#Flare up
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disabled-dippy · 3 months ago
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things to put in a dysautonomia emergency bag/cart ✿
having one place (near your bed preferably) where you can keep all the essentials for bad symptom days has been absolutely key in getting me through those bad days. these are some ideas for what you can put in yours, if you want to make one as well!
prescription medications
painkillers
antacids
anti-diarrheals or laxatives (maybe both)
salt pills or packets
electrolyte drink packets (the powdered stuff)
disposable water bottles
salty snacks
compression socks
pulse oximeter
blood pressure monitor
mini electric fan
ice pack
heating pad
hand warmers
change of clothes
sweatshirt
gum or mints
alcohol wipes or hand sanitizer
disposable toothbrushes
floss
mini hairbrush
dry shampoo
wet wipes
sunglasses
noise-cancelling headphones
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calmmyfears · 1 year ago
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when rest and "lazy days" stop being optional, you eventually stop enjoying it. i don't even know how to relax anymore. there's barely any relaxation in rest for me, it's all forced by a sick body.
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brandyschillace · 1 year ago
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Today I will list the things that cause a sudden flare up of my condition:
1. Nothing.
Like for real, it’s the butterfly effect, it’s ocean currents, it’s nothing or everything—but I can tell you what it’s not. It’s not my ‘fault’ or due to some laxity of routine. Chronic conditions gonna chronic.
Have one? You don’t have to play 20 questions with yours either. Stuff happens. ❤️
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tired-cripple-punk · 1 month ago
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It’s Ehlers-Danlos awareness month and I am very aware right now
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decayflux-protocol · 1 month ago
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Chronic illness culture is trying to not overdo it but because of all the mental stress going on, you don't notice any symptoms, so you're wondering when you'll crash; because the flare-up just isn't showing up...
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disabled-planet · 6 months ago
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Having an undiagnosed condition makes it difficult to feel valid, I get it. You don’t know where you’re headed in life. You feel like everyone doesn’t believe you or label it as “stress” or “anxiety”. It’s draining and frustrating, I feel that.
Reminder to those without a diagnosis for any reason, especially if it’s so far, difficult to address due to your symptoms. You are valid, so valid. Also, you are still disabled even without a diagnosis.
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akindplace · 2 months ago
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you deserve more than to put up with pain. you deserve more than just “getting used to it”. I hope your pain eases soon and that you can find a way to make yourself feel a bit better, to make your flare ups decrease. please don’t be so hard on yourself when you are already struggling with a lot of pain, and i was talking about physical pain since I’ve been having a flare up but this goes to anyone struggling, be it with physical, emotional or psychological pain. you deserve better than to just bottle it up. you deserve the help you need and I hope you find it soon.
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solangelo-is-godsdam-kjut · 3 months ago
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my body is currently putting a hell of a lot of emphasis on the ill part in chronically ill ugh
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truly-a-snitch · 5 months ago
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(spends all day out)
my disabilities:
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chronicillnesshumor · 6 months ago
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currentlyfreebleeding · 5 months ago
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me, undiagnosed for the first 21 years of my life, not knowing what a flare up is:
huh i wonder why i get sick for a few days after every exam season. huh i wonder why i get sick for a few days after every tennis tournament. huh i wonder why i get sick for a few days after every tech week. huh i wonder why i get s
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theofficialastronomy101 · 1 year ago
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Such incredible photography of our Sun! Absolutely stunning, beautiful and scary.
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⚠️Be sure to click on photos to view in 8K quality, the quality will not load until photo is actually clicked on, tumblr is responsible for this feature.
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matchakuracat · 1 year ago
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No you don't understand what it's like for me. You won't understand what it's like to be chronically ill unless you've personally experienced being chronically ill yourself.
You don't need to fully understand or relate to someone's experience to be empathetic and listen to them.
Saying that you understand when i know for a fact that you don't doesn't make me feel better. Actually listening to what I'm saying does.
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tired-cripple-punk · 27 days ago
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Ehlers-Danlos awareness month is ending, but my current flare up is going to make me aware for a lot longer
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slveepyscwrs · 9 months ago
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my joints after the slightest physical exertion be like:
ouch ouchie ouch ouch ouchie ouch ouch ouch ouchie ouch ouch ouch ouchie ouch ouch
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kittycommitte · 4 months ago
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You have survived 100% of your worst flare days, and you will survive this one. Just hold on.
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