#chronic disability

[matchakuracat]

Being asked to rate your pain on a scale as someone who has had chronic pain for several years is so difficult. Like how am I supposed to rate the pain I am experiencing from 1-10 when I have no idea what it feels like to not be in pain. Like what is 0? what is 1?? what is even 10???? What am I comparing it to???? My 5 can be someone else's 10 and their 10 can be someone else's 2, and how is a doctor or anyone else for that matter supposed to tell the difference? Maybe it's because I'm autistic and I'm just overthinking it but it literally makes no sense to me.

[pleastrop]

I was talking to my mom about mobility aids and also said that I am going to buy compression socks/gloves and she got SO mad, she told me those things are for old people and that I'm not going to use any of those things, even if I pay for them myself, all because "you're only 19, you DON'T need them!!" I'm so tired

[mercyandme007]

service dog registrations are fake - education post one

So i have not seen a whole lot of service dog content on tumblr and as a service dog handler I would like to see more so i thought i would also start typing facts about service dogs on here to help educate the public. Todays fact is that service dog registrations are fake. Now what the general public thinks of as a service dog is potentially two things. A well behaved lab or Golden wearing a guide harness and or program vest that is probably blue, red or yellow. The dog is in a heel while being feed treats for being a good dog and focusing on the owner. The second "service dog" is a small dog in a Walmart shopping cart barking at everything that does and does not move. When the Walmart employee asks about the legitimacy of this "service dog" the owner pulls out a registration card. The employee does not know that ADA laws so she allows the pet dressed up in a service dog vest to go into the store. So im going to talk about "service dog" number two. The ADA law states that a service dog is not required to show any form of proof in writing or patches that it is a service dog. This includes registrations because the ADA (Americans with disability act) does not recognize them as a valid way to prove a service dog. So if service dog registrations are a scam how do i go get a real service dog. Task one you must have a disability. No matter how severe if it impact you even a little bit and you think a service dog could help you, your on your way. A service dog must me task trained to mitigate your diability. what ddoes this mean, it means that your dog will directly be trained to help you manage your disability. Like it you have chronic pain your dog might do fmp (foward momentum pull) to help preserve your energy. or if you are diabetic your dog might alert to high and low blood sugar and retrieve a diabetic kit for you. However to sum up this post please dont just go buy a service dog vest and slap in on your pet. This cause cause trouble for the people who have real service dogs. along with the fact that it gives real service dogs a bad reputation. thank you for reading if you like this please hit the like button and go follow my Instagram @/mercy_and.me

if you would like to learn more about diability and service dogs go to ada.gov

[thedisablednaturalist]

Guys Jansport adaptive backpack is on sale for 32% off on Amazon right now (blue color, pink color is on sale for 24%). The usual price is $70, right now it's $47.

[something-existing-somewhere]

Sorry I Spent all mY spoons this week already and it's fucking Tuesday. We're heading to the knives

[tumble-tv]

"kill them with kindness" WRONG run them over in your wheelchair 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽

[cosmiccripple]

idk who popularised the narrative "i don't let my disability stop me" but it needs to be stomped on, pulverised by a meat grinder and then thrown into the depths of the sea never to be seen again.

it is by far the most popular ableist narrative and i see it so much and immediately just think i'm a bad person for not being able to 'get over' my disability despite the fact it's an incurable, permanent and severely disabling disability.

stop stop stop stop pushing the mindset that people have to persevere despite their disabilities in order to be a worthy person

leave me alone and let me be disabled in peace

[narcatsisst]

something i think a lot of able bodied people dont understand is that being chronically ill affects your emotions. constantly being exhausted and feeling bad is going to make you sad or depressed or angry or jealous. constantly being in pain is going to affect your mental health. never feeling "good" is obviously going to affect the way you act.

[violet-phoenix-nebula]

When someone has a chronic illness or is disabled and can't work, they say a few common things.

It must be nice to sit around all day/sleep all day.

I wish I could sit around all day and not work.

I wish I could sleep all the time.

They don't want to sleep as much as we have to. They'd feel sick and sluggish.

They don't want to sit around the house all day not doing anything. They'd be bored out of their fucking skull.

It's so unbelievably fucking frustrating, but there's a fundamental lack of understanding.

They liken our lives to a vacation, imagining that it's fun and relaxing and we can do whatever fun things we want to all the time.

In reality, it should be likened to an extended hospital stay. You can't do anything and you feel like shit.

[jemineye]

i cant stress this enough, disabled people know their own limits. i fucking promise you. we are not being lazy or jerks because we won't do something YOU want us to do or something YOU THINK will make us feel better. it wont. stop.

[chronicallycouchbound]

I’m allowed to be lazy. Disabled or not. Laziness isn’t an inherently bad thing y’all just too caught up in hyper capitalist hustle culture to care. I don’t owe you productivity. I’m allowed to rest.

My rest is radical.

[spoonful116]

The most punk thing you can do as a disabled person is love and value yourself and not push yourself past your limits for the sake of other's approval

[pleastrop]

I say we start treating able-bodied people the way they treat someone chronically ill

"oh? you got ran over by a car so you can't do the groceries? but did you try hard enough? like if you wanted to you could, you're just being lazy. the same happened to my cousin's boyfriend's dad's friend and he's okay, stop with all the exaggeration!! it was just a car, there's people who got ran over by a bus, don't be selfish. did you try doing yoga yet? also, this special herbal tea I saw on facebook will totally cure you"

[penelopeunfiltered]

The four genderz 🙃

[thedisablednaturalist]

Doctor red flags:

-Mentions weight loss, exercise, nutrition, mental wellness, before any physical examination/testing

-interrupts you

-tries to rush the appointment

-laughs at you

-says you're too young

-Touches you without warning or asking for consent (common with older male doctors unfortunately, but is becoming less common)

-accuses you of self dxing/mentions dr. Google

-mentions anything about powering through the pain

Do not be afraid to drop a doctor/caregiver and see a new one. Doctor shopping is a term made by ableds who believe every doctor is perfect. Your health is precious and you should only trust those you're comfortable with to take care of it. Do not feel bad about offending the doctor. They do not care. They won't harass you or question you (if they do then that's..probably illegal). I know its hard with some insurances or lesser served areas so don't feel bad if you can't, but if you have the option to do so do not be afraid.

Extra tip: Most doctors will behave themselves if you bring an advocate. Even just having a friend sit quietly will help.

[chronicallyillandcoping]

wishing everyone a low pain and manageable symptom day youve got this.