Just updating to say that so far the retuximab side effects have been minimal. Knock wood. I have one more infusinion next week, so two to start with, and then it'll be once every six months until... I don't know, they come up with a better treatment? Or the side effects are too awful? or I die?
Coming to the realization of what a chronic ilness really means is... oof not easy. This is forever, or at least for as long as I live.
I don't think I was prepared for how jealous I get. I see people doing physical feats, even things just as simple as dancing, and I don't think "OMG HOW COOL THAT HUMANS CAN DO THAT" I get bitter and jealous and just so angry.
And I'm not in that bad of a shape. I can move. I will probably improve if I do my physical therapy and move my body. But I know that leaping around is probably not going to be something I can do, because right now just stepping down the stairs without a railing or assistance is scary, because my balance is off.
And I don't want to be an angry or bitter person. I don't. But represing these feelings isn't going to make them go away. So I'm holding to the hope that I will be ok, that I won't get worse. And I'm clinging to the things that make me happy, like my cat who snuggles into my shoulder and purrs and makes everything wonderful for just that moment.
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““That’s how you know you love someone, I guess, when you can’t experience anything without wishing the other person were there to see it, too.” - Kaui Hart Hemmings”