You know what? You know what I think?
I think that if we lived as we were meant to, in larger intimate ("extended family") groups and with more shared labor and time to do it (UBI NOW) people like me would not feel so useless and burdensome because there would be people around to help and to do what neurodivergent people can't while making valuable space for the neurodivergent to do what they ARE good at.
The way we live right now, all right, the way we live right now forces units of two adults to be able to do EVERYTHING or PAY to have someone come do it for them. I have to do the housework. I have to do it! But I am having to do a million different things and most of them I am not good at. I suck at them.
I wouldn't feel like shit, okay, if I had more than one other person around who was not a child and who could do the things I can't, like do the yard and cook and do repairs and basic maintenance; and someone else to split everything else that I like but is too much for me. It would free me to do what I am good at and enjoy. Cleaning, as in the sink and toilet, the windows, the blinds. Taking out trash. Folding, hanging, and sorting laundry.
But because all the shit I can do often relies on other shit being done first, and I can't do or have trouble doing those things, the shit I can do often can't be done. And even the shit I can do, I can't do ALL of it. So I can't keep up, and things get very bad.
We aren't meant to live like this. We are not meant to live like this.
That thought hurts so much because being able to flee the birth family is integral to survival for so many people. I'm so afraid that living in larger family groups would create more opportunities for, say, queer kids to be isolated, rejected, bullied, and abused. But if we gave people enough money to survive, and stopped considering children the property of their parents with no system in place to help them escape bad situations except a system that is often just as bad, just different.
I'm aware that communes and collectives aren't all that successful and are kind of a joke. I don't mean that. I mean a fundamental shift to multigenerational families where taking in "strays" (which my family did) is also normalized so people escaping abuse into existing households was accepted, with these families centered in maybe a couple of different larger residences so not everyone has to buy and maintain their own fucking washing machine and vacuum cleaner, and so people can benefit from large group meals that yield leftovers, and so child and elder care can also be centralized.
Then disabled people and the neurodivergent and sick and injured people, and pregnant people, and grieving people, would not have to either labor through all those stressors or consign themselves to living off an unlivable pittance or being put under legal guardianship.
I'm not saying anything new. People live like this in other parts of the world and maybe it sucks and I am wrong. But I'm just really mad right now because I can either do laundry or clean the sink but not both, and I really think we could improve society somewhat by making it so I did not have to choose one without sacrificing the other.
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Happy EDS awareness month!
I'm a webcomic artist with EDS. be aware.
EDS affects many parts of my life. I have chronic fatigue, chronic pain, and I need to use a cane! I often find myself ruminating on themes of chronic illness in my work, whether or not I am intending to include them.
I already can't paint anymore, it hurts my hands too much... Anything that requires small details or precise motions will hurt me for days. I have a lot of grief around it. But working digitally allows me to still create!
I animate, I illustrate, I get to tell my stories. I have to go slow, take huge breaks (often against my will) and recover slowly. But, working in this space allows me the grace to do this.
So, I just wanted to share a bit of my experience with my audience, and say thank you for reading my work and supporting me! It means the world to me, and I hope maybe someone in my audience feels a little more seen through me sharing this. It causes me pain, but I love myself; and that includes my disability.
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I'm so used to being surrounded by kind and thoughtful neurodivergent people at this point that I've forgotten that sometimes neurodivergency can make us assholes in very specific ways and even though yes there's nothing wrong with us for being "different" and we shouldn't feel ashamed of who we are etc etc it's still kind of also our job to try and not actively hurt other people and then just excuse it with "well I'm autistic/have bpd/xyz so you can't be mad" or "if you don't like me treating you bad you're making me feel like I can't be my true self around you" or something like. I feel like it's very obvious to me because I have The Disorder That Makes Everyone Think You're Shitty so I'm always very aware of trying not to be, but others. not so much I think
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