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bulldagger-bait · 3 days

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When it comes to hygiene tasks and self care with disability and chronic illness, its pretty much a constant case of: don't let perfect be the enemy of the good.

Basically: it's better to do something, than to do nothing at all.

TLDR: Just because you can't do something "properly" doesn't mean you shouldn't do it at all. Do it half-way. Do it shitty. Do it barely. Do it on a technicality. But do what you can. Just try, because doing something will help you.

If you don't have the energy to scrub your body with a sponge, just rub soap over your skin with your hands.

If you don't have the energy to wash your whole body with soap, just hit the places where sweat accumulates, or where you're smelliest.

If you don't have the energy to wash with soap AT ALL, just sitting in water is better than nothing. It will wash away dirt and oils.

If you can't bathe or shower at all, a warm wash cloth is your new best friend. If that's too much, then try bath wipes. They're a bit bigger than regular wet wipes, and a bit more heavy duty. They're designed to help keep bed ridden patients clean in hospitals.

If you don't have the energy to dry yourself after a bath or a shower, just put on a bathrobe and get into bed. If you don't have the energy to get dressed afterwards, just don't. It can wait until you can.

If you don't have energy to brush your teeth for two minutes, honestly, just a cursory scrub is better than not doing anything.

If you can't brush your teeth twice a day, brush in the evenings. It will help take away the build up of food from the day.

If you don't have the energy to brush AT ALL, honestly, just take a cloth and wipe the plaque off your teeth. Rinse with mouth wash after if you'd like. Something is always better than nothing.

If you can't floss twice a day. Try once. If that's too much, try a few times a week. If that's too much, try setting aside a day once a week as a goal. If you can't keep a schedule, do it when you're able to. Hell, I keep some floss next to my bed so that if I forget and don't have the energy to go get it, I can just reach over.

If you can't iron your clothes, don't bother. Wrinkles are fine. Wear jumpers over wrinkly t-shirts. No one will know, and honestly, most people won't even care. If it's really wrinkly and it's A Big Deal And It Needs To Be Ironed, here's my life hack. Step 1: take a spray bottle, and spritz the item of clothing (while you're wearing it is easiest) until it's lightly damp. Step 2: use a hair-dryer on the clothes until they're dry. It gets rid of creases like nobody's business, it's easier than lugging out the iron and ironing board, and you get to have nice toasty warm clothes afterwards.

If you can't fold your clothes, try just hanging them up. It's less commitment. It's quicker to do. Granted, you need to have the space in order to do this, but it is also good at helping you downsize, and lets you visualise exactly what you have.

If you can't put your clothes away, invest in a couple of laundry baskets, and then just keep your clean clothes in the baskets. You can then separate washed clothes into underwear, pants, and shirts baskets. You can just leave them like that. I'm giving you permission to never fold your laundry again if you can't. Just leave it unfolded. Who's going to care? Something is better than nothing. If you can, try to put those baskets into your closet so that you can keep the clutter out of sight, and give yourself a more restful environment.

If you can't separate your clothing out into different categories and wash them "properly" (whites, warm tones, cool tones, darks, delicates / switching between hot & cold washes / paying attention to laundry instructions on the label) then just don't worry about it. If you cold wash your clothes, colours won't bleed. Maybe gradually over the course of dozens of washes there'll be some changes in hue, but it's really not as high stakes as the One Red Sock In The Whites Turns Them Pink trope makes it out to be.

I've pretty much come to the point in my life where if a piece of clothing can't survive the washer and dryer, then it's just not meant to be. I colour separate my clothes, and if I have the energy/remember I'll take my bras and jumpers out of the washing machine to drip dry. But otherwise, I leave it to the universe.

If you can't separate out your recycling, then don't. If you have a large amount of rubbish you need to get rid of but the idea of separating it out properly is stopping you from doing so, then just don't worry about it. I know it's not ideal, but if you have garbage in your room/house and you need to get rid of it, please just get rid of it. Don't let the problem get bigger and harder to deal with. Don't let "doing something properly" get in the way of keeping your living spaces clean. Please. Give yourself understanding.

If you can't wash your dishes, get paper plates. Obviously, it's not ideal, but it is better that you eat food than skipping meals. It is better that you have a clean kitchen, rather than having dishes piling up and making it harder to look after yourself.

If you can't prepare meals for yourself keep making the tasks easier and easier. If you can't do recipes, then simplify. Use pasta sauce from the jar instead of making it. Eat canned soup. Buy food you can just stick in the oven. If you eat fish fingers and microwave veggies every night, it's better than not eating anything at all. It's better than having to fork out money on take-out. If you need ready-made meals, then get them. If you're literally just eating a raw cauliflower for dinner; 1) I see you, 2) me too, sis, 3) something is better than nothing.

These are the basic things you need to do every day to function as a person. They are your activities of daily living. Brushing your teeth. Bathing or showering. Using the bathroom. Getting dressed. Eating. Drinking. Sleeping. Keeping your environment clean. You don't need to do these things perfectly, but they need to happen in order for you to have a decent quality of life.

And it breaks my heart, because I know that so many disabled people can't do these things every day. I'm not saying this to guilt or judge, I'm saying that these are basic needs; you deserve these things. These things bring dignity. If a disabled person is unable to do these things, it diminishes their quality of life. It robs them of dignity.

If you need help to do these things, Its okay to ask for help. It's okay to need help. But if you can't get that help and you have to do these things by yourself -- or you just plain want to be independent and do it without help-- then don't hold yourself to standards you can't meet.

Don't let perfect be the enemy of the good. Doing something is always better than doing nothing. Even if it's not perfect. Even if it's not done well. Do what you can.

#lord knows that im still trying to pull myself out of the muck and into independence and dignity #i had to set a rule for myself that i need to wear clean clothes every day. and that i need to wear pyjamas to bed #that one's been hard. sometimes I dont have the energy to do it and i just stay in the same clothes for two days at a time #or i go to sleep in what i was wearing. but when i do follow that rule my quality of life is drastically better #not feeling dirty or gross goes a long way to making you feel more like a person #i also made a rule that im not allowing myself to look frumpy outside anymore. that means clothes that look nice #no more trackies and pj pants and all that stuff. i basically lived in perpetual pyjamas for four years and im over it #i still dress comfortably but the important thing is that i dress. i look put together. i wear things that make me happy #(and i didnt need to buy anything to do so. i just needed to start taking better care of myself)#and i stopped letting perfect be the enemy of the good. i started doing things shitty rather than not doing it at all #and the more i keep pushing with my ADLs the better i feel #what helps is now i dont have to contend with stairs and that has made a dramatic change to what im able to accomplish #ive also finally built up enough strength in my body that im able to go to the shops by myself. so i can buy things to make easy meals #and mum doesnt mind if i just put some things in the oven or air fryer for us for dinner.#i still cant really cook. i felt bad about that for the longest time. i didnt even try bc i knew what id make would be disappointing #or it wouldnt be up to the standards of what everyone else was making. i was so sick of feeling like a let down all the time.#now i just make what i can and my mum doesnt complain bc shes in the same boat.#and yeah. having help would be nice. it would mean id be able to do more than what i can do by myself.#and its great to see how far ive come. but im not a burden. and when i have the accommodations i need i can do a lot more #i do something rather than nothing and my life has dramatically changed since then. ive just gotten better and better.#chronic illness #disability #chronic pain #spoonie #one things for certain and thats that im never going to let myself rely on anyone else ever again.#i never want to be on the other side of that ever again. I don't want to be anyone's burden. i dont want that hanging over me #i do things by myself or i dont do them at all. and god fucking willing i'll never go back to needing as much help as i used to #i really didnt realise just how much of an obstacle living with stairs was in my life. it was the biggest barrier against everything #stairs stopped me from being independent. if i couldnt traverse them i just didnt go anywhere. my world shrank so much #and not having the proper wheelchair shrinks my world even more. im stronger than i used to be but im still severely limited in where i go

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sxfterhearts · 2 months

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omg chat why is writing kinda hard???

ok so this is a bit of an aside (warning: this post is long) but @348kg and i talked about this and honestly writing fanfics is a way for us to express ourselves creatively while using our idols as inspo for our work. and it’s fun most of the time.. but like honestly, 70-80% of the time, writing is hard. it’s not easy, like… it’s actually quite hard work.

and i know everyone has seen posts of like “pls reblog instead of just silently reading” or “pls like at least to show your appreciation” etc etc etc and ur probs sick of hearing it but like, it’s so true???

writing is honestly hard. and for most of us fanfic writers.. im sure you know but we have lives outside of our blogs. we are students, or we work normal jobs, we have life responsibilities, we have problems to deal with, and yet somewhere in between our busy lives we manage to find the time to sit down and create these pieces of writing for you, the reader, to read.

and tbh, i don’t really know where im going with this? i just want to let you know this: a typical 1-2k words one-shot probably takes me around 2-3 hours to write (on average, on a good day - sometimes longer or shorter). but it takes you maybe 10-15 mins, at most 30 mins to read depending on your reading speed. isn’t the time gap a little wild 🫠 on a typical work day, i get home from work at about 6, i cook myself dinner and eat, i shower and clean up, and if i know im writing that night, i make sure to clear my schedule (ie no overtime, no phone calls to friends or parents etc) and i sit on my laptop and write from about 10ish to about midnight. then i pause and i edit, and set things up to get ready post (think: pictures, title, word count, writing the warnings, summary, doing the tags) and by the time i post, it’s probably 1am.

i breathe a sigh of relief because it feels good! it feels really good to release my labour of love (literally) out into the world. and honestly, you know who you are, but those of you who constantly read and reblog my work, i see u!! (Alexa play i see u by p1harmony) and those who leave comments or reviews in the tags, i also see u (that’s why i like to reblog and respond to your tags too)!! it honestly brings me so much joy when someone comes and talks to me about something i wrote and how it made them feel. or even when someone recommends a fic i wrote. all these things that are so little and take so little of your time actually mean so much to me and im sure other writers as well.

and so i guess what im trying to say to everyone is: if you are a fic reader, if you read any fics, i just want you to know that the fic you loved reading took the writer a lot of resources to write (brain power, creativity and importantly time). i hope this gives u an insight into the process of a writer/writing a fic because im hoping it might help with whether or not you decide to hit that like or reblog or comment button in the near future!!

(also, i think it’s a shame that as writers sometimes we have to compromise on what we actually want to write vs what to write to get more engagement, likes, rbs etc. personally i have been writing on tumblr since 2020 on and off so ive been on here for four years now and i have a good sense of what is a good formula for a “successful” fic - usually it’s smut, usually it’s for the most popular member in terms of fic reading, and usually it’s of a certain length posted around a certain time etc etc. but i guess i don’t rly care anymore bc im a kinda old tumblr writer who isn’t bothered about the notes as much as i am just grateful for the little comments people send me saying that what i wrote made them feel seen or resonated with them. cos i think that is priceless 🥹)

PS. in no way am i complaining about the engagement or lack thereof that i personally get, nor am i complaining about the mere fact that writing is hard bc yes i am aware that i wanted to write in the first place and so it was my decision haha

#i wanted to do an ot6 fic by the end of tonight and i ONLY wrote jiung and felt bad about it T_T #but yeah #writing is hard ig #also to cover my ass i am not complaining just to be clear #I’m just stating that yeah i wanted to get fics out earlier rather than later but sometimes it’s just hard and life gets in the way #if you’re one of my mutuals on here u might know this but there’s some other external stuff going on in my life rn #which is making me like not as free to write essentially #and i really wanted to write something this weekend but I didn’t manage to so I am kinda disappointed in myself ngl #but #we live and we learn #and at least the blog got a face lift :)#I’m gonna keep working on the ot6 piece tho cos it’s rly fun #1 down #5 to go haha #good night friends #I hope ur having good weeks #don’t be too harsh on urself like I am bahaha #p1harmony writers #piwon writers #kpop writers #p1harmony fanfic #piwon fanfic #Kpop fanfic #shoutout to my readers #shoutout to my moots <3 #I love you all actually #sending you a jiung style greeting AKA I’m keeping you all in my heart #*pounds chest cutely yet aggressively*#rach 💭

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aroaessidhe · 1 year

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2023 reads // twitter thread

The Grimoire of Grave Fates

YA fantasy anthology of interconnected short stories

follows 18 students at a magic school, in the aftermath of the murder of a hated professor

as they all investigate or accidentally discover different clues to what’s going on

all sorts of interesting magic including necromancy, smoke, embroidery, song, dance, magical creatures

diverse cast of queer, trans, bipoc, & disabled characters

#The Grimoire of Grave Fates #aroaessidhe 2023 reads #i enjoyed this a lot!#i could have used a list of all the characters to remind myself (which I guess is probably the chapter list…i listened to the audio tho)#I think a lot of reviews of people disappointed w the wider plot are like. treating it like any other book rather than an anthology #it is def a little repetative #I think: go into it thinking of it as a bunch of character studies set in the same place with a background mystery?#I mean. I enjoyed it a lot more than i enjoy normal anthologies so #i’ve seen a lot of ppl saying this reads as younger YA..imo it reads as exactly what YA should be (it’s just: so much YA trends older)#I like that it’s like. the school is so progressive and inclusive!#but most of the marginalised students are like……..there’s still plenty of inaccessibility and bigotry actually lmao #realistic #the secret element in the last story kinda felt like it came out of nowhere and i def think it ends pretty abruptly #also. the school nurse is a reanimated skeleton who loves bone puns

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whiskeyswifty · 19 days

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My cousin got married last week and her maid of honor and best friend since jr high gave the speech and straight up said that my cousin was her soul mate… girl I had to keep from giggling. I didn’t stay long enough to see if they played good luck babe but I played it and kinda stared off into the distance later that night at home. I know zero details of their relationship outside of when I saw them hanging out in high school a decade ago but like now I’m curious

lmaoooooo exactly!!!! like do i actually think the bride and her maid of honor are gay for each other? nah, but idk...... they probably should be. sorority girls are always saying wild shit about each other when one of them marries some guy and you can bet your ass the dykes in the crowd are like 👀

#it was also a huge disappointment because it wasn't the HOT bridemaid who was being gay for her alas #who tried to talk to me in line for the bathroom and i accidentally swerved her for my moms friend asking a question #i felt so bad and also was kicking myself like COME ON especially after my wife bragged the hot bartender flirted with her #the speech one was one of those that one video was mocking whos like: never thought i'd be standing her tuh-deeee ikywim #painful speech like excruciating until the gay stuff then we were like UHHH LMAOOO

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howldean · 2 months

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i’m going to lose my mind

#i’ve been having an insane time for the last WEEK and i think i’m going nuts #AND now i’m pissed at myself because when i stopped seeing my therapist (his practice closed) he said he felt really confident and proud of #me moving forward and thought i’d made a lot of progress (this is very true i have)#so why am i feeling guilty about the concept of disappointing my therapist’s GHOST #which. he also wouldn’t be disappointed lmfao

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tvrningout-a · 1 year

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so!! a little housekeeping is in order!!

i'm gonna be here kinda off and on bc i'm going to work on school stuff! and bc my inspiration's been decent, i might reblog a lil spicy meme over on @tvrningon and something fluffy here, though ofc you're free to send in any meme i've reblogged in the past <3 i also have an inbox call that i'll probably work on sometime later today!

and just to kinda share where my head's at, my muse for kny hasn't been very high lately, so i'm thinking of changing my muse list in a way that reflects that. i just!! haven't figured out how exactly. i might categorize the lists by fandom and then by primary, secondary, and tertiary/request. i just want to show that my focus is on chiyo/modern muses, fantasy, and even s.piderverse stuff atm but without shoving all my other muses off the list or into the request category. i can definitely still write everybody!! the muse just isn't there like it used to be.

this doesn't affect many people here, but i may also edit chiyo's bio to make her fandomless again; i just don't interact with hq!! muses very often anymore, and her story isn't one that necessarily needs to be connected to hq!! to work.

i apologize if any of this disappoints anybody btw! i know this blog used to be very kny-centered, and a lot of people followed me for that originally. but i need to do what's going to make being here fun for me, which means changing things. if you need to soft/hardblock me, there's no hard feelings, and i wish you the best <3

#like i said i can absolutely still write my kny muses but they're not at the forefront of my mind rn and changing the visuals of the blog #helped a lot with feeling like i was falsely advertising my kny muses #but i feel like i really need to change stuff more so reflect just how focused i am on other content #chiyo's muse is the loudest it's been for a while and that!! makes me so happy!! i love writing her and tbh would really like #to make her the main muse of this blog #i also want to focus on my lore and fantasy and i wanna see if i can't reinvigorate spiderverse stuff bc i'm still!! very into that uvu #and i just needed to get this off my chest bc i've had it on my mind for a while bc i haven't felt inspired by my kny muses for a bit #once again i'm sorry if y'all are disappointed!! and i'm not saying i won't write them or won't accept new interactions for them #i'm just not focusing on them for now #sorry if i repeated myself a bunch asdf i feel like i'm not saying what i mean clearly and i just feel a bit bad so i'm probably #talking more than i need to asdf #get ready to ramble | ooc

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