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#and then they called on thursday saying you're results were negative you don't have a uti
shinysteph · 10 months
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Cannot sleep because kidneys hurt so bad!!!
#i have had a uti all week and it has been a nightmare getting antibiotics for it!#i called my doctor's office on tuesday and told them HEY I THINK I HAVE A UTI#and in the past they have always been like np just pee in a cup and we'll send it to the lab and start you on meds all in the same day#but not this time#no they made me go to the lab and then wait until the results came back#and then they called on thursday saying you're results were negative you don't have a uti#and i said oh yes i do i have a bunch of symptoms and am in a lot of pain! and they said just drink a lot of water and call back next week#so i made an appointment with the pharmacy bc they can give you antibiotics for utis without a doctor#but then they said they can't because i'm on immunosuppressive drugs which makes it more complicated (fair)#this happened yesterday#but all day yesterday i had twrrible kidney pain which is what i was afraid would happen!!!!!!!!#so i went to urgent care and they did another urine test and FINALLY gave me a prescription for antibiotics (yay!)#but i can't fill it until i get the urine culture results back and they have to be positive so i am cryong in agony#but also guess what#i downloaded the app to look at my test results and saw the results of that first urine culture#and IT'S NOT NEGATIVE#it says SUGGEST REPEAT SPECIMEN COLLECTING AND TESTING IF PATIENT'S SYMPTOMS INDICATE A URINARY TRACT INFECTION#THAT IS NOT A NEGATIVE#so now i'm in so much pain i might not even wait until that second culture resulg comes in i'm just goina to fill that prescription#i don't want to get sepsis#my posts
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silvermoon424 · 3 years
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I don't want to make a longer post even longer by reblogging this, so read this if you're interested in catching up on what happened yesterday. But long story short I thought I might have Covid and my boss was a dick about it.
When I told my mom about the incident, she pointed out that my boss might be so insistent about me getting a rapid test because he would need to know whether or not to put the office on lockdown. That made me more sympathetic to my boss, although I was still upset about the situation. I got the rapid test done this afternoon and it came back negative. I shared the results with my boss and asked him if he still wanted me to come in, as I still have a cold. I offered to work from home. He said "No, come in and see me when you get here."
So much for caring about employee health 🙄
When I arrived, he told me that from now on, permanently, I will have to be in the office 8 hours a day every day. What had been going on is that I had been working Tuesday and Thursday mornings from home doing invoices before coming in to answer the phones as the afternoon receptionist. On M-W-F I do invoices in the back of the office. So now my boss wants me to come in every day to do that even though I do it just fine from home.
Btw, the other receptionist still gets to work half days every day and she doesn't even work from home afterwards (the benefits of being with the company for 20 years, I suppose). Moreover, my boss doesn't want me to email anyone else for problems I have anymore, just him or HR.
He's SUCH a fucking control freak micromanager. I've known this for a long time but this is just next-level. He's punishing me for... calling out sick? For taking my health and the health of my coworkers seriously? He has ALWAYS acted like I'm a bad employee who needs to be constantly monitored like I'm a misbehaving child even though I get all my work done every day (and then some).
Needless to say this is the final straw. I'm going to start seriously looking for a new job. The half days were a big reason why I was staying with this company despite the low pay, but with those gone forever there's literally nothing is company is offering that others won't. I can't handle working under this man anymore. Things were a lot better when my old manager (who was awesome) was around as a buffer but ever since she moved away things have just gotten progressively worse.
Being a worker in America is so fucking terrible. If you live in a country that actually protects its workers, please don't take it for granted.
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President Joe Biden on Thursday announced a number of new steps his administration will take to try to get more Americans vaccinated and slow the spread of coronavirus, including requiring that all federal employees must attest to being vaccinated against Covid-19 or face strict protocols.
The new measures come amid a rise in Covid-19 hospitalizations and deaths in the US. The vast majority of those individuals with severe cases of Covid-19 are unvaccinated.
"This is an American tragedy. People are dying -- and will die -- who don't have to die. If you're out there unvaccinated, you don't have to die," Biden said during remarks at the White House. "Read the news. You'll see stories of unvaccinated patients in hospitals, as they're lying in bed dying from Covid-19, they're asking, 'Doc, can I get the vaccine?' The doctors have to say, 'Sorry, it's too late.'"
In his sternest approach yet to pushing Americans to get vaccinated, the President bluntly argued that if you are unvaccinated, "You present a problem to yourself, to your family and to those with whom you work."
Biden said every federal government employee and on-site contractor will be asked to attest to their vaccination status.
Employees who have not been vaccinated "will be required to wear a mask on the job no matter their geographic location, physically distance from all other employees and visitors, comply with a weekly or twice weekly screening testing requirement, and be subject to restrictions on official travel," the White House said ahead of Biden's speech.
The federal employee vaccination requirement is not a mandate, officials have insisted, and most federal employees who do not get vaccinated will not lose their jobs as a result, CNN previously reported.
But the decision nonetheless marks a pivot away from encouraging Americans to get vaccinated in their own time and stepping toward placing the onus on unvaccinated individuals.
Other efforts the administration debuted Thursday to incentivize vaccinations included expanding paid leave for employees who take time off to get themselves and their family members vaccinated. Biden said employers would be reimbursed. He also called on states, territories, and local governments to do more to incentivize vaccination, including offering $100 to Americans getting vaccinated, paid for with American Rescue Plan funding.
"I know that paying people to get vaccinated might sound unfair to folks who got vaccinated already. But here's the deal: if incentives help us beat this virus, I believe we should use them. We all benefit," Biden said.
The President also announced that he is ordering the Department of Defense "to look into how and when they will add Covid-19 to the list of vaccinations our Armed Forces must get."
"Our men and women in uniform, who protect this country from grave threats, should be protected as much as possible from getting Covid-19," he said. "I think this is particularly important because our troops serve in places throughout the world, many where vaccination rates are low and disease is prevalent," Biden added.
All military and civilian Defense Department personnel will be asked to attest to their vaccination status, the department said Thursday evening. Those unable or unwilling to do so will "be required to wear a mask, physically distance, comply with a regular testing requirement and be subject to official travel restrictions," Jamal Brown, deputy Pentagon press secretary, said in a statement.
The department is also considering adding the Covid vaccine to the list of required vaccines for military personnel.
"Secretary (of Defense Lloyd) Austin will begin consulting our medical professionals, as well as the Joint Chiefs of Staff, to determine how and when to make recommendations to the President with respect to adding the COVID-19 vaccines to the full list of requirements for military personnel," Brown said.
The President on Thursday also called on school districts nationwide to host at least one pop-up vaccination clinic over the coming weeks in an effort to get more kids 12 and older vaccinated.
Responding to reporter questions after his remarks, the President said he didn't know yet whether the federal government had the power to require vaccines. "It's still a question whether the federal government can mandate the whole country" require vaccines, he said, adding that he expects the vaccines will be fully approved by the US Food and Drug Administration by the fall.
But soon after the President's speech, White House Covid-19 Response Coordinator Jeff Zients told CNN's Wolf Blitzer the administration is not considering a nationwide Covid-19 vaccine requirement.
"That's not an authority that we're exploring at all," Zients said on "The Situation Room."
On Monday, the Justice Department determined that federal law doesn't prohibit public agencies and private businesses from requiring Covid-19 vaccines -- even if the vaccines have only emergency use authorization so far. Biden's aides had previously said they do not believe he has the power to require all Americans to get shots. But his oversight of the federal workforce, they believed, can be a powerful model to other employers considering their options on requiring vaccines.
But several groups representing federal workers across the government are already raising concerns about the requirement for their personnel, including groups representing federal law enforcement officers, IRS managers and members of the US Border Patrol, among others.
Other groups, like the International Federation of Professional and Technical Engineers, have come out in support.
The goal of the requirement, Biden aides have said, is to render being unvaccinated so burdensome that those who haven't received shots will have little choice other than to get them. It's an approach being tested by leaders in Europe, including French President Emmanuel Macron, who required either proof of vaccination or a negative test at public venues. And some states, including New York, have also said government employees must either prove they've been vaccinated or be tested weekly.
The White House had previously indicated it would support private companies' decisions to mandate Covid-19 vaccinations, but Biden took it a step further on Thursday, saying that he'd like to see companies, states and schools move in the direction of requiring Covid-19 vaccination.
Dr. Rochelle Walensky, director of the CDC, said Wednesday on CNN that health passes for the fully vaccinated, such as those used in parts of Europe, "may very well be a path forward."
But the President appeared to put that responsibility on businesses -- not the federal government -- on Thursday.
"My guess is that if we don't start to make more progress, a lot of businesses and a lot of enterprises are going to require proof (of vaccination) or you're not going to be able to participate," Biden said.
The prevalence of the highly contagious Delta variant in the US and low vaccine uptake have led to the federal government to take a number of steps to further mitigate the spread of Covid-19.
Zients told Blitzer that the FDA is certain that Americans don't need boosters right now, but it will continue to monitor the data.
"If they do decide that Americans need boosters, we are ready," he said. "We have the supply, and people will be able to get a booster shot -- if it's needed -- in a fast and efficient manner."
Earlier this week, the US Centers for Disease Control and Prevention recommended everyone -- including vaccinated individuals -- wear masks indoors in areas of substantial or high Covid-19 transmission. The agency also recommended masks for all K-12 children in schools, even those who have been vaccinated.
The Department of Veterans Affairs also recently announced it would require frontline health care workers to be vaccinated over the course of the next two months.
During his remarks on Thursday, Biden acknowledged frustrations over the nation's slow bounce back and the renewal of restrictions.
"We have the right plan. We're coming back. We just have to stay ahead of this virus," Biden said. "I know this is hard to hear. I know it's frustrating. I know it's exhausting to think that we're still in this fight. And I know that we hoped this would be a simple, straightforward line without problems or new challenges. But that isn't real life. (We're) coming out of the worst public health crisis in 100 years. The worst economic crisis since the Great Depression."
The latest data from the CDC indicates that 49.4% of the total US population is fully vaccinated. And despite a previous downward slope in the pace of vaccinations, 389,963 people are now initiating vaccination each day, according to the current seven day average.
This is the highest it's been in more than three weeks, but it's still lower than the pace set by millions who were receiving shots every day earlier this year.
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youalexturnermeon · 4 years
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Warm Beer and Cold Women Pt.3 (Johnny Lawrence x Reader)
Part 1
Part 2
Request: Hi! I absolutely love your work and I was wondering if I could get a Cobra Kai Johnny imagine where the reader is a bartender and starts crushing on him since he’s a regular and he flirts with her all the time and she pretends to hate it but she actually loves it? by Anon
A/N: Before you read you should know that I adjusted the timeline a little, all mistakes in the timeline that you are noticing are on purpose. Also I decided to let johnny keep his black Cobra Kai car in that one. Then I’m perfectly aware of the fact that I lowkey drifted away from the actual request but don’t worry, I’m coming back to that. It’s the second last part to this little series. Enjoy.
Warnings: badass reader, drinking, DUI, swearing, ANGST, a little fluff
Wordcount: 2650
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"Jesus Christ, (Y/N), thank god you're finally here!" was the first thing you heard from Jenny as soon as you set foot into the bar for yet another late shift on a boring Thursday night.
"We've been waiting for you for hours!" Jenny said and grabbed your arm dragging you further inside. You were staggered, "What the fuck, Jen, I'm not even late, I know I was yesterday but I'm perfectly on time today! Look," you pointed towards a clock on the wall "8 pm sharp."
"Jesus, don't you ever check your phone?" she went on ignoring you. And as a matter of fact, you didn't. You trashed it a couple of days ago as a result of a drunk rage after another shift without your favourite regular. That's why you've been borrowing your colleague’s phone to call yourself an Uber home. But that was still not helping you understand why you were needed so much. Apparently, the bar was waiting for your arrival since the opening at last. In the distance, behind the almost empty counter you saw the staff door opening and Kenny making his way to you in a quick pace.
"She's is here!" Jenny called out to him as if he wasn't able to see that for himself.
"Finally."
"What the fuck?" you asked again, trying to think of all the things you could've done wrong in the past weeks, but you couldn't find any. You never messed up a drink, you always locked the doors, you even cleaned the puke in the men's bathroom. "Am I in trouble?"
Kenny shook his head, you looked at him quizzically.
"It's about your boyfriend," Jenny helped him out answering. You almost blurted out 'He's not my boyfriend' as it was already on the tip of your tongue because you were so deeply conditioned to say that. But when your glance skipped over the almost empty seats by the counter again, your heart suddenly skipped a beat and when it was back at keeping you alive it started beating so hard against your ribs as if it was about to burst. Johnny was back.
"He's been here since we opened at 5," Kenny said, sounding a little annoyed "He's drunk off his ass, came in drunk already, and refuses to leave until he sees you. We tried to throw him out but he's one persistent motherfucker and lowkey aggressive, muttering your name saying he needs to talk to you and nobody else."
"Yeah, maybe you should go and talk to him" Jenny affirmed. But you were already on your way. Without a word you almost stormed over.
At first you wouldn't have noticed him. He didn't look like himself, sitting there on his regular seat at the end, head hanging, covered by his hands. He looked rough.
The two weeks he didn't show himself, you almost started hating him. You thought him to be like any other man on earth who, after they broke you, finally got you to get soft towards them, waking your interest after hundreds of times trying, just disappeared without a trace. First you were blaming yourself, asking yourself if you went too far with your little game of pretend, whilst still waiting every day for him.  Had it been too much for him saving you the other day and getting his face bashed in for you? You wished he'd come and tell you what a bitch he thought you were to your face. Then you despised him for giving you up so quickly. But as soon as you laid eyes on him all these negative thoughts disappeared, and you were just concerned. Concerned about his condition, only the question inside your head how on earth you, a simple barkeeper, were able to help him with that. You grabbed a bottle of whisky and simply headed to the other side of the counter, not standing in front but sitting next to him this time. The worst about it, he didn't even take notice of you at first.
"Johnny," you said softly placing a hand on his arm. Like being electrocuted by this touch, he winced but finally looked up. You almost gasped at his appearance. Normally he was always clean shaven, now he looked like hadn't shaved in days. Besides that, he was also hurt. At first you thought his injuries might still be from his encounter with the three men that were bothering you, but the scratches and bruises were fresh, and a band aid was sticking to his forehead that wasn't needed before. Johnny blankly stared at you from his bloodshot eyes and you suddenly felt the urge to hug him. But you resisted, first you had to get him to talk. Instead, you grabbed two of the glasses in front of Johnny uncorked the bottle of whisky and poured you one. You took a sip of the burning liquid hoping for some courage to miraculously appear as you watched Johnny silently drinking, too.
Kenny walked by on the way back to his office, judgingly eyeing you.
"Damn, I have to start taking all the booze you're drinking here from your paycheck, (Y/N), slow the fuck down, would you?" he said sighing with one foot already inside. Out of a sudden Johnny snapped.
"Jesus Kenny, don't wet your precious leather pants," he shouted out, slamming his glass on the counter "I'm gonna pay for it! Let a girl enjoy her drink for once" Some heads turned in your direction.
You held still for a second and didn't dare to breathe, afraid of another fight to happen since normally Kenny didn't allow anybody talk to him like that. But he simply shook his head and closed the door behind him, muttering something like "This girl actually has to work here, but whatever" leaving you alone with Johnny.
"You look hot, as always," he said trying to smile, yet the smile didn't reach his sad eyes. He almost looked like he's been crying.
"And you look like shit."
"You mean that?" he gestured at his face noticing your gaze upon his massive black eye. You nodded.
"That's nothing."
"What happened, Johnny?" you asked but he did not answer and just kept on sitting in silence, sipping his drink from time to time. Then, after what seemed like forever, he finally looked you straight in the eyes.
"I fucked up, (Y/N), that's what happened, I fucked up big time."
"Tell me!"
"As if you give two shits about it, you probably wouldn't care. You fucking despise me and my sorry ass."
"I do care!"
“Nah, you wouldn’t!”
You sprung off your seat, you did not expect that coming out of his mouth, also it hurt to hear him say that, because you really did care about him! You probably cared about him more than anything in your life at the moment. But if he was going to be a bitch to you so were you.
“Well, don’t waste my fucking time then!” you exclaimed “And stop annoying everyone that you need to see talk to me instead of fucking off. I can gladly leave you all by yourself so you can keep on pitying yourself. Nice seeing you, jerk!”
And you were about to storm off, go back to pretending to work just like you did every other day when there was nothing else to do, when you instantly heard a “(Y/N), wait!”
You turned around and saw Johnny, now more miserable than ever, showing at your seat inviting you to sit back down. You swallowed your pride and did so.
“I’m sorry,” he said “I just can’t believe that someone would actually give a shit about me at all. And I did want to talk to you, I still do. You’re the only one I want to see right now.” “Then tell me what’s going on.”
“There’s this kid,” he started sighed and stopped, then took another sip of his whisky and began again “I have a dojo in a strip mall, I’m a sensei,” “What’s that?” you blurted out before you could stop yourself and you felt stupid. Johnny looked at you, completely staggered, forgetting his pain for a moment. Proving you that it was in fact a probably very stupid question.
“It’s a Karate place, I teach Karate there.”
“Go on.”
“I have a shit ton of nerds that I teach but they’re mostly good kids, they got bullied a lot before, but I helped them, I showed them how to kick ass, so no one dares to fuck with them anymore. There’s this one kid, Miguel, I’ve been teaching him since the beginning, he actually gave me the idea to open a dojo, he begged me to and he’s a great kid, he really grew on me. He lives next door with his mom and grandma, they’re great people, Mexicans. I even learned a bit of Spanish from them. And I’ve been hanging out a lot with him lately. I really, really liked him.”
He rubbed his eyes and stopped talking.
“What do you mean you liked him?” you asked carefully and studied Johnny’s face that he covered with his hands again.
“There’s more to the story. There’s another dojo in town, fucking Miyagi-Do. Of course, you can’t expect only one dojo to be there in L.A but how I wish that at least that one wouldn’t exist. The sensei is a twat. I fucking hate this guy. And his kids started fighting with my kids at school and not like throwing some punches at each other and leaving it be after somebody starts crying. No, they started a fucking Karate War at school. I mean, I get it, when I was their age I also took Karate way too seriously but letting it go this far? I don’t know, I can’t really understand that. It got out of hand real quick two weeks ago.”
“Fuck, did something bad happen?” you wondered and poured yourself and Johnny another whisky.
He nodded and stared into the distance. You waited for him to answer.
“There was a fight two weeks ago and apparently it got really bad. Miguel got kicked off a balcony at school, he fell two stories deep, spine-first onto a handrail.” You gasped. You school also had problems with fighting, a lot to be precise but as far as you knew, no one got kicked off from somewhere.
“He’s been in a coma now for two weeks and they say that the chances of waking up from a coma after two weeks are pretty miserable. He might as well be dead by now.”
“It’s gonna be fine,” you said although not knowing shit about coma, you just wanted t comfort Johnny. You could not stand seeing him so broken you even wished he would go back to his old nature again, hitting on you, joking and just having a good time “He’s probably going to wake up soon and go back to Karate again.”  
“You don’t know that!” Johnny said raising his voice, “He broke his fucking spine, (Y/N), even if he wakes up, he’s probably going to be crippled for his whole life.”
He took a deep breath and drank his whisky at once, grunting at the burning feeling in his throat.
“And now my own kid is in fucking juvie for kicking Miguel of a railing and he won’t even talk to me!”
“Wait, you have a kid?” you wondered and stared at Johnny wide-eyed, not knowing what else to say, this was surely a surprise for you. And Johnny went on with his rant.
“Yeah, Robby, he’s 17. But that doesn’t matter now, does it? He’s locked up, doesn’t want to hear a word from me, but that’s okay,” his voice was cynical, you could hear how much despised himself right in the moment and it was painful to see.
“I’ve been a shit father anyways, right? Every single day of his life I’ve been failing him. I wasn’t around much. I did nothing to keep him out of trouble. If so, I only made it worse, I only pushed him to train with Miyagi-Do and what happened to Miguel is all on me.” Despite calming himself down with a drink, Johnny’s voice got louder with every word he spoke. Again, heads were turning towards you, but you didn’t care.
“It’s not your fault what happened,” you said calmly and placed a hand on his shoulder, he was so tensed that you might as well have been touching a stone. And Johnny shook your hand of and let out a hateful laugh.
“Not my fault?” he shouted his lungs out “Who else’s fault is it then? Of course, it is mine. It is all on me, I fucked up. I fucked up both Robby’s and Miguel’s lives and on top of that mine’s not that great either. I spent the night in a fucking cell.”
“Calm down, Johnny,” you said softly and finally went in for a hug “It’s going to be okay; I promise!”
“No, it’s not!” he yelled as you wrapped your arms around him tightly pressing yourself against his trembling chest. At first, he let his arms sink and didn’t do anything, he kept on shouting, making even more heads turn towards all the noise, but then suddenly he buried his scrubby face into crook of your neck and sighed, finally placing his hands on your back, finally relaxing, firmly embracing you. You could’ve stayed like that for ever.
“C’mon, (Y/N), get him out of here!”, you suddenly heard Kenny who stood there, arms crossed, watching you, “He’s scaring off the people.”
You released Johnny from your hold who went back to staring down the counter whilst burying his face in his rough hands, just the way you have found him.
“Yeah, alright, I’ll bring him home.”
“Yeah, sure, feel free to come back to work whenever you’re ready, no rush. Or maybe you want to do home office instead?” said Kenny sarcastically and you rolled your eyes.
“C’mon Kenny, I can’t let him go home like this alone, he’ll kill himself on the way. Besides, he’s probably the reason this place still hasn’t gone bankrupt. And I’m the reason he keeps coming, so maybe we owe him that?”
The big biker in front of you didn’t look too happy but he knew you were right, still, he wasn’t that easy to convince.
“Come on,” you said putting on your best puppy eyes, trying to look all cute because you knew the old man liked you deep inside “I’ll do double shift tomorrow, I promise. But just please let me go.”
Kenny stood motionless.
“Please?”
“Alright, alright, I’ll cover for you. But if you don’t come in early tomorrow…” “I know, I know, you’ll fire me” you finished his sentence and smiled at him.
Then you nudged Johnny who was not getting any of the conversation you just had and told him about your plan about getting him home. He stood up and he clearly wasn’t very strong on his feet. He was swaying from side to side on the way out.
“Okay, give me your keys, Johnny,” you said when you arrived at his black dodge. Normally you would have made fun of the yellow stripes and snakes all over, but you weren’t in the mood for it.
“I think I remember you telling me that you don’t have a license anymore and that you’re not willing to get involved into DUIs anymore.” And yet he submissively handed you over his car keys. You shrugged and got in the car, waiting for him to take the shotgun seat.
“I guess we all have to make exceptions sometimes. Now concentrate and lead me the way.”
“Thank you” Johnny said, his voice now all raspy and he suddenly looked tired “Now you are saving my ass.”
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PART 4
Already working on part 4 whether you like it or not, I’m too invested in that one
Sorry to all waiting for their requests to be written, I’ll soon be on it
Thanks for reading!
Taglist: @lililolli​ (you want to be on the taglist, too? drop me a message)
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Post # 6 - It is what it is
I'd be lying if I said I haven't spent the past half an hour with tears flowing from my eyes staring at a blank screen wondering how I'm going to get everything I've got floating in my head out. I suppose listening to Coldplay live in Argentina probably wasn't the best choice of music to set the mood. I'll work on that one in the future...
Where do I start? It's been a question I'm often asking myself at the start of these blog posts and it's certainly not the easiest one. What do you guys know? There's been so much happen since my last post on Thursday night.
Friday July 26th: I saw my doctors around lunchtime who came in quite concerned. Whilst they were confident my lymphoma was one called DLBCL (Diffuse Large B- Cell Lymphoma), some tests had come back with suspect results that it could be a more aggressive and harsh type of lymphoma called Burkitt's lymphoma and if confirmed, chemo was starting that night with no time to waste. There was also one marked in the middle (a cross of the two) called Burkitt's Like Lymphoma which is treated similarly to DLBCL. Whatever it was, I couldn't change it. I just wanted answers and if treatment needed to start, let's get it underway!
Adam, my incredible haematology doctor sent off another test of my gall bladder to finally get the confirmation I was after. It was urgent. He had to know. It was reassuring of Adam to state "Justin, we need to know what this is. Preliminary results are due back later this afternoon and that will hopefully rule out Burkitt's. if it is Burkitt's, we'll start chemo tonight and I'll be with you every step of the way - even if I have to stay back a few hours."
I know doctors earn a fair coin on a lazy day, but how many give you that much confidence that you and your health is important to them? I'm going to have it a guess and say not many but alas, I am so incredibly lucky with the team of doctors I have.
4:00pm and Adam strolls in the door heading straight for my room. My heart drops, similarly to what it had when Michael dropped the news I had lymphoma. "Good news. Preliminary results are back and we're confident it's not Burkitt's. You can't rule out anything in life, so there still is a small chance it could be. We're happy to wait for the final results on Monday, figure out a treatment plan from there and start Chemotherapy next week. Spend Saturday and Sunday on day leave and I'll see you next week."
This was news to my ears. In a time of what has been negative or no news, I could spend the weekend with family relatively freely and forget everything was happening for a few hours each day. My Uncle Bob and Aunty Denise were down from Tasmania to see me, as was my Aunty AJ and cousins from Bairnsdale so it all felt like it fit into place.
Friday night saw me considerably more relaxed with this news...that was until Collingwood started and it was the demolition it was. Slightly humorous side note, the nurse came in around 9pm for my nightly observations. Naturally, my heart rate was up a bit more than normal watching the football (118BPM - normally between 70-85BPM). This caused the nurse to call in the team of doctors who wanted to put me on an ECG machine for the night and monitor my heart. I assured them it was because Collingwood were on and if they gave me an hour, I'd be okay. It took some convincing, but it finally worked. Back they came an hour later and it had gone down - crisis averted.
Saturday afternoon and evening was wonderful. I went down to dads for dinner and was fortunate enough to spend some much needed time with family over a beautiful dinner and good laugh.
Sunday was much the same. I went home, mum did a fair chunk of washing for me as I spent it being me. Seeing Courtney, napping in my own bed and even headed over to Fountain Gate and got some much needed new clothes and other miscellaneous items - something that seems so simple but is such a luxury when you've spent the past 15 days in hospital.
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Monday July 29th: They say the more you think positively, the more positive news you shall receive....or it goes something like that right? I woke up this morning the most upbeat and best I'd felt in weeks. I felt fine. I felt no pain, almost like I'd woken up from a shitty hotel! In all honesty, I felt like I'm abusing the system however I keep being quickly reminded how much I need to be here. Did I wake up so positive because I lived my old life for 16 hours over the weekend? Is it because I was hoping to hear a reasonably positive outcome with this lymphoma test? Probably a mix of both if I'm honest. But whatever it was, I was hopeful.
Adam came around at roughly 10:00am. Didn't really have much for me in terms of news but more of an outline of the day. If they hear the results of the test they were waiting on, they'd write me up a treatment plan ASAP and get chemo started this afternoon. At worst, I'd be starting it tomorrow (Tuesday). They just needed that definitive answer of what type of lymphoma I have - an answer I'd love more than anybody.
Either way, we agreed i'd need a PICC (Peripherally Inserted Central Catheter) line in which basically is a long-term cannula. It runs from the inside of my arm right up and around and stops basically just outside my heart. This is for easy access for the chemotherapy and even an easy exit for blood tests - something that's proven incredibly difficult to take from me over the past few days. Additionally, these lines can last up to six months verses the three days you get from a cannula. There were too many positives to say no to!
This wasn't scheduled for any time in particular, so 1:00pm came around and I was about to be taken to get the PICC line in.
Just as I was about to leave, Adam came in with a few words I'm all too familiar with. "Well, the pathology tests we were waiting on have come back inconclusive..."
Woah. Wait. What? How do tests of my gall bladder that was removed six days ago come back inconclusive? How does one of the main sources not have enough 'data' to tell them what sort of lymphoma I have? I was just stunned.
Adam continued "As a result, we can see some signs of Burkitt's lymphoma and that's what we're going to treat you for. You're young. You should be able to handle it and it's better to over treat you than under treat and be stuck where we are at the moment. It's an intense 16-day chemo treatment that will totally wipe out your red and white blood cells as well as your platelets. We foresee you being in here for another 3-5 weeks, depending on how well your body goes getting these levels back up to normal post this first treatment..."
I honestly say this but that's all I remember from this conversation. I was hoping I'd be heading home this week but looks like that definitely won't be happening. Today marks day 40 of the past 55 days in hospital (day 15 of this stint) and if I go off the longest suggested time expected, I have another 35 days to go. That honestly crushed me.
I got taken down to get my PICC line in - quite an easy process. Very similar to putting in a larger cannula, just a whole lot longer and uses local anaesthetic as well as being guided by an ultrasound and X-ray. I'm lucky enough to have two ports, which will hopefully speed up some of my medication and how much they can pump in. Does it feel weird? The only weird part was feeling it slide down past and near my heart - but that's okay now!
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By the time I return, dad made his was in to try and help process the news. We get Adam in to once again explain the process. In layman's terms, I'll be starting an intense and high-dose 16-day chemotherapy program kicking off tomorrow (Tuesday) morning. Most of the time across the next 16 days, I'll be hooked up via IV drip getting whatever medication is required. I think I saw I have rest days on days 7 & 8 which I suppose will give me two days to look forward to. At the end of the day, it's something I'm not certain on and will be a day by day process and constant learning about what's going into my body to help fight with me.
I do have one request for you all. With my body not producing red or white blood cells or platelets over the next few weeks, I do request if you are planning to visit however are sick to stay away those extra few days. With my immune system going to be at the lowest it's been, I don't particularly want to pick up something I don't need. Additionally, as much as I'd love flowers, they're also banned due to the infection risk of the spores mixing with the chemotherapy and causing some dangerous damage from the inside.
At the end of the day, if you're not sure please message me and check as I'm not entirely sure myself about everything. I'm constantly learning as I'm going.
How am I feeling? I'm nervous. I'm nervous at the unknown. How will this affect me? How bad am I going to feel? Will I lose my hair? What will my energy levels be like? In advance, I do apologise if over the next few weeks I'm not myself. Truth be told, that's because I probably won't be.
In a way, i'm finally excited to start my treatment first thing tomorrow morning (after yet ANOTHER lumbar puncture). I was so envious of both people next to me getting their first rounds of chemo today. I know mine will be intense but I just can't wait.
I've learnt so much about cancer and chemotherapy over the past four days and I know there's so much more to learn. Today I learnt I'll be incredibly highly cytotoxic, which basically means all needles and anything used on me need to go in a separate bin just for me. Additionally, I'll have to get used to the good old double flush after the toilet to ensure all waste is disposed of. Mouth ulcers are a big issue with most chemo patients as well. I'll have to start brushing my teeth after every meal and taking a special mouthwash 3x daily to assist with keeping these under control. There's plenty of other little things, but they're two I least expected.
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Everything really hit me last night....not like it did tonight though. I just had twenty minutes to reflect and it just became a sudden realisation. What I'm going through is real. It's not a 'joke' anymore. It's not something they're looking at as a potential cause. It is the cause. I have a legitimate medical issue and it's finally time to fight lymphoma. All well and good to be talking the talk like I have been - it's now time to walk the walk. This sits well with me. If I give somebody my word, I do whatever I can to get it achieved. Unfortunately for the lymphoma throughout my body I've given it my word and it's time to fight it. Round one begins tomorrow morning.
I leave tonight feeling a whole lot better than I did when I started tonight's post. I didn't learn from my words earlier as Coldplay live from Argentina is still playing however I'm in a much more comfortable mind space.
My best friend of a lazy 20 years, Dylan visited tonight with his partner, Jacqui. One phrase popped up more than most and they made me aware it was a common phrase coming out of my mouth.
"It is what it is."
I can't control what's happened to me as "it is what it is." What I can control from here though is how I fight lymphoma. Thanks for the visit tonight guys, I appreciated the two hours spent here in what's been an incredibly tough afternoon.
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Much love.
Juzz xx
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elizabethsway · 3 years
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I shouldn't be this annoyed but it's like the straw that broke the camel's back.
There has been so much lack of communication at work in regard to management and lack of resolve to matters we bring up to them that this one just set me off.
They are stricked with COVID testing. They fired a bunch of people for not getting mandatory Vaccines. My coworker, Ryan, didn't get the Vac so he applied for religious exemption. They actually bought it so he was told he had to get tested each week.
He chose to test on Saturday for the 72 hour results and tell them he got it Friday so he could get paid OT for getting it done and so he wouldn't have to come into the off on Monday/Tuesday as we are in a hybrid half remote half in person work environment.
We have to fill out these surveys everyday when we come into office but ask us if you're sick or not and one day I was feeling pretty sick in the stomach, I had a sore throat and it earache. When I reported it this woman named Susan, contacted me and told me not to come in until tested.
I told my boss on the 9th that I was not coming into work the following Monday or Tuesday, that I'd be working remote, because Susan told me I was not allowed to come into the building until I got tested and I couldn't get tested until Monday. A.K.A today.
So I thought I was covered that I had told my supervisor I wouldn't be. She had called me later that day on Thursday and ask me how I was feeling and I told her I didn't think it was necessary to get a test because I felt like it was only allergies and she joked and said yeah she thinks that she's permanently sick during winter because of her allergies.
Well on Friday she asked me how I was feeling and I said I'm feeling fine.
However I didn't realize that that was her asking me if I'd got tested and that my tested results came back positive or negative.
So I go through the weekend feeling pretty good. And then my coworker just before bed on Sunday text us and says hey I might not be coming in tomorrow because my covid results haven't come back.
I figured as much and joked with my other coworker that she doesn't have to come in because, our boss had told us seems how there's only us three in office plus her that there wouldn't be a need to come into office if only one of the three of us was there.
My coworker was excited, when Ryan, text it extremely late this morning that he wasn't coming in. So knowing that I wasn't coming in and that he wasn't coming in she didn't come in.
Me knowing that Ryan is in a communicator, I texted my boss and said hey not sure if you've left the house yet but as rahim's not coming in either Rose decided she's not going to come in so you don't need to come into the office today.
She gets pissed and starts ranting at me, saying that I never told her that I wasn't coming into the office.
I copied the team's message and gave it to her and said yes I told you I wasn't coming in. She said you told me you were fine on Friday.
I told her I felt fine but I didn't mean I didn't have to still get my covid testing because they told me I couldn't come in yet.
She proceeds to attack me basically saying that I did not tell her and she and I should have told her on Sunday as well that I wasn't coming in.
Why do I have to tell her multiple times that I'm not coming in is that not enough on Thursday, WTF.
So basically she's blaming me for all of this and I got berated and written up.
I literally need to find a new job. We never had this problem 2 years ago but then when she got a new boss I'm pretty sure there's been some management style changes and I'm not entirely sure what's going on but I definitely know that they don't communicate things well.
So I'm literally going to have to keep over communicating with her every single day whether I'm coming in or not and keep reminding her when I tell her that I'm not coming in that I'm not coming in.
I feel like I have to babysit her and she's my boss. Clearly I'm irritated but I think this was the straw that broke the camel's back because I literally need to find a new job and quit this.
I can't be responsible for informing all of her employees when there are changes made by supervisors which is what she puts on us. They make last minute decisions to do things when we told them they don't work because we've already tried them and they failed miserably.
It's like no matter what we say to them they're not actually listening and then we get in trouble for it later.
I'm about ready to join the Great Resignation.
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