!!!!!!

me, a potsie: *adds salt to water* mmm sodium good ^_^