i-say-stupid-things

[i-say-stupid-things]

r u grassy ?

i’ll be so honest, i have no idea what this means

[i-say-stupid-things]

"FUCK EVERYTHING HURTS" I scream, remembering I have the Everything Hurts Disorder

[i-say-stupid-things]

not weird at all!

people taking a moment to give a response can make it feel like they actually thought about what you said and how they should respond, instead of feeling like they’re giving a copy-paste response. it feels more personal!

personally, i think that’s relatable

what is it with able bodied people saying “get well soon” after you say that you’re chronically ill?? like? i am not gonna? and i once literally responded with “i’m not gonna, it’s chronic, as in permanent.” and they went like “oh well, hope you get better!” like bro 💀

[i-say-stupid-things]

very true!

however, who i was talking about isn’t a stranger, i see them regularly and am certain they know ‘permanent’ means i won’t become healthy again ^^

unless it’s someone i know, i typically just thank the person wishing me to become well again. since they don’t really need to know, but with people i know/see regularly, i don’t want there to be false expectations/hopes…

but an important addition nonetheless!

what is it with able bodied people saying “get well soon” after you say that you’re chronically ill?? like? i am not gonna? and i once literally responded with “i’m not gonna, it’s chronic, as in permanent.” and they went like “oh well, hope you get better!” like bro 💀

[i-say-stupid-things]

i’m gonna hold your hand with a glove on when i say this

when disabled/chronically ill people tell you they can’t do something, then that is not your cue to tell them that they can actually or that they’ll always find an excuse if they’re looking for one.

when a disabled/chronically ill person says they can’t do something, sometimes that doesn’t mean it’s outside the realm of possibility, sometimes it means if they (attempted to) do that, they will seriously hurt themselves.

when a disabled/chronically ill person says they can’t do something, sometimes it’s preventative care, and they refuse to do that thing to prevent a flare up from happening/their symptoms getting worse in the first place.

disabled/chronically ill people are not “looking for excuses”, they are giving you reasons why. something they don’t even have to do! so maybe just accept the reasons they give you.

[i-say-stupid-things]

[i-say-stupid-things]

Chronic Illness culture is..

[pt: chronic illness culture is ]

Hello and welcome to this blog, a [blank]-culture-is blog for chronic illnesses!

There's only one mod for this blog, and my name is Milo! I use he/she/it pronouns, and am a DID sys host. I have hEDS, POTS, chronic Migraines, and VWD type 3. :)

Alright, time for the Rules:

[pt: Alright, time for the Rules: ]

- All asks (aside from questions about the blog and the like) must start with "chronic illness culture is", or "[insert specific chronic illness here]".

- If you have something triggering in your submission, please add a TW!

-Any kinds of chronic illnesses are allowed! Wether that be diabetes, MCAS, fibromyalgia, and so on!

[i-say-stupid-things]

i’m gonna hold your hand with a glove on when i say this

when disabled/chronically ill people tell you they can’t do something, then that is not your cue to tell them that they can actually or that they’ll always find an excuse if they’re looking for one.

when a disabled/chronically ill person says they can’t do something, sometimes that doesn’t mean it’s outside the realm of possibility, sometimes it means if they (attempted to) do that, they will seriously hurt themselves.

when a disabled/chronically ill person says they can’t do something, sometimes it’s preventative care, and they refuse to do that thing to prevent a flare up from happening/their symptoms getting worse in the first place.

disabled/chronically ill people are not “looking for excuses”, they are giving you reasons why. something they don’t even have to do! so maybe just accept the reasons they give you.

[i-say-stupid-things]

🫧Hi! Have some bubbles! 🫧(I love bubbles)🫧

i’m seeing this so late omg i apologise!

thank you so much! that’s very sweet :) bubbles are very nice 🫧

[i-say-stupid-things]

you’re so right actually! thank you :)

i recently talked about this with my partner and they reminded me that things like this (things that aren’t gonna change or get better or rather go away again) are the kinds of things we should especially talk about & not just suffer through them in silence, since talking about it can be its own kind of relief! and also since it lets the people around us know if we might need more accommodations/support on a given day!

thought i’d share some of their wisdom/advice(?)

having chronic pain sucks. and not only for the obvious reason of always being in pain, but also because i feel like i’m annoying whenever i bring it up.

been more aware of my pain today? don’t bring it up, you’ll be annoying!

scared i’ll be flaring up tomorrow cause it feels like i’ve overdone it? don’t bring it up, you’ll be annoying!

in a flare up & it really sucks? don’t bring it up, you’ll be annoying!

also it feels like i’m putting the other person in a shitty situation, cause they’re gonna feel bad or pity me and if they wanna help, most of the time, they can’t… so why even mention it in the first place

[i-say-stupid-things]

[i-say-stupid-things]

having chronic pain sucks. and not only for the obvious reason of always being in pain, but also because i feel like i’m annoying whenever i bring it up.

been more aware of my pain today? don’t bring it up, you’ll be annoying!

scared i’ll be flaring up tomorrow cause it feels like i’ve overdone it? don’t bring it up, you’ll be annoying!

in a flare up & it really sucks? don’t bring it up, you’ll be annoying!

also it feels like i’m putting the other person in a shitty situation, cause they’re gonna feel bad or pity me and if they wanna help, most of the time, they can’t… so why even mention it in the first place

[i-say-stupid-things]

Being neurodivergent and chronically ill is crazy because you already have issues with executive functions and then your body hinders you even more. AND your sensory issues are heightened by the pain you feel.

[i-say-stupid-things]

being on call with friends while i have the base pain level i’m used to and all of a sudden i get stronger pain in a part of my body…

overcome with the urge to curl up and cry

[i-say-stupid-things]

My life isn’t on hard mode, it’s on super duper really really hard mode, like autism I can deal with maybe. But no that’s not enough! Adding a sprinkle of chronic illness was needed apparently, as well as a dose of social anxiety, so many different mental health issues popping up over last five years AND having to deal with homophobia and transphobia because I’m queer and trans??? LIKE PLEASE JUST GIVE ME A BREAK

[i-say-stupid-things]

(in the voice of a non binary person who is also chronically ill/disabled) baby my body betrays me in ways you couldn’t even imagine

[i-say-stupid-things]

OK this was dumb of me but I thought some people had days where their symptoms weren't as bad and they felt a little better and that's why I tell people I hope they feel better soon

hi! that’s not dumb at all! i promise! that is actually how it is! some people will have days that are better and might even have days where they feel “healthy”!

my problem isn’t with wishing someone to feel better but wishing them to get better, as “getting better“ sounds like telling them you hope they become healthy soon (which they won’t) but “feeling better” is just about symptom stuff, like feeling less fatigued or feeling less pain! and in my eyes that is absolutely okay and a nice sentiment