π€£π€£π€£ . . . #fibromyalgia #fibromyalgiaawareness #fibrolife #fibrolove #fibroids #itsokaynottobeokay #support #healing #pain #symptoms #fibropain #flairup #ineedlove #love #fibrosisters #anxiety #Repost @fibro.fitnesslover (with @report.for.insta) https://www.instagram.com/p/ByyfcxBHv-T/?igshid=b1rm9p7gnw9l
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Oh wow, this is so amazing - I'm so glad that the new batch of stickers helps you reflect just how much you go through, and how #spoonie awesome you are(!)β¨ Sending many spoons to you ππ₯β¨π #Repost @fitfibrochronicals γ»γ»γ» in honor of feeling like complete and utter crap this weekend, and my favorite app @spoonielivingapp getting to add more stickers to the mix, here's a collage of a handful of my #spooniestruggles π I always try to find the light at the end of the tunnel because I'm scared of the darkπ #fitfibrochronicals #fitsisters #fibrosisters #spooniesisters #spoonieliving #spoonielivingapp #spoonie #chronicillness #chronicpain #chronicfatigue #invisibleillness #fibromyalgia #butyoudontlooksick #moreissuesthanvogue #napqueen #hospitalselfie #chronicallyfabulous #chronicallyill #chronicallyawesome #fibrofighter #fibrowarrior #depression #anxiety #panicdisorder #tmj #gastritis #gerd
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Come out of the shadows n speak ur mind disabled sisters & brothers! #thedisabledreality #protectmedicaid #votenoahca #disabilityrights #disabilityaccess #chronicillness #chronicmigraines #careeraccess #nocutsnocaps #protectmedicaid #fibromyalgia #thoracicoutletsyndrome #transversemyelitis #neuropathicpain #myofascialpainsyndrome #stenosis #neuropathy #endometriosis #dailymigraines
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don't forget to wear #purple tomorrow for #fibromyalgiaawareness day! πππ #fibromyalgia #fibro #fms #chronicillness #chronicpain #chronicfatigue #invisibleillness #spooniesisters #fibrosisters #findacure
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Migraine World Summit
Highly recommend! 36 of the world's leading experts on migraines and it free! You have to register with an email. http://www.migraineworldsummit.com 2. WHEN AND WHERE The Migraine World Summit is an ONLINE event you can watch free from April 23-29, 2017. The final day of the Summit will include two live seminars which include the opportunity to ask questions and receive responses. You can watch the Summit from any internet enabled computer or mobile device. Each day you will be emailed a private link with access to scheduled presentations. Keep a lookout for these emails. Information about the event including topics, schedule and speakers can be found at: https://www.migraineworldsummit.com/schedule Summit presentations commence Sunday, April 23 at 9.00am Eastern Standard Time (New York). To convert this time into your own time zones please visit: http://www.timeanddate.com/worldclock/converter.html From April 23-29, you will be sent a link to access each of the speakers for each day. You will have 24 hours to listen to each day's program until the next day commences and they are replaced. This is so that as much content as possible can be included in the Summit while not exhausting bandwidth restrictions or having to limit the volume of participants during the week. Everyone should have the opportunity to experience this important event at no charge.
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don't forget to be pretty in purple this month for #fibromyalgiaawareness πππ I'll be rocking purple lips for the month of May π #fibromyalgia #fibro #fms #chronicillness #chronicpain #chronicfatigue #butterfly #spooniesisters #fibrosisters #invisibleillness #may12
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It's been a very hard week for me. IC is killing me and Fibro is going crazy. Sorry I'm not on much. I love you guys and hope everyone is having a wonderful night ππππ«π«ππ #ic #icsucks #icwarrior #fibromyalgia #fibro #fibrosucks #fibrofighter #invisibleillness #chronicpain #chronicillness #pain #thistooshallpass #believe #hope #strength #icsisters #fibrosisters #spoonie #spoonielife #spooniesisters #loveyou
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ππ₯β¨π₯π #Repost @fitfibrochronicals γ»γ»γ» β’ β οΈLONG POST/UPDATEβ οΈ I saw my favorite doctor for the first time since I had Sally the stent and my kidney stone removed about a month and a half ago! my stone was made up of calcium oxalate and calcium phosphate - the phosphate part is raising some concern about some other thing going on with me...now I have to keep a diary of everything I ingest as well as every time I pee with all the lovely details - so I decided to color code my entries to make it easier to do and pretty to look at ππ»π
πΌ I also ordered my two 24-hour urine collection kits, which luckily donβt have to be done on consecutive days. She wants me to do one as I normally eat at home and one as I eat at work since my diet varies between work days and weekends - I definitely wonβt actually collect my pee at work so Iβll just mimic my work diet one weekend insteadπ keeping track like this will help with my unfortunate reoccurring acid reflux for when my doctor is back from maternity leave - idk what went wrong after my stomach surgery, but Iβm feeling like crap all over again ππ»ββοΈ I canβt alter my diet at all yet until we see whatβs going on with my pee, and even then itβll be a struggle because what ends up helping kidney stones will aggravate my IC and vice versa, on top of whateverβs going on with my stomach again, Iβm just gunna live off of air π€¦π»ββοΈ meh, itβs never a dull moment for a spoonie! #fitfibrochronicals #fitsisters #fibrosisters #spooniesisters #spoonielivingapp #spoonieliving #chronicallyfabulous #chronicallyawesome #kidneystones #interstitialcystitis #IC #ureteralstent #sallythestent #stomachsurgery #fundoplication #chronicillness #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #spoonie #fooddiary #nausea #acidreflux #gerd #exhaustion #pain #spoonielife #spoonieproblems #lifeofaspoonie
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ππ₯β¨π₯πRepost @fitfibrochronicals γ»γ»γ» chronic pain view of the day, courtesy of a massive sciatica flare π that in combination with on/off kidney pain is exactly how I wanted to kick off my midwinter break π #fitfibrochronicals #fitsisters #fibrosisters #spooniesisters #spoonieliving #spoonielivingapp #sciatica #paindrained #warning #lowonspoons #spoonie #pjday #poorlyday #kidneypain #backpain #viewoftheday #chronicpain #chronicillness #chronicfatigue #invisibleillness #butyoudontlooksick #flare #sendspoons #teacherlife
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πβ¨π₯β¨π₯π #Repost @fitfibrochronicals γ»γ»γ» my surgeon said to make an appointment for a CT scan in 3 weeks, then come right to his office after so we can review the scans..depending on how the scans look, where the stone is, and how Iβm feeling, we can either wait another month for the stone to pass or set up an appointment to go under and have the stone taken out, but the stent would still probably have to stay to allow drainage and to prevent further infection. soooo since this stent and I are going to become close pals, I decided to name her Sally - Sally the stent! Sally was doing well all day, but started acting up not too long ago so I had to take some pain meds and now Iβm hoping she wonβt keep me up because Iβm finally going back to work tomorrow ππ»ππ» if anyone else has any experience with ureteral stents please share your wisdom! #fitfibrochronicals #fitsisters #fibrosisters #spooniesisters #spoonieliving #spoonielivingapp #chronicallyfabulous #chronicallyawesome #chronicillness #invisibleillness #chronicpain #chronicfatigue #butyoudontlooksick #spoonie #lifeofaspoonie #justspooniethings #ureteralstent #cystoscopy #kidneystone #sallythestent #painpaingoaway #infection #newfriends
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ππ₯β¨π₯π #Repost @fitfibrochronicals γ»γ»γ» βUPDATEβ this whole time it was an infected kidney stone causing all my misery π€¦π»ββοΈ last night I had a ureteral stent placed to allow me too pee and rid me of the infection..hopefully I pass the stone too so they donβt have to remove it surgicallyππ» merry Christmas to meeeeeπ¬ #fitfibrochronicals #fitsisters #fibrosisters #spooniesisters #spoonie #chronicillness #invisibleillness #chronicpain #chronicfatigue #kidneystones #ureteralstent #surgery #infection #hospitalselfie #mymondayface #spoonieliving #spoonielivingapp #merrychristmas
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ππ₯β¨π₯π #Repost @fitfibrochronicals γ»γ»γ» so I got to see my #polycysticovaries for the first time today π¬π¬π¬ and on top of that, there is some suspicion I have #diverticulitis so Iβve got that going for me too - if anyone can give me any insight to either (or both) of these thatβd be super totally awesome πππ we all know what searching #webmd can do to a personβs sanity π€ͺ #fitfibrochronicals #fitsisters #fibrosisters #spooniesisters #spoonieliving #spoonielivingapp #butyoudontlooksick #pcos #polycysticovariansyndrome #diverticulitis #medicalmystery #spoonie #spoonielife #spoonieproblems #lifeofaspoonie #justspooniethings #chronicillness #chronicpain #chronicfatigue #invisibleillness
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Sending Spoons ππ₯β¨π₯π #Repost @fitfibrochronicals γ»γ»γ» when you have lesson planning and homework to do and a migraine decides to strike π *UPDATE* I had to stay home from work because even though my migraine went away last night I woke up with it 7x worse this morning πππ #fitfibrochronicals #fitsisters #fibrosisters #spooniesisters #spoonieliving #spoonielivingapp #sundayfunday #chronicmigraines #migrainesuck #chronicpain #chronicfatigue #chronicillness #invisibleillness #butyoudontlooksick #teacherlife #gradschoolproblems #fml #maxalt #stayhydrated
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Sending Spoons ππ₯β¨π₯π #Repost @fitfibrochronicals γ»γ»γ» π it was a rough morning to say the least. I can see out of both eyes now, so I've got that going for me. who else has experienced this and can tell me if I need to call my neurologist or my glaucoma specialist firstπ β’ #fitfibrochronicals #fitsisters #fibrosisters #spooniesisters #spoonieliving #spoonielivingapp #migraines #chronicmigraines #migrainessuck #homesick #pjday #spoonie #spooniestruggles #lifeofaspoonie #justspooniethings #sos #help #suggestions #advice #chronicillness #chronicpain #chronicfatigue #fibromyalgia #glaucoma #neurology
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ππ₯β¨π₯π#Repost @fitfibrochronicals γ»γ»γ» it's #migraineawarenessweek ππ #migraines suck so much ass it's not even funny..I'm definitely doing better with them lately and I think it's because I don't work at a desk staring at a computer screen all day, so I've got that going for me. the rain was ALWAYS a #trigger for me too but that's eased up too which is awesome. I think I had my first migraine when I was maybe 10 or 11π€ my trials and tribulations with #medication have been long and mostly unsuccessful, but my nightly #lexapro and emergency #sumatriptan and #maxalt are holding up pretty wellππ» what do you guys do for your migraines?β’ #fitfibrochronicals #fitsisters #fibrosisters #spooniesisters #migraineawareness #migraine #chronicmigraines #chronicpain #chronicfatigue #chronicillness #invisibleillness #butyoudontlooksick #clusterheadache #clustermigraine #dosequis #migrainememe #spoonie #lifeofaspoonie #spoonieliving #spoonielivingapp #findacure
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πβ¨π₯β¨π#Repost @fitfibrochronicals γ»γ»γ» it hasn't even been a full week yet and already my sleep average is more than it EVER has been...to say this is a miracle is an understatement, and all my #spoonies can attest to the struggle that is sleep..the stats on the left include my various naps, and my stats on the right do not, as I have not really felt the need to nap since starting my new "medicine"ππ I'm just so happy, I don't know fully how to put into words what this means for me, for my future, for my ability to function in general..the possibilities are endless! well, not endless, but you get the gistππ» I've got a long road ahead of me still, but I've also come a hell of a long way throughout the years, and damn it I deserve thisβπ» I'm very excited to continue monitoring my progress (and depleting bank account because insurance doesn't cover thisπ©) as the weeks go on!β’ #fitfibrochronicals #fitsisters #fibrosisters #spooniesisters #spoonielife #spoonieliving #spoonielivingapp #chronicpain #chronicillness #chronicfatigue #invisibleillness #fibromyalgia #chronicmigraines #medicalmarijuana #medicinalcannabis #medicalcannabis #medicinalmarijuana #spoonie #chroniclife #fitbit #sleepstats #vape #spoonie #thcoil #thcvape
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