#fibrodysplasia

[purpleplaid17]

Today is FOP Awareness Day

It is a super rare medical condition I have.

Here is an 86 second video narrated by Stephen Fry to tell you all about it!

Fibrodysplasia Ossificans Progressiva (FOP) is a progressive condition that slowly turns muscle, ligaments and tissue into bone ‒ sending those who have it into a spiral towards complete immobility; as extra bone grows, locking joints and rendering movement near impossible.

[ifopa.org] (multiple languages)

Taglist of friends and mutuals I thought might like to know more about me:

@bekkapramheda - @bext-k - @booasaur - @brotherconstant - @cilly-murphy

@finecallmejane - @freckleslikestars - @fruitysports - @maycanady - @mottles

@nerdalmighty - @notnearlyenoughmermaids - @royalarmyofoz - @sersi - @spockvarietyhour

@swallowedabug - @tennant - @trcunning - @violaobanion - @wiha-jun

[static-scribblez]

I hate myself for making this

And I’m pretty sure you all will hate me as well but here goes

[eldritchsquared]

you ever hear a song and you get shot back to hearing it in a crowd of people and you almost start crying from lots of emotions suddenly hitting you at once

[chainsawgirlfriend]

REINCARNATION IS A BITCH!!

[sharkfromspace]

the song ever

specifically this version

[chipwillish]

Hello hermitarchives folks, how are we all today? I keep thinking of Bone Mage!Xisuma as an avatar of The Corruption :)

Tw: body horror

..

He can feel the powder coat his tongue, bone fragments sinking into the soft flesh of his mouth, shards scraping down his throat as he consumes handful after handful of meal... Dreading what it's doing to him, but unable to stop. Finally feeling satisfied and full with it as his bones swell and warp. He wheezes, lungs aching as the spurs of his ribs dig in, and in. He no longer bleeds.

He can no longer quite turn his head, a second skull weighing heavy on his hardening shoulders, cradling the delicate stem of his neck. He can hear the call of the slowly ossifying land, as it sings to him and calls him to his purpose, to eventually become one with it.

[randomwikiarticles]

Fibrodysplasia ossificans progressiva (/ˌfaɪbroʊdɪˈspleɪʒ(i)ə ɒˈsɪfɪkænz prəˈɡrɛsɪvə/;[1] abbr. FOP), also called Münchmeyer disease or formerly myositis ossificans progressiva, is an extremely rare connective tissue disease in which fibrous connective tissue such as muscle, tendons, and ligaments turn into bone tissue. It is the only known medical condition where one organ system changes into another.[2] It is a severe, disabling disorder with no cure or treatment.

FOP is caused by a mutation of the gene ACVR1. The mutation affects the body's repair mechanism, causing fibrous tissue including muscle, tendons, and ligaments to become ossified, either spontaneously or when damaged as the result of trauma. In many cases, otherwise minor injuries can cause joints to become permanently fused as new bone forms, replacing the damaged muscle tissue. This new bone formation (known as "heterotopic ossification") eventually forms a secondary skeleton and progressively restricts the patient's ability to move. Bone formed as a result of this process is identical to "normal" bone, simply in improper locations. Circumstantial evidence suggests that the disease can cause joint degradation separate from its characteristic bone growth.[3]

Surgical removal of the extra bone growth has been shown to cause the body to "repair" the affected area with additional bone. Although the rate of bone growth may differ depending on the patient, the condition ultimately leaves sufferers immobilized as new bone replaces musculature and fuses with the existing skeleton. This has earned FOP the nickname "stone man disease".[4]

[allkindsofadvocacy]

Find Me Friday: Sadie, Trey, & Nevan!

Find Me Friday: Sadie, Trey, & Nevan!

Logo that says Reece’s Rainbow Special Needs Adoption Support in blue, below a blue & yellow paint stroke rainbow graphic with a yellow Ukrainian trident symbol on the right half. In this series, each Friday, I want to share a different child or group of children with you who are available for adoption and listed through the adoption advocacy website Reece’s Rainbow. All the kids who are listed…

[globalaircraftgalley]

Fibrodysplasia Ossificans Progressiva Treatment Market Share, Regional Outlook, Scope, & Insight by 2028

The Fibrodysplasia Ossificans Progressiva Treatment Market is grow at a growth rate of 5.20% in the forecast period of 2021 to 2028.  DBMR Research Report provide analysis & insight regarding various factor expected to be prevalent throughout the forecast period while providing their impacts on the market’s growth.

Fibrodysplasia ossificans progressiva (FOP) can be referred to as a rare genetic disorder in which the muscle tissue and connective tissue like the tendons and ligaments are substituted by bone, forming bone outside the skeleton (heterotopic bone or extra-skeletal) which limits the movement of that specific part of the body.

Major factors that are expected to boost the growth of the fibrodysplasia ossificans progressive treatment market in the forecast period are the rise in the consciousness related to fibrodysplasia ossificans progressiva and its treatment. Furthermore, the support by the government for the research and development for new and better treatment is further anticipated to propel the growth of the fibrodysplasia ossificans progressive treatment market. On the other hand, the inaccessibility of permitted drugs for the treatment of fibrodysplasia ossificans progressive is further projected to impede the growth of the fibrodysplasia ossificans progressive treatment market in the timeline period.In addition, the increase in healthcare expenses will further provide potential opportunities for the growth of the fibrodysplasia ossificans progressive treatment market in the coming years. However, the dearth of the trained experts might further challenge the growth of the fibrodysplasia ossificans progressive treatment market in the near future.

Fibrodysplasia Ossificans Progressiva Treatment Market Insight

This Fibrodysplasia Ossificans Progressiva Treatment market report provides details of new recent developments, trade regulations, import export analysis, production analysis, value chain optimization, market share, impact of domestic and localized market players, analyses opportunities in terms of emerging revenue pockets, changes in market regulations, strategic market growth analysis, market size, category market growths, application niches and dominance, product approvals, product launches, geographic expansions, technological innovations in the market. To gain more info Fibrodysplasia Ossificans Progressiva Treatment market contact Data Bridge Market Research for an Analyst Brief, our team will help you take an informed market decision to achieve market growth. 

Fibrodysplasia Ossificans Progressiva Treatment Trends Segmentation

It is fragmented on the basis of -

Treatment

medication, occupational therapy, and  surgery.

Distribution

direct, online pharmacy, retailers, and  others.

End user

hospitals,specialty clinics and others.

 Request Access for Fibrodysplasia Ossificans Progressiva Treatment Market Sample Report: https://www.databridgemarketresearch.com/request-a-sample/?dbmr=global-fibrodysplasia-ossificans-progressiva-treatment-market

Fibrodysplasia Ossificans Progressiva Treatment Industry Country Level Analysis

The countries covered in the global Fibrodysplasia Ossificans Progressiva Treatment market report are the U.S., Canada and Mexico in North America, Brazil, Argentina and Rest of South America as part of South America, Germany, Italy, U.K., France, Spain, Netherlands, Belgium, Switzerland, Turkey, Russia, Rest of Europe in Europe, Japan, China, India, South Korea, Australia, Singapore, Malaysia, Thailand, Indonesia, Philippines, Rest of Asia-Pacific (APAC)  in the Asia-Pacific (APAC), Saudi Arabia, U.A.E, South Africa, Egypt, Israel, Rest of Middle East and Africa (MEA) as a part of Middle East and Africa (MEA).  

Fibrodysplasia Ossificans Progressiva Treatment Industry Share Analysis

The major players covered in the Fibrodysplasia Ossificans Progressiva Treatment market report are

Pfizer Inc,

AstraZeneca,

DAIICHI SANKYO COMPANY, LIMITED,

Regeneron Pharmaceuticals, Inc,

Blueprint Medicines Corporation,

Clementia, Oncodesign,

La Jolla Pharmaceutical Company,

Novartis AG,

 Access Full Report: - https://www.databridgemarketresearch.com/reports/global-fibrodysplasia-ossificans-progressiva-treatment-market

 Major TOC of the Fibrodysplasia Ossificans Progressiva Treatment Report

Chapter One:

Chapter Two:

 Get TOC of the Report: https://www.databridgemarketresearch.com/toc/?dbmr=global-fibrodysplasia-ossificans-progressiva-treatment-market

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[purpleplaid17]

Today is FOP Awareness Day

It is a super rare medical condition I have.

Here is an 86 second video narrated by Stephen Fry to tell you all about it!

[static-scribblez]

Here’s the full version of my abomination of a mistake

[dreadful-windandrain]

listened to the real will wood album three times yesterday. here are my thoughts:

am i being detaIIIIIIIIINED? am i under arrest?? (yes!)

"this is a song written by a dead guy" the implications..........

unsyncopate cotard's solution right this fucking second

the transition into dr sunshine lives is SO GOOD

was it when i left the cave and swore i'd. NEVER GO BACK!!!!!!!

how did he make white knuckle jerk hornier. what's with the moans. and why do i like it better than the original.

HEART BLUER THAN MY b-b-b-b-bbbbbaaaaa~a~LLLLLS!

the weird voices he uses in thermodynamic lawyer sure were a choice

fucking ADORE front street live. even better than the original and my favorite off of this album. literally just. the tempo changes. "if you're not on your worst behavior... get the fuck out!" "is this shit enough proof for you?" "give us all that fucking osmosis! oh, yeah!!" "sing it with me you fuckers!". he made a villian song sound even more evil. wtf and well done

i trusted you i trusted you i trusted you i trusted you i tru

the long ass intro for hand me my [x], i'm [y]! is fabulous. the anticipation!!!

the tempo is also faster here than the original which is awesome but overstimulating as hell when the second half of the bridge hits

take it away, creeps

here's a song *first chord of 2012*

by retracing myyyyyyyyyyyyyyy ste-epppppppppp pssssssssss

the guitar riff that starts mr capgras makes my brain perk up like a bluetooth speaker being connected

FUCKING HURT EACH OTHER! COME ON!!!!

yet another banger intro! the latter half of this album does not miss!

can we drop this shit? i wanna see you at each other's throats, man, make some fucking noise. one two three oh YEAAAAAAAH

the transition here also. magical.

i definitely didn't almost cry at the end of fibrodysplasia ossificans progressiva when the tempo slowed down and everyone was vocalizing

-ish is so fucking underrated oh my GOD you people don't talk about it enough

the people who sang "myself again" after "and i'm gonna be"...... read the room

the new harmonies on where do you get off, front street, and mr capgras give me life

overall i love it but i do believe that ww didn't sing the song with five names to spite me personally. he did sing it on in case i die but still. you don't know how much tax fraud i would commit to hear it live with a full band

[olliecoded]

actually house is soooo funny because he's like. hm this patient has a fever ... well since i'm fighting with cuddy right now, it's probably dermatologic necrotizing keratosis pachyonychia eosinophilia fibrodysplasia blepharospasm. put the patient through treatment that will probably kill them. ok bye i'm off to watch grey's anatomy. and then he's literally always right

[truskawkowydiabel]

We all know how the Pandoric disease affects the "infected" person (If you spend too much time in Pandoria, some kind of radiation or God knows what causes you to have pink cracks on your skin, yada, yada). So far we have only seen examples of how it works externally, but what if this disease had a more terrible variant?

For example, instead of outside, it develops inside? Makes organs and muscles become pandoric crystals? Something like fibrodysplasia, but instead of muscles turning into bones, they turn into a pandoric crystal. Imagine how terrible it was then - you slowly turn into a statue.

I've been thinking about it all the time lately and I had to share it, don't mind me ₍ᐢ. ̫.ᐢ₎

[fukin-shortass]

the ending of this songs feels so heavenly but so chilling at the same time i LOVE IT