can-it-be-nap-time-now - Tumblr blog

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A doctor explained fibromyalgia really well to me the other day so i thought I’d share:

Fibromyalgia is a condition affecting the nervous system, usually triggered by a trauma - this can be a medical trauma, physical or emotional trauma.

Following an adverse experience, your nervous system becomes over active as it tries to avoid another trauma, and so at the slightest sign of stress - exercise, tension, negative emotions, etc - it sends pain signals so you’ll stop.

The weird thing is, if you’re doing something and enjoying it, the nervous system is less likely to freak out because you’re happy and releasing endorphins. This is why some days we can do lots and others nothing at all!

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Going to the doctors with chronic pain is so weird cause like normal people go praying it’s nothing major and i go in hoping it is cause otherwise i look crazy

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One thing i wish the chronic pain community talked more about is the mental health flare ups as well as the physical

I can go a year accepting and managing my illness but then a minor stress will cause me a depressive episode and I’ll spend a month constantly crying over the fact that my pain will be chronic and lifelong

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Therapist: you can’t say that you’ll be in pain for the rest of your life! You don’t have a crystal ball!

Me, diagnosed with an incurable chronic pain condition:

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Losing friends cause of you chronic illness is weird cause like i know if i cancelled on you cause i had a broken bone or something you would understand

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I really don’t understand able-bodied people like… what do you do all day?

What do you do with your free time?

Like what i can spend a whole day crying cause i took a shower and overdid it and you’re just out there surfing n shit?

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At this point I’m pretty sure that God has given my voodoo doll to his dog to be a chew toy

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When the doctor asks how you are and you just have to… like…

Oh y’know, not good

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Me going to bed after a busy day knowing imma have a MIGHTY flare up when i wake up

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Me when i meet someone else with a chronic illness

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The problem with chronic fatigue is that today i had to choose between showering and making my dinner… and i realised i had fucked up the second i stepped out of the shower

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“What doesn’t kill you makes you stronger!”

Me, unable to wear clothes cause the feeling causes pain, relying on my mum to look after me and drinking from a sippy cup: “wow i feel so strong right now”

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The worst part of being chronically ill is birthdays.

Like everyone’s celebrating and yeah there’s cake but also I’m one year closer to being in a wheelchair and shit

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Fatigue: you can do it but you’ll be in QUICKSAND MOTHERFUCKER

Me: Awesome! Low pain day! I can do stuff! Depression: Are you _sure_ about that? Anxiety: (holding a baseball bat) I can think of 8000 things that can go wrong when doing stuff. ADHD: I can get stuck in an endless loop of knowing what can be done while not moving. Brain Fog: And I’m just here. Always. Making you tired. So tired. Me: Fuck.

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Me after the shower i thought i had enough spoons for:

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Me @ myself, my body, my doctor, my boss, my parents, the NHS, and just people in general

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Endometriosis takes the whole metaphor about your uterus being a partner wanting/preparing for a baby to a whole other level

Like yes my partner doesn’t set up one nursery it makes EVERY DAMN ROOM a nursery like even the kitchen and the weird cupboard under the stairs