iammadelinepod

[iammadelinepod]

I'm in Canada with longviral Epstein-Barr myalgic encephalomyelitis and my health care is also a GoFundMe. I'm staying alive month to month(have been for years now since I ran through a $45,000 debt window on medical expense) which is terrifying And it's absolutely destroying my resiliency

Most recent podcast episod; BC millions missing protest May 10th

Updates on my situation are in GFM

Petition Now has 1272 signatures but needs at least 2,000 and I'm hoping for 10,000. Worldwide signatures welcome

Journalist YouTube related to petition and created for the petition press release

Most recent media article: Canary UK December 2024

If you can share any or all of these links that would be amazing. Oh and if you're wanting to know why I'm in this situation in a country that's supposed to have universal health care, there are links in the additional resources of the petition to gender bias in research and you'll see in the petition body how that gender bias (as myalgic encephalomyelitis afflicts women at higher rates than men), means that no Canadian province even as a healthcare MSP category of coverage number, and that means we don't have stats or physician education to precipitate research So we have tests and treatments

I'm so far outside my energy envelope trying to advocate especially on minimal health supports. I have a zoom submission to the British Columbia budget committee on June 17th. I'm doing everything I know how to fight. No one should be in this situation, in any country.

[iammadelinepod]

More magnolias but such a gorgeous dark pink color I haven't seen before

[iammadelinepod]

🇺🇸tony's chocolonely chocolate bar recall due to rocks🇺🇸

literally, due to rocks. they got rocks in them

april 2, 2025

Tony’s Chocolonely Inc., a New York, New York Corporation, is voluntarily recalling seven lots of Tony’s brand Dark Almond Sea Salt Bar (6.35oz); and Everything Bar (6.35oz) because the product may contain small stones. The products were distributed nationwide and sold in the United States via retail stores and www.tonyschocolonely.com; distribution of the products began February 7, 2025 and ended March 24, 2025.

emphasis mine.

this recall only affects some lots of the dark almond sea salt bar and the everything bar, due to the rock problem. they were distributed nationwide in stores and on the internet. I included their pictures at the top.

I am not able to format a table for tumblr, so check that recall link for the specific lot codes and expiration dates.

The recall was initiated following 12 reports of consumers finding small stones in the product not filtered during third-party almond harvesting and the almond processing process. All complaints occurred outside of the United States and Canada, and no injuries were reported.

they found rocks after there were 12 reports that said hey. there are rocks in this. this can easily lead to dental problems if someone tries to bite full force on a rock and breaks a tooth or otherwise injures their mouth. dental infections can eventually become life-threatening even in people who are young and otherwise healthy. so it is a good thing nobody apparently ate the rocks yet. or at least, nobody got injured while potentially eating rocks. yet

If you have purchased one of the affected products with the specified lot codes and have not yet consumed it, you are advised not to eat the product. Please return the product to the store of purchase for a refund or replacement or dispose of the product. Please consult the following webpage to confirm how to identify the lot code and claim a refund or replacement in your market: https://us.tonyschocolonely.com/pages/recall-fo-intl-0325

emphasis mine.

please do not the rocks. thank you

[iammadelinepod]

Sad but true as evidenced by this petition I had to make So I could stop trying to survive month to month on a GoFundMe and have a shot Even adequate disability supports

Read a couple posts about how Americans, when confronted with authoritarian or otherwise "bad practices" in their country, will default to "what is this, North Korea?" or "they do this in China and it is Bad because China."

Speaking as a Canadian, when I see rampant government corruption, flagrant disregard for human rights, or anti-homeless architecture in my country, I ask "what is this, America?"

[iammadelinepod]

we as a society have got to stop prescribing exercise as a universal cure for chronic illness. yes exercise can be extremely beneficial for certain chronic conditions, especially under the guidance of a physical therapist or physiotherapist. how and ever acting like exercise will undoubtedly reduce the symptoms of every single chronic illness on the face of the planet just isn't it. exercise is even known to worsen the symptoms brought about by certain illnesses and disabilities, and can have detrimental effects if not approached with the utmost care. 'exercise can be beneficial for certain conditions' well yes. 'exercise will have a 100% positive impact on any and all chronic illness' no no nope and also no

[iammadelinepod]

View this post on Instagram

A post shared by #MEAction (@meactnet)

[iammadelinepod]

I'm long viral epstein-barr. I look at my long covid fellows and my heart breaks even as I hang off a cliff like a cartoon animal trying to be a magical TED talk just to get people to understand.

Petition encapsulates that. Myalgic encephalomyelitis is a key long viral disease. And in Canada no province even has a category of coverage for it yet. Not even in the face of a 37% rate of long covid after the third covid infection. (Links lower on in the petition or in the additional resources section) Anyone anywhere can sign. Yes that means International and across canada. What happens in one country ripples throughout the world.

She died on Christmas Day. On Christmas Day! I said goodbye on an iPad! Because of the rules! She died alone! And those awful people and their wine fridges, and their dancing, and their parties, and I listened to them, and I let my mother die alone!

i dunno about the rest of the world but this is such bitter, satisfying british political commentary that i've needed to hear for over two years now. thank you steven moffat this genuinely healed something within me

[iammadelinepod]

Fatigue is among the most common and most disabling of long COVID’s symptoms, and a signature of similar chronic illnesses such as myalgic encephalomyelitis (also known as chronic fatigue syndrome or ME/CFS). But in these diseases, fatigue is so distinct from everyday weariness that most of the people I have talked with were unprepared for how severe, multifaceted, and persistent it can be.

For a start, this fatigue isn’t really a single symptom; it has many faces. It can weigh the body down: Lisa Geiszler likens it to “wearing a lead exoskeleton on a planet with extremely high gravity, while being riddled with severe arthritis.” It can rev the body up: Many fatigued people feel “wired and tired,” paradoxically in fight-or-flight mode despite being utterly depleted. It can be cognitive: Thoughts become sluggish, incoherent, and sometimes painful—like “there’s steel wool stuck in my frontal lobe,” Gwynn Dujardin, a literary historian with ME, told me.

Fatigue turns the most mundane of tasks into an “agonizing cost-benefit analysis,” Misko said. If you do laundry, how long will you need to rest to later make a meal? If you drink water, will you be able to reach the toilet? Only a quarter of long-haulers have symptoms that severely limit their daily activities, but even those with “moderate” cases are profoundly limited. Julia Moore Vogel, a program director at Scripps Research, still works, but washing her hair, she told me, leaves her as exhausted as the long-distance runs she used to do.

And though normal fatigue is temporary and amenable to agency—even after a marathon, you can will yourself into a shower, and you’ll feel better after sleeping—rest often fails to cure the fatigue of long COVID or ME/CFS. “I wake up fatigued,” Letícia Soares, who has long COVID, told me.

Between long COVID, ME/CFS, and other energy-limiting chronic illnesses, millions of people in the U.S. alone experience debilitating fatigue. But American society tends to equate inactivity with immorality, and productivity with worth. Faced with a condition that simply doesn’t allow people to move—even one whose deficits can be measured and explained—many doctors and loved ones default to disbelief. When Soares tells others about her illness, they usually say, “Oh yeah, I’m tired too.” When she was bedbound for days, people told her, “I need a weekend like that.” Soares’s problems are very real, and although researchers have started to figure out why so many people like her are suffering, they don’t yet know how to stop it.

…

Post-exertional malaise, or PEM, is the defining trait of ME/CFS and a common feature of long COVID. It is often portrayed as an extreme form of fatigue, but it is more correctly understood as a physiological state in which all existing symptoms burn more fiercely and new ones ignite. Beyond fatigue, people who get PEM might also feel intense radiant pain, an inflammatory burning feeling, or gastrointestinal and cognitive problems: “You feel poisoned, flu-ish, concussed,” Misko said. And where fatigue usually sets in right after exertion, PEM might strike hours or days later, and with disproportionate ferocity. Even gentle physical or mental effort might lay people out for days, weeks, months. Visiting a doctor can precipitate a crash, and so can filling out applications for disability benefits—or sensing bright lights and loud sounds, regulating body temperature on hot days, or coping with stress. And if in fatigue your batteries feel drained, in PEM they’re missing entirely. It’s the annihilation of possibility: Most people experience the desperation of being unable to move only in nightmares, Dujardin told me. “PEM is like that, but much more painful.”

Medical professionals generally don’t learn about PEM during their training. Many people doubt its existence because it is so unlike anything that healthy people endure. Mary Dimmock told me that she understood what it meant only when she saw her son, Matthew, who has ME/CFS, crash in front of her eyes. “He just melted,” Dimmock said. But most people never see such damage because PEM hides those in the midst of it from public view. And because it usually occurs after a delay, people who experience PEM might appear well to friends and colleagues who then don’t witness the exorbitant price they later pay.

…

Oller thinks this dismissal arises because PEM inverts the dogma that exercise is good for you—an adage that, for most other illnesses, is correct. “It’s not easy to change what you’ve been doing your whole career, even when I tell someone that they might be harming their patients,” she said. Indeed, many long-haulers get worse because they don’t get enough rest in their first weeks of illness, or try to exercise through their symptoms on doctors’ orders.

People with PEM are also frequently misdiagnosed. They’re told that they’re deconditioned from being too sedentary, when their inactivity is the result of frequent crashes, not the cause. They’re told that they’re depressed and unmotivated, when they are usually desperate to move and either physically incapable of doing so or using restraint to avoid crashing. Oller is part of a support group of 1,500 endurance athletes with long COVID who are well used to running, swimming, and biking through pain and tiredness. “Why would we all just stop?” she asked.

Some patients with energy-limiting illnesses argue that the names of their diseases and symptoms make them easier to discredit. Fatigue invites people to minimize severe depletion as everyday tiredness. Chronic fatigue syndrome collapses a wide-ranging disabling condition into a single symptom that is easy to trivialize. These complaints are valid, but the problem runs deeper than any name.

Dujardin, the English professor who is (very slowly) writing a cultural history of fatigue, thinks that our concept of it has been impoverished by centuries of reductionism. As the study of medicine slowly fractured into anatomical specialties, it lost an overarching sense of the systems that contribute to human energy, or its absence. The concept of energy was (and still is) central to animistic philosophies, and though once core to the Western world, too, it is now culturally associated with quackery and pseudoscience. “There are vials of ‘energy boosters’ by every cash register in the U.S.,” Dujardin said, but when the NIH convened a conference on the biology of fatigue in 2021, “specialists kept observing that no standard definition exists for fatigue, and everyone was working from different ideas of human energy.” These terms have become so unhelpfully unspecific that our concept of “fatigue” can encompass a wide array of states including PEM and idleness, and can be heavily influenced by social forces—in particular the desire to exploit the energy of others.

As the historian Emily K. Abel notes in Sick and Tired: An Intimate History of Fatigue, many studies of everyday fatigue at the turn of the 20th century focused on the weariness of manual laborers, and were done to find ways to make those workers more productive. During this period, fatigue was recast from a physiological limit that employers must work around into a psychological failure that individuals must work against. “Present-day society stigmatizes those who don’t Push through; keep at it; show grit,” Dujardin said, and for the sin of subverting those norms, long-haulers “are not just disbelieved but treated openly with contempt.” Fatigue is “profoundly anti-capitalistic,” Jaime Seltzer, the director of scientific and medical outreach at the advocacy group MEAction, told me.

Energy-limiting illnesses also disproportionately affect women, who have long been portrayed as prone to idleness. Dujardin notes that in Western epics, women such as Circe and Dido were perceived harshly for averting questing heroes such as Odysseus and Aeneas with the temptation of rest. Later, the onset of industrialization turned women instead into emblems of homebound idleness while men labored in public. As shirking work became a moral failure, it also remained a feminine one.

…

Some COVID long-haulers do recover. But several studies have found that, so far, most don’t fully return to their previous baseline, and many who become severely ill stay that way. This pool of persistently sick people is now mired in the same neglect that has long plagued those who suffer from illnesses such as ME/CFS. Research into such conditions are grossly underfunded, so no cures exist. Very few doctors in the U.S. know how to treat these conditions, and many are nearing retirement, so patients struggle to find care. Long-COVID clinics exist but vary in quality: Some know nothing about other energy-limiting illnesses, and still prescribe potentially harmful and officially discouraged treatments such as exercise. Clinicians who better understand these illnesses know that caution is crucial. When Putrino works with long-haulers to recondition their autonomic nervous system, he always starts as gently as possible to avoid triggering PEM. Such work “isn’t easy and isn’t fast,” he said, and it usually means stabilizing people instead of curing them.

---

Ed Yong's follow up to his previous piece on post-COVID brain fog published last year:

[iammadelinepod]

Along these very lines, this is petition I have in Canada. If you could please sign and share, that would be amazing. It's going to be printed and hand delivered to the British Columbia legislature. Signatories accepted from across Canada and the world. British Columbia healthcare needs to know that the world is watching. Also important for signatories to know, that the ripples in one place can expand out into the larger world creating larger change

The death march due to lack of disease and disability supports that I've been on these past 45 years was entirely unnecessary. Disease, disability, gender bias have all been driving the bus pretending to be logic. But bias never has anything to do with logic. It is the very definition of specious

If you know of any journalists anywhere in the world who would be interested to tell the story we do have a press release and a press release kit.

The quickest way to reach me is the Twitter account which is also @iammadelinepod (with my dyslexia the short form social media is easiest, yes I know Twitter is a raging dumpster fire, but it does have an active long viral/ long covid/myalgic encephalomyelitis community

This is a post by the leading myalgic encephalomyelitis advocacy group, @meactionnet who has already verified my story years ago.(They've also posted on their other social media, my brain is so tired I'm just not able to find those posts yet to share them with you)

I am fully public now, Marcia doherty, but I have been known online as Madeline to protect my health. But since I'll be running out of money in January, this is my hail mary.

Since no Canadian legacy Media will tell my story protecting my identity, I am fully public, that's why we've done the petition, and heartbreakingly still no legacy Media in Canada reaching out to say they want to tell my story. I think it's going to take International attention from International media and signatories from around the world

The only required information is your name, the rest is optional, and we explain why we ask for it so you can decide what you want to share

say what you will about vigilante justice, but the conversation taking place around luigi mangione is going to change disabled people’s lives. not immediately, of course, but it is a small step toward a much larger goal.

to me, there’s something so disingenuous about decrying violent acts while turning a blind eye to the inherent violence of refusing needed medical treatment. being disabled in the united states makes you uniquely aware of the flaws in our healthcare system. and that is in itself a radicalizing experience. so no, it didn’t surprise me at all to find out that the suspect shared many similarities to myself, being a disabled man with a chronic illness whose daily pain was invalidated by doctors because it was invisible. frankly, i’m shocked instances like this aren’t more common, because disabled people have been on the receiving end of medical violence since the concept of medicine existed.

i talk a lot about cripple punk for this reason- society has a very narrow view of how disability and chronic illness affects people. the reality is, many are angry, and hurt, and bitter. we have deep and seemingly irrational mistrust for doctors. we’re exhausted of having to constantly fight just to exist, and a lot of us hold lingering resentment toward those that hurt us.

the fact is, some disabled people are going to make you feel uncomfortable. they might say or do things that you don’t agree with. this is the end result of a system that consistently fails the chronically ill and disabled, and until we address that, true peace will never really exist

[iammadelinepod]

And new podcast episode

[iammadelinepod]

Imagine, for a moment, that you wake up one morning with a debilitating illness that won’t let go. Weeks and months pass, but the crushing fatigue, constant headaches, and aching muscles remain. You can’t think straight. Simply showering or doing the dishes leaves you floored for days at a time, and the unpredictable symptoms — shortness of breath, dizziness, a racing heart — ebb and flow without warning. You find your life as you knew it slipping away.

This is life with long Covid: a condition that transforms the familiar rhythms of daily life into a living nightmare and constant battle for energy and clarity. But what happens when the only hope of lessening its severity becomes an issue of equity?

We are two of the more than 400 million people worldwide who have experienced long Covid. While we are both over four years into this illness, there is still not a single FDA-approved treatment for this devastating condition. Given the slow pace of research and development, there is unlikely to be proven treatment for years — possibly decades.

For people with long Covid, finding some relief today rests in accessing promising medications that are already on the market. One of us, Charlie, received Plavix that was prescribed off-label and has since substantially improved his quality of life. He still remains mostly housebound, but the drug relieved two years of constant agony of not being able to take a normal breath. Blood thinners including Plavix have been shown to reduce long Covid symptoms, possibly because they reduce microclots and hyperactive platelets found in patients. However, many physicians are wary of prescribing them due to bleeding risks. We are not suggesting that Plavix will be right for everyone with long Covid — we share this experience as an example.

But there is a significant downside to this approach: Combing through countless resources and identifying potential treatment options requires money, educational attainment, and health insurance — as well as time, energy, and cognitive capacity, three things that are in short supply when you have long Covid. Even then, you must be able to meet with several physicians to find an informed and willing provider. If any one of these pieces is missing, people with long Covid are likely to be left without adequate care, particularly if they also face the barriers of  racial, ethnic and gender medical bias. This is yet another example of the already glaring health disparities in the U.S. The result is a health care system that continues to fail and harm the millions of people with long Covid, who must experiment on their own to manage their condition.

From personal experience, receiving an off-label drug required meeting with dozens of health care providers, including one along the way who said, “99% physicians would never prescribe it” due to concerns about its side effects. It took a total of 18 months to find a willing prescriber, and it was the only drug to alleviate the debilitating symptom of shortness of breath.

This is just one treatment among an entire portfolio of promising FDA-approved medications that we and others at the Patient Led Research Collaborative are working to collate, which includes well-known medications like low-dose naltrexone. These medications can be prescribed off-label and have provided some relief to people with long Covid. The evidence base for these treatments largely comes from the extensive literature on infection-associated chronic conditions as well as recent long Covid case studies and crowdsourced data through sources like CureID, Long COVID PharmD’s surveys, and support groups such as communities on Reddit.

Out of desperation, patients are using their limited energy to individually repeat the same web searches and reviews of the literature, then attempting to convince their physicians to prescribe treatments. Many physicians are uncomfortable prescribing off-label medications for long Covid even though one in five prescriptions in the U.S. is written for off-label use. The medical and research communities should be bringing treatment options, along with an assessment of their risks and benefits, to the patients. A national registry collecting data on current off-label drug use to treat long Covid could cost-effectively generate urgently needed safety and efficacy data.

To lessen the burden of long Covid on people with the condition, we need to get more information into the hands of physicians, while giving patients more decision-making authority. For example, there are high-quality guidelines for diagnosing and managing ME/CFS and POTS, at least one of which most people with long Covid have, yet medical gaslighting continues to run rampant and most medical schools do not educate physicians about these conditions.

Health care systems should also expand access to survey-based prescriptions for drugs that already have strong safety profiles. Multiple companies offer access to prescriptions after brief patient interactions, but they are generally not covered by insurance, are only available in some states, and do not always include sufficient information about risks or support for addressing side effects.

Further, the federal government must create pathways and incentives for drug repurposing with public health benefits.

Finally, all patients must be informed by their health care providers about treatment options and their risks and benefits, as well as adequately supported in cases where side effects occur.

Ultimately, finding cures requires many more high-quality clinical trials, and we desperately need “moonshot” funding to get us there. But in the short term there is so much more the health care system could be doing to provide meaningful care: We call upon the Department of Health and Human Services to find ways to approve, pay for, and collect and disseminate information about treatment options for long Covid and other infection-associated chronic conditions.

We all prefer making decisions based on gold-standard clinical trials, but if we do nothing while we wait for that data to be generated, people with long Covid will continue to experience debilitating symptoms, loss of income, homelessness, and death. Further, in the absence of guidance, people with long Covid will continue to self-manage their condition, investing in costly treatments and unregulated supplements.

With the support of the health care system, they would have much more comprehensive, readily available information on the risks these treatments might pose — including that certain treatments may help only a subset of people who try them. Patients have the right to make well-informed decisions about accessing promising drugs with reasonable safety profiles.

Without treatment, 400 million people worldwide could suffer indefinitely. “Do no harm” means providing access to treatments — not withholding them.

Julia Moore Vogel, Ph.D., MBA, is a long Covid patient-researcher at Scripps Research and the Patient Led Research Collaborative (PLRC). Charlie McCone is a long Covid patient advocate, is a member of the PLRC, and has served as a patient representative on the NIH RECOVER clinical trials arm.

[iammadelinepod]

reblog for sample size

[iammadelinepod]

QR code has links as well as in the GoFundMe to Media pieces that affirm my situation

https://gofund.me/cff39173

[iammadelinepod]

I find myself again and again so heartbroken and infuriated by ableism from the very people who are supposed to be caregivers. On no level of our society anywhere in the world do we have proper accessibility education to address ableism and disability bias. It is a main part of what's been death marching me off a cliff is that precipitates bureaucracy and policies that can be deadly and at the very least create unnecessary suffering and deterioration

Heck I tried to do a self employment program for persons with disabilities when I was less physically impeded but because they've never had baseline supports for my disease, of course I could never fulfill my potential. It felt like they got to say, see, disabled people just won't follow through. Versus the reality, the cold hard visceral truth, that without the most minimal levels of adequate supports for any disability there is a host of things that are not physically possible.

And for those of us (because that's where I am due to these ongoing lack of supports)who are in a physical place where even small physical achievements aren't possible, or are often not possible (episodic illness or episodic worsening), this attitude still exists. If you just tried harder. If you were just more positive, if you just vision boarded, did positive affirmations or prayed or got rid of your bad karma or whatever nonsense that exists (mostly subconscious within the collective unconscious as the cause of disability versus the reality we are all vulnerable) and gets vomited on me and my fellow persons with disability, more often than not by the very caregivers who should know better. And breaching that bias and prejudice can be darn near impossible.

And that's because of the unconscious stream that goes on that says things like don't you know disabled people don't know what they're talking about, that if they did they wouldn't be in the situation that they are in, if they were stronger, smarter, more capable this would never have happened to them... Etc. that particular flavor of disability bias means that when we see things we're not taking seriously because how can we possibly know better than unable to person about our disabilities and how to manage them

So the long and the short is, in my book at least;

I and other people have value because we exist. What I do is not my value.

This lack of understanding in the larger society is the source of a lot of distress among abled and disabled people. In the early stages of my disability status, When I was teaching meditation and people going through retirement and came to my class their levels of stress were through the roof because what they did as a profession was their sole value and worth in their internal monologue. It would take a lot to get them to view that differently. But the minute they did they relaxed. To see them blossom when they set that vicious lie about where they're worth lay and instead move into exploring the next stage of their life and what that meant to them and what purpose and enjoyment they could find there; boy was that a cool thing. But until that happened, the measure of depression & despair I saw them experience was very dangerous.

The misinformation about where our value and worth as humans exists is pernicious and corrosive. And it can most overtly be seen in attitudes toward disabled people

I myself was not at all immune to it. in the early stages of my disability I walloped myself with that idea *that if I couldn't work in my profession then what value did I have* again and again, forced myself outside of my energy envelope in a vain attempt to regain physical ability(for my key long viral disease, myalgic encephalomyelitis, that is the very singularly worst thing you could possibly do usually precipitates permanent deterioration) and in so doing made myself dramatically sicker. So I know what it's like to aim that larger societal nonsense internally on myself.

Eventually I came to a place of pursuing purpose, which for my personality is incredibly important, in volunteer community building arenas that were willing to accommodate my physical limitations, especially as i worsened. But one of the biggest roadblocks to accommodation was actually me. In my head I could still do the same things so when people encouraged me to behave as I would as a healthy person, my natural inclination is to lean toward that. So when I read about this kind of ableism and disability bias it's not just horrible because it's horrible, it's horrible because this attitude can worsen people dramatically and unnecessarily as it did for me.

(note I have dyslexia and this was done with speech to text and I usually can't catch all the nonsense the speech to text app does so I hope it makes sense)

@compassionatereminders I really appreciate you bringing up these difficult and often overlooked and misunderstood topics💗

I hate how so many systems in place to "help" disabled and mentally ill people insist on only ever "helping people help themselves", because it means that a majority of people working in these systems prefer leaving genuinely struggling people to suffer neglect and not have their needs met to the risk of "accommodating someone's laziness" unnecessarily. Like I'm on disability benefits and in a group home and yet the response to me occasionally needing something to be done "for me" is usually "we will help you when you are motivated to do your part"

[iammadelinepod]

Someone help me make this lovely graphic. The QR code takes you to the #GoFundMe please share. Some Media links(for verification) in the GoFundMe and in this profile. Most recent can be found in this Twitter link which can be shared on Facebook and Instagram (for those who don't know apparently Google and Facebook and Instagram are mad at each other in Canada so you can't share news articles)

[iammadelinepod]

New podcast episode

*Some Devastating News vs Arm Floaties* (Friendsgiving?). I'm feeling it so bad I don't even know how to write a description. but I am still going to fight just struggling for arm floaties (a talk about that last episode). it makes it feel kind of futile so I guess I am having the hard news eat my brain a bit today

For your information and reference

Gfm

https://gofund.me/cff39173

Last news article was from

RICHOCHET

More info in the pin tweet of @iammadelinepod (no I will never call it x)

[iammadelinepod]

Both are screenshots from 3-minute video from Bateman Horne Center "The Basics: Post-Exertional Malaise (PEM)"