chronicallyillandcoping

[chronicallyillandcoping]

Warning : cringe pots themed valentines pick up line

Are you standing up?

Because you make my heart race

Happy valentines day to all my fellow disabled and chronically ill people out there. I hope you all have a manageable symptom day :)

[chronicallyillandcoping]

I’m sick to death of hearing “see! Accessibility benefits everyone, not just disabled people/mobility aid users/chronically ill people/etc!!” That shouldn’t matter. Even if the only people in the world that would benefit from an accommodation are disabled people, we still deserve it. I’m sick of non-disabled people constantly being centred and catered to with accessibility content. Every time someone makes an add-on to a post about an accessibility device or whatever, it just feels like they’re saying that our needs aren’t enough to warrant accommodations, it has to benefit non-disabled people too. We deserve accommodations no matter if non-disabled people can benefit from it.

[chronicallyillandcoping]

Does any one else have small little lies they tell about the medical side of their chronic illness that just makes their lives easier?

Usually when people ask I'll just say i have a condition called POTS and its a nervous system condition that impacts my heart rate.

But if a person im talking to isnt understanding that for example they can't for whatever reason grasp it is a nervous system condition or if i know their response to my explanation will be invalidating i have a really bad habit of just saying i have a heart condition.

Which i know is wrong because it isnt true but a lot of the people i meet who will ask about it dont want to be educated they want to know why i look like im going to pass out all the time and sometimes i just dont have the energy to explain it properly 4 or 5 times just for someone to go are you sure you arent just anxious.

Simply saying i have a heart condition and sometimes when i stand or get hot my heart rate spikes and it makes me dizzy although is wrong is so much easier.

[chronicallyillandcoping]

[chronicallyillandcoping]

[chronicallyillandcoping]

Being chronically ill is like

“It’s fine”

“It’s fine”

“It’s fine”

*complete mental breakdown because you can’t do this anymore*

“It’s fine”

[chronicallyillandcoping]

New favourite thing to do is to remind people of how much they hated lockdown when they say they wish they could stay home as much as I do.

Like no you dont you were miserable when you were forced to stay home all day everyday for the good of your health. Thats my entire existence as a disabled person so pack it in.

[chronicallyillandcoping]

can they invent a mobility aid that helps with the joint pain & also does NOT cause different joint pain in a different area from use

[chronicallyillandcoping]

Not me having an internal breakdown at the bus stop because its dawned on me that there hasnt been a single moment in the past 4 years where i haven't been in pain. Then having to get on the bus and go about my day as if my life isnt and wont forever be ruled by my disabilities.

[chronicallyillandcoping]

July is disability pride month.

Please keep in mind that not all disabilities are visible.

If someone says they're disabled listen to them no one should have to lay out their entire medical record to be believed.

no one is too young to be disabled.

Stop suggesting cures for disabilities you know nothing about.

disabled is not a dirty word.

[chronicallyillandcoping]

The love i have for KT tape is unmatched but it has highlighted a wider issue surrounding the cost of things that make life for disabled people easier. I dont know if its just my area but i went into Boots (a shop here in the uk) and a single roll of pre cut KT tape cost £14. Today i've gone to use it and its not very good in terms of stickiness. I know from experience i can order it cheaper online, but not by a lot. I understand there's a cost of living crisis and inflation is one the rise but vital components to disabled peoples lives are becoming unaffordable especially for a group who experience high levels of poverty.

[chronicallyillandcoping]

this disability pride i wanna keep in mind the disabled people who are in a difficult situation because of their disability. people who were made homeless because of their disability, people who are stuck in abusive homes and can't get out because of their disability. people whose disability was used against them to facilitate abuse, like taking away their autonomy - medical, legal, or otherwise - taking charge of their finances, taking advantage of their vulnerabilities. it's reasonable to think that a lot of disabled people, especially disabled people in difficult circumstances such of these, would struggle to connect with the idea of disability pride. but pride or otherwise, this month should also be disability solidarity month. this month and every month is for all disabled people in all sorts of circumstances

[chronicallyillandcoping]

good morning disabled beloveds <3 reminder that you dont have to be in x level of pain before you use things that will help it . please make things gentler for yourself today

[chronicallyillandcoping]

This! My dms are always open for friendships (no minors please)

Reblog this if it’s okay to DM you and shoot the friendship shot.

[chronicallyillandcoping]

I dont know about any other disabled individuals but for me standing still is a lot harder than walking. If im walking im distracted. I can mask the pain by focusing on just getting to my destination but if im standing still the pain is obvious to me. Right there begging me to sit down or give in. Id rather walk (within reason) than stand still.

[chronicallyillandcoping]

it shouldn't be a controversial take but:

disabled people are allowed to hate being disabled

[chronicallyillandcoping]

Shoutout to my medication, without it I absolutely would not be able to function.