#navigating the unknown

[harmonyhealinghub]

Navigating the Uncharted Territory: My Journey with Chronic Illness and Uncertainty Shaina Tranquilino January 18, 2024 At the age of 18, my life took an unexpected turn, plunging me into a world of constant illness and uncertainty. The symptoms I endure are overwhelming - from debilitating nausea and stomach cramps to the frustrating inability to keep food down. Endless trips to the bathroom, sleepless nights plagued by insomnia, sudden hot flashes, sweating, and excruciating pain in sensitive areas have become my everyday reality. To make matters worse, my body seems to be betraying me with the absence of a menstrual cycle, persistent fatigue, weakness throughout, and inexplicable pain all over. Hair loss, mouth sores, rashes, and high blood pressure further compound my struggles. Seeking answers has been a long and arduous journey that has taken me through countless doctor's offices and hospitals. Specialists have subjected me to numerous tests - from blood work and urine samples to stool examinations, heart assessments, MRI scans, CT scans, ultrasounds, EKGs, endoscopies, colonoscopies - you name it. Yet frustratingly enough, every test comes back normal or inconclusive. It feels like an endless uphill battle where hope for a clear diagnosis seems elusive. The medical professionals suspect that I may be grappling with one or multiple autoimmune diseases or perhaps something incredibly rare. Sadly though, these conditions rarely present themselves on tests until they reach life-threatening levels – a disheartening fact that makes obtaining a definitive answer even more challenging. This uncertain future has pushed me to seize each day as if it were a precious gift because there is no telling how much longer I will be able to stand strong. In light of this unpredictability looming over my existence, I strive to serve others as best I can while I still have the strength. Every task completed becomes an accomplishment knowing that time is fleeting. Each day brings with it gratitude for being alive despite the unknown that lies ahead.

Today, I am humbly asking for your help. I am 30 years old, so it has been 12 years of dealing with this mysterious illness, and it is soon going to be 13 years for me. If you or someone you know has experienced similar symptoms, if you have any knowledge or expertise in rare diseases or autoimmune disorders, or if you simply have suggestions on where to turn next, I would be eternally grateful for your guidance. Perhaps there is a specialist, a research study, or an alternative therapy that could shed light on my situation.

I firmly believe that together we can find answers and solutions. By opening up this plea to the public, I hope to tap into the collective knowledge and compassion of our community. Your support, advice, and connections may hold the key to unravelling this medical mystery and restoring hope to my life.

Thank you from the bottom of my heart for taking the time to read my story. Please feel free to reach out with any insights or recommendations you may have. Together, let us strive towards uncovering the truth and finding a path towards healing.

With deep gratitude, Shaina

[wh40kartwork]

[theeyeofeverything]

I DID IT EAT SHIT YOU...YOU... UGH I can't hate him fully, but battle with him is annoying and rather tricky. For now I consider him a second hard boss in game (the fisrt is Chronos ofc)

He and Chronos both have nasty OP moves and a little window for dodge from them. Prometheus in that matter nastier than sandy old man cause you not just have to react quick but also memorize pattern of his strongest attack. Plus, if i recal correcly he do not have moves that track you. I do not know how you supose to be survive him without blocking his attack or having a big ammount of health. And full dd intact ofc, with help of knuckles or tooth on your side

My build. Xinth of Selene with weak + blitz. Aphro is still very strong and her combo with Zeuses's blitz is crazy and fast way to deal a LOTTA DAMAGE.

[oneroomjestershow]

⚠ 【MINORS AND BLOGS WITHOUT AGE WILL BE BLOCKED】 ⚠

ok if you passed that ‎‧₊˚✧WELCOME!!!✧˚₊‧

▼ This is a 18+ blog.

▼ There will be dead dove content, dark themes and nsfw stuff.

▼ I will try to tag things accordingly, but if you want me to add a tag to something let me know through ask. You can also send anything in the asks and even through I'm a little slow to answer, i appreciate it!

▼ I encourage you to block me if you are uncomfortable with anything in this blog! Take care of youself!

▼ This is not a fandom specific blog (or is it...), but i mainly post about 14dwy and sometimes tkatb! Even through they are yandere vns, it's not my main focus, i like visual novels in general.

▼ I post whatever I want, which is often oc x canon stuff.

▲ Thank you for looking at my drawings, i appreciate it :')

Blog tags under!!!

▲#silly squeaking time > tag for my rambling

▲#🚪Ask received🚪 > tag for asks answered

▲ #okback to my enclosure 🍖 > drawing tag! from doodles to full illustrations, if you want to see just drawings of a fandom you can go to the fandom tag

▲ #to do later > tag for when i want to do stuff but I lose motivation half way and i don't post them so it's there to mock me

▲ #ren ren ren 💌 > special tag for reblogging fanarts where he appears

▲ #pics that remind me of Ren > I sometimes see him in things that aren't even about them (rbs are aesthetic and shitposts)

▲ #heaventag🤍 > tag for ocs or sonas from the 14dwy fandom, i just thing they're neat, never stop talking about your ocs!!

▲ #WHATS A QUEUE > queue tag, i am often anxious when interacting so I made myself put every artwork i want to share in here so i don't feel so nervious, i run away when it starts posting

My ocs and their tags/contents!!!

Info!: I'm fine with oc interactions and shipping, just be aware that i don't do exclusive shipping and i sometimes tend to ship between them just for fun. Each oc has different preferences, boundaries and behaviours; not all of them are friendly or have healthy relationships. The CW list might expand with time!

For the 14DWY universe:

#🥩FleshingOut: Eli🥩 - CW : body horror, blood, tentacles, cannibalism, depictions of wounds and organs.

Shitpost tag: #elicore

Ship tags: RenxEli - (tag pending) / ElixRedacted - #VitalCode

--- (clown boy goes here, no name for him yet) ---

For the TKATB universe:

#[UNKNOWN INFESTATION] - CW : all the warnings from the game + unhealthy relationships - i use this one tag for my four ocs (HF, BB, Cicada and Silverfish)

Shitpost tags for each member: WIP (since i haven't found posts that remind me of some)

Introduction!!! for the last bc im anxious

ok i lied im not ready but i will attach a meet the artist here 👍thankfor reading

[amelia-yap]

Is there any fanfic or comic of your Derg AU?

@powertaco wrote one! in which weiss has a grand ol' time stealing ruby's hoodies and yang suffers:

it's very silly and i love it

[in-tenebris-et-in-solitudine]

I’m scared because I’ve lived my life wanting to die most of the time, and now that I don’t ...

[nero-neptune]

close encounters of the third kind is an objectively good movie, but it feels sorta tragic. and i doubt thet was the intention lol. love the cinematography, love the music score, love the visual effects. that's all fun and good. but where everyone else seems to see a movie full of "wonder", it just makes me feel sad. the movie ends the way it does and it leaves me feeling bummed the fuck out.

[puraiuddo]

1/3 HI don't mind me lured back towards tumblr for JP -- it was cool seeing your rec include some older and non-ao3 fics, both because those fics are FUN and because I'm excited someone else has gone down those strange trails haha

2/3 Your list is similar to mine! enough thaaaat ok ok if you're already aware of these and chose not to feature them that's 100% valid and I'm sorry to presume, but given that ffn tf is rough to search, here's a few maybe you haven't seen and might enjoy reading? 3/3 In length order, with ffnet url endings: /s/2980742/1/Just-the-Cat-s-Meow (9k). /s/7188310/1/Yellow-Ribbon (50k) /s/9586024/31/Caro-Transmutata-Metallo (168k actually a "best friends" one iirc, also it's been like 10 years since I've fully read it, so it's ???)

lolololol s'all good! you got good taste in fics!!

Thank you for thinking of me!!

Also I couldn't help but laugh at "strange trails" being used in ref to ffn lmaooooooo. I first started reading fanfics on deviantart and then some wattpad. So ffn was the ordinary path after that. Now of course, I read fanfics on ao3 like everyone else, but when I've banged through all the fics in the pairing or topics I'm looking for, ffn's the natural choice after that lol. But now that ppl are starting on the internet with ao3, it's definitely leaving so many wonderful ffn fics in the dust which is super sad... Recently I've been using FicHub to download all the ones I really love so when ffn burns at least those won't be lost.

Long winded rant on ffn aside...... (￣▽ ￣˵)ゞ

in terms of the fics you linked... //barely holds off on exploding into a hundred pieces in a good way// OK SO... THERE'S BEEN THIS SCENE STUCK IN MY BRAIN... AND I COULD NOT REMEMBER WHAT IT WAS FROM OR HOW TO FIND IT. I AM QUITE CONFIDENT YOU HAVE HANDED IT TO ME IN YELLOW RIBBON. IF SO, I OWE YOU A DEBT OF GRATITUDE. 🫡

Now I really, really have to read it.

edit: It wasn’t it, fam. 😔

As for the other 2, I have Just the Cat's Meow in my ffn bookmarks! It was a cute fic, I'm just not sure I'd call it a JazzProwl fic I guess? 🤔 I do so love jazz being an angel of benevolent chaos tho, but I'm not so sure anything else about it like really especially stuck out to me? I guess I go for the worldbuilding or eerie fics more than anything lol. If there's something for me to overanalyze, I'm there.👌🏼

I'm also certainly gonna have to check out Caro Transmutata Metallo, though! It does sound awfully familiar so I may have saved a link for it somewhere with the intention to go read it later, but then never did... rip. Not sure about its standing on the JP list if it's Gen, but I'm looking forward to reading it regardless!

Thank you for your recs!!

[aliteratepenguin]

I love the bitchiness of murderbot's exCUsE mE when it corrects itself to avoid offending humans' sensibilities around violence and death

[wh40kgallery]

Espern Locarno

Artist Unknown

[marcmorrigan]

finding their heading

OCs: keijo (he/they) | eiden (he/him)

[official-lauchzwiebel]

Broooo i nearly missed my train

[quaranmine]

save me jimmy and kirsty pancake stream. jimmy and kirsty pancake stream save me

[ultimateaclrecovery]

Had a whimsical brunch! Mostly for an excuse to wear this sequin butterfly too that I am obsessed with but honestly has limited utility.

I made flower egg muffins, purple ube heart waffles (with my new waffle maker that I’m also obsessed with) and butterfly cinnamon rolls. I have a comical amount of butterfly cinnamon rolls left so maybe I will decorate them better, but overall it was a successful brunch!

I’m also very pleased to have just done an event just because. I wanted to host more things this year and this is an excellent step forward with that.

[frappes-random-reblogs]

Oh now this puts a spin on things, I didn't think about it that way

... I'd still think my dream job would be a librarian

Checking in and out people's books, sorting out books by author, recommending books via genre, helping someone navigate a big library, organising events...

The people who say shit like "I don't dream about labour" when asked about their dream job make me sad. It's not their fault and it's an obvious conclusion to come to in the environment that we live in, but they really do seem to make no difference between work, and being exploited. You do want to work, it is inherent human nature to want to do things, you just don't want to slave for shit wages while making profit for someone else.

If art wasn't an option and I didn't have to worry about being profitable, I know what I would be doing: Keep a little shop selling secondhand-thirdhand buttons and buckles.

Thrift shops and secondhand stores could dump (or sell, whatever) their unsold and unwanted goods to me, and I could spend all day going through the heaps and picking them apart, plucking the still-perfectly-good buttons, zippers and buckles out of discarded things with threadbare fabrics and sell them.

Probably also making those little trinket storage boxes out of hollowed-out books. By hollowing out books that nobody wanted or read.

[zenmai--jikake--no--komoriuta]

having surgery tomorrow and I'm really nervous!! (laparoscopy for endometriosis and also a bisalp!) I've had my wisdom teeth out and an endoscopy/colonoscopy before but never something with an external component and it is a bad bad time to have a mild fear of both needles and surgical procedures :'x

on one hand I'm looking forward to the recovery time-off afterwards so I have a break from work but also like...... at least for the first few days I'm going to be in a lot of pain and not be able to move and have incisions to take care of and that's scary...... like intellectually I know I'll be fine, "this too shall pass" and I'll be glad I got it done when I had the opportunity, but thinking about any of it makes me nauseous and gives me that stomach pit-drop feeling of dread ; w ;