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does anyone who is housebound have any recommendations for sorting out new glasses ive just broken the arm of my only set.

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When my pain first started I was told itd proably be gone in five after puberty settled years and it didn't make it better it just made the five year mark even more unbareable.

when people say “maybe in ten years there will be something to fix you!” I roll my eyes because while ten years is a short amount of time to them it is an eternity of living in very real pain every day for me

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I personally think that for pride month disabled gays should get a discount on hoziers born sick merch

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TOO WARM

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looking at trying out wheelchairs and i know there's loads of important things to consider but also I just wanna pick cool looking ones

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something that really stuck with me when I first was starting to realise I needed a carer and really didn't want to was my friend just going well don't think of it like a carer, think of it like having a cleaner and a private chef, and support staff like rich people do just cause. and honestly this not only made me feel much more comfortable about needing help but also highlighted how while disabilities will always suck money is a much larger quantified of quality of life with them

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Putting together a list of things to get through summer with POTs feel free to add:

cold towel things that keep you cold

spray bottle of cold water

Ice cream (my nutritionist informed me it counts towards my liquid intake)

Double hydration tablet intake

stay in shade as much as possible

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got a bean bag so I wasn't in bed all the time. spilled bean bag beans all over carpet floor. remembered I have bad fatigue as I almost passed out after 2 mins of vacuuming

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the news today has been depressing as fuck but I'm gonna reiterate something I've stood by since I became disabled. We cannot fight for disability rights without fighting for trans rights. No one deserves to be limited by how a law views their body.

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I'm putting together a basket of flare up and panic attack things which I'm gonna try and keep in the room with me. I've got ice pack, heat pack and stim toys. I NEED more suggestions!!!!

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Im not medically housebound, If i had a powerchair I'd be perfectly capable of going outside independently. But I don't. So I am housebound. I haven't visited friends or family in a year. I havent been to the shops in 6 months. I wasn't aware that you could be housebound without it being a medical problem until this happened to me. I can't afford a powerchair that works for my pain and I'm from a well off family. I don't qualify for one because my house isn't accessible from the government. So I'm housebound and very angry at the government

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I don't want to be immortal through ai or some other form of technological reproduction of my body and mind. I want to be immortalised through archives, the work i have chosen to produce, and the impact I had on others.

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Disabled rights and queer rights are inseparable

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My clinic for ME has lost all of its funding as of new budgets and is shutting down in March permenantly. it is the only one within hours of my house. NHS reforms cannot come soon enough

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As a disabled person i often wonder if i exist, not in a existential dissociative way but rather I'm not in any of the history I study at degree level. in the way my school didn't know what to do with my disabilities cause they weren't conventional enough. in the years of a literal invisible disability and now it's visible I'm house bound. so I ask do I exist

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I need a wheelchair, an electric one at that. I've been unable to walk more than 450 metres on a good day since August. I see posts all the time about getting to do fun things again once you have a wheelchair but all I can think about is actually being able to get to the gp, opticians and dentist and maybe if im lucky my seminars. And yet all the people who are supposed to help me are worried I'd become too reliant on it and the waitlists are a year under the nhs. I cannot see properly! the fucking difficulty to get a wheelchair that I'm still insecure about wanting is joke.

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As a disabled history student I'm constantly reaching the conclusion from all angles that I've have effectively been diagnosed with rebranded hysteria

It's so funny to be diagnosed with "Pain We Can't Find The Source Of Disorder" or "Brain is Physically Fucked and we Don't Know Why Disorder" or "We Don't Know Why You Have Seizures Disorder" and instead of more research, tests, etc being performed, you're told to get Cognitive Behavioral Therapy. Bonus points if your diagnosis of Exclusion was the 1st-3rd conclusion your doctor came to.