#pacing with illness
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Embracing Mindfulness on the Journey of Chronic Fatigue Syndrome
For those of us living with post-viral Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), mindfulness can be an invaluable tool. When energy feels scarce and symptoms overwhelming, mindfulness offers a gentle, non-judgmental way to relate to our experience. It’s not about forcing ourselves to be positive or ignoring the very real challenges we face, but about creating space within our…
#acceptance of illness#Buddhist mindfulness#Buddhist teachings#chronic fatigue syndrome#chronic fatigue syndrome blog#chronic illness support#coping with chronic illness#emotional resilience#energy management#equanimity and chronic illness#healing chronic fatigue#healing through mindfulness#managing ME/CFS#ME/CFS#ME/CFS community#mindfulness and energy#mindfulness for chronic illness#mindfulness for healing#mindfulness practice#pacing with chronic fatigue#pacing with illness#self-care with chronic illness#self-compassion#spiritual growth#spiritual practices for CFS#transforming suffering
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They need to invent a "I have to voice my needs & wants otherwise people won't know them." that doesn't put me through the same emotions as the first caveman being hunted by a sabertooth tiger.
#sorry know its ill fitting to this blog I just have to put it somewhere I woke up pacing my room in circles saying this to myself#like a mantra since i woke up.#Does anyone else experience primal nauseating guilt when having to voice that I would like something to be done for me or am i the problem-
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Here's a silly little comic I did in whiteboard >:) enjoy!
bonus whiteboard art below!


#“you cant kill an idea ol' sixer ol pal!”#CURSE THE TEN IMAGE LIMIT#ill have to slap more images on in a reblog#cus BOY i have more#the comic is actually longer than this but the pacing is weird so i opted not to post it#maybe when i fix it up fancy style ill do it XD#i have so many ideas about ford and the book of bill HA#my art#fanart#gravity falls#bill cipher#book of bill#theyre so divorced#ford pines#stanford pines#book of bill spoilers#whiteboard
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“Those two things can exist at the same time. Like you said, it's all—it's all tangled up together, you and me.”
double page spread for one of my favorite luzo fics of all time, poly philtatos (the most beloved by far) by my good friend - @swordsmans!
I knew I wanted to do a double page spread the second I finished this fic and I drafted abt a dozen ideas before landing on what would ultimately become this. There were so many snippets and moments I wanted to illustrate but I ended up doing more of an abstracted version of the fic as opposed to 1:1 drawings of scenes
funnily enough while the fic itself is told in zoros pov this spread is framed mostly through luffy’s eyes - his tears literally frame comp for their reunion, the moment he loses zoro, and the centerpiece of the first page which is this weird abstraction of him on the beach seeing zoros corpse-not-a-corpse in the waves just beyond his reach.
gyro put the crane wives’ never love an anchor on the playlist for this fic which i heavily used as inspiration in picking ornamental things for the spread (the anchor, the fleet of ships by luffy, and the nautical rope splitting the second page). also just like. overall really heartbreaking lyrics guys
there are smaller elements throughout the spread that are 1:1 references though (all i will say for these is if you know, you know hehe) i wish i had more time to do a lengthier piece for fanart for this fic bc it's one of the few luzo fics that have been rattling around in my brain forever now - once again please please please read poly philtatos if you haven't. gyro is a masterful writer and they deserve all the love! ok byeee
#i read this for the first time on a 18 hour flight and all i could do was pace the aisles and obsessively wipe at my eyes when i finished i#so i hope this conveys even 5% of that feeling#my design notes are like only 10% of what i want to say abt this fic. i am very ill#one piece#one piece fanart#luzo#zolu#zolu fic#monkey d. luffy#roronoa zoro#my art#one piece fanfiction#gear 5 luffy
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so I make mmvs for fun now and I just finished my second one (this one Witch Hat Atelier, the first was dungeon meshi) and thought I'd commemorate it by making some gifs of some of the video moments \o/ Full video: https://youtu.be/GNINFn8ssOg
#witch hat atelier#mmv#the pacing on this one is kinda meh but im soooo proud of some of the animation#spoilers thru chp 30 but more detailed breakdown in the comment#just to be safe ill tag it tho#witch hat atelier spoilers#wha
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i listen to fog lake too much
#falls through the ceiling with a mighty crash hello#it's been what...8 months?#I was too busy w uni and being mentally ill#thank u everyone so much for the tags on all prev posts.. i re-read them oaccasionally 💗#they make me v happy thank u for giving me a moment of ur time#that means so much#anyway! vashwood!!#i hate them so much#i want to eat them#i want to ugly cry#i want an ideal world where they could've had something for a little bit#im eating drywall and pacing around the room in a cold sweat#so trimax-atypical overt intimacy it is#more coming...in maybe another year#It's a big project!#to me. yeah#my dream is to be put in a terrarium for a while#if only u knew how many wips I have w vashwood..#maybe i'll get tired and pile them into one post all unfinished and no less ok for it yk#whatever u r doing doesn't need to be perfect to make someone happy#didn't u experience a positive little zap from my imperfect colored doodle rn?#what a speedrun of a drawing that was#(<spent 10h on it. that's the minimum for anything ever)#hope today is treating you well! so long stranger!#vashwood#vash the stampede#nicholas d wolfwood#trimax#trigun#tzarrz
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🩸 Practice coloring
I want to tug on his ears
#His arm is like that because i chewed on it .. No other reason ....#I like drawing weary scouts 8D#my art#artists on tumblr#art#fanart#tf2#tf2 fanart#team fortress 2#tf2 scout#Oh yeah .. I should also probably mention . Back to regular pace with art and scribbles now .#I have two modes : '' If i look at my art tablet ill vomit '' and '' Im going to draw until my arm falls off ''#And when both of them inevitably fall off .. ill use my super secret special third arm
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i love suguru geto because i love characters that ruin everything, characters that had it all under control until that one thing and made a choice to burn it to the ground and smile at the ashes
i love the sunk-cost fallacy perception of suguru geto, that to solidify his point and decision he killed his parents, because at that point he’d already killed so many and if he was truly going to go down this path, regardless of whether or not it would even make a difference, he wasn’t going to half-ass it and leave any doubt about who he was
i love the tragedy that everything he did, ruining his reputation and relationships, meant nothing in the end and he died with nothing, even died in the lense of pity from the one person who despite everything, loved him
i love that despite it all amounting to jack-shit, his ideology and choices haunt the story, they haunt gojo, they haunt his friends and colleagues and even if it’s because he was evil, his choices had an impact on everything and everyone around him.
i also love his slutty waist but this isn’t about that
#suguru geto#please i have so much to say about him#he makes me sick#violently ill over this man at all times#jjk#i need to yap and pace in circles#birdy talks
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imagine if isa's confession kept getting interrupted in increasingly bizarre ways…. ASFASDASF
((this stems from a stream silly!! with my friends!! we are streaming now!! its the finale!! info rbed in a lil bit!! yeah thats it!!))
#in stars and time#isat#isat spoilers#<- since option act 3 content. kind of?#uhhh ill tag those in the center??? i guess???#isat odile#isat loop#yeah everyone else is a bit tinier i think but so many ppl to tag otherwise so??#anyway!! yippee final stream today#ah what a journey#well it hasnt completed yet but it will today#there are still. several other sillies i wanna draw from those streams there are so many#but alas i only have a finite amount of time and energy#and the last third of the year is typically heightened in busy for me unfortunately :')#and i miss the silly lil modern office au..... its coming back i promise... soon....#so. expect even more isat stuff. and office isat stuff. but probably at a slower pace!#also side note i do think isa would be.#actually reacting more if it werent for the fact that siffrin#is just blocking him from running over SAFSADAF#umm! thats it! stream time WOOO
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girlfriends who date.
LINGLING SIRILAK as FAHLADA THANANUSAK and ORM KORNNAPHAT as EARN SANITHADA episode 6 of THE SECRET OF US
#the secret of us#the secret of us the series#the secret of us series#th: the secret of us#tsou#lingorm#lingling kwong#orm kornnaphat#thai gl#gl drama#girlslovenet#wlw#bibi gifs#bc this is my post i feel like i can complain#i didn't like this episode at all#the girls were so cute and sweet#but earn folded so quick#and lada didn't even apologize#it's really like sandray post mew's birthday party but ray was a 22 years old alcoholic and mentally ill#(in lada's defense tho she's also kind of an alcoholic mentally ill gal so maybe i shouldn't be this harsh)#STAND UP FOR YOURSELF EARN#(she did when she confronted lada's evil mom but yk what i mean)#the pacing was so weird idk#there are only two more episodes for gods sake help me
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a lone dracoknight
#fire emblem#fire emblem genealogy of the holy war#jugdral#fe4#fe altena#AAAAND TIME!!! SUB-ONE AND A HALF DAYS#if i keep this up ill almost be able to work at the pace of the average serialized mangaka (fear#nonetheless im quite proud of this :)
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people who hate slow walkers are ableist
#i don’t care if the reason u walk fast is because of adhd or some other disability its still ableist af to hate on ppl who walk slow#people never slow down their pace for me and it makes me feel so alone#I PHYSICALLY CANNOT WALK ANY FASTER BUT YOU CAN SLOW DOWN#ableism#me/cfs#pots#disability#invisible disability#chronically ill#cpunk#crip punk#cripple punk#myalgic encephalomyelitis#chronic illness
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WHSHSJSBSBNSJDJENERMJFJDJjnsbsjshejsjdjdndjdjejejejdjdndndjsbsndndhdjdhdjjhsbshsjsjhhhshdhhHshshjshshdh!/££:!:!:!;!:&3&;;&39;!’rjdidkekdofjdkeoekfjkwdjkdkdkekdkdsjj€|€]>\!|€|€}$~!~${${!|!{€~HEJENRNDNDNDBDHDJEJEHEHDNDNDNDMD!~!~!~€~€~!|!~!~!~!~!~!!!?! hi guys .hiiii friends
#CURRENTLY PACING MY ROOM BACK AND FORTH#EAUFGGHHRAIGHEJEJDJDHDNDNFNCNCMXMDM#PLEASEEEEE PLEASE . ILL SPEND SO MUCH MONEY ON THIS GAME#maple sashautism#sasha nein#<main tagging because the world must know . aughahahhahahahahaaaaaaa
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im so mad were never gonna get to see the characters doing horrifically boring things i want to see what 24 hours in the circus is like bc yeah theres the adventure but once caine leaves how DO you occupy that time. it cant all be fun i need to see them have an extremely uninteresting activity or no activity at all it makes me nauseous
#tangentially related but if glitch prod posted hours of pomni organizing papers into different files and drawers#id cry from excitement#pomni crunches numbers for caines most boring adventure yet and its 10 hours of pomni writing down numbers and using a calculator in silenc#id cry and cry from the joy im barely being hyperbolic here#i think abt pomni and this show and i ahve some sort of visceral physical response#gooseworx expressing concern at one pt b4 ep 4 aired that its More Boring. but its my fav ep for many reasons#one of which being that i LOVE when things are more muted while still being absurd#falls over. hoping theres another ep w a painfully boring adventure#i mean ill take a horrifying one too i liek that too but i love when things are boring in a not cute way#sidenote that i find the slower pacing of ep 4 very fun
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just saw someone say Rick Riordan making a TV show is just as bad as anything JKR has done. BFFR you're comparing Rick Riordan trying to make his world more inclusive, changing some parts because of money/time constraints, or just making changes cus he thinks they're needed, to JKR being a terrible person!
#and not to say Ricks work is perfect. ill be the firat to tell you his mistakes. his aspec rep is shit. his minorities rep has problems#he has general time line problems. im not says hes perfect but he tried from a good place#jkr named a character ChoChang. her Scottish character blow stuff up and tried to make alcohol. named a black character Shackelbolt#like damn get over yourself.#percy jackson#percy jackon and the olympians#percy jackson and the olympians#percy series#pjo series#pjo#pjo tv show#pjo tv series#pjo tv adaptation#if you wanna say shit about Rick ok. but be correct about it#how is he just as bad as jkr for not using the book he made in the early 2000s an exact script for the TV show being released in 2024?#and they yall had the audacity to be pissed when he didn't put a song about sex thats literally says `fuck her face° in the background of#LITERAL 12 YEAR OLDS in a place with memory altering properties..... thats whats you wanted. children getting high to a song about sex.#°oH bUt iN tHe mOvIe tHaT i WaTcHeD wHeN i waS tWeLvE' where the actors where like what 18? and weren't 12? that one? 🙄#some of you are getting on my nerves. yes the show's pacing is eh really thats a reason to curisfy Rick Riordan? thats what you're deciding#this is the line? a tv show thats on its first season and is more accurate then the movies that came out?#good to know
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I basically live my life in bed when I’m not actively doing other things. That’s the only way I have the energy to do anything at all ever. When I do one of my hourish rehab classes, I’m usually flat in bed for most of the rest of that day and the entire next day, because delayed-onset fatigue is a thing my life is defined by.
It’s not remotely what people think of when they think of “pacing”, but it’s much closer to the daily reality of most people who live with fatigue disorders than the “I take a break for half an hour then I’m fine to go on” people picture when they hear the phrase.
I have heard the word “pacing” at almost every medical appointment I have ever mentioned fatigue at, and never yet had the slightest advice on doing it. Not even the ongoing CBT and Mindfulness websites recommendations I get if I ever mention low mood etc. The term is applied as a panacea by people who have zero understanding of what “pacing” is, how to achieve it, or what it actually means in the context of most fatigue disorders. Or how much pushback most people with those disorders will have when actually trying to implement it, because most people, including healthcare professionals, parse resting as “not trying”.
For people with fatigue disorders, pacing is *radical* in its effects on capacity. It lets you actually have some life, which is the big thing fatigue disorders feel as if they take from you. But we are stuck figuring it out for ourselves against enormous pushback.
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