#Functional Neurological Disorder

[asexual-amanita]

Unpopular opinion

I don’t want a self driving wheelchair that can go up stairs. I want ramps elevators, and curb cuts.

I don’t want a solution in 20 years, I want it now. I wanna be able to go to the mall with my friends and not have to worry about stairs. I want to go the movies and actually chose where I sit. I want to go to a park without having to parkour my way through cracked pavement and curb drops.

I want accessibility and I want it today.

[love-me-love-my-weirdness]

Shout out to the ten year old who just got diagnosed. Shout out to the housebound fourteen year old. Shout out to the eighteen year old who can’t go to the university they wanted. Shout out to the twenty two year old who can’t get a job. Shout out to the twenty six year old with a caretaker. Shout out to the thirty year old who can’t buy their own house.

Shout out to young disabled people. We exist.

[stuffieautism]

if you didn’t realize, ableism is actually bigotry and systemic ableism and inaccessibility are really oppression and it’s not something disabled people brought on ourselves by having bodies&minds that you think are inferior and therefore not worth fighting for. disabled people’s lives and wellbeing matter. we don’t have to earn our worthiness by doing “enough” to deserve a good life. nobody does.

[forystr]

NEW/NORMAL : a comic about becoming disabled in your twenties

My name is Fraizer, and I'm the artist behind forystr. I have Functional Neurological Disorder.

[justsomerandomgay]

something that isn’t talked about enough with chronic illness is knowing that going to your appointments and doing your exercises and all that will help but being in too much pain or too fatigued to go, so your just stuck in this constant cycle of knowing what you need to do to get better but not being able to do it because your sick

[mxmorbidmidnight]

I’ve never seen younger people using canes. That is why I use my cane with pride so that I may be the person that assures another that they have a right to stability. They have the right to the independence and support of a mobility aid. I hope that by living my life as I choose I may be able to drown out some of the rampant ableism being fired at the youth of our community.

[mami-chaos]

Normalise mourning the life you may have had before chronic illness took over.

[faintinggoatsyndrome]

Hi! If you’re flying with a wheelchair anytime soon,

please let me give you some tips from my experience!

1. Before every flight/between every offload & onload: take pictures of your wheelchair from all angles and make sure you can see the airport in the background!

— this is KEY to have evidence in case something gets broken and you have to open a case.

2. Add a luggage tag to your wheelchair so it is identifiable.

3. If you have layovers/if your wheelchair needs to be returned to aircraft door; you have to make it so clear a toddler could understand.

• Example: extra label on your physical wheelchair saying so, ask at gate, ask flight attendant beginning of flight for it to return, remind attendant when landing to call for it to for sure return.

— the orange wheelchair tag has not proven enough for many people, making me lose my wheelchair twice in one trip even though my label was TRIPLE CHECKED at the gates. Write it on a strip of ducttape onto your chair I don’t care; mark it clear and loud.

4. If you have removable foot rests: take👏🏻them👏🏻off👏🏻

— these can get lost. Learned the hard way. Take them onto the plane with you. I’ve never been refused to bring these onto my flight along with carry-on/personal item.

5. Get those get push rim covers!!

You can get them for +- 20 bucks on Aliexpress/Amazon. Your push rims will slide across that storage space and it will get scuffed or even splinter.

BONUS: makes it an identifiable wheelchair! I can always clarify with mine ‘the red wheel one with all the stickers’

Reblog to save someone’s right footrest from ending up in some random Californian airport!

[asexual-amanita]

MOBILITY AIDS AREN’T BAD FOR FND PATIENTS!

Many FND patients have been told that it is unwise to use mobility aids because it will “encourage the brain to keep producing symptoms.” This is based on the idea of conversion disorder, made by Stinkmund Freud, which has been since been disproved.

Despite this idea, my experience with using mobility aids is much different than what doctors told me it would be. Personally, using mobility aids and supporting myself has actually lessened my symptoms, and, most importantly, the impact they have on my life.

My wheelchair has been the most helpful of all the mobility aids I’ve had. I started using my chair because of my paralysis, but it’s done so much more for me. It’s eliminated the worry of being stuck somewhere and not being able to walk, and prevented me from many falls.

I also used crutches and a cane once upon a time, and they helped me greatly with my needs back then. they provided support and stability, and I found that they helped me get out of flare ups easier and gave me more energy to expend on things I actually wanted to do.

Of course, what’s right for me may not be right for you. Everyone’s FND is different and will react differently to mobility aids. But I don’t want anyone to think that mobility aids are always out of the picture for usage in management of FND.

Lastly, using a mobility aid without any medical guidance can be dangerous. It’s important to get in touch with a professional who can help teach you how to use the aid. If you don’t have access, make sure you do thorough research on the topic from reliable sources.

[love-me-love-my-weirdness]

Sometimes I don’t think people get that chronic means chronic. It means forever. I’m going to be stuck with this for the rest of my life and I’ve had to learn to make peace with that myself. Telling me ‘hope you get better soon’ and ‘it won’t always be like this’ is pointless because you’ve completely ignored the definition of chronic illness.

[arcticduckie]

Shoutout to people with Functional Neurological Disorder

Shoutout to people with functional tics

Shoutout to people who have dystonia

Shoutout to people with Psychogenic non-epileptic seizures

Shoutout to people with paralysis and or weakness

Shoutout to people with tremors

Shoutout to people who shut down/unresponsive episodes

Shoutout to people who have walking difficulties

Shoutout to people who have numbness

Shoutout to people who have speech problems

Shoutout to people with vision problems

Shoutout to people with hearing problems

Shoutout to people with memory loss

Shoutout to everyone with FND

[a-totally-reasonable-username]

Me thinking: should i really wake up my mom to make me a hot water bottle right now? I'm not that shaky. I think. I'm not that badly out of it either, am i? It's 4am i don't want to wake her up i can totally do it myself!

Me, remembering my mom nearly begging me to please wake her so she can pour the hot water instead of waking her up so she can drive me to the hospital for burns:...

Me: you know i think i'll just wake her up real quick

[justsomerandomgay]

getting disabled over a period of time is so weird, because sometimes i’ll just see something, let’s say about running, and think “i should do that!” and then i slowly realise that i can’t run anymore. i can barely even walk. it’s weird because there wasn’t one event that happened that made me like it. there wasn’t a day where i woke up and couldn’t run anymore. it was slow and gradual. and sometimes i realise how much ive lost that i didn’t even realise because it all happened so gradually. sometimes it feels like yesterday i could run and today i can’t, and sometimes it feels like forever ago that i could.

[saltyfoxes-artist]

"Oh I have such a cool idea for a piece of art"

I then get shots 57 times by the chronic pain demon who hates me drawing

[andr3yvishn3vsky]

Not all seizures are epileptic, and not all non-epileptic seizures are PNES. Hope this helps!

[thefundisorderdiary]

This disability pride, in honour of my grandma, who gets mad when I call myself disabled, please reblog and scream:

I’M DISABLED

In whatever way you like, just do it. Get it out there, combat all the people who don’t like you using that word!